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Erschienen in: Social Psychiatry and Psychiatric Epidemiology 3/2016

24.10.2015 | Original Paper

Illness perception, help-seeking attitudes, and knowledge related to obsessive–compulsive disorder across different ethnic groups: a community survey

verfasst von: Lorena Fernández de la Cruz, Sarah Kolvenbach, Pablo Vidal-Ribas, Amita Jassi, Marta Llorens, Natasha Patel, John Weinman, Stephani L. Hatch, Dinesh Bhugra, David Mataix-Cols

Erschienen in: Social Psychiatry and Psychiatric Epidemiology | Ausgabe 3/2016

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Abstract

Purpose

Despite similar prevalence rates across ethnicities, ethnic minorities with obsessive–compulsive disorder (OCD) are under-represented in research and clinical settings. The reasons for this disproportion have been sparsely studied. We explored potential differences in illness perception, help-seeking attitudes, illness knowledge, and causal attributions that could help explain the lower uptake of treatment for OCD amongst ethnic minorities.

Methods

Two-hundred and ninety-three parents (139 White British, 61 Black African, 46 Black Caribbean, and 47 Indian) were recruited from the general population in South-East London, UK. Using a text vignette methodology, participants completed a survey including questions on illness perception, help-seeking attitudes, OCD knowledge, and causal attributions.

Results

The groups did not differ in socio-demographic characteristics and family history of OCD. White British parents perceived that the OCD difficulties would have more negative impact on their children and that treatment would be more helpful, compared to the ethnic minorities; the largest differences were observed between White British and Indian parents. Ethnic minorities were more prone to say that would seek help from their religious communities. Black African parents were more in favor of not seeking help for the described difficulties and, in general, perceived more treatment barriers. White British parents seemed to be better informed about OCD than ethnic minority parents.

Conclusions

The results offer some plausible explanations for the large inequalities in access to services amongst ethnic minorities with OCD. Clinicians and policy-makers need to be aware of these socio-cultural factors when designing strategies to encourage help-seeking behaviors in these populations.
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Literatur
1.
Zurück zum Zitat Weich S, Nazroo J, Sproston K, McManus S, Blanchard M, Erens B, Karlsen S, King M, Lloyd K, Stansfeld S, Tyrer P (2004) Common mental disorders and ethnicity in England: the EMPIRIC study. Psychol Med 34(8):1543–1551CrossRefPubMed Weich S, Nazroo J, Sproston K, McManus S, Blanchard M, Erens B, Karlsen S, King M, Lloyd K, Stansfeld S, Tyrer P (2004) Common mental disorders and ethnicity in England: the EMPIRIC study. Psychol Med 34(8):1543–1551CrossRefPubMed
2.
Zurück zum Zitat Himle JA, Muroff JR, Taylor RJ, Baser RE, Abelson JM, Hanna GL, Abelson JL, Jackson JS (2008) Obsessive–compulsive disorder among African Americans and blacks of Caribbean descent: results from the National Survey of American Life. Depress Anxiety 25(12):993–1005CrossRefPubMed Himle JA, Muroff JR, Taylor RJ, Baser RE, Abelson JM, Hanna GL, Abelson JL, Jackson JS (2008) Obsessive–compulsive disorder among African Americans and blacks of Caribbean descent: results from the National Survey of American Life. Depress Anxiety 25(12):993–1005CrossRefPubMed
3.
Zurück zum Zitat Sasson Y, Zohar J, Chopra M, Lustig M, Iancu I, Hendler T (1997) Epidemiology of obsessive–compulsive disorder: a world view. J Clin Psychiatry 58(Suppl 12):7–10PubMed Sasson Y, Zohar J, Chopra M, Lustig M, Iancu I, Hendler T (1997) Epidemiology of obsessive–compulsive disorder: a world view. J Clin Psychiatry 58(Suppl 12):7–10PubMed
4.
Zurück zum Zitat Friedman S, Smith LC, Halpern B, Levine C, Paradis C, Viswanathan R, Trappler B, Ackerman R (2003) Obsessive–compulsive disorder in a multi-ethnic urban outpatient clinic: initial presentation and treatment outcome with exposure and ritual prevention. Behav Ther 34(3):397–410CrossRef Friedman S, Smith LC, Halpern B, Levine C, Paradis C, Viswanathan R, Trappler B, Ackerman R (2003) Obsessive–compulsive disorder in a multi-ethnic urban outpatient clinic: initial presentation and treatment outcome with exposure and ritual prevention. Behav Ther 34(3):397–410CrossRef
5.
Zurück zum Zitat Fernández de la Cruz L, Jassi A, Krebs G, Clark B, Mataix-Cols D (2015) Phenomenology and treatment outcomes in children and adolescents from ethnic minorities with obsessive–compulsive disorder. J Obsess Compuls Rela Disord 4:30–36CrossRef Fernández de la Cruz L, Jassi A, Krebs G, Clark B, Mataix-Cols D (2015) Phenomenology and treatment outcomes in children and adolescents from ethnic minorities with obsessive–compulsive disorder. J Obsess Compuls Rela Disord 4:30–36CrossRef
6.
Zurück zum Zitat Williams M, Powers M, Yun YG, Foa E (2010) Minority participation in randomized controlled trials for obsessive–compulsive disorder. J Anxiety Disord 24(2):171–177CrossRefPubMedPubMedCentral Williams M, Powers M, Yun YG, Foa E (2010) Minority participation in randomized controlled trials for obsessive–compulsive disorder. J Anxiety Disord 24(2):171–177CrossRefPubMedPubMedCentral
7.
Zurück zum Zitat Foa EB, Kozak MJ, Goodman WK, Hollander E, Jenike MA, Rasmussen SA (1995) DSM-IV field trial: obsessive–compulsive disorder. Am J Psychiatry 152(1):90–96CrossRefPubMed Foa EB, Kozak MJ, Goodman WK, Hollander E, Jenike MA, Rasmussen SA (1995) DSM-IV field trial: obsessive–compulsive disorder. Am J Psychiatry 152(1):90–96CrossRefPubMed
8.
Zurück zum Zitat Williams MT, Sawyer B, Leonard RC, Ellsworth M, Simms J, Riemann BC (2015) Minority participation in a major residential and intensive outpatient program for obsessive–compulsive disorder. J Obsess Compuls Relat Disord 5:67–75CrossRef Williams MT, Sawyer B, Leonard RC, Ellsworth M, Simms J, Riemann BC (2015) Minority participation in a major residential and intensive outpatient program for obsessive–compulsive disorder. J Obsess Compuls Relat Disord 5:67–75CrossRef
9.
Zurück zum Zitat Fernández de la Cruz L, Llorens M, Jassi A, Krebs G, Vidal-Ribas P, Radua J, Hatch SL, Bhugra D, Heyman I, Clark B, Mataix-Cols D (2015) Ethnic inequalities in the use of secondary and tertiary mental health services amongst patients with obsessive–compulsive disorder. Br J Psychiatry 207(6):523–528CrossRef Fernández de la Cruz L, Llorens M, Jassi A, Krebs G, Vidal-Ribas P, Radua J, Hatch SL, Bhugra D, Heyman I, Clark B, Mataix-Cols D (2015) Ethnic inequalities in the use of secondary and tertiary mental health services amongst patients with obsessive–compulsive disorder. Br J Psychiatry 207(6):523–528CrossRef
10.
Zurück zum Zitat Williams MT, Domanico J, Marques L, Leblanc NJ, Turkheimer E (2012) Barriers to treatment among African Americans with obsessive–compulsive disorder. J Anxiety Disorders 26(4):555–563CrossRef Williams MT, Domanico J, Marques L, Leblanc NJ, Turkheimer E (2012) Barriers to treatment among African Americans with obsessive–compulsive disorder. J Anxiety Disorders 26(4):555–563CrossRef
11.
Zurück zum Zitat Henderson RC, Williams P, Gabbidon J, Farrelly S, Schauman O, Hatch S, Thornicroft G, Bhugra D, Clement S, group Ms (2015) Mistrust of mental health services: ethnicity, hospital admission and unfair treatment. Epidemiol Psychiatr Sci 24 (3):258–265 Henderson RC, Williams P, Gabbidon J, Farrelly S, Schauman O, Hatch S, Thornicroft G, Bhugra D, Clement S, group Ms (2015) Mistrust of mental health services: ethnicity, hospital admission and unfair treatment. Epidemiol Psychiatr Sci 24 (3):258–265
12.
Zurück zum Zitat Suite DH, La Bril R, Primm A, Harrison-Ross P (2007) Beyond misdiagnosis, misunderstanding and mistrust: relevance of the historical perspective in the medical and mental health treatment of people of color. J Natl Med Assoc 99(8):879–885PubMedPubMedCentral Suite DH, La Bril R, Primm A, Harrison-Ross P (2007) Beyond misdiagnosis, misunderstanding and mistrust: relevance of the historical perspective in the medical and mental health treatment of people of color. J Natl Med Assoc 99(8):879–885PubMedPubMedCentral
13.
Zurück zum Zitat U.S. Department of Health and Human Services (2001) Mental health: culture, race, and ethnicity—a supplement to mental health: a report of the surgeon general. U.S. Department of Health and Human Services, Substance Abuse and Mental Health Services Administration. Center for Mental Health Services, Rockville U.S. Department of Health and Human Services (2001) Mental health: culture, race, and ethnicity—a supplement to mental health: a report of the surgeon general. U.S. Department of Health and Human Services, Substance Abuse and Mental Health Services Administration. Center for Mental Health Services, Rockville
14.
Zurück zum Zitat Williams MT, Beckmann-Mendez DA, Turkheimer E (2013) Cultural barriers to African American participation in anxiety disorders research. J Natl Med Assoc 105(1):33–41CrossRefPubMedPubMedCentral Williams MT, Beckmann-Mendez DA, Turkheimer E (2013) Cultural barriers to African American participation in anxiety disorders research. J Natl Med Assoc 105(1):33–41CrossRefPubMedPubMedCentral
15.
Zurück zum Zitat Leventhal H, Diefenbach M, Leventhal EA (1992) Illness cognition—using common-sense to understand treatment adherence and affect cognition interactions. Cognit Ther Res 16(2):143–163CrossRef Leventhal H, Diefenbach M, Leventhal EA (1992) Illness cognition—using common-sense to understand treatment adherence and affect cognition interactions. Cognit Ther Res 16(2):143–163CrossRef
16.
Zurück zum Zitat Hagger MS, Orbell S (2003) A meta-analytic review of the common-sense model of illness representations. Psychol Health 18(2):141–184CrossRef Hagger MS, Orbell S (2003) A meta-analytic review of the common-sense model of illness representations. Psychol Health 18(2):141–184CrossRef
17.
Zurück zum Zitat Leventhal H, Weinman J, Leventhal EA, Phillips LA (2008) Health psychology: the search for pathways between behavior and health. Annu Rev Psychol 59:477–505CrossRefPubMed Leventhal H, Weinman J, Leventhal EA, Phillips LA (2008) Health psychology: the search for pathways between behavior and health. Annu Rev Psychol 59:477–505CrossRefPubMed
18.
Zurück zum Zitat Hunt J, Sullivan G, Chavira DA, Stein MB, Craske MG, Golinelli D, Roy-Byrne PP, Sherbourne CD (2013) Race and beliefs about mental health treatment among anxious primary care patients. J Nerv Ment Dis 201(3):188–195CrossRefPubMedPubMedCentral Hunt J, Sullivan G, Chavira DA, Stein MB, Craske MG, Golinelli D, Roy-Byrne PP, Sherbourne CD (2013) Race and beliefs about mental health treatment among anxious primary care patients. J Nerv Ment Dis 201(3):188–195CrossRefPubMedPubMedCentral
19.
Zurück zum Zitat Brown JS, Casey SJ, Bishop AJ, Prytys M, Whittinger N, Weinman J (2011) How black African and white British women perceive depression and help-seeking: a pilot vignette study. Int J Soc Psychiatry 57(4):362–374CrossRefPubMed Brown JS, Casey SJ, Bishop AJ, Prytys M, Whittinger N, Weinman J (2011) How black African and white British women perceive depression and help-seeking: a pilot vignette study. Int J Soc Psychiatry 57(4):362–374CrossRefPubMed
20.
Zurück zum Zitat Coles ME, Heimberg RG, Weiss BD (2013) The public’s knowledge and beliefs about obsessive compulsive disorder. Depress Anxiety 30(8):778–785CrossRefPubMed Coles ME, Heimberg RG, Weiss BD (2013) The public’s knowledge and beliefs about obsessive compulsive disorder. Depress Anxiety 30(8):778–785CrossRefPubMed
21.
Zurück zum Zitat Thompson VLS, Bazile A, Akbar M (2004) African Americans’ perceptions of psychotherapy and psychotherapists. Prof Psychol Res Pract 35(1):19–26CrossRef Thompson VLS, Bazile A, Akbar M (2004) African Americans’ perceptions of psychotherapy and psychotherapists. Prof Psychol Res Pract 35(1):19–26CrossRef
23.
Zurück zum Zitat Edwards S, Tinning L, Brown JS, Boardman J, Weinman J (2007) Reluctance to seek help and the perception of anxiety and depression in the United kingdom: a pilot vignette study. J Nerv Ment Dis 195(3):258–261CrossRefPubMed Edwards S, Tinning L, Brown JS, Boardman J, Weinman J (2007) Reluctance to seek help and the perception of anxiety and depression in the United kingdom: a pilot vignette study. J Nerv Ment Dis 195(3):258–261CrossRefPubMed
24.
Zurück zum Zitat Moss-Morris R, Weinman J, Petrie K, Horne R, Cameron L, Buick D (2002) The revised illness perception questionnaire (IPQ-R). Psychol Health 17(1):1–16CrossRef Moss-Morris R, Weinman J, Petrie K, Horne R, Cameron L, Buick D (2002) The revised illness perception questionnaire (IPQ-R). Psychol Health 17(1):1–16CrossRef
25.
Zurück zum Zitat Broadbent E, Petrie KJ, Main J, Weinman J (2006) The brief illness perception questionnaire. J Psychosom Res 60(6):631–637CrossRefPubMed Broadbent E, Petrie KJ, Main J, Weinman J (2006) The brief illness perception questionnaire. J Psychosom Res 60(6):631–637CrossRefPubMed
26.
Zurück zum Zitat American Psychiatric Association (2013) The diagnostic and statistical manual of mental disorders, fifth edition (DSM-5). American Psychiatric Association, Washington, DC American Psychiatric Association (2013) The diagnostic and statistical manual of mental disorders, fifth edition (DSM-5). American Psychiatric Association, Washington, DC
27.
Zurück zum Zitat Yeh M, Hough RL, McCabe K, Lau A, Garland A (2004) Parental beliefs about the causes of child problems: exploring racial/ethnic patterns. J Am Acad Child Adolesc Psychiatry 43(5):605–612CrossRefPubMed Yeh M, Hough RL, McCabe K, Lau A, Garland A (2004) Parental beliefs about the causes of child problems: exploring racial/ethnic patterns. J Am Acad Child Adolesc Psychiatry 43(5):605–612CrossRefPubMed
28.
Zurück zum Zitat Bevaart F, Mieloo CL, Donker MC, Jansen W, Raat H, Verhulst FC, van Oort FV (2014) Ethnic differences in problem perception and perceived need as determinants of referral in young children with problem behaviour. Eur Child Adolesc Psychiatry 23(5):273–281PubMed Bevaart F, Mieloo CL, Donker MC, Jansen W, Raat H, Verhulst FC, van Oort FV (2014) Ethnic differences in problem perception and perceived need as determinants of referral in young children with problem behaviour. Eur Child Adolesc Psychiatry 23(5):273–281PubMed
29.
Zurück zum Zitat Hatch SL, Thornicroft G (2012) Report from England I: innovative approaches to reducing mental health disparities related to ethnicity. J Nerv Ment Dis 200(10):843–846CrossRefPubMed Hatch SL, Thornicroft G (2012) Report from England I: innovative approaches to reducing mental health disparities related to ethnicity. J Nerv Ment Dis 200(10):843–846CrossRefPubMed
30.
Zurück zum Zitat Schnittker J (2003) Misgivings of medicine?: African Americans’ skepticism of psychiatric medication. J Health Soc Behav 44(4):506–524CrossRefPubMed Schnittker J (2003) Misgivings of medicine?: African Americans’ skepticism of psychiatric medication. J Health Soc Behav 44(4):506–524CrossRefPubMed
31.
Zurück zum Zitat Givens JL, Houston TK, Van Voorhees BW, Ford DE, Cooper LA (2007) Ethnicity and preferences for depression treatment. Gen Hosp Psychiatry 29(3):182–191CrossRefPubMed Givens JL, Houston TK, Van Voorhees BW, Ford DE, Cooper LA (2007) Ethnicity and preferences for depression treatment. Gen Hosp Psychiatry 29(3):182–191CrossRefPubMed
32.
Zurück zum Zitat Yeh M, McCabe K, Hough RL, Dupuis D, Hazen A (2003) Racial/ethnic differences in parental endorsement of barriers to mental health services for youth. Ment Health Serv Res 5(2):65–77CrossRefPubMed Yeh M, McCabe K, Hough RL, Dupuis D, Hazen A (2003) Racial/ethnic differences in parental endorsement of barriers to mental health services for youth. Ment Health Serv Res 5(2):65–77CrossRefPubMed
33.
Zurück zum Zitat McGorry P (2005) ‘Every me and every you’: responding to the hidden challenge of mental illness in Australia. Australas Psychiatry 13(1):3–15PubMed McGorry P (2005) ‘Every me and every you’: responding to the hidden challenge of mental illness in Australia. Australas Psychiatry 13(1):3–15PubMed
34.
Zurück zum Zitat Yeh M, McCabe K, Hough RL, Lau A, Fakhry F, Garland A (2005) Why bother with beliefs? Examining relationships between race/ethnicity, parental beliefs about causes of child problems, and mental health service use. J Consult Clin Psychol 73(5):800–807CrossRefPubMed Yeh M, McCabe K, Hough RL, Lau A, Fakhry F, Garland A (2005) Why bother with beliefs? Examining relationships between race/ethnicity, parental beliefs about causes of child problems, and mental health service use. J Consult Clin Psychol 73(5):800–807CrossRefPubMed
35.
Zurück zum Zitat Wood PA, Yeh M, Pan D, Lambros KM, McCabe KM, Hough RL (2005) Exploring the relationship between race/ethnicity, age of first school-based services utilization, and age of first specialty mental health care for at-risk youth. Ment Health Serv Res 7(3):185–196CrossRefPubMed Wood PA, Yeh M, Pan D, Lambros KM, McCabe KM, Hough RL (2005) Exploring the relationship between race/ethnicity, age of first school-based services utilization, and age of first specialty mental health care for at-risk youth. Ment Health Serv Res 7(3):185–196CrossRefPubMed
36.
Zurück zum Zitat Rathod S, Kingdon D, Phiri P, Gobbi M (2010) Developing culturally sensitive cognitive behaviour therapy for psychosis for ethnic minority patients by exploration and incorporation of service users’ and health professionals’ views and opinions. Behav Cogn Psychother 38(5):511–533CrossRefPubMed Rathod S, Kingdon D, Phiri P, Gobbi M (2010) Developing culturally sensitive cognitive behaviour therapy for psychosis for ethnic minority patients by exploration and incorporation of service users’ and health professionals’ views and opinions. Behav Cogn Psychother 38(5):511–533CrossRefPubMed
Metadaten
Titel
Illness perception, help-seeking attitudes, and knowledge related to obsessive–compulsive disorder across different ethnic groups: a community survey
verfasst von
Lorena Fernández de la Cruz
Sarah Kolvenbach
Pablo Vidal-Ribas
Amita Jassi
Marta Llorens
Natasha Patel
John Weinman
Stephani L. Hatch
Dinesh Bhugra
David Mataix-Cols
Publikationsdatum
24.10.2015
Verlag
Springer Berlin Heidelberg
Erschienen in
Social Psychiatry and Psychiatric Epidemiology / Ausgabe 3/2016
Print ISSN: 0933-7954
Elektronische ISSN: 1433-9285
DOI
https://doi.org/10.1007/s00127-015-1144-9

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