Skip to main content

01.12.2018 | Research article | Ausgabe 1/2018 Open Access

BMC Pediatrics 1/2018

A formative study exploring perceptions of physical activity and physical activity monitoring among children and young people with cystic fibrosis and health care professionals

BMC Pediatrics > Ausgabe 1/2018
James Shelley, Stuart J Fairclough, Zoe R Knowles, Kevin W Southern, Pamela McCormack, Ellen A Dawson, Lee E F Graves, Claire Hanlon
Wichtige Hinweise

Electronic supplementary material

The online version of this article (https://​doi.​org/​10.​1186/​s12887-018-1301-x) contains supplementary material, which is available to authorized users.



Physical activity (PA) is associated with reduced hospitalisations and maintenance of lung function in patients with Cystic Fibrosis (CF). PA is therefore recommended as part of standard care. Despite this, there is no consensus for monitoring of PA and little is known about perceptions of PA monitoring among children and young people with CF. Therefore, the research aimed to explore patients’ perceptions of PA and the acceptability of using PA monitoring devices with children and young people with CF.


An action research approach was utilised, whereby findings from earlier research phases informed subsequent phases. Four phases were utilised, including patient interviews, PA monitoring, follow-up patient interviews and health care professional (HCP) interviews. Subsequently, an expert panel discussed the study to develop recommendations for practice and future research.


Findings suggest that experiences of PA in children and young people with CF are largely comparable to their non-CF peers, with individuals engaging in a variety of activities. CF was not perceived as a barrier per se, although participants acknowledged that they could be limited by their symptoms. Maintenance of health emerged as a key facilitator, in some cases PA offered patients the opportunity to ‘normalise’ their condition.
Participants reported enjoying wearing the monitoring devices and had good compliance. Wrist-worn devices and devices providing feedback were preferred. HCPs recognised the potential benefits of the devices in clinical practice.
Recommendations based on these findings are that interventions to promote PA in children and young people with CF should be individualised and involve families to promote PA as part of an active lifestyle. Patients should receive support alongside the PA data obtained from monitoring devices.


PA monitoring devices appear to be an acceptable method for objective assessment of PA among children and young people with CF and their clinicians. Wrist-worn devices, which are unobtrusive and can display feedback, were perceived as most acceptable. By understanding the factors impacting PA, CF health professionals will be better placed to support patients and improve health outcomes.
Über diesen Artikel

Weitere Artikel der Ausgabe 1/2018

BMC Pediatrics 1/2018 Zur Ausgabe

Neu im Fachgebiet Pädiatrie

Meistgelesene Bücher aus dem Fachgebiet

2014 | Buch

Pädiatrische Notfall- und Intensivmedizin

Wenn es um pädiatrische Notfälle auf Station oder um schwerst kranke Kinder auf der Intensivstation geht, ist dieses Buch ein verlässlicher Begleiter. Übersichtlich nach Organen eingeteilt, enthält das Kitteltaschenbuch sämtliche essenziellen Themen der Kinderintensivmedizin, von kardiozirkulatorischen bis infektiologischen Erkrankungen.

Prof. Dr. Thomas Nicolai

2015 | Buch

Häufige Hautkrankheiten im Kindesalter

Klinik - Diagnose - Therapie

Das Buch bietet für die 30 häufigsten Hauterkrankungen bei Kindern einen Diagnose- und Behandlungsfahrplan: Für jede Erkrankung gibt es präzise Texte, zahlreiche typische klinische Farbfotos sowie Tabellen zu Differentialdiagnosen und zum therapeutischen Prozedere. Für alle Ärzte, die Kinder mit Hauterkrankungen behandeln! 

Dietrich Abeck, Hansjörg Cremer

Mail Icon II Newsletter

Bestellen Sie unseren kostenlosen Newsletter Update Pädiatrie und bleiben Sie gut informiert – ganz bequem per eMail.