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Erschienen in: Journal of Genetic Counseling 4/2017

29.12.2016 | Original Research

A Qualitative Study of Factors Influencing Decision-Making after Prenatal Diagnosis of down Syndrome

verfasst von: Amy R. Reed, Kathryn L. Berrier

Erschienen in: Journal of Genetic Counseling | Ausgabe 4/2017

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Abstract

Previous research has identified twenty-six factors that may affect pregnancy management decisions following prenatal diagnosis of DS; however, there is no consensus about the relative importance or effects of these factors. In order to better understand patient decision-making, we conducted expansive cognitive interviews with nine former patients who received a prenatal diagnosis of DS. Our results suggest that patients attached unique meanings to factors influencing decision-making regardless of the pregnancy outcome. Nineteen of the twenty-six factors previously studied and four novel factors (rationale for testing, information quality, pregnancy experience, and perception of parenting abilities and goals) were found to be important to decision-making. We argue that qualitative studies can help characterize the complexity of decision-making following prenatal diagnosis of DS.
Fußnoten
1
All participants in our study received genetic counseling at the time of diagnosis, so this particular factor may not be relevant to our study.
 
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Metadaten
Titel
A Qualitative Study of Factors Influencing Decision-Making after Prenatal Diagnosis of down Syndrome
verfasst von
Amy R. Reed
Kathryn L. Berrier
Publikationsdatum
29.12.2016
Verlag
Springer US
Erschienen in
Journal of Genetic Counseling / Ausgabe 4/2017
Print ISSN: 1059-7700
Elektronische ISSN: 1573-3599
DOI
https://doi.org/10.1007/s10897-016-0061-8

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