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02.03.2018 | Original Article

Attitudes and experiences of childhood cancer survivors transitioning from pediatric care to adult care

verfasst von: Beeshman S. Nandakumar, Joanna E. Fardell, Claire E. Wakefield, Christina Signorelli, Jordana K. McLoone, Jane Skeen, Ann M. Maguire, Richard J. Cohn, on behalf of the ANZCHOG Survivorship Study Group

Erschienen in: Supportive Care in Cancer | Ausgabe 8/2018

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Abstract

Purpose

Survivors of pediatric cancer are prone to late effects which require ongoing medical care. Young adult survivors often transition from specialist pediatric care to adult-oriented or community-based healthcare. This study aims to describe the attitudes and experiences of survivors and their parents towards transition barriers and enablers.

Methods

Long-term survivors and parents (of survivors < 16 years) were recruited from 11 hospitals in Australia and New Zealand to participate in a semi-structured telephone interview regarding their transition experiences. Transcribed interviews were coded and content analysis was used to number participants within themes.

Results

Thirty-three participants were interviewed, of which 18 were survivors (mean age 26 years, SD = 6.3; mean time since treatment completion 13.3 years, SD = 6.1) and 15 were parents (mean survivor age 15 years, SD = 1.9; mean time since treatment completion 8.4 years, SD = 2.8). Participants described their transition attitudes as positive (55%), neutral (15%), or negative (30%). Key barriers to transition included dependence on pediatric healthcare providers, less confidence in primary care physicians (PCPs), inadequate communication, and cognitive difficulty. Enablers included confidence in and proximity to physicians, good communication, information, independence, and age.

Conclusions

Many survivors face barriers to their transition out of pediatric care. Early introduction to transition, greater collaboration between healthcare professionals, and better information provision to survivors may improve the transition process. Future research of survivors’ experience of barriers/enablers to transition is needed. Development of interventions, such as those that address self-management skills, is required to facilitate transition and encourage long-term engagement.

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Titel: Attitudes and experiences of childhood cancer survivors transitioning from pediatric care to adult care
verfasst von: Beeshman S. Nandakumar
Joanna E. Fardell
Claire E. Wakefield
Christina Signorelli
Jordana K. McLoone
Jane Skeen
Ann M. Maguire
Richard J. Cohn
on behalf of the ANZCHOG Survivorship Study Group
Publikationsdatum: 02.03.2018
Verlag: Springer Berlin Heidelberg
Erschienen in: Supportive Care in Cancer / Ausgabe 8/2018
Print ISSN: 0941-4355
Elektronische ISSN: 1433-7339
DOI: https://doi.org/10.1007/s00520-018-4077-5

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Attitudes and experiences of childhood cancer survivors transitioning from pediatric care to adult care

Abstract

Purpose

Methods

Results

Conclusions

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Live-Webinar: Aktuelle Leitlinien bei Herz-Kreislauf-Erkrankungen

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Abstract

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Methods

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