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11.05.2023 | ORIGINAL PAPER

Between Life and Death: How do Muslim Terminal Patients in Pakistan cope with Hepatitis C utilizing their Beliefs and Social Support?

verfasst von: Akhlaq Ahmad, Muhammad Asim, Nazia Malik, Muhammad Rizwan Safdar, Falak Sher, Malik Muhammad Sohail

Erschienen in: Journal of Religion and Health | Ausgabe 5/2024

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Abstract

Life-threatening events including terminal illness intensify the search for meaning and incite individuals to get closer to religion. Terminal patients can often find religious practices as helpful as medical therapy for bettering both physical and mental health. The present research aims to explain the interaction between religion, spirituality, and social support in coping with terminal illness among Muslim hepatitis C patients in Pakistan. A semi-structured open-ended interview guide was utilized to collect the data. Participants expressed that the deployment of religious and spiritual beliefs along with socio-emotional support during illness fostered medical therapy. Participants also revealed that belief in God provided them the strength to be steadfast during the terminal stage of the disease. Religious beliefs enabled terminal participants to accept death as an eventual reality and a normal part of their lives. Furthermore, participants put forward their longing for those kinds of religious practices that terminal diseases usually restrained them from receiving. The emotional support stemming from social relationships also improved resilience to cope with the terminal stage of illness. The study concludes that the interplay of religion, spirituality, and social support normalizes the fear of death, lessens pain, and improves resilience among Muslim hepatitis C patients in Pakistan.

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Adedimeji, A. A., Alawode, O. O., & Odutolu, O. (2010). Impact of care and social support on wellbeing among people living with HIV/AIDS in Nigeria. Iranian Journal of Public Health, 39(2), 30–38.PubMedPubMedCentral

Aflakseir, A., & Mahdiyar, M. (2016). The role of religious coping strategies in predicting depression among a sample of women with fertility problems in Shiraz. Journal of Reproduction & Infertility, 17(2), 117–122.

Ahaddour, C., & Broeckaert, B. (2018). “For every illness there is a cure”: Attitudes and beliefs of Moroccan Muslim women regarding health, illness and medicine. Journal of Religion and Health, 57(4), 1285–1303. https://doi.org/10.1007/s10943-017-0466-1CrossRefPubMed

Ahsan, A., Khan, A. Z., Javed, H., Mirza, S., Chaudhary, S. U., & Shahzad-ul-Hussan, S. (2019). Estimation of hepatitis C prevalence in the Punjab province of Pakistan: A retrospective study on general population. PLoS ONE, 14(4), 1–12. https://doi.org/10.1371/journal.pone.0214435CrossRef

Akers, G. (2008). On death and dying: Counseling the terminally ill client and the loved ones left behind. Estate Planning & Community Property Law Journal, 1(1), 1–60.

Ano, G. G., & Vasconcelles, E. B. (2005). Religious coping and psychological adjustment to stress: A meta-analysis. Journal of Clinical Psychology, 61(4), 461–480. https://doi.org/10.1002/jclp.20049CrossRefPubMed

Asgeirsdottir, G. H., Sigurbjörnsson, E., Traustadottir, R., Sigurdardottir, V., Gunnarsdottir, S., & Kelly, E. (2013). “To Cherish Each Day as it Comes”: A qualitative study of spirituality among persons receiving palliative care. Supportive Care in Cancer, 21(5), 1445–1451. https://doi.org/10.1007/s00520-012-1690-6CrossRefPubMed

Asim, M., Ahmed, Z. H., Nichols, A. R., Rickman, R., Neiterman, E., Mahmood, A., & Widen, E. M. (2021). What stops us from eating: A qualitative investigation of dietary barriers during pregnancy in Punjab. Pakistan. Public Health Nutrition, 25(3), 760–769. https://doi.org/10.1017/S1368980021001737CrossRefPubMed

Balboni, M. J., Puchalski, C. M., & Peteet, J. R. (2014). The relationship between medicine, spirituality and religion: Three models for integration. Journal of Religion and Health, 53(5), 1586–1598. https://doi.org/10.1007/s10943-014-9901-8CrossRefPubMed

Banning, M., & Hafeez, H. (2010). A two-center study of Muslim women’s views of breast cancer and breast health practices in Pakistan and the UK. Journal of Cancer Education, 25(3), 349–353. https://doi.org/10.1007/s13187-010-0051-8CrossRefPubMed

Bobakova, D., Veselska, Z. D., Babinska, I., Klein, D., Geckova, A. M., & Cislakova, L. (2015). Differences between Roma and non-Roma in how social support from family and friends helps to overcome health care accessibility problems. International Journal for Equity in Health, 14(1), 1–9. https://doi.org/10.1186/s12939-015-0165-zCrossRef

Borgmann, L. S., Rattay, P., & Lampert, T. (2017). Social support as a health resource in Germany. Journal of Health Monitoring, 2(4), 110–115. https://doi.org/10.17886/RKI-GBE-2017-131CrossRefPubMedPubMedCentral

Bradley, S. E. K., Croft, T. N., Fishel, J. D., & Westoff, C. F. (2017). Revising unmet need for family planning. DHS analytical studies no. 25. Calverton, Maryland, USA: ICF International; 2012. https://dhsprogram.com/publications/publication-as25-analytical-studies.cfm

Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. https://doi.org/10.1191/1478088706qp063oaCrossRef

Bredle, J. M., Salsman, J. M., Debb, S. M., Arnold, B. J., & Cella, D. (2011). Spiritual well-being as a component of health-related quality of life: The functional assessment of chronic illness therapy—spiritual well-being scale (FACIT-Sp). Religions, 2(1), 77–94. https://doi.org/10.3390/rel2010077CrossRef

Charkhian, A., Fekrazad, H., Sajadi, H., Rahgozar, M., Abdolbaghi, M. H., & Maddahi, S. (2014). Relationship between health-related quality of life and social support in HIV-infected people in Tehran, Iran. Iranian Journal of Public Health, 43(1), 100–106.PubMedPubMedCentral

Cummings, J. P., & Pargament, K. I. (2010). Medicine for the spirit: Religious coping in individuals with medical conditions. Religions, 1(1), 28–53. https://doi.org/10.3390/rel1010028CrossRef

Darby, K., Nash, P., & Nash, S. (2014). Parents’ spiritual and religious needs in young oncology. Cancer Nursing Practice, 13(4), 16–22.CrossRef

Dedeli, O., & Kaptan, G. (2013). Spirituality and religion in pain and pain management. Health Psychology Research, 1(3), 154–159. https://doi.org/10.4081/hpr.2013.e29CrossRef

Dehdari, T., Heidarnia, A., Ramezankhani, A., Sadeghian, S. A., & Ghofranipour, F. (2008). Anxiety, self efcacy expectation and social support in patients after coronary angioplasty and coronary bypass. Iranian Journal of Public Health, 37(4), 119–125.

Dobríková, P., Pčolková, D., AlTurabi, L. K., & West, D. J., Jr. (2015). The effect of social support and meaning of life on the quality-of-life care for terminally ill patients. American Journal of Hospice and Palliative Medicine, 32(7), 767–771. https://doi.org/10.1177/1049909114546208CrossRefPubMed

Dowsett, L. E., Coward, S., Lorenzetti, D. L., MacKean, G., & Clement, F. (2017). Living with hepatitis C virus: A systematic review and narrative synthesis of qualitative literature. Canadian Journal of Gastroenterology and Hepatology, 1(2017), 1–11. https://doi.org/10.1155/2017/3268650CrossRef

Fisher, J. (2011). The four domains model: Connecting spirituality, health and well-being. Religions, 2(1), 17–28. https://doi.org/10.3390/rel2010017CrossRef

Garssen, B., Uwland-Sikkema, N. F., & Visser, A. (2015). How spirituality helps cancer patients with the adjustment to their disease. Journal of Religion and Health, 54(4), 1249–1265. https://doi.org/10.1007/s10943-014-9864-9CrossRefPubMed

Guy, M., & Stern, T. A. (2006). The desire for death in the setting of terminal illness: A case discussion. Primary Care Companion to the Journal of Clinical Psychiatry, 8(5), 299–305. https://doi.org/10.4088/pcc.v08n0507CrossRefPubMedPubMedCentral

Hammoudeh, D., Coast, E., Lewis, D., van der Meulen, Y., Leone, T., & Giacaman, R. (2017). Age of despair or age of hope? Palestinian women’s perspectives on midlife health. Social Science & Medicine, 184, 108–115. https://doi.org/10.1016/j.socscimed.2017.05.028CrossRef

Hefti, R. (2011). Integrating religion and spirituality into mental health care, psychiatry and psychotherapy. Religions, 2(4), 611–627. https://doi.org/10.3390/rel2040611CrossRef

Holt-Lunstad, J., Smith, T. B., & Layton, J. B. (2010). Social relationships and mortality risk: A meta-analytic review. PLoS Medicine, 7(7), 1–19. https://doi.org/10.1371/journal.pmed.1000316CrossRef

Irajpur, A., & Moghimiyan, M. (2018). Dimensions of the spiritual needs of Muslim chronic patients: A qualitative study. Journal of Muslim Mental Health, 12(2), 29–43. https://doi.org/10.3998/jmmh.10381607.0012.203CrossRef

Khan, N., Ali, F., Bahadar, S., Ur Rahman, K., Aziz, A., Ul Akbar, N., Daud, M., Hayat, A., & UrRehman, M. (2017). Prevalence of hepatitis B viral infection in Punjab Province of Pakistan. Pakistan Journal of Zoology, 49(4), 1511–1513. https://doi.org/10.17582/journal.pjz/2017.49.4.sc4CrossRef

Kirchoff, R. W., Tata, B., McHugh, J., Kingsley, T., Burton, M. C., Manning, D., Lapid, M., & Chaudhary, R. (2021). Spiritual care of inpatients focusing on outcomes and the role of chaplaincy services: A systematic review. Journal of Religion and Health, 60(2), 1406–1422. https://doi.org/10.1007/s10943-021-01191-zCrossRefPubMed

Koenig, H. G. (2004). Religion, spirituality, and medicine: research findings and implications for clinical practice. Southern Medical Journal, 97(12), 1194–1200.CrossRefPubMed

Koenig, H. G., & Al-Shohaib, S. (2016). Health and well-being in Islamic societies: Background, research and applications (pp. 197–214). Springer. https://doi.org/10.1007/978-3-319-05873-3CrossRef

Koenig, H. G., Larson, D. B., & Larson, S. S. (2001). Religion and coping with serious medical illness. Annals of Pharmacotherapy, 35(3), 352–359. https://doi.org/10.1345/aph.10215CrossRefPubMed

Kolva, E., Rosenfeld, B., Pessin, H., Breitbart, W., & Brescia, R. (2011). Anxiety in terminally ill cancer patients. Journal of Pain and Symptom Management, 42(5), 691–701. https://doi.org/10.1016/j.jpainsymman.2011.01.013CrossRefPubMedPubMedCentral

Krause, N. (2010). Religious involvement, humility, and self-rated health. Social Indicators Research, 98(1), 23–39. https://doi.org/10.1007/s11205-009-9514-xCrossRefPubMedPubMedCentral

Krok, D. (2014). Religiousness and social support as predictive factors for mental health outcomes. Archives of Psychiatry and Psychotherapy, 4(16), 65–76. https://doi.org/10.12740/APP/31319CrossRef

Kyota, A., & Kanda, K. (2019). How to come to terms with facing death: A qualitative study examining the experiences of patients with terminal Cancer. BMC Palliative Care, 18(1), 1–10. https://doi.org/10.1186/s12904-019-0417-6CrossRef

López-Sierra, H. E., & Rodríguez-Sánchez, J. (2015). The supportive roles of religion and spirituality in end-of-life and palliative care of patients with cancer in a culturally diverse context: A literature review. Current Opinion in Supportive and Palliative Care, 9(1), 87–95. https://doi.org/10.1097/SPC.0000000000000119CrossRefPubMed

Lugton, J. (1997). The nature of social support as experienced by women treated for breast cancer. Journal of Advanced Nursing, 25(6), 1184–1191. https://doi.org/10.1046/j.1365-2648.1997.19970251184.xCrossRefPubMed

Lun, V.M.-C., & Bond, M. H. (2013). Examining the relation of religion and spirituality to subjective well-being across national cultures. Psychology of Religion and Spirituality, 5(4), 304–315. https://doi.org/10.1037/a0033641CrossRef

McClain, C. S., Rosenfeld, B., & Breitbart, W. (2003). Effect of spiritual well-being on end-of-life despair in terminally-ill cancer patients. The Lancet, 361(9369), 1603–1607. https://doi.org/10.1016/S0140-6736(03)13310-7CrossRef

McGrath, P. (2003). Religiosity and the challenge of terminal illness. Death Studies, 27(10), 881–899. https://doi.org/10.1080/716100343CrossRefPubMed

Moreira-Almeida, A., Lotufo Neto, F., & Koenig, H. G. (2006). Religiousness and mental health: A review. Brazilian Journal of Psychiatry, 28(3), 242–250. https://doi.org/10.1590/S1516-44462006005000006CrossRefPubMed

Nichols, M. L. (1995). Social support and coping in young adolescents with cancer. Pediatric Nursing, 21(3), 235–240.PubMed

Pargament, K. I., McCarthy, S., Shah, P., Ano, G., Tarakeshwar, N., Wachholtz, A., Sirrine, N., Vasconcelles, E., Murray-Swank, N., Locher, A., & Duggan, J. (2004). Religion and HIV: A review of the literature and clinical implications. Southern Medical Journal, 97(12), 1201–1210. https://doi.org/10.1097/01.smj.0000146508.14898.e2CrossRefPubMed

Park, J., Kitayama, S., Karasawa, M., Curhan, K., Markus, H. R., Kawakami, N., Miyamoto, Y., Love, G. D., Coe, C. L., & Ryff, C. D. (2013). Clarifying the links between social support and health: Culture, stress, and neuroticism matter. Journal of Health Psychology, 18(2), 226–235. https://doi.org/10.1177/1359105312439731CrossRefPubMed

Richardson, P. (2014). Spirituality, religion and palliative care. Annals of Palliative Medicine, 3(3), 150–159. https://doi.org/10.3978/j.issn.2224-5820.2014.07.05CrossRefPubMed

Sabry, W. M., & Vohra, A. (2013). Role of Islam in the management of psychiatric disorders. Indian Journal of Psychiatry, 55, 1–16. https://doi.org/10.4103/0019-5545.105534CrossRef

Sarhill, N., LeGrand, S., Islambouli, R., Davis, M. P., & Walsh, D. (2001). The terminally ill Muslim: Death and dying from the Muslim perspective. American Journal of Hospice and Palliative Medicine, 18(4), 251–255. https://doi.org/10.1177/104990910101800409CrossRefPubMed

Schumaker, J. F. (1992). Mental health consequences of irreligion. Religion and Mental Health, 54–69. https://psycnet.apa.org/record/1992-98811-003

Shreve-Neiger, A. K., & Edelstein, B. A. (2004). Religion and anxiety: A critical review of the literature. Clinical Psychology Review, 24(4), 379–397. https://doi.org/10.1016/j.cpr.2004.02.003CrossRefPubMed

Simão, T. P., Caldeira, S., & De Carvalho, E. C. (2016). The effect of prayer on patients’ health: Systematic literature review. Religions, 7(11), 1–11. https://doi.org/10.3390/rel7010011CrossRef

Singaram, V. S., & Saradaprabhananda, S. (2021). Cultural thanatology: An exploration of the religious, spiritual, and existential concerns of elderly terminally-ill diasporic Hindus. Journal of Religion, Spirituality & Aging, 33(3), 311–331. https://doi.org/10.1080/15528030.2020.1757011CrossRef

Sohail, M. M. (2020). Belief in God’s help during hepatitis C: A qualitative study on Muslim patients in Pakistan. Journal of Religion and Health, 59(2), 928–945. https://doi.org/10.1007/s10943-018-0700-5CrossRefPubMed

Tan, M. (2007). Social support and coping in Turkish patients with cancer. Cancer Nursing, 30(6), 498–504. https://doi.org/10.1097/01.NCC.0000300158.60273.baCrossRefPubMed

Tarakeshwar, N., Vanderwerker, L. C., Paulk, E., Pearce, M. J., Kasl, S. V., & Prigerson, H. G. (2006). Religious coping is associated with the quality of life of patients with advanced cancer. Journal of Palliative Medicine, 9(3), 646–657. https://doi.org/10.1089/jpm.2006.9.646CrossRefPubMed

Uchino, B. N. (2006). Social support and health: A review of physiological processes potentially underlying links to disease outcomes. Journal of Behavioral Medicine, 29(4), 377–387. https://doi.org/10.1007/s10865-006-9056-5CrossRefPubMed

Unantenne, N., Warren, N., Canaway, R., & Manderson, L. (2013). The strength to cope: Spirituality and faith in chronic disease. Journal of Religion and Health, 52(4), 1147–1161. https://doi.org/10.1007/s10943-011-9554-9CrossRefPubMed

Usta, Y. Y. (2012). Importance of social support in cancer patients. Asian Pacific Journal of Cancer Prevention, 13(8), 3569–3572. https://doi.org/10.7314/apjcp.2012.13.8.3569CrossRefPubMed

Valcanti, C. C., Chaves, É. D., Mesquita, A. C., Nogueira, D. A., & de Carvalho, E. C. (2012). Religious/spiritual coping in people with chronic kidney disease undergoing hemodialysis. Revista Da Escola De Enfermagem Da USP, 46(4), 838–845. https://doi.org/10.7314/APJCP.2012.13.8.3569CrossRef

Widera, E., & Block, S. D. (2012). Managing grief and depression at the end of life. American Family Physician, 86(3), 259–264.PubMed

Williams, D. R., & Sternthal, M. J. (2007). Spirituality, religion and health: Evidence and research directions. The Medical Journal of Australia, 186(S10), 47–50. https://doi.org/10.5694/j.1326-5377.2007.tb01040.xCrossRef

Yoon, D. P., & Lee, E.-K.O. (2006). The impact of religiousness, spirituality, and social support on psychological well-being among older adults in rural areas. Journal of Gerontological Social Work, 48(3–4), 281–298. https://doi.org/10.1300/J083v48n03_01CrossRef

Zimmer, Z., Jagger, C., Chiu, C. T., Ofstedal, M. B., Rojo, F., & Saito, Y. (2016). Spirituality, religiosity, aging and health in global perspective: A review. SSM-Population Health, 2, 373–381. https://doi.org/10.1016/j.ssmph.2016.04.009CrossRefPubMedPubMedCentral

Titel: Between Life and Death: How do Muslim Terminal Patients in Pakistan cope with Hepatitis C utilizing their Beliefs and Social Support?
verfasst von: Akhlaq Ahmad
Muhammad Asim
Nazia Malik
Muhammad Rizwan Safdar
Falak Sher
Malik Muhammad Sohail
Publikationsdatum: 11.05.2023
Verlag: Springer US
Erschienen in: Journal of Religion and Health / Ausgabe 5/2024
Print ISSN: 0022-4197
Elektronische ISSN: 1573-6571
DOI: https://doi.org/10.1007/s10943-023-01828-1

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