Ausgabe 1/2015
Inhalt (75 Artikel)
Initial development and psychometric testing of an instrument to measure the quality of children’s end-of-life care
Kimberley Widger, Ann E Tourangeau, Rose Steele, David L Streiner
Trends in receiving chemotherapy for advanced cancer patients at the end of life
Hee Seung Lee, Kyeong Hyeon Chun, Dochang Moon, Hahn Kyu yeon, Sanghoon Lee, SooHyeon Lee
Palliative sedation for terminally ill cancer patients in a tertiary cancer center in Shanghai, China
Xiaoli Gu, Wenwu Cheng, Menglei Chen, Minghui Liu, Zhe Zhang
The effect of caregiving on bereavement outcome: study protocol for a longitudinal, prospective study
Lauren J Breen, Samar M Aoun, Moira O’Connor
Going back to home to die: does it make a difference to patient survival?
Nozomu Murakami, Kouichi Tanabe, Tatsuya Morita, Shinichi Kadoya, Masanari Shimada, Kaname Ishiguro, Naoki Endo, Koichiro Sawada, Yasunaga Fujikawa, Rumi Takashima, Yoko Amemiya, Hiroyuki Iida, Shiro Koseki, Hatsuna Yasuda, Tatsuhiko Kashii
Care of the human spirit and the role of dignity therapy: a systematic review of dignity therapy research
George Fitchett, Linda Emanuel, George Handzo, Lara Boyken, Diana J Wilkie
The dignified approach to care: a pilot study using the patient dignity question as an intervention to enhance dignity and person-centred care for people with palliative care needs in the acute hospital setting
Bridget Johnston, Jan Pringle, Marion Gaffney, Melanie Narayanasamy, Margaret McGuire, Deans Buchanan
What do I do? Developing a taxonomy of chaplaincy activities and interventions for spiritual care in intensive care unit palliative care
Kevin Massey, Marilyn JD Barnes, Dana Villines, Julie D Goldstein, Anna Lee Hisey Pierson, Cheryl Scherer, Betty Vander Laan, Wm Thomas Summerfelt
Determinants of care outcomes for patients who die in hospital in Ireland: a retrospective study
Kieran McKeown, Trutz Haase, Jonathan Pratschke, Shelagh Twomey, Helen Donovan, Feline Engling
Transcending differences to study the transcendent: an exploratory study of researchers’ and chaplains’ reflections on interdisciplinary spiritual care research collaboration
Richard A Powell, Linda Emanuel, George Handzo, John Lantos, Laura B Dunn, Ellen L Idler, Diane J Wilkie, Kevin Massey, William T Summerfelt, Marilyn JD Barnes, Tammie E Quest, Allison Kestenbaum, Karen Steinhauser, George Fitchett, Angelika Zollfrank, Annette K Olsen, Tracy A Balboni, Dane Sommer
Exploring meanings of illness causation among those severely affected by multiple sclerosis: a comparative qualitative study of Black Caribbean and White British people
Jonathan Koffman, Cassie Goddard, Wei Gao, Diana Jackson, Pauline Shaw, Rachel Burman, Irene J Higginson, Eli Silber
General practitioners perceptions on advance care planning for patients living with dementia
Kevin Brazil, Gillian Carter, Karen Galway, Max Watson, Jenny T van der Steen
Current advance care planning practice in the Australian community: an online survey of home care package case managers and service managers
Marcus Sellars, Karen M Detering, William Silvester
Delivering and participating in a psycho-educational intervention for family caregivers during palliative home care: a qualitative study from the perspectives of health professionals and family caregivers
Maja Holm, Ida Carlander, Carl-Johan Fürst, Yvonne Wengström, Kristofer Årestedt, Joakim Öhlen, Anette Henriksson
Moving towards an enhanced community palliative support service (EnComPaSS): protocol for a mixed method study
Steven M Arris, Deborah A Fitzsimmons, Susan Mawson
The application of the palliative prognostic index, charlson comorbidity index, and Glasgow prognostic score in predicting the life expectancy of patients with hematologic malignancies under palliative care
Wen-Chi Chou, Chen-Yi Kao, Po-Nan Wang, Hung Chang, Hung-Ming Wang, Pei-Hung Chang, Kun-Yun Yeh, Yu-Shin Hung
What information do parents need when facing end-of-life decisions for their child? A meta-synthesis of parental feedback
Vicki Xafis, Dominic Wilkinson, Jane Sullivan
“Taking your place at the table”: an autoethnographic study of chaplains’ participation on an interdisciplinary research team
Allison Kestenbaum, Jennifer James, Stefana Morgan, Michele Shields, Will Hocker, Michael Rabow, Laura B Dunn
End-of-life care research with bereaved informal caregivers – analysis of recruitment strategy and participation rate from a multi-centre validation study
Stephanie Stiel, Maria Heckel, Sonja Bussmann, Martin Weber, Christoph Ostgathe
Development of the Carers’ Alert Thermometer (CAT) to identify family carers struggling with caring for someone dying at home: a mixed method consensus study
Katherine Knighting, Mary R O’Brien, Brenda Roe, Rob Gandy, Mari Lloyd-Williams, Mike Nolan, Barbara A Jack
Organization and evaluation of generalist palliative care in a Danish hospital
Heidi Bergenholtz, Bibi Hølge-Hazelton, Lene Jarlbaek
Development of the care programme for the last days of life for older patients in acute geriatric hospital wards: a phase 0–1 study according to the Medical Research Council Framework
Rebecca Verhofstede, Tinne Smets, Joachim Cohen, Massimo Costantini, Nele Van Den Noortgate, Agnes van der Heide, Luc Deliens
Emergency visits among end-of-life cancer patients in Taiwan: a nationwide population-based study
Yi-Hui Lee, Dachen Chu, Nan-Ping Yang, Chien-Lung Chan, Shun-Ping Cheng, Jih-Tung Pai, Nien-Tzu Chang
‘I want to feel at home’: establishing what aspects of environmental design are important to people with dementia nearing the end of life
Richard Fleming, Fiona Kelly, Gillian Stillfried
A mixed method feasibility study of a patient- and family-centred advance care planning intervention for cancer patients
Natasha Michael, Clare O’Callaghan, Angela Baird, Karla Gough, Mei Krishnasamy, Nathaniel Hiscock, Josephine Clayton
Place of death of people living with Parkinson’s disease: a population-level study in 11 countries
Katrien Moens, Dirk Houttekier, Lieve Van den Block, Richard Harding, Lucas Morin, Stefano Marchetti, Agnes Csikos, Martin Loucka, Wayne A Naylor, Donna M Wilson, Joan Teno, Marylou Cardenas-Turanzas, YongJoo Rhee, Francisco Javier Garcia-Leon, Luc Deliens, Joachim Cohen
Workings of the human spirit in palliative care situations: a consensus model from the Chaplaincy Research Consortium
Linda Emanuel, George Handzo, George Grant, Kevin Massey, Angelika Zollfrank, Diana Wilke, Richard Powell, Walter Smith, Kenneth Pargament
Shared decision-making in end-stage renal disease: a protocol for a multi-center study of a communication intervention to improve end-of-life care for dialysis patients
Nwamaka D. Eneanya, Sarah L. Goff, Talaya Martinez, Natalie Gutierrez, Jamie Klingensmith, John L. Griffith, Casey Garvey, Jenny Kitsen, Michael J. Germain, Lisa Marr, Joan Berzoff, Mark Unruh, Lewis M. Cohen
Case management in primary palliative care is associated more strongly with organisational than with patient characteristics: results from a cross-sectional prospective study
Annicka GM van der Plas, Anneke L Francke, Kris C Vissers, Wim JJ Jansen, Luc Deliens, Bregje D Onwuteaka-Philipsen
Expert views on the factors enabling good end of life care for people with dementia: a qualitative study
Richard Philip Lee, Claire Bamford, Catherine Exley, Louise Robinson
‘From activating towards caring’: shifts in care approaches at the end of life of people with intellectual disabilities; a qualitative study of the perspectives of relatives, care-staff and physicians
Nienke Bekkema, Anke J. E. de Veer, Cees M. P. M. Hertogh, Anneke L. Francke
Comparison of terminally ill cancer- vs. non-cancer patients in specialized palliative home care in Germany – a single service analysis
Stephanie Stiel, Maria Heckel, Andreas Seifert, Tobias Frauendorf, Roland Martin Hanke, Christoph Ostgathe
Communication between family carers and health professionals about end-of-life care for older people in the acute hospital setting: a qualitative study
Glenys Caswell, Kristian Pollock, Rowan Harwood, Davina Porock
Priorities for global research into children’s palliative care: results of an International Delphi Study
Julia Downing, Caprice Knapp, Mary Ann Muckaden, Susan Fowler-Kerry, Joan Marston
Efficacy of palliative radiotherapy for gastric bleeding in patients with unresectable advanced gastric cancer: a retrospective cohort study
Chihiro Kondoh, Kohei Shitara, Motoo Nomura, Daisuke Takahari, Takashi Ura, Hiroyuki Tachibana, Natsuo Tomita, Takeshi Kodaira, Kei Muro
Strategies for effective goals of care discussions and decision-making: perspectives from a multi-centre survey of Canadian hospital-based healthcare providers
Amanda L. Roze des Ordons, Nishan Sharma, Daren K. Heyland, John J. You
Effect of hospice care on quality indicators of end-of-life care among patients with liver cancer: a national longitudinal population-based study in Taiwan 2000–2011
Yee-Hsin Kao, Jui-Kun Chiang
Design of, and enrollment in, the palliative care communication research initiative: a direct-observation cohort study
Robert Gramling, Elizabeth Gajary-Coots, Susan Stanek, Nathalie Dougoud, Heather Pyke, Marie Thomas, Jenica Cimino, Mechelle Sanders, Stewart C. Alexander, Ronald Epstein, Kevin Fiscella, David Gramling, Susan Ladwig, Wendy Anderson, Stephen Pantilat, Sally A. Norton
Opioid rotation versus combination for cancer patients with chronic uncontrolled pain: a randomized study
Hyun-Jun Kim, Young Saing Kim, Se Hoon Park
End of life care interventions for people with dementia in care homes: addressing uncertainty within a framework for service delivery and evaluation
Claire Goodman, Katherine Froggatt, Sarah Amador, Elspeth Mathie, Andrea Mayrhofer
A mobile hospice nurse teaching team’s experience: training care workers in spiritual and existential care for the dying - a qualitative study
Kirsten Tornøe, Lars Johan Danbolt, Kari Kvigne, Venke Sørlie
Enhancing legacy in palliative care: study protocol for a randomized controlled trial of Dignity Therapy focused on positive outcomes
Lori P. Montross-Thomas, Scott A. Irwin, Emily A. Meier, Jarred V. Gallegos, Shahrokh Golshan, Eric Roeland, Helen McNeal, Diane Munson, Laura Rodseth
How do junior doctors in the UK learn to provide end of life care: a qualitative evaluation of postgraduate education
Sophie Price, Susie Schofield
Implementation of a Care Pathway for Primary Palliative Care in 5 research clusters in Belgium: quasi-experimental study protocol and innovations in data collection (pro-SPINOZA)
Bert Leysen, Bart Van den Eynden, Birgit Gielen, Hilde Bastiaens, Johan Wens
Strategies to implement evidence into practice to improve palliative care: recommendations of a nominal group approach with expert opinion leaders
Jasper van Riet Paap, Kris Vissers, Steve Iliffe, Lukas Radbruch, Marianne J. Hjermstad, Rabih Chattat, Myrra Vernooij-Dassen, Yvonne Engels
Incidence of pain flare following palliative radiotherapy for symptomatic bone metastases: multicenter prospective observational study
Alfonso Gomez-Iturriaga, Jon Cacicedo, Arturo Navarro, Virginia Morillo, Patricia Willisch, Claudia Carvajal, Eduardo Hortelano, Jose Luis Lopez-Guerra, Ana Illescas, Francisco Casquero, Olga Del Hoyo, Raquel Ciervide, Ana Irasarri, Jose Ignacio Pijoan, Pedro Bilbao
Exploring barriers to assessment of bereavement risk in palliative care: perspectives of key stakeholders
Margaret Sealey, Moira O’Connor, Samar M. Aoun, Lauren J. Breen
Promoting an ethic of engagement in pediatric palliative care research
Vasiliki Rahimzadeh, Gillian Bartlett, Cristina Longo, Laura Crimi, Mary Ellen Macdonald, Nada Jabado, Carolyn Ells
UK quality statements on end of life care in dementia: a systematic review of research evidence
Bridget Candy, Margaret Elliott, Kirsten Moore, Victoria Vickerstaff, Elizabeth Sampson, Louise Jones
Variation in physician recommendations, knowledge and perceived roles regarding provision of end-of-life care
Chetna Malhotra, Noreen Chan, Jamie Zhou, Hannah B. Dalager, Eric Finkelstein
Serum and urine concentrations of morphine and morphine metabolites in patients with advanced cancer receiving continuous intravenous morphine: an observational study
Yong Joo Lee, Sang-Yeon Suh, Junghan Song, Sanghee Shiny Lee, Ah-Ram Seo, Hong-Yup Ahn, Myung Ah Lee, Chul-Min Kim, Pål Klepstad
Patients’ perceptions of palliative care: adaptation of the Quality from the Patient’s Perspective instrument for use in palliative care, and description of patients’ perceptions of care received
Tuva Sandsdalen, Ingrid Rystedt, Vigdis Abrahamsen Grøndahl, Reidun Hov, Sevald Høye, Bodil Wilde-Larsson
Evaluating the systematic implementation of the ‘Let Me Decide’ advance care planning programme in long term care through focus groups: staff perspectives
Nicola Cornally, Ciara McGlade, Elizabeth Weathers, Edel Daly, Carol Fitzgerald, Rónán O’Caoimh, Alice Coffey, D. William Molloy
Identification of the palliative phase in people with dementia: a variety of opinions between healthcare professionals
Jasper van Riet Paap, Elena Mariani, Rabih Chattat, Raymond Koopmans, Hélène Kerhervé, Wojciech Leppert, Maria Forycka, Lukas Radbruch, Birgit Jaspers, Kris Vissers, Myrra Vernooij-Dassen, Yvonne Engels
Paediatric palliative care: recommendations for treatment of symptoms in the Netherlands
Rutger R. G. Knops, Leontien C. M. Kremer, A. A. Eduard Verhagen
Palliative enteral feeding for patients with malignant esophageal obstruction: a retrospective study
CW. Yang, HH. Lin, TY. Hsieh, WK. Chang
Determinants of favourable opinions about euthanasia in a sample of French physicians
Lionel Dany, Karine Baumstarck, Eric Dudoit, Florence Duffaud, Pascal Auquier, Sébastien Salas
Palliative care professionals’ willingness to perform euthanasia or physician assisted suicide
Julia Zenz, Michael Tryba, Michael Zenz
Is shared decision-making vanishing at the end-of-life? A descriptive and qualitative study of advanced cancer patients’ involvement in specific therapies decision-making
Yvan Beaussant, Florence Mathieu-Nicot, Lionel Pazart, Christophe Tournigand, Serge Daneault, Elodie Cretin, Aurélie Godard-Marceau, Aline Chassagne, Hélène Trimaille, Carole Bouleuc, Patrice Cuynet, Eric Deconinck, Régis Aubry
Minding the gap: access to palliative care and the homeless
Lise Huynh, Blair Henry, Naheed Dosani
Pragmatic cluster randomised controlled trial of facilitated family case conferencing compared with usual care for improving end of life care and outcomes in nursing home residents with advanced dementia and their families: the IDEAL study protocol
Meera Agar, Elizabeth Beattie, Tim Luckett, Jane Phillips, Georgina Luscombe, Stephen Goodall, Geoffrey Mitchell, Dimity Pond, Patricia M. Davidson, Lynnette Chenoweth
The development of a complex intervention in China: the ‘Caring for Couples Coping with Cancer “4Cs” Programme’ to support couples coping with cancer
Qiuping Li, Yinghua Xu, Huiya Zhou, Alice Yuen Loke
INSPIRE (INvestigating Social and PractIcal suppoRts at the End of life): Pilot randomised trial of a community social and practical support intervention for adults with life-limiting illness
Kathleen McLoughlin, Jim Rhatigan, Sinead McGilloway, Allan Kellehear, Michael Lucey, Feargal Twomey, Marian Conroy, Emillio Herrera-Molina, Suresh Kumar, Mairead Furlong, Joanne Callinan, Max Watson, David Currow, Christopher Bailey
Exploring end of life priorities in Saudi males: usefulness of Q-methodology
Muhammad M. Hammami, Eman Al Gaai, Safa Hammami, Sahar Attala
Living with AIDS in Uganda: a qualitative study of patients’ and families’ experiences following referral to hospice
Wesley Too, Michael Watson, Richard Harding, Jane Seymour
Palliative care consultation services in hospitals in the Netherlands: the design of the COMPASS study
Arianne Brinkman-Stoppelenburg, Suzanne Polinder, Yvonne Vergouwe, Agnes van der Heide
The relationship between pain management and psychospiritual distress in patients with advanced cancer following admission to a palliative care unit
Ya-Ping Lee, Chih-Hsun Wu, Tai-Yuan Chiu, Ching-Yu Chen, Tatsuya Morita, Shou-Hung Hung, Sin-Bao Huang, Chia-Sheng Kuo, Jaw-Shiun Tsai
Counseling for personal care options at neonatal end of life: a quantitative and qualitative parent survey
Emily Shelkowitz, Sharon L. Vessella, Patricia O’Reilly, Richard Tucker, Beatrice E. Lechner
The prevalence in the general population of advance directives on euthanasia and discussion of end-of-life wishes: a nationwide survey
Aline De Vleminck, Koen Pardon, Dirk Houttekier, Lieve Van den Block, Robert Vander Stichele, Luc Deliens
The characteristics of patients who discontinue their dying process – an observational study at a single university hospital centre
Christian Schulz, Daniel Schlieper, Christiane Altreuther, Manuela Schallenburger, Katharina Fetz, Andrea Schmitz
Benefits and resource implications of family meetings for hospitalized palliative care patients: research protocol
Peter L. Hudson, Afaf Girgis, Geoffrey K. Mitchell, Jenny Philip, Deborah Parker, David Currow, Danny Liew, Kristina Thomas, Brian Le, Juli Moran, Caroline Brand
Te Pākeketanga: living and dying in advanced age - a study protocol
Merryn Gott, Tess Moeke-Maxwell, Lisa Williams, Stella Black, Gabriella Trussardi, Janine Wiles, Rangimarie Mules, Anna Rolleston, Ngaire Kerse
Impact of a hospice rapid response service on preferred place of death, and costs
Heather Gage, Laura M. Holdsworth, Caragh Flannery, Peter Williams, Claire Butler
Patterns of health care utilization preceding a colorectal cancer diagnosis are strong predictors of dying quickly following diagnosis
Robin Urquhart, Grace Johnston, Mohamed Abdolell, Geoff A Porter
BMC Palliative Care reviewer acknowledgement 2014
Catia Cornacchia