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Erschienen in: Quality of Life Research 10/2018

12.06.2018

Can the e-OAKHQOL be an alternative to measure health-related quality of life in knee osteoarthritis?

verfasst von: Maud Wieczorek, Christine Rotonda, Jonathan Epstein, Francis Guillemin, Anne-Christine Rat

Erschienen in: Quality of Life Research | Ausgabe 10/2018

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Abstract

Objective

To assess the validity of the e-OAKHQOL questionnaire and analyze whether the answers were affected by the form of administration (electronic vs. paper).

Methods

Two samples of patients with knee osteoarthritis were constituted. The first was recruited by general practitioners. Patients could choose to respond to the electronic or paper version. The second included subjects who responded to the paper version and were matched with respondents to the electronic version in the first sample. The OAKHQOL questionnaire measures health-related quality of life in five dimensions (43 items): physical activity, mental health, pain, social functioning, and social support. Validity was assessed by the classical test theory (CTT) and a Rasch measurement model (partial credit model).

Results

The electronic form was preferred by 471 (89.7%) patients: 345 were matched to respondents of the paper version. The percentage of missing responses was lower with the electronic than paper form (1.6 vs. 2.0%, p = .01). Rasch analysis revealed four items with underfitting. Internal consistency was excellent for physical activity (PSI = 0.96) and mental health (PSI = 0.93) but was slightly < 0.85 for the other dimensions. The top–down purification highlighted the significance of DIF by gender in the pain dimension and by form of questionnaire in the mental health dimension.

Conclusion

CTT and Rasch analysis demonstrated acceptable measurement properties for the five dimensions of the e-OAKHQOL, so it may be a valuable alternative to the paper form for measuring HRQoL.
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Literatur
9.
Zurück zum Zitat Salaffi, F., Gasparini, S., & Grassi, W. (2009). The use of computer touch-screen technology for the collection of patient-reported outcome data in rheumatoid arthritis: Comparison with standardized paper questionnaires. Clinical and Experimental Rheumatology, 27(3), 459–468.PubMed Salaffi, F., Gasparini, S., & Grassi, W. (2009). The use of computer touch-screen technology for the collection of patient-reported outcome data in rheumatoid arthritis: Comparison with standardized paper questionnaires. Clinical and Experimental Rheumatology, 27(3), 459–468.PubMed
11.
Zurück zum Zitat Coons, S. J., Gwaltney, C. J., Hays, R. D., Lundy, J. J., Sloan, J. A., Revicki, D. A., et al. (2009). Recommendations on evidence needed to support measurement equivalence between electronic and paper-based patient-reported outcome (PRO) measures: ISPOR ePRO good research practices task force report. Value in Health, 12(4), 419–429. https://doi.org/10.1111/j.1524-4733.2008.00470.x.CrossRefPubMed Coons, S. J., Gwaltney, C. J., Hays, R. D., Lundy, J. J., Sloan, J. A., Revicki, D. A., et al. (2009). Recommendations on evidence needed to support measurement equivalence between electronic and paper-based patient-reported outcome (PRO) measures: ISPOR ePRO good research practices task force report. Value in Health, 12(4), 419–429. https://​doi.​org/​10.​1111/​j.​1524-4733.​2008.​00470.​x.CrossRefPubMed
13.
Zurück zum Zitat Viswanathan, M. (2005). Measurement error and research design. SAGE. Viswanathan, M. (2005). Measurement error and research design. SAGE.
14.
Zurück zum Zitat Hambleton, R. K., Swaminathan, H., & Rogers, H. J. (1991). Fundamentals of item response theory. SAGE. Hambleton, R. K., Swaminathan, H., & Rogers, H. J. (1991). Fundamentals of item response theory. SAGE.
16.
Zurück zum Zitat McHorney, C. A., & Tarlov, A. R. (1995). Individual-patient monitoring in clinical practice: are available health status surveys adequate? Quality of Life Research, 4(4), 293–307.CrossRefPubMed McHorney, C. A., & Tarlov, A. R. (1995). Individual-patient monitoring in clinical practice: are available health status surveys adequate? Quality of Life Research, 4(4), 293–307.CrossRefPubMed
17.
Zurück zum Zitat Karin Schermelleh-Engel, H. M. (2003). Evaluating the fit of structural equation models: Tests of significance and descriptive goodness-of-fit measures. Methods of Psychological Research Online, 8(8), 23–74. Karin Schermelleh-Engel, H. M. (2003). Evaluating the fit of structural equation models: Tests of significance and descriptive goodness-of-fit measures. Methods of Psychological Research Online, 8(8), 23–74.
19.
Zurück zum Zitat Fang, W.-H., Huang, G.-S., Chang, H.-F., Chen, C.-Y., Kang, C.-Y., Wang, C.-C., et al. (2015). Gender differences between WOMAC index scores, health-related quality of life and physical performance in an elderly Taiwanese population with knee osteoarthritis. British Medical Journal Open, 5(9), e008542. https://doi.org/10.1136/bmjopen-2015-008542.CrossRef Fang, W.-H., Huang, G.-S., Chang, H.-F., Chen, C.-Y., Kang, C.-Y., Wang, C.-C., et al. (2015). Gender differences between WOMAC index scores, health-related quality of life and physical performance in an elderly Taiwanese population with knee osteoarthritis. British Medical Journal Open, 5(9), e008542. https://​doi.​org/​10.​1136/​bmjopen-2015-008542.CrossRef
20.
Zurück zum Zitat Gautier, A., Kubiak, C., & Collin, J.-F. (2005). Qualité de vie: une évaluation positive. Baromètre santé, 2005, 45–64. Gautier, A., Kubiak, C., & Collin, J.-F. (2005). Qualité de vie: une évaluation positive. Baromètre santé, 2005, 45–64.
21.
Zurück zum Zitat Kovac, S. H., Mikuls, T. R., Mudano, A., & Saag, K. G. (2006). Health-related quality of life among self-reported arthritis sufferers: Effects of race/ethnicity and residence. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 15(3), 451–460. https://doi.org/10.1007/s11136-005-3213-0.CrossRef Kovac, S. H., Mikuls, T. R., Mudano, A., & Saag, K. G. (2006). Health-related quality of life among self-reported arthritis sufferers: Effects of race/ethnicity and residence. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 15(3), 451–460. https://​doi.​org/​10.​1007/​s11136-005-3213-0.CrossRef
24.
Zurück zum Zitat Perrot, S., & Bertin, P. (2013). “Feeling better” or “feeling well” in usual care of hip and knee osteoarthritis pain: Determination of cutoff points for patient acceptable symptom state (PASS) and minimal clinically important improvement (MCII) at rest and on movement in a national multicenter cohort study of 2414 patients with painful osteoarthritis. Pain, 154(2), 248–256. https://doi.org/10.1016/j.pain.2012.10.017.CrossRefPubMed Perrot, S., & Bertin, P. (2013). “Feeling better” or “feeling well” in usual care of hip and knee osteoarthritis pain: Determination of cutoff points for patient acceptable symptom state (PASS) and minimal clinically important improvement (MCII) at rest and on movement in a national multicenter cohort study of 2414 patients with painful osteoarthritis. Pain, 154(2), 248–256. https://​doi.​org/​10.​1016/​j.​pain.​2012.​10.​017.CrossRefPubMed
25.
26.
Zurück zum Zitat Christensen, K. B., Kreiner, S., & Mesbah, M. (2013). Rasch models in health. Wiley. Christensen, K. B., Kreiner, S., & Mesbah, M. (2013). Rasch models in health. Wiley.
27.
Zurück zum Zitat Linacre, J. M. (2002). What do infit and outfit, mean-square and standardized mean? Rasch Measurement Transactions. 16(2), 878 Linacre, J. M. (2002). What do infit and outfit, mean-square and standardized mean? Rasch Measurement Transactions. 16(2), 878
28.
Zurück zum Zitat Tennant, A., & Pallant, J. F. (2007). DIF matters: A practical approach to test if differential item functioning makes a difference. Rasch Measurement Transactions, 20, 1082–1084. Tennant, A., & Pallant, J. F. (2007). DIF matters: A practical approach to test if differential item functioning makes a difference. Rasch Measurement Transactions, 20, 1082–1084.
33.
Zurück zum Zitat Linacre, J. M. (2002). Optimizing rating scale category effectiveness. Journal of Applied Measurement, 3(1), 85–106.PubMed Linacre, J. M. (2002). Optimizing rating scale category effectiveness. Journal of Applied Measurement, 3(1), 85–106.PubMed
39.
Zurück zum Zitat Velikova, G., Booth, L., Smith, A. B., Brown, P. M., Lynch, P., Brown, J. M., & Selby, P. J. (2004). Measuring quality of life in routine oncology practice improves communication and patient well-being: A randomized controlled trial. Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology, 22(4), 714–724. https://doi.org/10.1200/JCO.2004.06.078.CrossRef Velikova, G., Booth, L., Smith, A. B., Brown, P. M., Lynch, P., Brown, J. M., & Selby, P. J. (2004). Measuring quality of life in routine oncology practice improves communication and patient well-being: A randomized controlled trial. Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology, 22(4), 714–724. https://​doi.​org/​10.​1200/​JCO.​2004.​06.​078.CrossRef
Metadaten
Titel
Can the e-OAKHQOL be an alternative to measure health-related quality of life in knee osteoarthritis?
verfasst von
Maud Wieczorek
Christine Rotonda
Jonathan Epstein
Francis Guillemin
Anne-Christine Rat
Publikationsdatum
12.06.2018
Verlag
Springer International Publishing
Erschienen in
Quality of Life Research / Ausgabe 10/2018
Print ISSN: 0962-9343
Elektronische ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-018-1914-4

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