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Erschienen in: Journal of Clinical Psychology in Medical Settings 4/2014

01.12.2014

Cognitive-Behavioural Therapy Targeting Fear of Progression in an Interdisciplinary Care Program: A Case Study in Systemic Sclerosis

verfasst von: Linda Kwakkenbos, Linda M. Willems, Frank H. J. van den Hoogen, Wim G. J. M. van Lankveld, Hanneke Beenackers, Toon F. van Helmond, Eni S. Becker, Cornelia H. M. van den Ende

Erschienen in: Journal of Clinical Psychology in Medical Settings | Ausgabe 4/2014

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Abstract

People living with chronic illness often report uncertainty about the future, fear of disease progression, fear of becoming physically disabled, and a reduced life expectancy as important sources of stress. However, little is known about psychological interventions targeting these concerns. The aim of this study is to illustrate an intervention to reduce emotional distress and concerns about the future in a patient with systemic sclerosis (SSc), a rare chronic rheumatic disease with serious consequences for most patients, and to present a preliminary report on its effectiveness using a single-case study design. Because of the complexity of symptoms and complaints due to SSc, the psychological intervention was embedded in an interdisciplinary care program also consisting of physical therapy, occupational therapy, and specialized nurse care.
Literatur
Zurück zum Zitat Astin, J. A., Beckner, W., Soeken, K., Hochberg, M. C., & Berman, B. (2002). Psychological interventions for rheumatoid arthritis: A meta-analysis of randomized controlled trials. Arthritis Care & Research, 47, 291–302. doi:10.1002/art.10416.CrossRef Astin, J. A., Beckner, W., Soeken, K., Hochberg, M. C., & Berman, B. (2002). Psychological interventions for rheumatoid arthritis: A meta-analysis of randomized controlled trials. Arthritis Care & Research, 47, 291–302. doi:10.​1002/​art.​10416.CrossRef
Zurück zum Zitat Backman, C. L., Harris, S. R., Chisholm, J. A., & Monette, A. D. (1997). Single-subject research in rehabilitation: A review of studies using AB, withdrawal, multiple baseline, and alternating treatments designs. Archives of Physical Medicine and Rehabilitation, 78, 1145–1153. doi:10.1016/S0003-9993(97)90142-8.PubMedCrossRef Backman, C. L., Harris, S. R., Chisholm, J. A., & Monette, A. D. (1997). Single-subject research in rehabilitation: A review of studies using AB, withdrawal, multiple baseline, and alternating treatments designs. Archives of Physical Medicine and Rehabilitation, 78, 1145–1153. doi:10.​1016/​S0003-9993(97)90142-8.PubMedCrossRef
Zurück zum Zitat Barker-Collo, S., Cartwright, C., & Read, J. (2006). Into the unknown: The experiences of individuals living with multiple sclerosis. The Journal of Neuroscience Nursing, 38(435–441), 446. Barker-Collo, S., Cartwright, C., & Read, J. (2006). Into the unknown: The experiences of individuals living with multiple sclerosis. The Journal of Neuroscience Nursing, 38(435–441), 446.
Zurück zum Zitat Beltman, M. W., Voshaar, R. C., & Speckens, A. E. (2010). Cognitive-behavioural therapy for depression in people with a somatic disease: Meta-analysis of randomised controlled trials. The British Journal of Psychiatry, 197, 11–19. doi:10.1192/bjp.bp.109.064675.PubMedCrossRef Beltman, M. W., Voshaar, R. C., & Speckens, A. E. (2010). Cognitive-behavioural therapy for depression in people with a somatic disease: Meta-analysis of randomised controlled trials. The British Journal of Psychiatry, 197, 11–19. doi:10.​1192/​bjp.​bp.​109.​064675.PubMedCrossRef
Zurück zum Zitat Berg, P., Book, K., Dinkel, A., Henrich, G., Marten- Mittag, B., Mertens, D., … Herschbach, P. (2011). Progredienzangst bei chronischen Erkrankungen [Fear of progression in chronic diseases]. Psychotherapie, Psychosomatik, Medizinische Psychologie, 61, 32–37. doi:10.1055/s-0030-1267927. Berg, P., Book, K., Dinkel, A., Henrich, G., Marten- Mittag, B., Mertens, D., … Herschbach, P. (2011). Progredienzangst bei chronischen Erkrankungen [Fear of progression in chronic diseases]. Psychotherapie, Psychosomatik, Medizinische Psychologie, 61, 32–37. doi:10.​1055/​s-0030-1267927.
Zurück zum Zitat Bögels, S. M., & Reith, W. (1999). Validity of two questionnaires to assess social fears: The Dutch social phobia and anxiety inventory and the fear of blushing, trembling, and sweating questionnaire. Journal of Psychopathology and Behavioral Assessment, 21, 51–66. doi:10.1023/A:1022812227606.CrossRef Bögels, S. M., & Reith, W. (1999). Validity of two questionnaires to assess social fears: The Dutch social phobia and anxiety inventory and the fear of blushing, trembling, and sweating questionnaire. Journal of Psychopathology and Behavioral Assessment, 21, 51–66. doi:10.​1023/​A:​1022812227606.CrossRef
Zurück zum Zitat Carleton, R. N., Collimore, K. C., McCabe, R. E., & Antony, M. M. (2011). Addressing revisions to the Brief Fear of Negative Evaluation scale: Measuring fear of negative evaluation across anxiety and mood disorders. Journal of Anxiety Disorders, 25, 822–828. doi:10.1016/j.janxdis.2011.04.002.PubMedCrossRef Carleton, R. N., Collimore, K. C., McCabe, R. E., & Antony, M. M. (2011). Addressing revisions to the Brief Fear of Negative Evaluation scale: Measuring fear of negative evaluation across anxiety and mood disorders. Journal of Anxiety Disorders, 25, 822–828. doi:10.​1016/​j.​janxdis.​2011.​04.​002.PubMedCrossRef
Zurück zum Zitat Carlsson, A. M. (1983). Assessment of chronic pain. I. Aspects of the reliability and validity of the visual analogue scale. Pain, 16, 87–101.PubMedCrossRef Carlsson, A. M. (1983). Assessment of chronic pain. I. Aspects of the reliability and validity of the visual analogue scale. Pain, 16, 87–101.PubMedCrossRef
Zurück zum Zitat DeLoach, L. J., Higgins, M. S., Caplan, A. B., & Stiff, J. L. (1998). The visual analog scale in the immediate postoperative period: Intrasubject variability and correlation with a numeric scale. Anesthesia and Analgesia, 86, 102–106.PubMed DeLoach, L. J., Higgins, M. S., Caplan, A. B., & Stiff, J. L. (1998). The visual analog scale in the immediate postoperative period: Intrasubject variability and correlation with a numeric scale. Anesthesia and Analgesia, 86, 102–106.PubMed
Zurück zum Zitat Endler, N. S., Parker, J. D. A., de Ridder, D. T. D., & van Heck, G. L. (2004). Coping Inventory for Stressful Situations: CISS Handleiding [Coping Inventory for Stressful Situations: CISS Manual]. Lisse: Swets Test Publishers. Endler, N. S., Parker, J. D. A., de Ridder, D. T. D., & van Heck, G. L. (2004). Coping Inventory for Stressful Situations: CISS Handleiding [Coping Inventory for Stressful Situations: CISS Manual]. Lisse: Swets Test Publishers.
Zurück zum Zitat Evers, A. W., Kraaimaat, F. W., van Lankveld, W., Jongen, P. J., Jacobs, J. W., & Bijlsma, J. W. (2001). Beyond unfavorable thinking: The illness cognition questionnaire for chronic diseases. Journal of Consulting and Clinical Psychology, 69, 1026–1036. doi:10.1037/0022-006X.69.6.1026.PubMedCrossRef Evers, A. W., Kraaimaat, F. W., van Lankveld, W., Jongen, P. J., Jacobs, J. W., & Bijlsma, J. W. (2001). Beyond unfavorable thinking: The illness cognition questionnaire for chronic diseases. Journal of Consulting and Clinical Psychology, 69, 1026–1036. doi:10.​1037/​0022-006X.​69.​6.​1026.PubMedCrossRef
Zurück zum Zitat Evers, A. W., Kraaimaat, F. W., van Riel, P. L., & de Jong, A. J. (2002). Tailored cognitive-behavioral therapy in early rheumatoid arthritis for patients at risk: A randomized controlled trial. Pain, 100, 141–153. doi:10.1016/S0304-3959(02)00274-9.PubMedCrossRef Evers, A. W., Kraaimaat, F. W., van Riel, P. L., & de Jong, A. J. (2002). Tailored cognitive-behavioral therapy in early rheumatoid arthritis for patients at risk: A randomized controlled trial. Pain, 100, 141–153. doi:10.​1016/​S0304-3959(02)00274-9.PubMedCrossRef
Zurück zum Zitat Fries, J. F., Spitz, P., Kraines, R. G., & Holman, H. R. (1980). Measurement of patient outcomes in arthritis. Arthritis and Rheumatism, 23, 137–145.PubMedCrossRef Fries, J. F., Spitz, P., Kraines, R. G., & Holman, H. R. (1980). Measurement of patient outcomes in arthritis. Arthritis and Rheumatism, 23, 137–145.PubMedCrossRef
Zurück zum Zitat Genth, E., & Baltscheit, C. (2003). Patientenschulung “Systemische Sklerose” [Patient education “systemic sclerosis”]. Zeitschrift für Rheumatologie, 62, 25–26. doi:10.1007/s00393-003-1207-2. Genth, E., & Baltscheit, C. (2003). Patientenschulung “Systemische Sklerose” [Patient education “systemic sclerosis”]. Zeitschrift für Rheumatologie, 62, 25–26. doi:10.​1007/​s00393-003-1207-2.
Zurück zum Zitat Herschbach, P., Berg, P., Dankert, A., Duran, G., Engst-Hastreiter, U., Waadt, S., … Henrich, G. (2005). Fear of progression in chronic diseases: Psychometric properties of the Fear of Progression Questionnaire. Journal of Psychosomatic Research, 58, 505–511. doi:10.1016/j.jpsychores.2005.02.007. Herschbach, P., Berg, P., Dankert, A., Duran, G., Engst-Hastreiter, U., Waadt, S., … Henrich, G. (2005). Fear of progression in chronic diseases: Psychometric properties of the Fear of Progression Questionnaire. Journal of Psychosomatic Research, 58, 505–511. doi:10.​1016/​j.​jpsychores.​2005.​02.​007.
Zurück zum Zitat Herschbach, P., Berg, P., Waadt, S., Duran, G., Engst-Hastreiter, U., Henrich G., … Dinkel, A. (2010a). Group psychotherapy of dysfunctional fear of progression in patients with chronic arthritis or cancer. Psychotherapy and Psychosomatics, 79, 31–38. doi:10.1159/000254903. Herschbach, P., Berg, P., Waadt, S., Duran, G., Engst-Hastreiter, U., Henrich G., … Dinkel, A. (2010a). Group psychotherapy of dysfunctional fear of progression in patients with chronic arthritis or cancer. Psychotherapy and Psychosomatics, 79, 31–38. doi:10.​1159/​000254903.
Zurück zum Zitat Herschbach, P., Book, K., Dinkel, A., Berg, P., Waadt S., Duran G., … Henrich, G. (2010b). Evaluation of two group therapies to reduce fear of progression in cancer patients. Support Care Cancer, 18, 471–479. doi:10.1007/s00520-009-0696-1. Herschbach, P., Book, K., Dinkel, A., Berg, P., Waadt S., Duran G., … Henrich, G. (2010b). Evaluation of two group therapies to reduce fear of progression in cancer patients. Support Care Cancer, 18, 471–479. doi:10.​1007/​s00520-009-0696-1.
Zurück zum Zitat Holtgrefe, K., McCloy, C., & Rome, L. (2007). Changes associated with a quota-based approach on a walking program for individuals with fibromyalgia. The Journal of Orthopaedic and Sports Physical Therapy, 37, 717–724. doi:10.2519/jospt.2007.2607.PubMedCrossRef Holtgrefe, K., McCloy, C., & Rome, L. (2007). Changes associated with a quota-based approach on a walking program for individuals with fibromyalgia. The Journal of Orthopaedic and Sports Physical Therapy, 37, 717–724. doi:10.​2519/​jospt.​2007.​2607.PubMedCrossRef
Zurück zum Zitat Huiskes, C. J., Kraaimaat, F. W., & Bijlsma, J. W. (1990). Handleiding voor de IRGL: Invloed van Reuma op Gezondheid en Leefwijze [Manual for the IRGL: Impact of Rheumatic diseases on General health and Lifestyle]. Lisse: Swets & Zeitlinger. Huiskes, C. J., Kraaimaat, F. W., & Bijlsma, J. W. (1990). Handleiding voor de IRGL: Invloed van Reuma op Gezondheid en Leefwijze [Manual for the IRGL: Impact of Rheumatic diseases on General health and Lifestyle]. Lisse: Swets & Zeitlinger.
Zurück zum Zitat Ioannidis, J.P., Vlachoyiannopoulos, P.G., Haidich, A.B., Medsger, T.A. Jr, Lucas, M., Michet, C.J., … Moutsopoulos, H.M. (2005). Mortality in systemic sclerosis: An international meta-analysis of individual patient data. The American Journal of Medicine, 118, 2–10. doi:10.1016/j.amjmed.2004.04.031. Ioannidis, J.P., Vlachoyiannopoulos, P.G., Haidich, A.B., Medsger, T.A. Jr, Lucas, M., Michet, C.J., … Moutsopoulos, H.M. (2005). Mortality in systemic sclerosis: An international meta-analysis of individual patient data. The American Journal of Medicine, 118, 2–10. doi:10.​1016/​j.​amjmed.​2004.​04.​031.
Zurück zum Zitat Kowal-Bielecka, O., Landewé, R., Avouac, J., Chwiesko, S., Miniati, I., Czirjak, L., … Matucci-Cerinic, M. (2009). EULAR recommendations for the treatment of systemic sclerosis: A report from the EULAR Scleroderma Trials and Research Group (EUSTAR). Annals of the Rheumatic Diseases, 68, 620–628. doi:10.1136/ard.2008.096677. Kowal-Bielecka, O., Landewé, R., Avouac, J., Chwiesko, S., Miniati, I., Czirjak, L., … Matucci-Cerinic, M. (2009). EULAR recommendations for the treatment of systemic sclerosis: A report from the EULAR Scleroderma Trials and Research Group (EUSTAR). Annals of the Rheumatic Diseases, 68, 620–628. doi:10.​1136/​ard.​2008.​096677.
Zurück zum Zitat Kwakkenbos, L., Bluyssen, S. J. M., Vonk, M. C., van Helmond, A. F., van den Ende, C. H. M., van den Hoogen, F. H. J., et al. (2011). Addressing patient health care demands in systemic sclerosis: Pre-post assessment of a psycho-educational group programme. Clinical and Experimental Rheumatology, 29, S60–S65.PubMed Kwakkenbos, L., Bluyssen, S. J. M., Vonk, M. C., van Helmond, A. F., van den Ende, C. H. M., van den Hoogen, F. H. J., et al. (2011). Addressing patient health care demands in systemic sclerosis: Pre-post assessment of a psycho-educational group programme. Clinical and Experimental Rheumatology, 29, S60–S65.PubMed
Zurück zum Zitat Kwakkenbos, L., van den Hoogen, F. H. J., Custers, J., Prins, J., Vonk, M. C., van Lankveld, W. G. J. M., et al. (2012a). Validity of the Fear of Progression Questionnaire-Short Form in patients with systemic sclerosis. Arthritis Care & Research, 64, 930–934. doi:10.1002/acr.21618.CrossRef Kwakkenbos, L., van den Hoogen, F. H. J., Custers, J., Prins, J., Vonk, M. C., van Lankveld, W. G. J. M., et al. (2012a). Validity of the Fear of Progression Questionnaire-Short Form in patients with systemic sclerosis. Arthritis Care & Research, 64, 930–934. doi:10.​1002/​acr.​21618.CrossRef
Zurück zum Zitat Kwakkenbos, L., van Lankveld, W. G. J. M., Vonk, M. C., Becker, E. S., van den Hoogen, F. H. J., & van den Ende, C. H. M. (2012b). Disease-related and psychosocial factors associated with depressive symptoms in patients with systemic sclerosis, including fear of progression and appearance self-esteem. Journal of Psychosomatic Research, 72, 199–204. doi:10.1016/j.jpsychores.2011.12.005.PubMedCrossRef Kwakkenbos, L., van Lankveld, W. G. J. M., Vonk, M. C., Becker, E. S., van den Hoogen, F. H. J., & van den Ende, C. H. M. (2012b). Disease-related and psychosocial factors associated with depressive symptoms in patients with systemic sclerosis, including fear of progression and appearance self-esteem. Journal of Psychosomatic Research, 72, 199–204. doi:10.​1016/​j.​jpsychores.​2011.​12.​005.PubMedCrossRef
Zurück zum Zitat LeRoy, E.C., Black, C., Fleischmajer, R., Jablonska, S., Krieg, T., Medsger, T.A. Jr, … Wollhein, F. (1988). Scleroderma (systemic sclerosis): Classification, subsets and pathogenesis. The Journal of Rheumatology, 15, 202–205. LeRoy, E.C., Black, C., Fleischmajer, R., Jablonska, S., Krieg, T., Medsger, T.A. Jr, … Wollhein, F. (1988). Scleroderma (systemic sclerosis): Classification, subsets and pathogenesis. The Journal of Rheumatology, 15, 202–205.
Zurück zum Zitat Mayes, M. D., Lacey, J. V, Jr, Beebe-Dimmer, J., Gillespie, B. W., Cooper, B., Laing, T. J., et al. (2003). Prevalence, incidence, survival, and disease characteristics of systemic sclerosis in a large US population. Arthritis and Rheumatism, 48, 2246–2255. doi:10.1002/art.11073.PubMedCrossRef Mayes, M. D., Lacey, J. V, Jr, Beebe-Dimmer, J., Gillespie, B. W., Cooper, B., Laing, T. J., et al. (2003). Prevalence, incidence, survival, and disease characteristics of systemic sclerosis in a large US population. Arthritis and Rheumatism, 48, 2246–2255. doi:10.​1002/​art.​11073.PubMedCrossRef
Zurück zum Zitat McWilliams, L. A., Cox, B. J., & Enns, M. W. (2003). Use of the Coping Inventory for Stressful Situations in a clinically depressed sample: Factor structure, personality correlates, and prediction of distress. Journal of Clinical Psychology, 59, 423–437.PubMedCrossRef McWilliams, L. A., Cox, B. J., & Enns, M. W. (2003). Use of the Coping Inventory for Stressful Situations in a clinically depressed sample: Factor structure, personality correlates, and prediction of distress. Journal of Clinical Psychology, 59, 423–437.PubMedCrossRef
Zurück zum Zitat Mehnert, A., Herschbach, P., Berg, P., Henrich, G., & Koch, U. (2006). Progredienzangst bei Brustkrebspatientinnen - Validierung der Kurzform de Progredienzangst fragebogens PA-F-KF [Fear of progression in breast cancer patients – validation of the short form of the Fear of Progression Questionnaire (FoP-Q-SF)]. Zeitschrift für Psychosomatische Medizin und Psychotherapie, 52, 274–288.PubMed Mehnert, A., Herschbach, P., Berg, P., Henrich, G., & Koch, U. (2006). Progredienzangst bei Brustkrebspatientinnen - Validierung der Kurzform de Progredienzangst fragebogens PA-F-KF [Fear of progression in breast cancer patients – validation of the short form of the Fear of Progression Questionnaire (FoP-Q-SF)]. Zeitschrift für Psychosomatische Medizin und Psychotherapie, 52, 274–288.PubMed
Zurück zum Zitat Onghena, P., & Edgington, E. S. (2005). Customization of pain treatments: single case design and analysis. Clinical Journal of Pain, 21, 56–68.PubMedCrossRef Onghena, P., & Edgington, E. S. (2005). Customization of pain treatments: single case design and analysis. Clinical Journal of Pain, 21, 56–68.PubMedCrossRef
Zurück zum Zitat Rolland, J. S. (2012). Mastering family challenges in illness and disability. In F. Walsh (Ed.), Normal Family Processes (pp. 452–482). New York: Guilford. Rolland, J. S. (2012). Mastering family challenges in illness and disability. In F. Walsh (Ed.), Normal Family Processes (pp. 452–482). New York: Guilford.
Zurück zum Zitat Schouffoer, A.A., Ninaber, M.K., Beaart-van de Voorde, L.J., van der Giesen, F.J., de Jong, Z., Stolk J, … Vlieland, T.P. (2011a) Randomized comparison of a multidisciplinary team care program with usual care in patients with systemic sclerosis. Arthritis Care & Research, 63, 909-917. doi: 10.1002/acr.20448. Schouffoer, A.A., Ninaber, M.K., Beaart-van de Voorde, L.J., van der Giesen, F.J., de Jong, Z., Stolk J, … Vlieland, T.P. (2011a) Randomized comparison of a multidisciplinary team care program with usual care in patients with systemic sclerosis. Arthritis Care & Research, 63, 909-917. doi: 10.​1002/​acr.​20448.
Zurück zum Zitat Schouffoer, A. A., Zirkzee, E. J., Henquet, S. M., Caljouw, M. A., Steup-Beekman, G. M., van Laar, J. M., et al. (2011b). Needs and preferences regarding health care delivery as perceived by patients with systemic sclerosis. Clinical Rheumatology, 30, 815–824. doi:10.1007/s10067-010-1645-6.PubMedCentralPubMedCrossRef Schouffoer, A. A., Zirkzee, E. J., Henquet, S. M., Caljouw, M. A., Steup-Beekman, G. M., van Laar, J. M., et al. (2011b). Needs and preferences regarding health care delivery as perceived by patients with systemic sclerosis. Clinical Rheumatology, 30, 815–824. doi:10.​1007/​s10067-010-1645-6.PubMedCentralPubMedCrossRef
Zurück zum Zitat Staps, T. (2004). Emoties hanteren [Handling emotions]. In G. Pool, F. Heuvel, A. V. Ranchor, & R. Sanderman (Eds.), Handboek psychologische interventies bij chronisch-somatische aandoeningen [Handbook for psychological interventions in chronic somatic diseases] (pp. 134–142). Assen: Koninklijke Van Gorcum. Staps, T. (2004). Emoties hanteren [Handling emotions]. In G. Pool, F. Heuvel, A. V. Ranchor, & R. Sanderman (Eds.), Handboek psychologische interventies bij chronisch-somatische aandoeningen [Handbook for psychological interventions in chronic somatic diseases] (pp. 134–142). Assen: Koninklijke Van Gorcum.
Zurück zum Zitat Steen, V. D., & Medsger, T. A. (1997). The value of the health assessment questionnaire and special patient-generated scales to demonstrate change in systemic sclerosis patients over time. Arthritis and Rheumatism, 40, 1984–1991. doi:10.1002/art.1780401110.PubMedCrossRef Steen, V. D., & Medsger, T. A. (1997). The value of the health assessment questionnaire and special patient-generated scales to demonstrate change in systemic sclerosis patients over time. Arthritis and Rheumatism, 40, 1984–1991. doi:10.​1002/​art.​1780401110.PubMedCrossRef
Zurück zum Zitat Thombs, B. D., Hudson, M., Schieir, O., Taillefer, S. S., & Baron, M. (2008). Reliability and validity of the Center for Epidemiologic Studies Depression Scale in patients with systemic sclerosis. Arthritis and Rheumatism, 59, 438–443. doi:10.1002/art.23329.PubMedCrossRef Thombs, B. D., Hudson, M., Schieir, O., Taillefer, S. S., & Baron, M. (2008). Reliability and validity of the Center for Epidemiologic Studies Depression Scale in patients with systemic sclerosis. Arthritis and Rheumatism, 59, 438–443. doi:10.​1002/​art.​23329.PubMedCrossRef
Zurück zum Zitat Thombs, B. D., Taillefer, S. S., Hudson, M., & Baron, M. (2007). Depression in patients with systemic sclerosis: A systematic review of the evidence. Arthritis Care & Research, 57, 1089–1097. doi:10.1002/art.22910.CrossRef Thombs, B. D., Taillefer, S. S., Hudson, M., & Baron, M. (2007). Depression in patients with systemic sclerosis: A systematic review of the evidence. Arthritis Care & Research, 57, 1089–1097. doi:10.​1002/​art.​22910.CrossRef
Zurück zum Zitat Thombs, B.D., van Lankveld, W., Bassel, M., Baron, M., Buzza, R., Haslam, S., … Worron-Sauve, M. (2010). Psychological health and well-being in systemic sclerosis: State of the science and consensus research agenda. Arthritis Care & Research, 62, 1181–1189. doi:10.1002/acr.20187. Thombs, B.D., van Lankveld, W., Bassel, M., Baron, M., Buzza, R., Haslam, S., … Worron-Sauve, M. (2010). Psychological health and well-being in systemic sclerosis: State of the science and consensus research agenda. Arthritis Care & Research, 62, 1181–1189. doi:10.​1002/​acr.​20187.
Zurück zum Zitat Tyndall, A.J., Bannert, B., Vonk, M., Airò, P., Cozzi, F., Carreira, P.E., … Walker, U.A. (2010). Causes and risk factors for death in systemic sclerosis: A study from the EULAR Scleroderma Trials and Research (EUSTAR) database. Annals of the Rheumatic Diseases, 69, 1809–1815. doi:10.1136/ard.2009.114264. Tyndall, A.J., Bannert, B., Vonk, M., Airò, P., Cozzi, F., Carreira, P.E., … Walker, U.A. (2010). Causes and risk factors for death in systemic sclerosis: A study from the EULAR Scleroderma Trials and Research (EUSTAR) database. Annals of the Rheumatic Diseases, 69, 1809–1815. doi:10.​1136/​ard.​2009.​114264.
Zurück zum Zitat Van der Ploeg, H. M., Defares, P. B., & Spielberger, C. D. (2000). Handleiding bij de Zelf- Beoordelingslijst ZBV [Manual for the Dutch Spielberger State-Trait Anxiety Inventory]. Lisse: Swets & Zeitlinger BV. Van der Ploeg, H. M., Defares, P. B., & Spielberger, C. D. (2000). Handleiding bij de Zelf- Beoordelingslijst ZBV [Manual for the Dutch Spielberger State-Trait Anxiety Inventory]. Lisse: Swets & Zeitlinger BV.
Zurück zum Zitat Van Lankveld, W. G. J. M., Vonk, M. C., Teunissen, H. A., & van den Hoogen, F. H. J. (2007). Appearance self-esteem in systemic sclerosis-subjective experience of skin deformity and its relationship with physician-assessed skin involvement, disease status and psychological variables. Rheumatology (Oxford), 46, 972–976. doi:10.1093/rheumatology/kem008. Van Lankveld, W. G. J. M., Vonk, M. C., Teunissen, H. A., & van den Hoogen, F. H. J. (2007). Appearance self-esteem in systemic sclerosis-subjective experience of skin deformity and its relationship with physician-assessed skin involvement, disease status and psychological variables. Rheumatology (Oxford), 46, 972–976. doi:10.​1093/​rheumatology/​kem008.
Zurück zum Zitat Vercoulen, J. H., Swanink, C. M., Fennis, J. F., Galama, J. M., van der Meer, J. W., & Bleijenberg, G. (1994). Dimensional assessment of chronic fatigue syndrome. Journal of Psychosomatic Research, 38, 383–392. doi:10.1016/0022-3999(94)90099-X.PubMedCrossRef Vercoulen, J. H., Swanink, C. M., Fennis, J. F., Galama, J. M., van der Meer, J. W., & Bleijenberg, G. (1994). Dimensional assessment of chronic fatigue syndrome. Journal of Psychosomatic Research, 38, 383–392. doi:10.​1016/​0022-3999(94)90099-X.PubMedCrossRef
Zurück zum Zitat Vriezekolk, J. E., Eijsbouts, A. M., van Lankveld, W. G., Beenackers, H., Geenen, R., & van den Ende, C. H. (2013). An acceptance-oriented cognitive-behavioral therapy in multimodal rehabilitation: A pre-post test evaluation in highly distressed patients with rheumatic diseases. Patient Education and Counseling, 91, 357–363. doi:10.1016/j.pec.2013.01.018.PubMedCrossRef Vriezekolk, J. E., Eijsbouts, A. M., van Lankveld, W. G., Beenackers, H., Geenen, R., & van den Ende, C. H. (2013). An acceptance-oriented cognitive-behavioral therapy in multimodal rehabilitation: A pre-post test evaluation in highly distressed patients with rheumatic diseases. Patient Education and Counseling, 91, 357–363. doi:10.​1016/​j.​pec.​2013.​01.​018.PubMedCrossRef
Zurück zum Zitat Willems, L. M., Kwakkenbos, L., Bode, C., van den Hoogen, F. H. J., & van den Ende, C. H. M. (2013). Health care use and patients’ perceptions on quality of care in systemic sclerosis. Clinical Experimental Rheumatology, 31, 64–70.PubMed Willems, L. M., Kwakkenbos, L., Bode, C., van den Hoogen, F. H. J., & van den Ende, C. H. M. (2013). Health care use and patients’ perceptions on quality of care in systemic sclerosis. Clinical Experimental Rheumatology, 31, 64–70.PubMed
Metadaten
Titel
Cognitive-Behavioural Therapy Targeting Fear of Progression in an Interdisciplinary Care Program: A Case Study in Systemic Sclerosis
verfasst von
Linda Kwakkenbos
Linda M. Willems
Frank H. J. van den Hoogen
Wim G. J. M. van Lankveld
Hanneke Beenackers
Toon F. van Helmond
Eni S. Becker
Cornelia H. M. van den Ende
Publikationsdatum
01.12.2014
Verlag
Springer US
Erschienen in
Journal of Clinical Psychology in Medical Settings / Ausgabe 4/2014
Print ISSN: 1068-9583
Elektronische ISSN: 1573-3572
DOI
https://doi.org/10.1007/s10880-014-9414-3

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