Skip to main content
main-content

01.12.2012 | Research article | Ausgabe 1/2012 Open Access

BMC Health Services Research 1/2012

Consenting to health record linkage: evidence from a multi-purpose longitudinal survey of a general population

Zeitschrift:
BMC Health Services Research > Ausgabe 1/2012
Autoren:
Gundi Knies, Jonathan Burton, Emanuela Sala
Wichtige Hinweise

Electronic supplementary material

The online version of this article (doi:10.​1186/​1472-6963-12-52) contains supplementary material, which is available to authorized users.

Competing interests

The authors declare that they have no competing interests.

Authors' contributions

GK carried out the main analyses of the data. GK, JB and ES all contributed to the review of the literature, methods and discussion sections. All authors read and approved the final manuscript.

Abstract

Background

The British Household Panel Survey (BHPS) is the first long-running UK longitudinal survey with a non-medical focus and a sample covering the whole age range to have asked for permission to link to a range of administrative health records. This study determines whether informed consent led to selection bias and reflects on the value of the BHPS linked with health records for epidemiological research.

Methods

Multivariate logistical regression is used, with whether the respondent gave consent to data linkage or not as the dependent variable. Independent variables were entered as four blocks; (i) a set of standard demographics likely to be found in most health registration data, (ii) a broader set of socio-economic characteristics, (iii) a set of indicators of health conditions and (iv) information about the use of health services.

Results

Participants aged 16-24, males and those living in England were more likely to consent. Consent is not biased with respect to socio-economic characteristics or health. Recent users of GP services are underrepresented among consenters.

Conclusions

Whilst data could only be linked for a minority of BHPS participants, the BHPS offers a great range of information on people's life histories, their attitudes and behaviours making it an invaluable source for epidemiological research.
Zusatzmaterial
Additional file 1: Table S1. Characteristics of consenters in study sample. (XLSX 12 KB)
12913_2011_1967_MOESM1_ESM.XLSX
Additional file 2: Table S2. Multivariate logistic regression of consent to link administrative health records. (XLSX 11 KB)
12913_2011_1967_MOESM2_ESM.XLSX
Additional file 3: Table S3. Expected sample sizes for linked BHPS and health data. (XLSX 10 KB)
12913_2011_1967_MOESM3_ESM.XLSX
Literatur
Über diesen Artikel

Weitere Artikel der Ausgabe 1/2012

BMC Health Services Research 1/2012 Zur Ausgabe