Introduction
Methods
Selection of attributes for the focus groups
Focus groups
Participants
Data collection
Data Analysis
Results
Literature reviews
Focus groups
Patient Characteristics
All (n=27) | All (n=27) | ||
---|---|---|---|
General socio-demographic and medical characteristics | |||
Sex (n, %) Women | 20 (74.1) | Age (years) Min-max Median (P25-P75) | 51-85 65.0 (59.0-69.0) |
Race (n, %) Non-Hispanic White Non-Hispanic Black/African Amer Hispanic Non-Hispanic Asian | 23 (85.2) 3 (11.1) 0 (0.0) 1 (3.7) | Employment status (n, %) Currently unemployed Working full or part time Retired Disabled Volunteering part or full time | 1 (3.7) 14 (51.9) 8 (29.6) 4 (14.8) 0 (0.0) |
Highest level of education (n, %) Less than high school High school diploma or GED Trade school/certificate program College degree (2-year associates) College degree (4- year bachelor) Graduate/professional school | 0 (0.0) 6 (22.2) 4 (14.8) 5 (18.5) 7 (25.9) 5 (18.5) | Name of insurance (several responses possible) (n, %) Medicare Medicaid Medicare Part D Prescription drug Medicare medical savings account Medicare Advantage Employer provided/sponsored insu Privately arranged insurance Non-Medicare retired benefit Tricare/Veterans healthcare Other | 13 (48.1) 2 (7.4) 7 (25.9) 0 (0.0) 6 (22.2) 6 (22.2) 3 (11.1) 0 (0.0) 0 (0.0) 6 (22.2) |
Heart problems (n,%) | 4 (14.8) | Difficulties in picking up things (n, %) | 4 (14.8) |
Health-related osteoporosis | |||
Osteoporosis diagnosis by a doctor (n, %) | 27 (100.0) | Difficulties in daily life due to osteoporosis (n, %) | 16 (59.3) |
Fracture diagnosis by a doctor Yes (n, %) Fracture last year (n, %) | 16 (59.3) 3 (11.1) | Location of fracture Wrist (n, %) Number of times (min-max) Age for first fracture (years) Spine (n, %) Number of times (min-max) Age for first fracture (years) Hip (n, %) Number of times (min-max) Age for first fracture | 8 (29.6) 0-2 50-75 5 (18.5) 1-2 50-65 3 (11.1) 1 50-55 |
OP treatments prescribed by a doctor (n, %) | 25 (92.6) | Number of OP treatments ever taken Min-max Median (P25-P75) | 0-5 1.0 (1.0-3.0) |
Type of treatment (several responses possible) (n, %) Weekly oral tablet Daily subcutaneous injection Monthly in-office injection 6-month subcutaneous injection Yearly intravenous injection Prescription received but never start medication Started but decided to stop Started but stopped (advice of family member/friend) Started but stopped (doctor’s orders) Other Do not know | 15 (55.6) 4 (14.8) 0 (0.0) 8 (29.6) 4 (14.8) 1 (3.7) 5 (18.5) 1 (3.7) 2 (7.4) 3 (11.1) 0 (0.0) | How long take the treatment (n, %) <6 months Between 6 months and 2 years >2 years Do not currently take OP treatment | 3 (11.1) 5 (18.5) 12 (44.4) 5 (18.5) |
Osteoporosis of a biological parent diagnosis by a doctor (n, %) | 18 (66.7) | Hip fracture of a biological parent (n, %) Age of father (min-max) Age of mother (min-max) | 8 (29.6) 55-85 75 |
Considerations for mode of administration | |||
Preference of administration (n, %) By mouth By shot Other | 23 (85.2) 3 (11.1) 1 (3.7) | Concern of treatment that requires frequent visit to doctor (COVID-19) (n, %) | 11 (40.7) |
Ever take an injectable treatment (n, %) | 16 (59.3) | Ever inject yourself/family member (n,%) If yes, willing to do it again | 9 (33.3) 9 (100.0) |
If shot is prescribed by a doctor (n, %) Can give himself a shot Need help and have someone to ask Need help, but do not have anyone Would never take a shot | 21 (77.8) 2 (7.4) 4 (14.8) 0 (0.0) | Concerned about side effects of treatments (n, %) Low level of concern Moderate level of concern High level of concern Very high level of concern | 5 (18.5) 12 (44.4) 6 (22.2) 4 (14.8) |
Patient perspective of needles (n, %) Needles have never bothered me Shots aren't pleasant, but they've never scared me away from needed treatment Afraid of needles and do not take shots | 12 (44.4) 15 (55.6) 0 (0.0) | Ever miss taking medication (n, %) Often Sometimes Rarely Never Do not currently take drugs | 0 (0.0) 1 (3.7) 13 (48.1) 8 (29.6) 5 (18.5) |
Afraid to have blood drawn when going to doctor (n, %) | 0 (0.0) | Ever stop treatment without telling a doctor (n, %) | 11 (40.7) |
Number of treatments prescribed (OP and not OP treatments) Min-max Median (P25-P75) | 0-13 3.0 (1.0-5.0) | Cost of treatment (OP and not OP treatments) ($, min-max) | 0-100 |
Patient stated preferences for osteoporosis management
Medication Route of Administration preferences
Questions | All (n=25)* |
---|---|
If doctor prescribed a daily skin patch to treat osteoporosis, would take it? Yes (n, %) | 24 (96.0) |
If doctor recommended a medication that will reduce risk of fracturing a bone by half and have a good safety profile, would take it? Yes (n, %) | 24 (96.0) |
Willing to accept a medication that does not work as well but costs less? Yes (n, %) | 4 (16.0) |
Think a cheaper medication is less likely to work than one that is more expensive? Yes (n, %) | 5 (20.0) |
Choice of administration | |
Skin patch | |
Rated as First choice (n, %) Rated as Second choice (n, %) Rated as Third choice (n, %) | 21 (84.0) 4 (16.0) 0 (0.00) |
Injection pen** | |
Rated as First choice (n, %) Rated as Second choice (n, %) Rated as Third choice (n, %) | 1 (4.2) 12 (50.0) 11 (45.8) |
Injection from HCP** | |
Rated as First choice (n, %) Rated as Second choice (n, %) Rated as Third choice (n, %) | 3 (12.5) 8 (33.3) 13 (54.2) |