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Erschienen in: Social Psychiatry and Psychiatric Epidemiology 12/2014

01.12.2014 | Original Paper

Desire for information of people with severe mental illness

verfasst von: Domenico Giacco, Mario Luciano, Valeria Del Vecchio, Gaia Sampogna, Mike Slade, Eleanor Clarke, Marietta Nagy, Aniko Egerhazi, Povl Munk-Jørgensen, Malene Frøkjaer Krogsgaard Bording, Wolfram Kawohl, Wulf Rössler, Nadja Zentner, Bernd Puschner, Andrea Fiorillo, The CEDAR study group

Erschienen in: Social Psychiatry and Psychiatric Epidemiology | Ausgabe 12/2014

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Abstract

Purpose

To assess (1) the desire of people with severe mental illness for information on their treatment and (2) whether the desire for information is associated with socio-demographic variables, diagnosis, illness duration, therapeutic relationship, needs and symptom severity.

Methods

588 outpatients with severe mental illness were recruited in six European countries (Germany, Denmark, Hungary, Italy, Switzerland, United Kingdom) during the “Clinical decision making and outcome in routine care of people with severe mental illness (CEDAR)” study (ISRCTN75841675). Desire for information was assessed by the Information subscale of the Clinical Decision Making Style Scale. Study participants with high desire for information were compared with those with moderate or low desire for information.

Results

80 % of study participants (n = 462) wanted to receive information on all aspects of their treatment (management, prognosis, alternative options for care). Participants with a high desire for information had less severe symptoms (OR = 0.988, CI = 0.977–1.000) and a better self-rated therapeutic alliance (OR = 1.304, CI = 1.130–1.508) with their clinician.

Conclusions

Most, but not all, people with severe mental illness have a high desire for information. Desire for information is associated with variables, such as therapeutic relationship and symptom severity, which are amenable to change during treatment.
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Literatur
1.
Zurück zum Zitat Lambert MJ, Hansen NB, Finch AE (2001) Patient-focused research: using patient outcome data to enhance treatment effects. J Consult Clin Psychol 69:159–172PubMedCrossRef Lambert MJ, Hansen NB, Finch AE (2001) Patient-focused research: using patient outcome data to enhance treatment effects. J Consult Clin Psychol 69:159–172PubMedCrossRef
2.
Zurück zum Zitat Salvador-Carulla L, Mezzich JE (2012) Person-centred medicine and mental health. Epidemiol Psychiatr Sci 21:131–137PubMedCrossRef Salvador-Carulla L, Mezzich JE (2012) Person-centred medicine and mental health. Epidemiol Psychiatr Sci 21:131–137PubMedCrossRef
3.
Zurück zum Zitat Bunn MH, O’Connor AM, Tansey MS, Jones BD, Stinson LE (1997) Characteristics of clients with schizophrenia who express certainty or uncertainty about continuing treatment with depot neuroleptic medication. Arch Psychiatr Nurs 11:238–248PubMedCrossRef Bunn MH, O’Connor AM, Tansey MS, Jones BD, Stinson LE (1997) Characteristics of clients with schizophrenia who express certainty or uncertainty about continuing treatment with depot neuroleptic medication. Arch Psychiatr Nurs 11:238–248PubMedCrossRef
4.
Zurück zum Zitat Dwight-Johnson M, Unutzer J, Sherbourne C, Tang L, Wells KB (2001) Can quality improvement programs for depression in primary care address patient preferences for treatment? Med Care 39:934–944PubMedCrossRef Dwight-Johnson M, Unutzer J, Sherbourne C, Tang L, Wells KB (2001) Can quality improvement programs for depression in primary care address patient preferences for treatment? Med Care 39:934–944PubMedCrossRef
5.
Zurück zum Zitat Rokke PD, Tomhave JA, Jocic Z (1999) The role of client choice and target selection in self-management therapy for depression in older adults. Psychol Aging 14:155–169PubMedCrossRef Rokke PD, Tomhave JA, Jocic Z (1999) The role of client choice and target selection in self-management therapy for depression in older adults. Psychol Aging 14:155–169PubMedCrossRef
6.
Zurück zum Zitat Falzer R, Garman DR (2012) Optimizing clozapine through clinical decision making. Acta Psychiat Scand 126:47–58PubMedCrossRef Falzer R, Garman DR (2012) Optimizing clozapine through clinical decision making. Acta Psychiat Scand 126:47–58PubMedCrossRef
7.
Zurück zum Zitat Nivoli AM, Pacchiarotti I, Rosa AR, Popovic D, Murru A, Valenti M et al (2012) Rates and clinical correlates of treatment non-adherence in schizoaffective bipolar patients. Acta Psychiat Scand 125:412–418PubMedCrossRef Nivoli AM, Pacchiarotti I, Rosa AR, Popovic D, Murru A, Valenti M et al (2012) Rates and clinical correlates of treatment non-adherence in schizoaffective bipolar patients. Acta Psychiat Scand 125:412–418PubMedCrossRef
8.
Zurück zum Zitat Cavelti M, Kvrgic S, Beck EM, Kossowsky J, Vauth R (2012) Assessing recovery from schizophrenia as an individual process. A review of self-report instruments. Eur Psychiatry 27:19–32PubMedCrossRef Cavelti M, Kvrgic S, Beck EM, Kossowsky J, Vauth R (2012) Assessing recovery from schizophrenia as an individual process. A review of self-report instruments. Eur Psychiatry 27:19–32PubMedCrossRef
9.
Zurück zum Zitat Mendel R, Hamann J, Traut-Mattausch E, Jonas E, Heres S, Frey D et al (2009) How psychiatrists inform themselves and their patients about risks and benefits of antipsychotic treatment. Acta Psychiat Scand 120:112–119PubMedCrossRef Mendel R, Hamann J, Traut-Mattausch E, Jonas E, Heres S, Frey D et al (2009) How psychiatrists inform themselves and their patients about risks and benefits of antipsychotic treatment. Acta Psychiat Scand 120:112–119PubMedCrossRef
10.
Zurück zum Zitat Department of Health (2010) Equity and Excellence: Liberating the NHS. The Stationary Office Ltd, London, United Kingdom Department of Health (2010) Equity and Excellence: Liberating the NHS. The Stationary Office Ltd, London, United Kingdom
11.
Zurück zum Zitat Asghari F, Mirzazadeh A, Fotouhi A (2008) Patients’ preferences for receiving clinical information and participating in decision-making in Iran. J Med Ethics 34:348–352PubMedCrossRef Asghari F, Mirzazadeh A, Fotouhi A (2008) Patients’ preferences for receiving clinical information and participating in decision-making in Iran. J Med Ethics 34:348–352PubMedCrossRef
12.
Zurück zum Zitat Back AL, Arnold RM (2006) Discussing prognosis: “how much do you want to know?” Talking to patients who do not want information or are ambivalent. J Clin Oncol 24:4214–4217PubMedCrossRef Back AL, Arnold RM (2006) Discussing prognosis: “how much do you want to know?” Talking to patients who do not want information or are ambivalent. J Clin Oncol 24:4214–4217PubMedCrossRef
13.
Zurück zum Zitat Benbassat J, Pilpel D, Tidhar M (1998) Patients’ preferences for participation in clinical decision making: a review of published surveys. Behav Med 24:81–88PubMedCrossRef Benbassat J, Pilpel D, Tidhar M (1998) Patients’ preferences for participation in clinical decision making: a review of published surveys. Behav Med 24:81–88PubMedCrossRef
14.
Zurück zum Zitat Ende J, Kazis L, Ash A, Moskowitz MA (1989) Measuring patients’ desire for autonomy: decision making and information-seeking preferences among medical patients. J Gen Intern Med 4:23–30PubMedCrossRef Ende J, Kazis L, Ash A, Moskowitz MA (1989) Measuring patients’ desire for autonomy: decision making and information-seeking preferences among medical patients. J Gen Intern Med 4:23–30PubMedCrossRef
15.
Zurück zum Zitat Laugharne R, Priebe S (2006) Trust, choice and power in mental health. Soc Psychiatry Psychiatr Epidemiol 41:843–852PubMedCrossRef Laugharne R, Priebe S (2006) Trust, choice and power in mental health. Soc Psychiatry Psychiatr Epidemiol 41:843–852PubMedCrossRef
16.
Zurück zum Zitat Pescosolido BA, Brooks Gardner C, Lubell KM (1998) How people get into mental health services: stories of choice, coercion and “muddling through” from “first-timers”. Soc Sci Med 46:275–286PubMedCrossRef Pescosolido BA, Brooks Gardner C, Lubell KM (1998) How people get into mental health services: stories of choice, coercion and “muddling through” from “first-timers”. Soc Sci Med 46:275–286PubMedCrossRef
17.
Zurück zum Zitat Mueser KT, Bellack AS, Wade JH, Sayers SL, Rosenthal CK (1992) An assessment of the educational needs of chronic psychiatric patients and their relatives. Br J Psychiatry 160:674–680PubMedCrossRef Mueser KT, Bellack AS, Wade JH, Sayers SL, Rosenthal CK (1992) An assessment of the educational needs of chronic psychiatric patients and their relatives. Br J Psychiatry 160:674–680PubMedCrossRef
18.
Zurück zum Zitat Chien WT, Kam CW, Lee IF (2001) An assessment of the patients’ needs in mental health education. J Adv Nurs 34:304–311PubMedCrossRef Chien WT, Kam CW, Lee IF (2001) An assessment of the patients’ needs in mental health education. J Adv Nurs 34:304–311PubMedCrossRef
19.
Zurück zum Zitat Zwaenepoel L, Bilo R, De Boever W, De Vos M, Reyntens J, Hoorens V et al (2005) Desire for information about drugs: a survey of the need for information in psychiatric in-patients. Pharm World Sci 27:47–53PubMedCrossRef Zwaenepoel L, Bilo R, De Boever W, De Vos M, Reyntens J, Hoorens V et al (2005) Desire for information about drugs: a survey of the need for information in psychiatric in-patients. Pharm World Sci 27:47–53PubMedCrossRef
21.
Zurück zum Zitat Puschner B, Steffen S, Slade M, Kaliniecka H, Maj M, Fiorillo A et al (2010) Clinical decision making and outcome in routine care for people with severe mental illness (CEDAR): study protocol. BMC Psychiatry 10:90PubMedCentralPubMedCrossRef Puschner B, Steffen S, Slade M, Kaliniecka H, Maj M, Fiorillo A et al (2010) Clinical decision making and outcome in routine care for people with severe mental illness (CEDAR): study protocol. BMC Psychiatry 10:90PubMedCentralPubMedCrossRef
22.
Zurück zum Zitat First MB, Spitzer RL, Gibbon M, Williams JBW (1997) Structured clinical interviews for DSM-IV axis I disorders—clinical version (SCID-CV). American Psychiatric Press, Washington, D.C. First MB, Spitzer RL, Gibbon M, Williams JBW (1997) Structured clinical interviews for DSM-IV axis I disorders—clinical version (SCID-CV). American Psychiatric Press, Washington, D.C.
23.
Zurück zum Zitat Slade M, Powell R, Rosen A, Strathdee G (2000) Threshold Assessment Grid (TAG): the development of a valid and brief scale to assess the severity of mental illness. Soc Psychiatr Psychiat Epidemiol 35:78–85CrossRef Slade M, Powell R, Rosen A, Strathdee G (2000) Threshold Assessment Grid (TAG): the development of a valid and brief scale to assess the severity of mental illness. Soc Psychiatr Psychiat Epidemiol 35:78–85CrossRef
24.
Zurück zum Zitat Slade M, Cahill S, Kelsey W, Powell R, Strathdee G, Valiakalayil A (2001) Threshold 3: the feasibility of the threshold assessment grid (TAG) for routine assessment of the severity of mental health problems. Soc Psychiatry Psychiatr Epidemiol 36:516–521PubMedCrossRef Slade M, Cahill S, Kelsey W, Powell R, Strathdee G, Valiakalayil A (2001) Threshold 3: the feasibility of the threshold assessment grid (TAG) for routine assessment of the severity of mental health problems. Soc Psychiatry Psychiatr Epidemiol 36:516–521PubMedCrossRef
25.
Zurück zum Zitat Wild D, Grove A, Martin M, Eremenco S, Mcelroy S, Verjee-Lorenz A, Erikson P (2005) Principles of good practice for the translation and cultural adaptation process for patient-reported outcomes (PRO) measures: report of the ISPOR task force for translation and cultural adaptation. Value Health 8:94–104PubMedCrossRef Wild D, Grove A, Martin M, Eremenco S, Mcelroy S, Verjee-Lorenz A, Erikson P (2005) Principles of good practice for the translation and cultural adaptation process for patient-reported outcomes (PRO) measures: report of the ISPOR task force for translation and cultural adaptation. Value Health 8:94–104PubMedCrossRef
26.
Zurück zum Zitat Puschner B, Neumann P, Jordan H, Slade M, Fiorillo A, Giacco D et al (2013) Development and psychometric properties of a five-language multiperspective instrument to assess clinical decision making style in the treatment of people with severe mental illness (CDMS). BMC Psychiatry 13:48PubMedCentralPubMedCrossRef Puschner B, Neumann P, Jordan H, Slade M, Fiorillo A, Giacco D et al (2013) Development and psychometric properties of a five-language multiperspective instrument to assess clinical decision making style in the treatment of people with severe mental illness (CDMS). BMC Psychiatry 13:48PubMedCentralPubMedCrossRef
27.
Zurück zum Zitat Lambert MJ, Burlingame GM, Umphress V, Hansen NB, Vermeersch DA, Clouse GC et al (1996) The reliability and validity of the outcome questionnaire. Clin Psychol Psychother 3:106–116CrossRef Lambert MJ, Burlingame GM, Umphress V, Hansen NB, Vermeersch DA, Clouse GC et al (1996) The reliability and validity of the outcome questionnaire. Clin Psychol Psychother 3:106–116CrossRef
28.
Zurück zum Zitat Phelan M, Slade M, Thornicroft G, Dunn G, Holloway F, Wykes T et al (1995) The Camberwell Assessment of Need the validity and reliability of an instrument to assess the needs of people with severe mental illness. Br J Psychiatry 167:189–195CrossRef Phelan M, Slade M, Thornicroft G, Dunn G, Holloway F, Wykes T et al (1995) The Camberwell Assessment of Need the validity and reliability of an instrument to assess the needs of people with severe mental illness. Br J Psychiatry 167:189–195CrossRef
29.
Zurück zum Zitat Slade M, Leese M, Cahill S, Thornicroft G, Kuipers E (2005) Patient-rated mental health needs and quality of life improvement. Br J Psychiatry 187:256–261PubMedCrossRef Slade M, Leese M, Cahill S, Thornicroft G, Kuipers E (2005) Patient-rated mental health needs and quality of life improvement. Br J Psychiatry 187:256–261PubMedCrossRef
30.
Zurück zum Zitat Junghan U, Leese M, Priebe S, Slade M (2007) Staff and patient perspectives on unmet need and therapeutic alliance in community services. Br J Psychiatry 191:543–547PubMedCrossRef Junghan U, Leese M, Priebe S, Slade M (2007) Staff and patient perspectives on unmet need and therapeutic alliance in community services. Br J Psychiatry 191:543–547PubMedCrossRef
31.
Zurück zum Zitat Priebe S, Gruyters T (1993) The role of the helping alliance in psychiatric community care. A prospective study. J Nerv Ment Dis 181:552–557PubMedCrossRef Priebe S, Gruyters T (1993) The role of the helping alliance in psychiatric community care. A prospective study. J Nerv Ment Dis 181:552–557PubMedCrossRef
32.
Zurück zum Zitat Chisholm D, Knapp MR, Knudsen HC, Amaddeo F, Gaite L, van Wijngaarden B (2000) Client Socio-demographic and Service Receipt Inventory—European version. Br J Psychiatry 177:28–33CrossRef Chisholm D, Knapp MR, Knudsen HC, Amaddeo F, Gaite L, van Wijngaarden B (2000) Client Socio-demographic and Service Receipt Inventory—European version. Br J Psychiatry 177:28–33CrossRef
33.
Zurück zum Zitat Fried TR, Bradley EH, O’ Leary J (2003) Prognosis communication in serious illness: perceptions of older patients, caregivers and clinicians. J Am Geriatr Soc 51:1398–1403PubMedCrossRef Fried TR, Bradley EH, O’ Leary J (2003) Prognosis communication in serious illness: perceptions of older patients, caregivers and clinicians. J Am Geriatr Soc 51:1398–1403PubMedCrossRef
34.
Zurück zum Zitat Jenkins V, Fallowfield L, Poole K (2001) Information needs of patients with cancer: results from a large study in UK cancer centres. Br J Cancer 84:322–331CrossRef Jenkins V, Fallowfield L, Poole K (2001) Information needs of patients with cancer: results from a large study in UK cancer centres. Br J Cancer 84:322–331CrossRef
35.
Zurück zum Zitat Simmons MB, Hetrick SE, Jorm AF (2011) Experiences of treatment decision making for young people diagnosed with depressive disorders: a qualitative study in primary care and specialist mental health settings. BMC Psychiatry 11:194PubMedCentralPubMedCrossRef Simmons MB, Hetrick SE, Jorm AF (2011) Experiences of treatment decision making for young people diagnosed with depressive disorders: a qualitative study in primary care and specialist mental health settings. BMC Psychiatry 11:194PubMedCentralPubMedCrossRef
36.
Zurück zum Zitat Lysaker PH, Davis LW, Buck KD, Outcalt S, Ringer JM (2011) Negative symptoms and poor insight as predictors of the similarity between client and therapist ratings of therapeutic alliance in cognitive behavior therapy for patients with schizophrenia. J Nerv Ment Dis 199:191–195PubMedCrossRef Lysaker PH, Davis LW, Buck KD, Outcalt S, Ringer JM (2011) Negative symptoms and poor insight as predictors of the similarity between client and therapist ratings of therapeutic alliance in cognitive behavior therapy for patients with schizophrenia. J Nerv Ment Dis 199:191–195PubMedCrossRef
37.
Zurück zum Zitat Ruissen AM, Widdershoven GAM, Meynen G, Abma TA, Van Balkom AJLM (2012) A systematic review of the literature about competence and poor insight. Acta Psychiat Scand 125:103–113PubMedCrossRef Ruissen AM, Widdershoven GAM, Meynen G, Abma TA, Van Balkom AJLM (2012) A systematic review of the literature about competence and poor insight. Acta Psychiat Scand 125:103–113PubMedCrossRef
38.
Zurück zum Zitat Wills CE, Holmes-Rovner M (2006) Integrating decision making and mental health interventions research: research directions. Clin Psychol 13:9–25 Wills CE, Holmes-Rovner M (2006) Integrating decision making and mental health interventions research: research directions. Clin Psychol 13:9–25
39.
Zurück zum Zitat Priebe S, Dimic S, Wildgrube C, Jankovic J, Cushing A, Mccabe R (2011) Good communication in psychiatry—a conceptual review. Eur Psychiatry 26:403–407PubMedCrossRef Priebe S, Dimic S, Wildgrube C, Jankovic J, Cushing A, Mccabe R (2011) Good communication in psychiatry—a conceptual review. Eur Psychiatry 26:403–407PubMedCrossRef
Metadaten
Titel
Desire for information of people with severe mental illness
verfasst von
Domenico Giacco
Mario Luciano
Valeria Del Vecchio
Gaia Sampogna
Mike Slade
Eleanor Clarke
Marietta Nagy
Aniko Egerhazi
Povl Munk-Jørgensen
Malene Frøkjaer Krogsgaard Bording
Wolfram Kawohl
Wulf Rössler
Nadja Zentner
Bernd Puschner
Andrea Fiorillo
The CEDAR study group
Publikationsdatum
01.12.2014
Verlag
Springer Berlin Heidelberg
Erschienen in
Social Psychiatry and Psychiatric Epidemiology / Ausgabe 12/2014
Print ISSN: 0933-7954
Elektronische ISSN: 1433-9285
DOI
https://doi.org/10.1007/s00127-014-0901-5

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