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Erschienen in: Quality of Life Research 8/2019

17.04.2019 | Care

Development of a quality of life questionnaire for nursing home residents in mainland China

Erschienen in: Quality of Life Research | Ausgabe 8/2019

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Abstract

Objective

To develop and validate a quality of life (QOL) questionnaire for nursing home (NH) residents in mainland China.

Methods

A cross-sectional study including a development sample (n = 176) and validation sample (n = 371) of NH residents aged 60 and older was conducted between 2015 and 2016 in Jinan, Shandong Province, China. Resident interviews, literature reviews, expert panels, and pilot studies were used to identify QOL domains and items pertinent to NH life. Exploratory and confirmatory factor analysis were used to develop and validate a QOL questionnaire. Reliability (internal consistency, spilt-half reliability, and test–retest reliability) and validity (construct and criterion validity) were evaluated for the questionnaire.

Results

The self-report Chinese NH QOL questionnaire had 9 domains and 38 items including physical health (4 items), food enjoyment (6 items), security (3 items), environmental comfort (5 items), autonomy (2 items), meaningful activity (3 items), interrelationship (6 items), family relationships (3 items), and mood (6 items). The nine-factor model was confirmed with the following fit indices: χ2/df = 1.872, root mean square error of approximation = 0.049, comparative fit index = 0.913, and Tucker-Lewis index = 0.903. The 38-item NH QOL questionnaire showed satisfactory construct validity, criterion validity, internal consistency (Cronbach’s alpha = 0.89, spilt-half reliability = 0.73, test–retest reliability = 0.76).

Conclusions

The NH QOL questionnaire appears to be a reliable and valid instrument and should be incorporated into a set of quality measures for use with NH residents in mainland China
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Literatur
1.
Zurück zum Zitat Kane, R. A., Kling, K. C., Bershadsky, B., Kane, R. L., Giles, K., Degenholtz, H. B., et al. (2003). Quality of life measures for nursing home residents. Journals of Gerontology Series A, Biological Sciences and Medical Sciences,58, 240–248. Kane, R. A., Kling, K. C., Bershadsky, B., Kane, R. L., Giles, K., Degenholtz, H. B., et al. (2003). Quality of life measures for nursing home residents. Journals of Gerontology Series A, Biological Sciences and Medical Sciences,58, 240–248.
2.
Zurück zum Zitat Kane, R. L., & Kane, R. A. (2001). What older people want from long-term care, and how they can get it. Health Aff (Millwood),20, 114–127. Kane, R. L., & Kane, R. A. (2001). What older people want from long-term care, and how they can get it. Health Aff (Millwood),20, 114–127.
3.
Zurück zum Zitat Kane, R. L., Rockwood, T., Hyer, K., Desjardins, K., Brassard, A., Gessert, C., et al. (2005). Rating the importance of nursing home residents’ quality of life. Journal of the American Geriatrics Society,53, 2076–2082.PubMed Kane, R. L., Rockwood, T., Hyer, K., Desjardins, K., Brassard, A., Gessert, C., et al. (2005). Rating the importance of nursing home residents’ quality of life. Journal of the American Geriatrics Society,53, 2076–2082.PubMed
4.
Zurück zum Zitat Kelley-Gillespie, N. (2012). A secondary analysis of perceptions of quality of life of older adults residing in a nursing home and assisted living setting using an integrated conceptual model of measurement. Applied Research Quality Life.,7(2), 137–154. Kelley-Gillespie, N. (2012). A secondary analysis of perceptions of quality of life of older adults residing in a nursing home and assisted living setting using an integrated conceptual model of measurement. Applied Research Quality Life.,7(2), 137–154.
5.
Zurück zum Zitat Lai, F. C., Chen, I. H., Chen, P. J., Chen, I. J., Chien, H. W., & Yuan, C. F. (2017). Acupressure, sleep, and quality of life in institutionalized older adults: A randomized controlled trial. Journal of the American Geriatrics Society,65, e103–e108.PubMed Lai, F. C., Chen, I. H., Chen, P. J., Chen, I. J., Chien, H. W., & Yuan, C. F. (2017). Acupressure, sleep, and quality of life in institutionalized older adults: A randomized controlled trial. Journal of the American Geriatrics Society,65, e103–e108.PubMed
6.
Zurück zum Zitat Xiao, H., Yoon, J. Y., & Bowers, B. (2017). Quality of life of nursing home residents in China: A mediation analysis. Nurs Health Sci,19, 149–156.PubMed Xiao, H., Yoon, J. Y., & Bowers, B. (2017). Quality of life of nursing home residents in China: A mediation analysis. Nurs Health Sci,19, 149–156.PubMed
7.
Zurück zum Zitat Scocco, P., & Nassuato, M. (2017). The role of social relationships among elderly community-dwelling and nursing-home residents: Findings from a quality of life study. Psychogeriatrics,17, 231–237.PubMed Scocco, P., & Nassuato, M. (2017). The role of social relationships among elderly community-dwelling and nursing-home residents: Findings from a quality of life study. Psychogeriatrics,17, 231–237.PubMed
8.
Zurück zum Zitat Lung, T., Howard, K., Etherton-Beer, C., Sim, M., Lewin, G., & Arendts, G. (2017). Comparison of the HUI3 and the EQ-5D-3L in a nursing home setting. PLoS ONE,12, e0172796.PubMedPubMedCentral Lung, T., Howard, K., Etherton-Beer, C., Sim, M., Lewin, G., & Arendts, G. (2017). Comparison of the HUI3 and the EQ-5D-3L in a nursing home setting. PLoS ONE,12, e0172796.PubMedPubMedCentral
9.
Zurück zum Zitat Huang, H. L., Weng, L. C., Tsai, Y. H., Chiu, Y. C., Chen, K. H., Huang, C. C., et al. (2015). Predictors of self- and caregiver-rated quality of life for people with dementia living in the community and in nursing homes in northern Taiwan. International Psychogeriatrics,27, 825–836.PubMed Huang, H. L., Weng, L. C., Tsai, Y. H., Chiu, Y. C., Chen, K. H., Huang, C. C., et al. (2015). Predictors of self- and caregiver-rated quality of life for people with dementia living in the community and in nursing homes in northern Taiwan. International Psychogeriatrics,27, 825–836.PubMed
10.
Zurück zum Zitat Harrison, S. L., O’Donnell, L. K., Bradley, C. E., Milte, R., Dyer, S. M., Gnanamanickam, E. S., et al. (2018). Associations between the drug burden index, potentially inappropriate medications and quality of life in residential aged care. Drugs and Aging,35, 83–91.PubMed Harrison, S. L., O’Donnell, L. K., Bradley, C. E., Milte, R., Dyer, S. M., Gnanamanickam, E. S., et al. (2018). Associations between the drug burden index, potentially inappropriate medications and quality of life in residential aged care. Drugs and Aging,35, 83–91.PubMed
11.
Zurück zum Zitat Grske, J., Meyer, S., & Wolf-Ostermann, K. (2014). Quality of life ratings in dementia care? a cross-sectional study to identify factors associated with proxy-ratings. Health and Quality of Life Outcomes,12, 177. Grske, J., Meyer, S., & Wolf-Ostermann, K. (2014). Quality of life ratings in dementia care? a cross-sectional study to identify factors associated with proxy-ratings. Health and Quality of Life Outcomes,12, 177.
12.
Zurück zum Zitat Tiit, E. M., & Saks, K. (2008). Subjective quality of life of care-dependent older people in five european union countries. In N. Y. New York (Ed.), Care-related quality of life in old age: Concepts, models and empirical findings (pp. 153–167). York: Springer, New. Tiit, E. M., & Saks, K. (2008). Subjective quality of life of care-dependent older people in five european union countries. In N. Y. New York (Ed.), Care-related quality of life in old age: Concepts, models and empirical findings (pp. 153–167). York: Springer, New.
14.
Zurück zum Zitat Schenk, L., Meyer, R., Behr, A., Kuhlmey, A., & Holzhausen, M. (2013). Quality of life in nursing homes: Results of a qualitative resident survey. Quality of Life Research,22(10), 2929–2938.PubMed Schenk, L., Meyer, R., Behr, A., Kuhlmey, A., & Holzhausen, M. (2013). Quality of life in nursing homes: Results of a qualitative resident survey. Quality of Life Research,22(10), 2929–2938.PubMed
15.
Zurück zum Zitat Makai, P., Brouwer, W. B., Koopmanschap, M. A., Stolk, E. A., & Nieboer, A. P. (2014). Quality of life instruments for economic evaluations in health and social care for older people: A systematic review. Social Science and Medicine,102, 83–93.PubMed Makai, P., Brouwer, W. B., Koopmanschap, M. A., Stolk, E. A., & Nieboer, A. P. (2014). Quality of life instruments for economic evaluations in health and social care for older people: A systematic review. Social Science and Medicine,102, 83–93.PubMed
16.
Zurück zum Zitat Estermann, J., & Kneubuhler, H. (2006). How to measure quality of life in nursing homes. European Journal of Public Health, Supplement 1,16, 39–40. Estermann, J., & Kneubuhler, H. (2006). How to measure quality of life in nursing homes. European Journal of Public Health, Supplement 1,16, 39–40.
17.
Zurück zum Zitat Kane, R. A. (2001). Long-term care and a good quality of life: Bringing them closer together. Gerontologist,41, 293–304.PubMed Kane, R. A. (2001). Long-term care and a good quality of life: Bringing them closer together. Gerontologist,41, 293–304.PubMed
18.
Zurück zum Zitat Kane, R. L., Bershadsky, B., Kane, R. A., Degenholtz, H. H., Liu, J. J., Giles, K., et al. (2004). Using resident reports of quality of life to distinguish among nursing homes. The Gerontologist,44, 624–632.PubMed Kane, R. L., Bershadsky, B., Kane, R. A., Degenholtz, H. H., Liu, J. J., Giles, K., et al. (2004). Using resident reports of quality of life to distinguish among nursing homes. The Gerontologist,44, 624–632.PubMed
19.
Zurück zum Zitat Liu, C., Feng, Z., & Mor, V. (2014). Case-mix and quality indicators in Chinese elder care homes: Are there differences between government-owned and private-sector facilities? Journal of the American Geriatrics Society,62, 371–377.PubMedPubMedCentral Liu, C., Feng, Z., & Mor, V. (2014). Case-mix and quality indicators in Chinese elder care homes: Are there differences between government-owned and private-sector facilities? Journal of the American Geriatrics Society,62, 371–377.PubMedPubMedCentral
20.
Zurück zum Zitat Zhang, H. H., Liu, P. C., Ying, J., Shi, Y., Wang, S. Q., Zhang, M. L., et al. (2018). Evaluation of MESSAGE communication strategy combined with group reminiscence therapy on elders with mild cognitive impairment in long-term care facilities. International Journal of Geriatric Psychiatry,33, 613–622.PubMed Zhang, H. H., Liu, P. C., Ying, J., Shi, Y., Wang, S. Q., Zhang, M. L., et al. (2018). Evaluation of MESSAGE communication strategy combined with group reminiscence therapy on elders with mild cognitive impairment in long-term care facilities. International Journal of Geriatric Psychiatry,33, 613–622.PubMed
21.
Zurück zum Zitat Wu, M., Yang, Y., Zhang, D., Zhao, X., Sun, Y., Xie, H., et al. (2018). Association between social support and health-related quality of life among Chinese rural elders in nursing homes: The mediating role of resilience. Quality of Life Research,27, 783–792.PubMed Wu, M., Yang, Y., Zhang, D., Zhao, X., Sun, Y., Xie, H., et al. (2018). Association between social support and health-related quality of life among Chinese rural elders in nursing homes: The mediating role of resilience. Quality of Life Research,27, 783–792.PubMed
22.
Zurück zum Zitat Wang, J., Wang, J., Cao, Y., Jia, S., & Wu, B. (2016). Older residents’ perspectives of long-term care facilities in China. J Gerontol Nurs,42, 34–43.PubMed Wang, J., Wang, J., Cao, Y., Jia, S., & Wu, B. (2016). Older residents’ perspectives of long-term care facilities in China. J Gerontol Nurs,42, 34–43.PubMed
23.
Zurück zum Zitat Ai, Y., Wang, L., Gao, X., Ren, H., Wang, Z., & Hu, H. (2017). Quality of life of the aged stroke survivors in an advanced nursing home in China: A qualitative research. Journal of the American Geriatrics Society,65, S338. Ai, Y., Wang, L., Gao, X., Ren, H., Wang, Z., & Hu, H. (2017). Quality of life of the aged stroke survivors in an advanced nursing home in China: A qualitative research. Journal of the American Geriatrics Society,65, S338.
24.
Zurück zum Zitat The WHOQOL Group. (1993). Study protocol for the World Health Organization project to develop a Quality of Life assessment instrument (WHOQOL). Quality of Life Research,2(2), 153–159. The WHOQOL Group. (1993). Study protocol for the World Health Organization project to develop a Quality of Life assessment instrument (WHOQOL). Quality of Life Research,2(2), 153–159.
25.
Zurück zum Zitat Leung, B. W., Moneta, G. B., & McBride-Chang, C. (2005). Think positively and feel positively: Optimism and life satisfaction in late life. International Journal of Aging and Human Development,61, 335–365.PubMed Leung, B. W., Moneta, G. B., & McBride-Chang, C. (2005). Think positively and feel positively: Optimism and life satisfaction in late life. International Journal of Aging and Human Development,61, 335–365.PubMed
26.
Zurück zum Zitat Diener, E. (2000). Subjective well-being. The science of happiness and a proposal for a national index. American Psychologist,55, 34–43. Diener, E. (2000). Subjective well-being. The science of happiness and a proposal for a national index. American Psychologist,55, 34–43.
27.
Zurück zum Zitat Gu, D., Dupre, M. E., & Liu, G. (2007). Characteristics of the institutionalized and community-residing oldest-old in China. Social Science & Medicine,64(4), 871–883. Gu, D., Dupre, M. E., & Liu, G. (2007). Characteristics of the institutionalized and community-residing oldest-old in China. Social Science & Medicine,64(4), 871–883.
28.
Zurück zum Zitat Shi, Z. (2016). Does the number of children matter to the happiness of their parents? Journal of Chinese Sociology,3, 16. Shi, Z. (2016). Does the number of children matter to the happiness of their parents? Journal of Chinese Sociology,3, 16.
29.
Zurück zum Zitat Liu, G., Dupre, M. E., Gu, D., Mair, C. A., & Chen, F. (2012). Psychological well-being of the institutionalized and community-residing oldest old in China: The role of children. Social Science & Medicine,75(10), 1874–1882. Liu, G., Dupre, M. E., Gu, D., Mair, C. A., & Chen, F. (2012). Psychological well-being of the institutionalized and community-residing oldest old in China: The role of children. Social Science & Medicine,75(10), 1874–1882.
31.
Zurück zum Zitat Mou, H., Chen, L., Zhu, S., Xu, D., Ling, J., & Wang, K. (2018). Qualitative research on the quality of life of the elderly in the old-age care institution. Journal of Qilu Nursing,24(4), 5–7. Mou, H., Chen, L., Zhu, S., Xu, D., Ling, J., & Wang, K. (2018). Qualitative research on the quality of life of the elderly in the old-age care institution. Journal of Qilu Nursing,24(4), 5–7.
32.
Zurück zum Zitat An, R., & Liu, G. G. (2016). Cognitive impairment and mortality among the oldest-old Chinese. International Journal of Geriatric Psychiatry,31, 1345–1353.PubMed An, R., & Liu, G. G. (2016). Cognitive impairment and mortality among the oldest-old Chinese. International Journal of Geriatric Psychiatry,31, 1345–1353.PubMed
33.
Zurück zum Zitat Rabin, R., & de Charro, F. (2001). EQ-5D: A measure of health status from the EuroQol Group. Annals of Medicine,33, 337–343.PubMed Rabin, R., & de Charro, F. (2001). EQ-5D: A measure of health status from the EuroQol Group. Annals of Medicine,33, 337–343.PubMed
34.
Zurück zum Zitat Brooks, R. (1996). EuroQol: The current state of play. Health Policy,37, 53–72.PubMed Brooks, R. (1996). EuroQol: The current state of play. Health Policy,37, 53–72.PubMed
35.
Zurück zum Zitat Folstein, M. F., Folstein, S. E., & McHugh, P. R. (1975). “Mini-mental state”. A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research,12, 189–198.PubMed Folstein, M. F., Folstein, S. E., & McHugh, P. R. (1975). “Mini-mental state”. A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research,12, 189–198.PubMed
36.
Zurück zum Zitat Honig, L. S., Vellas, B., Woodward, M., Boada, M., Bullock, R., Borrie, M., et al. (2018). Trial of solanezumab for mild dementia due to alzheimer’s disease. The New England Journal of Medicine,378(4), 321–330.PubMed Honig, L. S., Vellas, B., Woodward, M., Boada, M., Bullock, R., Borrie, M., et al. (2018). Trial of solanezumab for mild dementia due to alzheimer’s disease. The New England Journal of Medicine,378(4), 321–330.PubMed
37.
Zurück zum Zitat Mahoney, F. I., & Barthel, D. W. (1965). Functional evaluation: The barthel index. Maryland State Medical Journal,14, 61–65.PubMed Mahoney, F. I., & Barthel, D. W. (1965). Functional evaluation: The barthel index. Maryland State Medical Journal,14, 61–65.PubMed
38.
Zurück zum Zitat Groll, D. L., To, T., Bombardier, C., & Wright, J. G. (2005). The development of a comorbidity index with physical function as the outcome. Journal of Clinical Epidemiology,58, 595–602.PubMed Groll, D. L., To, T., Bombardier, C., & Wright, J. G. (2005). The development of a comorbidity index with physical function as the outcome. Journal of Clinical Epidemiology,58, 595–602.PubMed
39.
Zurück zum Zitat Doustmohammadian, A., Omidvar, N., Keshavarz-Mohammadi, N., Abdollahi, M., Amini, M., & Eini-Zinab, H. (2017). Developing and validating a scale to measure food and nutrition literacy (FNLIT) in elementary school children in Iran. PLoS ONE,12(6), e0179196.PubMedPubMedCentral Doustmohammadian, A., Omidvar, N., Keshavarz-Mohammadi, N., Abdollahi, M., Amini, M., & Eini-Zinab, H. (2017). Developing and validating a scale to measure food and nutrition literacy (FNLIT) in elementary school children in Iran. PLoS ONE,12(6), e0179196.PubMedPubMedCentral
40.
Zurück zum Zitat Reigada, L. C., Moore, M. T., Martin, C. F., & Kappelman, M. D. (2018). Psychometric evaluation of the IBD-specific anxiety scale: A novel measure of disease-related anxiety for adolescents with IBD. Journal of Pediatric Psychology,43(4), 413–422.PubMed Reigada, L. C., Moore, M. T., Martin, C. F., & Kappelman, M. D. (2018). Psychometric evaluation of the IBD-specific anxiety scale: A novel measure of disease-related anxiety for adolescents with IBD. Journal of Pediatric Psychology,43(4), 413–422.PubMed
41.
Zurück zum Zitat Givens, J. L., Jones, R. N., Mazor, K. M., Prigerson, H. G., & Mitchell, S. L. (2015). Development and psychometric properties of the family distress in advanced dementia scale. Journal of the American Medical Directors Association,16(9), 775–780.PubMedPubMedCentral Givens, J. L., Jones, R. N., Mazor, K. M., Prigerson, H. G., & Mitchell, S. L. (2015). Development and psychometric properties of the family distress in advanced dementia scale. Journal of the American Medical Directors Association,16(9), 775–780.PubMedPubMedCentral
42.
Zurück zum Zitat Bentler, P. M. (1990). Comparative fit indexes in structural models. Psychological Bulletin,107, 238–246.PubMed Bentler, P. M. (1990). Comparative fit indexes in structural models. Psychological Bulletin,107, 238–246.PubMed
43.
Zurück zum Zitat Muthén, B. O. (1989). Latent variable modeling in heterogeneous populations. Psychometrika,54, 557–585. Muthén, B. O. (1989). Latent variable modeling in heterogeneous populations. Psychometrika,54, 557–585.
44.
Zurück zum Zitat Han, J., Meng, Y., Xu, C., & Qin, S. (2017). Urban residents’ religious beliefs and influencing factors on christianity in Wuhan. China. Religions,8, 244. Han, J., Meng, Y., Xu, C., & Qin, S. (2017). Urban residents’ religious beliefs and influencing factors on christianity in Wuhan. China. Religions,8, 244.
45.
Zurück zum Zitat Low, L. P., Lee, D. T., & Chan, A. W. (2007). An exploratory study of Chinese older people’s perceptions of privacy in residential care homes. Journal of Advanced Nursing,57(6), 605–613.PubMed Low, L. P., Lee, D. T., & Chan, A. W. (2007). An exploratory study of Chinese older people’s perceptions of privacy in residential care homes. Journal of Advanced Nursing,57(6), 605–613.PubMed
46.
Zurück zum Zitat Wu, B., Mao, Z. F., & Zhong, R. (2009). Long-term care arrangements in rural China: Review of recent developments. Journal of the American Medical Directors Association,10(7), 472–477.PubMed Wu, B., Mao, Z. F., & Zhong, R. (2009). Long-term care arrangements in rural China: Review of recent developments. Journal of the American Medical Directors Association,10(7), 472–477.PubMed
Metadaten
Titel
Development of a quality of life questionnaire for nursing home residents in mainland China
Publikationsdatum
17.04.2019
Schlagwort
Care
Erschienen in
Quality of Life Research / Ausgabe 8/2019
Print ISSN: 0962-9343
Elektronische ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-019-02180-2

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