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Erschienen in: Health Care Analysis 4/2010

01.12.2010 | Original Article

Dialogue for Air, Air for Dialogue: Towards Shared Responsibilities in COPD Practice

verfasst von: Merel A. Visse, Truus Teunissen, Albert Peters, Guy A. M. Widdershoven, Tineke A. Abma

Erschienen in: Health Care Analysis | Ausgabe 4/2010

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Abstract

For the past several years patients have been expected to play a key role in their recovery. Self management and disease management have reached a hype status. Considering these recent trends what does this mean for the division of responsibilities between doctors and patients? What kind of role should healthcare providers play? With findings based on a qualitative research project of an innovative practice for people with Chronic Obstructive Pulmonary Disease (COPD) we reflect on these questions. In-depth interviews conducted with people with COPD, physiotherapists and a pulmonologist show that shifting responsibilities require a supportive attitude from healthcare providers and a dialogical communication between patients and professionals. Our findings show more is needed in order to motivate people with COPD to take responsibility and become co-owners in a process of recovery. The case example illustrates that people with COPD need support from fellow patients to learn to accept their disabilities. Awareness that COPD is more than just a lack of air, that mind and body interact, is a first step to investigate other potential problems and to enhance one’s quality of life.
Literatur
1.
Zurück zum Zitat Abma, T. A. (2002). Hidden images of self: A relational-constructionist approach to identity. In C. Ryan & T. A. Schwandt (Eds.), Exploring evaluator role and identity. Information Age Publishing. Abma, T. A. (2002). Hidden images of self: A relational-constructionist approach to identity. In C. Ryan & T. A. Schwandt (Eds.), Exploring evaluator role and identity. Information Age Publishing.
2.
Zurück zum Zitat Abma, T. A., & Widdershoven, G. A. M. (2005). Sharing stories: Narrative and dialogue in responsive nursing evaluation. Evaluation & The Health Professions, 28(1), 90–109.CrossRef Abma, T. A., & Widdershoven, G. A. M. (2005). Sharing stories: Narrative and dialogue in responsive nursing evaluation. Evaluation & The Health Professions, 28(1), 90–109.CrossRef
3.
Zurück zum Zitat Abma, T. A., Oeseburg, B., Goldsteen, M., Widdershoven, G. A. M., & Verkerk, M. (2005). Two women with multiple sclerosis. Conflicting normative expectations between patients and their caregivers. Nursing Ethics, 12(5), 479–492.CrossRefPubMed Abma, T. A., Oeseburg, B., Goldsteen, M., Widdershoven, G. A. M., & Verkerk, M. (2005). Two women with multiple sclerosis. Conflicting normative expectations between patients and their caregivers. Nursing Ethics, 12(5), 479–492.CrossRefPubMed
4.
Zurück zum Zitat Abma, T. A., Widdershoven, G. A. M. Oeseburg, B., & Verkerk, M. (2009). The quality of caring relationships. Journal of Behavioural Management (Dove Medical Press, accepted for publication). Abma, T. A., Widdershoven, G. A. M. Oeseburg, B., & Verkerk, M. (2009). The quality of caring relationships. Journal of Behavioural Management (Dove Medical Press, accepted for publication).
5.
Zurück zum Zitat Al-Obaidi, S. M., Nelson, R. M., Al-Awadhi, S., & Al-Shuwaie, N. (2000). The role of anticipation and fear of pain in the persistence of avoidance behavior in patients with chronic low back pain. Spine, 25, 1126–1131.CrossRefPubMed Al-Obaidi, S. M., Nelson, R. M., Al-Awadhi, S., & Al-Shuwaie, N. (2000). The role of anticipation and fear of pain in the persistence of avoidance behavior in patients with chronic low back pain. Spine, 25, 1126–1131.CrossRefPubMed
6.
Zurück zum Zitat Badcott, D. (2005). The expert patient: Valid recognition or false hope? Medicine, Health Care and Philosophy, 8(2), 173–178.CrossRef Badcott, D. (2005). The expert patient: Valid recognition or false hope? Medicine, Health Care and Philosophy, 8(2), 173–178.CrossRef
7.
Zurück zum Zitat Barry, C. A., Bradley, C. P., Britten, N., Stevenson, F. A., & Barber, N. (2000). Patients’ unvoiced agendas in general practice consultations: Qualitative study. BMJ, 320(7244), 1246–1250.CrossRefPubMed Barry, C. A., Bradley, C. P., Britten, N., Stevenson, F. A., & Barber, N. (2000). Patients’ unvoiced agendas in general practice consultations: Qualitative study. BMJ, 320(7244), 1246–1250.CrossRefPubMed
8.
Zurück zum Zitat Beauchamp, T. L., & Childress, J. F. (1994). Principles of biomedical ethics (4th ed.). New York/Oxford: Oxford University Press. Beauchamp, T. L., & Childress, J. F. (1994). Principles of biomedical ethics (4th ed.). New York/Oxford: Oxford University Press.
9.
Zurück zum Zitat Bissell, P., May, C. R., & Noyce, P. R. (2004). From compliance to concordance: Barriers to accomplishing a re-framed model of healthcare interactions. Social Science and Medicine, 58(4), 851–862.CrossRefPubMed Bissell, P., May, C. R., & Noyce, P. R. (2004). From compliance to concordance: Barriers to accomplishing a re-framed model of healthcare interactions. Social Science and Medicine, 58(4), 851–862.CrossRefPubMed
10.
Zurück zum Zitat Bolsenbroek, A. (2007). Het helpende gesprek; de methode van Denijs Bru. Humanistiek, 32, 24. Bolsenbroek, A. (2007). Het helpende gesprek; de methode van Denijs Bru. Humanistiek, 32, 24.
11.
Zurück zum Zitat Bordo, S. (1999). Feminist interpretations of Rene Descartes. Pennsylvania: Pennsylvania State University Press. Bordo, S. (1999). Feminist interpretations of Rene Descartes. Pennsylvania: Pennsylvania State University Press.
12.
Zurück zum Zitat Boscarino, J. A., & Chang, J. (1999). Electrocardiogram abnormalities among men with stress-related psychiatric disorders: Implications for coronary heart disease and clinical research. Annals of Behavioral Medicine, 21, 227–234.CrossRefPubMed Boscarino, J. A., & Chang, J. (1999). Electrocardiogram abnormalities among men with stress-related psychiatric disorders: Implications for coronary heart disease and clinical research. Annals of Behavioral Medicine, 21, 227–234.CrossRefPubMed
13.
Zurück zum Zitat Britten, N., Stevenson, F. A., Barry, C. A., Barber, N., & Bradley, C. P. (2000). Misunderstandings in prescribing decisions in general practice: Qualitative study. BMJ, 320(7233), 484–488.CrossRefPubMed Britten, N., Stevenson, F. A., Barry, C. A., Barber, N., & Bradley, C. P. (2000). Misunderstandings in prescribing decisions in general practice: Qualitative study. BMJ, 320(7233), 484–488.CrossRefPubMed
14.
Zurück zum Zitat Britten, N., Stevenson, F. A., Barry, C. A., Barber, N., & Bradley, C. P. (2000). Misunderstandings in prescribing decisions in general practice: Qualitative study. BMJ, 321(7269), 1160–1161.CrossRef Britten, N., Stevenson, F. A., Barry, C. A., Barber, N., & Bradley, C. P. (2000). Misunderstandings in prescribing decisions in general practice: Qualitative study. BMJ, 321(7269), 1160–1161.CrossRef
15.
Zurück zum Zitat Cox, K., Stevenson, F., Britten, N., & Dundar, Y. (2003). A systematic review of communication between patients and healthcare professionals about medicine taking and prescribing. London: GKT Concordance Unit, King’s College. Cox, K., Stevenson, F., Britten, N., & Dundar, Y. (2003). A systematic review of communication between patients and healthcare professionals about medicine taking and prescribing. London: GKT Concordance Unit, King’s College.
16.
Zurück zum Zitat Department of Health. (2001). The expert patient: A new approach to chronic disease management in the 21st century. London: Stationery Office. Department of Health. (2001). The expert patient: A new approach to chronic disease management in the 21st century. London: Stationery Office.
17.
Zurück zum Zitat Dutch Ministry of Health, Welfare and Sport. (2001). Met zorg kiezen (in Dutch). Den Haag: Dutch Ministry of Health, Welfare and Sport (Ministerie van Volksgezondheid, Welzijn en Sport). Dutch Ministry of Health, Welfare and Sport. (2001). Met zorg kiezen (in Dutch). Den Haag: Dutch Ministry of Health, Welfare and Sport (Ministerie van Volksgezondheid, Welzijn en Sport).
18.
Zurück zum Zitat Emanuel, E. J., & Emanuel, L. L. (1992). Four models of the physician–patient relationship. JAMA, 267, 2221–2226.CrossRefPubMed Emanuel, E. J., & Emanuel, L. L. (1992). Four models of the physician–patient relationship. JAMA, 267, 2221–2226.CrossRefPubMed
19.
Zurück zum Zitat Evan, S., Ferrando, S., Findler, M., Stowell, C., Smart, C., & Haglin, D. (2008). Mindfullness based cognitive therapy for generalized anxiety disorder. Journal of Anxiety disorder, 22(4), 716–721.CrossRef Evan, S., Ferrando, S., Findler, M., Stowell, C., Smart, C., & Haglin, D. (2008). Mindfullness based cognitive therapy for generalized anxiety disorder. Journal of Anxiety disorder, 22(4), 716–721.CrossRef
20.
Zurück zum Zitat Goldsteen, M., Abma, T. A., Oeseburg, B., Verkerk, M., & Widdershoven, G. A. M. (2007). What it is to be a daughter? Identities under pressure in dementia care. Bioethics, 21(1), 1–12.CrossRefPubMed Goldsteen, M., Abma, T. A., Oeseburg, B., Verkerk, M., & Widdershoven, G. A. M. (2007). What it is to be a daughter? Identities under pressure in dementia care. Bioethics, 21(1), 1–12.CrossRefPubMed
21.
Zurück zum Zitat Guba, E., & Lincoln, Y. (1989). Fourth generation evaluation. Newbury Park, CA: Sage Publications. Guba, E., & Lincoln, Y. (1989). Fourth generation evaluation. Newbury Park, CA: Sage Publications.
22.
Zurück zum Zitat Gupta, M. A. (2006). Somatization disorders in dermatology. International Review of Psychiatry, 18, 41–47.CrossRefPubMed Gupta, M. A. (2006). Somatization disorders in dermatology. International Review of Psychiatry, 18, 41–47.CrossRefPubMed
23.
Zurück zum Zitat Heijmans, M. J. W. M., Spreeuwenberg, P., & Rijken, P. M. (2005). Monitor Zorg- en Leefsituatie van mensen met astma en mensen met COPD, Trends en ontwikkelingen over de periode 2001–2004. Utrecht: Nivel. Heijmans, M. J. W. M., Spreeuwenberg, P., & Rijken, P. M. (2005). Monitor Zorg- en Leefsituatie van mensen met astma en mensen met COPD, Trends en ontwikkelingen over de periode 2001–2004. Utrecht: Nivel.
24.
Zurück zum Zitat Kleinman, A. (1988). The illness narratives: Suffering, healing and the human condition. New York: Basic Books. Kleinman, A. (1988). The illness narratives: Suffering, healing and the human condition. New York: Basic Books.
25.
Zurück zum Zitat May, C., Allison, G., Chapple, A., Chew-Graham, C., Dixon, C., Gask, L., et al. (2004). Framing the doctor-patient relationship in chronic illness: A comparative study of general practitioners’ accounts patients want to treat as a whole person and were also important. Sociology Health and Illness, 26(2), 135–158.CrossRef May, C., Allison, G., Chapple, A., Chew-Graham, C., Dixon, C., Gask, L., et al. (2004). Framing the doctor-patient relationship in chronic illness: A comparative study of general practitioners’ accounts patients want to treat as a whole person and were also important. Sociology Health and Illness, 26(2), 135–158.CrossRef
26.
Zurück zum Zitat McKinley, R. K., & Middleton, J. F. (1999). What do patients want from doctors? British Journal of General Practice, 49(447), 796–800.PubMed McKinley, R. K., & Middleton, J. F. (1999). What do patients want from doctors? British Journal of General Practice, 49(447), 796–800.PubMed
27.
Zurück zum Zitat Merleau-Ponty, M. (1968). The visible and the invisible, followed by working notes. In C. Lefort (Ed.). Evanston: Northwestern University Press. Merleau-Ponty, M. (1968). The visible and the invisible, followed by working notes. In C. Lefort (Ed.). Evanston: Northwestern University Press.
28.
Zurück zum Zitat North, C. S. (2002). Somatization in survivors of catastrophic trauma: A methodological review. Environmental Health Perspectives, 110, 637–640.PubMed North, C. S. (2002). Somatization in survivors of catastrophic trauma: A methodological review. Environmental Health Perspectives, 110, 637–640.PubMed
29.
Zurück zum Zitat Oeseburg, B., & Abma, T. A. (2006). Care as a mutual endeavour. Medicine, Health Care and Philosophy, 9, 349–357.CrossRef Oeseburg, B., & Abma, T. A. (2006). Care as a mutual endeavour. Medicine, Health Care and Philosophy, 9, 349–357.CrossRef
30.
Zurück zum Zitat Peters, A., Gorter de Vries, L., van Slobbe, A., & Peters, N. H. (2005). Doorbraakproject Ketenkwaliteit COPD van CBO leidt tot minder ziekenhuisopnames, afname van zorgvraag en toename kwaliteit van leven door verbetering zelfmanagement COPD-patiënt. Pulmoscript, 16, 2. Peters, A., Gorter de Vries, L., van Slobbe, A., & Peters, N. H. (2005). Doorbraakproject Ketenkwaliteit COPD van CBO leidt tot minder ziekenhuisopnames, afname van zorgvraag en toename kwaliteit van leven door verbetering zelfmanagement COPD-patiënt. Pulmoscript, 16, 2.
31.
Zurück zum Zitat Ricoeur, P. (1983). Temps et récit. Editions de Seuil, Paris. Ricoeur, P. (1983). Temps et récit. Editions de Seuil, Paris.
32.
Zurück zum Zitat Rycroft-Malone, J., Latter, S., Yerrell, P., & Shaw, D. (2001). Consumerism in healthcare: The case of medication education. Nursing Management, 9(4), 221–230.CrossRef Rycroft-Malone, J., Latter, S., Yerrell, P., & Shaw, D. (2001). Consumerism in healthcare: The case of medication education. Nursing Management, 9(4), 221–230.CrossRef
33.
Zurück zum Zitat Say, R., & Thompson, R. (2003). The importance of patient preferences in treatment decisions—challenges for doctors. British Medical Journal, 327(7414), 542–545.CrossRefPubMed Say, R., & Thompson, R. (2003). The importance of patient preferences in treatment decisions—challenges for doctors. British Medical Journal, 327(7414), 542–545.CrossRefPubMed
34.
Zurück zum Zitat Slatman, J. (2009). Transparent bodies: Revealing the myth of interiority. In R. van de Vall & R. Zwijnenberg (Eds.), The body within: Art, medicine and visualization (pp. 107–122). Leiden: Brill. Slatman, J. (2009). Transparent bodies: Revealing the myth of interiority. In R. van de Vall & R. Zwijnenberg (Eds.), The body within: Art, medicine and visualization (pp. 107–122). Leiden: Brill.
35.
Zurück zum Zitat Slatman, J. (2009). Beelden van het Lichaam; van verleden tot heden. Schrift 245 Lichaam in Beeld, 41(5), 147–152. Slatman, J. (2009). Beelden van het Lichaam; van verleden tot heden. Schrift 245 Lichaam in Beeld, 41(5), 147–152.
36.
Zurück zum Zitat The Council for Public Health and Healthcare. (2003). Van patiënt tot klant. Zoetermeer: The Council for Public Health and Healthcare. The Council for Public Health and Healthcare. (2003). Van patiënt tot klant. Zoetermeer: The Council for Public Health and Healthcare.
37.
Zurück zum Zitat Thorne, S., & Paterson, B. (1998). Shifting images of chronic illness. Image Journal of Nursing Scholarship, 30(2), 173–178.CrossRef Thorne, S., & Paterson, B. (1998). Shifting images of chronic illness. Image Journal of Nursing Scholarship, 30(2), 173–178.CrossRef
38.
Zurück zum Zitat Tyreman, S. (2005). An expert in what?: The need to clarify meaning and expectations in “The Expert Patient”. Medicine, Health Care and Philosophy, 8, 153–157.CrossRef Tyreman, S. (2005). An expert in what?: The need to clarify meaning and expectations in “The Expert Patient”. Medicine, Health Care and Philosophy, 8, 153–157.CrossRef
39.
Zurück zum Zitat van der Kolk, B. A., Pelcovitz, D., Roth, S., et al. (1996). Dissociation, somatization and affect dysregulation: The complexity of adaptation to trauma. American Journal of Psychiatry, 153, 83–93.PubMed van der Kolk, B. A., Pelcovitz, D., Roth, S., et al. (1996). Dissociation, somatization and affect dysregulation: The complexity of adaptation to trauma. American Journal of Psychiatry, 153, 83–93.PubMed
40.
Zurück zum Zitat Visse, M., & Abma, T. A. (2008). Dialooggestuurde zorg(innovaties): Vernieuwende zorgpraktijken, verbindende waarden. Den Haag: Lemma. Visse, M., & Abma, T. A. (2008). Dialooggestuurde zorg(innovaties): Vernieuwende zorgpraktijken, verbindende waarden. Den Haag: Lemma.
41.
Zurück zum Zitat Vlaeyen, J. W. S., Peters, M. L., Roelofs, J., Jong, J. R., de Sieben, J., Houben, R., et al. (2002). Serie onderzoek en psychotherapie: Catastrofale misinterpretaties. Vrees voor beweging, letsel en pijn bij lage-rugpijn. Tijdschrift voor Psychotherapie, 28, 205–222.CrossRef Vlaeyen, J. W. S., Peters, M. L., Roelofs, J., Jong, J. R., de Sieben, J., Houben, R., et al. (2002). Serie onderzoek en psychotherapie: Catastrofale misinterpretaties. Vrees voor beweging, letsel en pijn bij lage-rugpijn. Tijdschrift voor Psychotherapie, 28, 205–222.CrossRef
42.
Zurück zum Zitat Walker, M. U. (1998). Moral understandings: A feminist study in ethics. New York/London: Routledge. Walker, M. U. (1998). Moral understandings: A feminist study in ethics. New York/London: Routledge.
43.
Zurück zum Zitat Widdershoven, G. A. M., & Abma, T. A. (2007). Hermeneutic ethics between practice and theory. In R. E. Ashcroft, A. Dawson, H. Draper, & J. R. McMillan (Eds.), Principles of health care ethics (pp. 215–222). West Sussex: Wiley. Widdershoven, G. A. M., & Abma, T. A. (2007). Hermeneutic ethics between practice and theory. In R. E. Ashcroft, A. Dawson, H. Draper, & J. R. McMillan (Eds.), Principles of health care ethics (pp. 215–222). West Sussex: Wiley.
Metadaten
Titel
Dialogue for Air, Air for Dialogue: Towards Shared Responsibilities in COPD Practice
verfasst von
Merel A. Visse
Truus Teunissen
Albert Peters
Guy A. M. Widdershoven
Tineke A. Abma
Publikationsdatum
01.12.2010
Verlag
Springer US
Erschienen in
Health Care Analysis / Ausgabe 4/2010
Print ISSN: 1065-3058
Elektronische ISSN: 1573-3394
DOI
https://doi.org/10.1007/s10728-009-0139-7

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