Background
Aims
Methods
The intervention
The research
Results
Response rate
Baseline and post-event
Demographics
Preparations for end of life
Survey item
|
Age Group
| |||||||
---|---|---|---|---|---|---|---|---|
Under 35 (n = 48) | 35 to 44 (n = 51) | 45 to 54 (N = 70) | 55 to 64 (N = 104) | 65 to 74 (N = 147) | Over 75 (n = 76) | All ages (n = 496) | Chi-square test for trend | |
Already has a will | 0 (0%) | 17 (33%) | 35 (50%) | 79 (67%) | 132 (90%) | 73 (95%) | 335 (68%) | P = < 0.001 |
Considering making a will | 27 (58%) | 29 (56%) | 29 (41%) | 20 (19%) | 12 (8%) | 2 (3%) | 119 (24%) | P = < 0.001 |
No will and not considering making one | 21 (42%) | 5 (10%) | 6 (9%) | 5 (5%) | 3 (2%) | 2 (3%) | 42 (8%) | P = < 0.001 |
Discussed own wishes for end of life care | 13 (27%) | 20 (39%) | 37 (52%) | 57 (55%) | 81 (55%) | 44 (60%) | 252/495(51%) | P = < 0.001 |
Discussed own wishes for after death | 15 (31%) | 23 (45%) | 46 (65%) | 66 (64%) | 83 (57%) | 52 (74%) | 285/489(58%) | P = < 0.001 |
Discussed another’s wishes for end of life care | 23 (48%) | 29 (57%) | 43 (61%) | 60 (57%) | 78 (53%) | 30 (42%) | 263/492(54%) | NS |
Discussed another’s wishes for after death | 22 (46%) | 27 (54%) | 48 (69%) | 59 (57%) | 73 (51%) | 25 (36%) | 254/484(53%) | NS |
Comforted somebody who has been bereaved | 45 (94%) | 38 (75%) | 63 (89%) | 95 (91%) | 116 (79%) | 58 (81%) | 415/492(84%) | NS |
How comfortable were respondents in talking about end of life preferences and bereavement?
Survey item
|
Survey Response
| ||||||
Very uncomfortable (1 or 2) | Quite uncomfortable (3 or 4) | Neutral (5 or 6) | Quite comfortable (7 or 8) | Very comfortable (9 or 10) | |||
Talking about own end of life care | 8 (2%) | 29 (6%) | 58 (12%) | 117 (24%) | 283 (57%) | ||
Talking about own wishes for after death | 8 (2%) | 29 (6%) | 56 (12%) | 113 (23%) | 283 (58%) | ||
Talking about another’s end of life care | 9 (2%) | 34 (7%) | 80 (17%) | 124 (26%) | 236 (49%) | ||
Talking about another’s wishes for after death | 9 (2%) | 32 (6%) | 80 (17%) | 126 (26%) | 236 (49%) | ||
Comforting somebody who is bereaved | 4 (1%) | 22 (5%) | 54 (11%) | 143 (29%) | 266 (54%) | ||
Survey item - Mean score (95% CI)
|
Age Group
| ||||||
Under 35 | 35 to 44 | 45 to 54 | 55 to 64 | 65 to 74 | Over 75 | All ages | |
Talking about own end of life care | 7.77 (7.07 to 8.47) | 7.82 (7.15 to 8.49) | 8.32 (7.83 to 8.82) | 8.26 (7.83 to 8.69) | 8.63 (8.32 to 8.95) | 8.59 (8.04 to 9.14) | 8.28 (8.08 to 8.48) |
Talking about own wishes for after death | 7.65 (6.93 to 8.36) | 7.68 (6.99 to 8.37) | 8.49 (8.01 to 8.96) | 8.26 (7.83 to 8.68) | 8.47 (8.13 to 8.81) | 8.84 (8.37 to 9.32) | 8.28 (8.08 to 8.47) |
Talking about another’s end of life care | 7.15 (6.39 to 7.90) | 7.40 (6.67 to 8.04) | 7.79 (7.22 to 8.37) | 7.85 (7.40 to 8.30) | 8.41 (8.11 to 8.71) | 8.41 (7.85 to 8.96) | 7.93 (7.73 to 8.13) |
Talking about another’s wishes for after death | 6.92 (6.15 to 7.68) | 7.48 (6.81 to 8.15) | 7.84 (7.28 to 8.40) | 8.05 (7.64 to 8.46) | 8.30 (7.99 to 8.61) | 8.55 (8.00 to 9.09) | 7.95 (7.76 to 8.15) |
Comforting somebody who has been bereaved | 8.02 (7.42 to 8.62) | 7.68 (7.06 to 8.30) | 8.18 (7.71 to 8.65) | 8.22 (7.84 to 8.59) | 8.62 (8.32 to 8.92) | 8.94 (8.55 to 9.33) | 8.33 (8.15 to 8.51) |
Survey item - Mean score difference
| Under 65/65 and over | Previously talked about the subject/not talked about it | |||||
Talking about own end of life care | 0.45 | (p = 0.02) | 1.18 | (p = < 0.001) | |||
Talking about own wishes for after death | 0.48 | (p = 0.019) | 1.88 | (p = < 0.001) | |||
Talking about another’s end of life care | 0.72 | (p = < 0.001) | 1.31 | (p = < 0.001) | |||
Talking about another’s wishes for after death | 0.66 | (p = 0.001) | 1.47 | (p = < 0.001) | |||
Comforting somebody who has been bereaved | 0.66 | (p = < 0.001) | 1.75 | (p = < 0.001) |
How relevant were the events to those who attended them?
Changes in intentions post-event
Awareness (n = 326) | How to (n = 172) | Total (n = 498) | |
---|---|---|---|
Are you planning any specific questions with family or friends because of anything you have heard today? | 187 (57%) | 119 (69%) | 306 (61%) |
Did the presentation inspire you to do anything else or make any other changes in your life? | 168 (52%) | 106 (62%) | 274 (55%) |
Answered ‘yes’ to either question above
|
227 (70%)
|
136 (79%)
|
363 (73%)
|
Follow-up
Had the conversation | Mean difference in how comfortable | ||||
---|---|---|---|---|---|
Topic of Conversation | Follow-up Responder | Follow-up Non-responder | P-value | Responder/non responder | P-value |
Own end of life care | 85/140 (61%) | 167/355 (47%) | 0.006 | 0.642 | 0.001 |
Own wishes for after your death | 96/140 (69%) | 189/349 (54%) | 0.003 | 0.613 | 0.001 |
Another person’s end of life care | 97/141 (69%) | 166/351 (47%) | < 0.001 | 0.737 | < 0.001 |
Another person’s wishes for after their death | 94/140 (47%) | 160/344 (67%) | < 0.001 | 0.648 | 0.002 |
Before | Follow-up | Difference | P value | |||||||
---|---|---|---|---|---|---|---|---|---|---|
Awareness | How to | Total | Awareness | How to | Total | Awareness | How to | Total | Total | |
Own end of life care | 59/99 (60%) | 26/40 (65%) | 85 (61%) | 70/99 (71%) | 27/40 (68%) | 97 (70%) | 11% | 3% | 9% | 0.033 |
Own wishes for after your death | 70/99 (71%) | 26/40 (64%) | 96 (69%) | 79/99 (80%) | 29/40 (73%) | 108 (78%) | 9% | 9% | 9% | 0.033 |
Other’s wishes for end of life care | 66/100 (66%) | 29/39 (74%) | 95 (68%) | 68/100 (68%) | 27/39 (69%) | 95 (68%) | 2% | −5% | 0% | N/A |
Other’s wishes for after their death | 67/98 (68%) | 24/39 (85%) | 91 (66%) | 67/98 (68%) | 26/39 (74%) | 93 (68%) | 0% | 2% | 2% | 0.44 (NS) |
To comfort somebody who is bereaved | 86/100 (86%) | 36/39 (92%) | 122 (88%) | 83/100 (83%) | 34/39 (87%) | 118 (85%) | −3% | −5% | −3% | N/A |
Topic of conversation | Sample size | Mean difference | P-value |
---|---|---|---|
Own end of life care | 67 | 0.627 | 0.003 |
Own wishes for after your death | 69 | 0.420 | NS |
Other’s wishes for end of life care | 77 | 0.182 | NS |
Other’s wishes for after their death | 77 | 0.052 | NS |
To comfort somebody who is bereaved | 86 | 0.070 | NS |