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Supportive Care in Cancer

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30.10.2018 | Original Article

Do haematological cancer patients get the information they need about their cancer and its treatment? Results of a cross-sectional survey

verfasst von: Rochelle Watson, Jamie Bryant, Robert Sanson-Fisher, Heidi Turon, Lisa Hyde, Anne Herrmann

Erschienen in: Supportive Care in Cancer | Ausgabe 4/2019

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Abstract

Purpose

To explore the experiences of haematological cancer outpatients in obtaining information about their cancer and its treatment.

Methods

A cross-sectional survey of adult haematological cancer outpatients was conducted. Participants completed two pen-and-paper questionnaires: the first examined demographics and disease characteristics; the second, completed four weeks later, asked about the cancer information received. Participants indicated whether they received the information they needed about medical procedures and self-management, experiences regarding doctor-patient communication, and self-efficacy in seeking information and support. Where possible, items were derived from Australian psychosocial cancer care guidelines.

Results

Two hundred and ninety-three (84%) patients consented to participate, with 170 (58%) completing both questionnaires. Most participants reported receiving information in accordance with guidelines. Areas identified as requiring improvement included difficulty recalling information (28%); information overload (26%); insufficient opportunity to ask questions (23%); and insufficient information about managing anxiety related to medical procedures (20%).

Conclusion

While many haematological cancer patients report receiving adequate information, there is room for improvement. Implementation of evidence-based strategies, such as decision aids or audiotapes of the consultation, may help to improve information experiences.

Practice implications

A patient-centred approach to information provision is essential for ensuring information addresses the needs and preferences of the patient.

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Titel: Do haematological cancer patients get the information they need about their cancer and its treatment? Results of a cross-sectional survey
verfasst von: Rochelle Watson
Jamie Bryant
Robert Sanson-Fisher
Heidi Turon
Lisa Hyde
Anne Herrmann
Publikationsdatum: 30.10.2018
Verlag: Springer Berlin Heidelberg
Erschienen in: Supportive Care in Cancer / Ausgabe 4/2019
Print ISSN: 0941-4355
Elektronische ISSN: 1433-7339
DOI: https://doi.org/10.1007/s00520-018-4525-2

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Live-Webinar: Aktuelle Leitlinien bei Herz-Kreislauf-Erkrankungen

Springer Medizin

Do haematological cancer patients get the information they need about their cancer and its treatment? Results of a cross-sectional survey

Abstract

Purpose

Methods

Results

Conclusion

Practice implications

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Live-Webinar: Aktuelle Leitlinien bei Herz-Kreislauf-Erkrankungen

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Abstract

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Methods

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