Skip to main content
Erschienen in: Current Hepatology Reports 1/2018

15.02.2018 | Management of Cirrhotic Patient (A Cardenas and P Tandon, Section Editors)

Early Integration of Advance Care Planning (ACP) into Cirrhosis Care: Why We Need It

verfasst von: Amanda Brisebois, Puneeta Tandon

Erschienen in: Current Hepatology Reports | Ausgabe 1/2018

Einloggen, um Zugang zu erhalten

Abstract

Purpose of Review

Patients with cirrhosis are largely unaware of the disease trajectory. This review emphasizes the importance of early advance care planning (ACP) and provides practitioners with a framework to apply these concepts.

Recent Findings

Literature is arising describing the importance of ACP and application of palliative principles (symptom management, quality of life, social, spiritual, and emotional care) in cirrhosis care. Understanding illness trajectories can promote symptom control, promote appropriate location of care, and ease care transitions. Our group of practitioners has spent time reviewing literature on ACP and has published tools to educate patients, surrogates, and health practitioners regarding the importance of these principles. In addition, work is ongoing to integrate this very important aspect of care into the daily practice of practitioners who managed end-stage-liver disease.

Summary

Early ACP and integration of palliative principles into cirrhosis care is critical. Provided is an action plan for implementing early ACP into end-stage liver disease (ESLD) care.
Literatur
1.
Zurück zum Zitat •• Larson AM, Curtis JR. Integrating palliative care for liver transplant candidates: “Too well for transplant, too sick for life”. JAMA. 2006;295:2168–75. Commentary on integrating palliative care principles into cirrhosis care. CrossRefPubMed •• Larson AM, Curtis JR. Integrating palliative care for liver transplant candidates: “Too well for transplant, too sick for life”. JAMA. 2006;295:2168–75. Commentary on integrating palliative care principles into cirrhosis care. CrossRefPubMed
3.
Zurück zum Zitat • Larson A. Palliative Care for Patients with End-Stage Liver Disease. Curr Gastroenterol Rep. 2015;17(5):440. Review on palliative needs of and crucial conversations to take place for ESLD patients, discussing end of life issues and integrating in this patient population. CrossRefPubMed • Larson A. Palliative Care for Patients with End-Stage Liver Disease. Curr Gastroenterol Rep. 2015;17(5):440. Review on palliative needs of and crucial conversations to take place for ESLD patients, discussing end of life issues and integrating in this patient population. CrossRefPubMed
4.
Zurück zum Zitat • Poonja Z, Brisebois A, van Zanten, SV, Tandon P, Meeberg G, Karvellas CJ. Patients with cirrhosis and denied liver transplants rarely receive adequate palliative care or appropriate management. Clin Gastroenterol Hepatol. 2014;12(4):692–698. Highly cited retrospective study on utilization of palliative care and symptom burden in inpatient delisted patients with ESLD. https://doi.org/10.1016/j.cgh.2013.08.027.CrossRefPubMed • Poonja Z, Brisebois A, van Zanten, SV, Tandon P, Meeberg G, Karvellas CJ. Patients with cirrhosis and denied liver transplants rarely receive adequate palliative care or appropriate management. Clin Gastroenterol Hepatol. 2014;12(4):692–698. Highly cited retrospective study on utilization of palliative care and symptom burden in inpatient delisted patients with ESLD. https://​doi.​org/​10.​1016/​j.​cgh.​2013.​08.​027.CrossRefPubMed
7.
Zurück zum Zitat Hickman S, Keevern E, Hammes B. Use of the physician orders for life-sustaining treatment program in the clinical setting: a systematic review of the literature. JAGS. 2015;63(2):341–50.CrossRef Hickman S, Keevern E, Hammes B. Use of the physician orders for life-sustaining treatment program in the clinical setting: a systematic review of the literature. JAGS. 2015;63(2):341–50.CrossRef
8.
Zurück zum Zitat •• Brisebois A, Ismond K, et al. Advance Care Planning (ACP) for specialists managing cirrhosis: a focus on patient-centered care. Baltimore: Wiley; 2017. Overview of ACP and GCD specifically in cirrhosis patients, with practical figures for use in various care settings. •• Brisebois A, Ismond K, et al. Advance Care Planning (ACP) for specialists managing cirrhosis: a focus on patient-centered care. Baltimore: Wiley; 2017. Overview of ACP and GCD specifically in cirrhosis patients, with practical figures for use in various care settings.
13.
Zurück zum Zitat El-Jawahri A, Mitchell S, et al. A randomized controlled trial of a CPR and intubation video decision support tool for hospitalized patients. J Gen Intern Med. 30(8):1071–80. El-Jawahri A, Mitchell S, et al. A randomized controlled trial of a CPR and intubation video decision support tool for hospitalized patients. J Gen Intern Med. 30(8):1071–80.
14.
Zurück zum Zitat • Yeh J, Cheng J, et al. Using a question prompt list As a communication aid in advanced cancer. Care J Oncol. 2014;10(3):E137–42. • Yeh J, Cheng J, et al. Using a question prompt list As a communication aid in advanced cancer. Care J Oncol. 2014;10(3):E137–42.
15.
Zurück zum Zitat • Dunlay S, Strand J. How to discuss goals of care with patients. Trends Cardiovasc Med. 2016;26(1):36–43. Good review on GCD discussions, limitations, and approaches to ACP. CrossRefPubMed • Dunlay S, Strand J. How to discuss goals of care with patients. Trends Cardiovasc Med. 2016;26(1):36–43. Good review on GCD discussions, limitations, and approaches to ACP. CrossRefPubMed
16.
Zurück zum Zitat You J, Fowler R, Hedland D, On behalf of the Canadian Researchers at the End of Life Network (CARENET). Just ask: discussing goals of care with patients in hospital with serious illness. CMAJ. 2014;186(6):425–32.CrossRefPubMedPubMedCentral You J, Fowler R, Hedland D, On behalf of the Canadian Researchers at the End of Life Network (CARENET). Just ask: discussing goals of care with patients in hospital with serious illness. CMAJ. 2014;186(6):425–32.CrossRefPubMedPubMedCentral
23.
Zurück zum Zitat • Walling A, Ahluwalia S, et al. Palliative care quality indicators for patients with end-stage liver disease due to cirrhosis. Asch Dig Dis Sci. 2017;62:84–92. Updated panel review of evidence-based quality indicators for when ACP discussions should be undertaken, and comments on which QI have evidence based on symptom management. CrossRefPubMed • Walling A, Ahluwalia S, et al. Palliative care quality indicators for patients with end-stage liver disease due to cirrhosis. Asch Dig Dis Sci. 2017;62:84–92. Updated panel review of evidence-based quality indicators for when ACP discussions should be undertaken, and comments on which QI have evidence based on symptom management. CrossRefPubMed
25.
Zurück zum Zitat • PA G, Sinclair CT. Palliative medicine review: Prognostication. J Palliat Med. 2008;11:84–103. Review on prognostication. CrossRef • PA G, Sinclair CT. Palliative medicine review: Prognostication. J Palliat Med. 2008;11:84–103. Review on prognostication. CrossRef
27.
Zurück zum Zitat Mendis R, Soo WK, Zannino D, Michael N, Spruyt O. Multidisciplinary Prognostication Using the Palliative Prognostic Score in an Australian Cancer Center. Palliat Care: Res Treat. 2015:7–14. Mendis R, Soo WK, Zannino D, Michael N, Spruyt O. Multidisciplinary Prognostication Using the Palliative Prognostic Score in an Australian Cancer Center. Palliat Care: Res Treat. 2015:7–14.
28.
Zurück zum Zitat Bruggeman A, Heavey BS, et al. Lack of documentation of evidence-based prognostication in cancer patients by In-patient palliative care consultants. J Palliat Med. 2015;18(4):382–5.CrossRefPubMed Bruggeman A, Heavey BS, et al. Lack of documentation of evidence-based prognostication in cancer patients by In-patient palliative care consultants. J Palliat Med. 2015;18(4):382–5.CrossRefPubMed
29.
Zurück zum Zitat Patidar KR, Thacker LR, et al. Symptom domain groups of the patient-reported outcomes measurement information system tools independently predict hospitalizations and re-hospitalizations in cirrhosis. Dig Dis Sci. 2017;62(5):1173–9.CrossRefPubMed Patidar KR, Thacker LR, et al. Symptom domain groups of the patient-reported outcomes measurement information system tools independently predict hospitalizations and re-hospitalizations in cirrhosis. Dig Dis Sci. 2017;62(5):1173–9.CrossRefPubMed
32.
Zurück zum Zitat •• James J, Liou I. Comprehensive care of patients with chronic liver disease. Med Clin N Am. 2015;99:913–33. Review of liver care, including medications for symptoms, symptom burden, prognostication scoring, and involvement of palliative care. CrossRefPubMed •• James J, Liou I. Comprehensive care of patients with chronic liver disease. Med Clin N Am. 2015;99:913–33. Review of liver care, including medications for symptoms, symptom burden, prognostication scoring, and involvement of palliative care. CrossRefPubMed
33.
Zurück zum Zitat Hansen L, Leo M, et al. Symptom distress in patients with end-stage liver disease toward the end of life. Gastroenterol Nurs. 2015;38(3):201–10.CrossRefPubMedPubMedCentral Hansen L, Leo M, et al. Symptom distress in patients with end-stage liver disease toward the end of life. Gastroenterol Nurs. 2015;38(3):201–10.CrossRefPubMedPubMedCentral
36.
Zurück zum Zitat Morton R, Webster A, et al. Conservative management and end-of-life care in an Australian cohort with ESRD. Clin J Am Assoc Nephrol. 2016;11(12):2195–203.CrossRef Morton R, Webster A, et al. Conservative management and end-of-life care in an Australian cohort with ESRD. Clin J Am Assoc Nephrol. 2016;11(12):2195–203.CrossRef
38.
Zurück zum Zitat Fischberg, Bull J, for the AAHPM Choosing Wisely Task Force, et al. Five things physicians and patients should question in hospice and palliative medicine. J Pain Symptom Manag. 2013;45(3):595–605.CrossRef Fischberg, Bull J, for the AAHPM Choosing Wisely Task Force, et al. Five things physicians and patients should question in hospice and palliative medicine. J Pain Symptom Manag. 2013;45(3):595–605.CrossRef
39.
Zurück zum Zitat Walling A, Schreibeis-Baum M, et al. Proactive case finding to improve concurrently curative and palliative care in patients with end-stage liver disease. J Palliat Med. 2015;18(4):378–81.CrossRefPubMedPubMedCentral Walling A, Schreibeis-Baum M, et al. Proactive case finding to improve concurrently curative and palliative care in patients with end-stage liver disease. J Palliat Med. 2015;18(4):378–81.CrossRefPubMedPubMedCentral
46.
Zurück zum Zitat Tierney WM, Dexter PR, al e. The effect of discussions about advance directives on patients’ satisfaction with primary care. J Gen Intern Med. 2001;16(1):32–40.PubMedPubMedCentral Tierney WM, Dexter PR, al e. The effect of discussions about advance directives on patients’ satisfaction with primary care. J Gen Intern Med. 2001;16(1):32–40.PubMedPubMedCentral
47.
Zurück zum Zitat •• Dingfield LE, Kayser JB. Integrating advance care planning into practice. Chest. 2017;151(6):1387–93. Key: Review outlining important factors in integrating ACP into practice in a non-cancer setting. •• Dingfield LE, Kayser JB. Integrating advance care planning into practice. Chest. 2017;151(6):1387–93. Key: Review outlining important factors in integrating ACP into practice in a non-cancer setting.
48.
Zurück zum Zitat McPherson S, Lucey MR, Moriarty KJ. Decompensated alcohol related liver disease: acute management. BMJ. 2016;352:i124.CrossRefPubMed McPherson S, Lucey MR, Moriarty KJ. Decompensated alcohol related liver disease: acute management. BMJ. 2016;352:i124.CrossRefPubMed
Metadaten
Titel
Early Integration of Advance Care Planning (ACP) into Cirrhosis Care: Why We Need It
verfasst von
Amanda Brisebois
Puneeta Tandon
Publikationsdatum
15.02.2018
Verlag
Springer US
Erschienen in
Current Hepatology Reports / Ausgabe 1/2018
Elektronische ISSN: 2195-9595
DOI
https://doi.org/10.1007/s11901-018-0391-0

Weitere Artikel der Ausgabe 1/2018

Current Hepatology Reports 1/2018 Zur Ausgabe

Management of Cirrhotic Patient (A Cardenas and P Tandon, Section Editors)

Quality of Life in Patients with Cirrhosis—Measurement and Clinical Impact

Management of Cirrhotic Patient (A Cardenas and P Tandon, Section Editors)

Care Coordination in Cirrhosis

Management of Cirrhotic Patient (A Cardenas and P Tandon, Section Editors)

Assessment and Management of Sleep Disturbance in Cirrhosis

Management of Cirrhotic Patient (A Cardenas and P Tandon, Section Editors)

Tackling 30-Day Readmissions in Patients with Cirrhosis

Management of Cirrhotic Patient (A Cardenas and P Tandon, Section Editors)

Ethical Issues in Patients with Cirrhosis

Management of Cirrhotic Patient (A Cardenas and P Tandon, Section Editors)

Clinical Impact of Depression in Cirrhosis

Leitlinien kompakt für die Innere Medizin

Mit medbee Pocketcards sicher entscheiden.

Seit 2022 gehört die medbee GmbH zum Springer Medizin Verlag

Update Innere Medizin

Bestellen Sie unseren Fach-Newsletter und bleiben Sie gut informiert.