The online version of this article (doi:10.1186/1471-2288-14-47) contains supplementary material, which is available to authorized users.
All authors declare: no support from any organisation for the submitted work; no financial relationships with any organisations that might have an interest in the submitted work in the previous three years; no other relationships or activities that could appear to have influenced the submitted work.
CG, SLD, SI, JM, designed the protocol, SLD conducted online searches and interviews and screened studies for inclusion and extracted data for the phase one review. SLD recorded and evaluated the piloting of the ENRICH care home networks for phase two. CG and SLD wrote the paper. All authors interpreted the data and critically reviewed the paper.
In the UK care homes are one of the main providers of long term care for older people with dementia. Despite the recent increase in care home research, residents with dementia are often excluded from studies. Care home research networks have been recommended by the Ministerial Advisory Group on Dementia Research (MAGDR) as a way of increasing research opportunities for residents with dementia. This paper reports on an evaluation of the feasibility and early impact of an initiative to increase care home participation in research.
A two phase, mixed methods approach was used; phase 1 established a baseline of current and recent studies including the National Institute for Health Research portfolio. To explore the experiences of recruiting care homes and research participation, interviews were conducted with researchers working for the Dementia and Neurodegenerative Diseases Research Network (DeNDRoN) and care home managers. In phase 2, four DeNDRoN area offices recruited care homes to a care home network for their region. The care home networks were separate from the DeNDRoN research network. Diaries were used to document and cost recruitment; DeNDRoN staff were interviewed to understand the barriers, facilitators and impact of the care home networks.
Thirty three current or recent studies were identified as involving care homes as care home specific studies or those which included residents. Further details of care home recruitment were obtained on 20 studies by contacting study teams. Care home managers were keen to be involved in research that provided staff support, benefits for residents and with minimal disruption. In phase 2, 141 care homes were recruited to the care home research networks, through corporate engagement and individual invitation. Pre-existing relationships with care homes facilitated recruitment. Sites with minimal experience of working with care homes identified the need for care home training for researchers.
Phase 1 review revealed a small but increasing number of studies involving care homes. Phase 2 demonstrated the feasibility of care home research networks, their potential to increase recruitment to research and develop partnerships between health services and care homes, but highlighted the need for care home training for researchers.
Laing W, Buisson E: Care of elderly people UK market survey. 2009, London: 2009 Laing and Buisson
Care Quality Commission: The state of health care and adult social care in England in 2011/12. 2012, London: Care Quality Commission
Bebbington A, Darton R, Netten A: The 1995/96 National Longitudinal Survey of Publicly-Funded Admissions. Care Homes for Older People: Volume 2. Admissions, Needs and Outcomes. 2001, University of Kent at Canterbury: Personal Social Services Research Unit
Understanding care homes: A research and development perspective. Edited by: Froggatt K, Davies S, Meyer J. 2009, London: Jessica Kingsley
Knapp M, Prince M: King’s College London and London School of Economics. A. report into the prevalence and cost of dementia prepared by the Personal Social Services Research Unit (PSSRU) at the London School of Economics and the Institute of Psychiatry at King’s College London, for the Alzheimer’s Society. 2007, Dementia UK: London Alzheimer’s Society
Quince C: Low Expectations: Attitudes in Choice, Care and Community for People with Dementia Care Homes. 2013, London: Alzheimer’s society
NHS Institute for Innovation and improvements (2012/13): Practice development programme for care homes. http://www.institute.nhs.uk/care_homes/programme/programme_development.html,
Shaughnessy PW, Kramer AM, Hittle DF, Steiner JF: Quality of care in teaching nursing homes: findings and implications. Health Care Financial Rev. 1995, 16 (4): 55-83.
Wieland D, Rubenstein LZ, Ouslander JG, Martin SE: Organizing an academic nursing home. Impacts on institutionalized elderly. J Am Med Directors’ Assoc. 1986, 255 (19): 2622-2627. 10.1001/jama.1986.03370190106033. CrossRef
Gordon AL, Logan PA, Jones RG, Forrester-Paton C, Mamo JP, Gladman JR, Medical Crises in Older People Study Group: A systematic mapping review of randomized controlled trials (RCTs) in care homes. BMC Geriatr. 2012, 12: 31-10.1186/1471-2318-12-31. doi: 10.1186/1471-2318-12-31 CrossRefPubMedPubMedCentral
Katz PR: An International Perspective on Long Term Care: Focus on Nursing Homes. J Am Med Directors’ Assoc. 2011, 12 (7): 487-492. 10.1016/j.jamda.2011.01.017. CrossRef
Katz PR, Karuza J, Counsell SR: Academics and the nursing home. Clin Geriatric Med. 1995, 11 (3): 503-516.
Goodman C, Baron NL, Machen I, Stevenson E, Evans C, Davies SL, Iliffe S: Culture, consent, costs and care homes: enabling older people with dementia to participate in research. Aging Mental Health. 2010, 15 (4): 475-48. CrossRef
Luff R, Ferreira Z, Meyer J: Care homes. 2012, London: Social Care Research Methods Review 8, NIHR School of Social Care Research
Zermansky AG, Allred DP, Petty DR, Raynor DK: Striving to recruit: the difficulties of conducting clinical research on elderly care home residents. J Royal Soc Med. 2007, 100: 258-261. 10.1258/jrsm.100.6.258. CrossRef
Wilson E, Pollock K, Aubeeluck A: Gaining and maintain consent when capacity can be an issue: a research study with people with Huntington’s Disease. Clinical Ethics. 2010, 5 (13): 142-147. CrossRef
Ministerial Advisory Group on Dementia Research. (MAGDR): Ministerial Advisory Group on Dementia Research: Headline Report. 2011, Department of Health
The ENRICH toolkit: Enabling Research in Care Homes; a simple guide for researchers, care home staff and residents. http://www.enrich.dendron.nihr.ac.uk/,
Bytheway B, Ward R, Holland C, Peace S: Too old: older people's accounts of discrimination, exclusion and rejection: A report from the Research on Age Discrimination Project (RoAD) to Help the Aged. 2007, London, UK: Help the Aged, http://oro.open.ac.uk/7281/,
Barnett K, Abbey J, Eyre J: Implementing the Teaching Nursing Homes Initiative: Scoping Study. 2011, Adelaide, Australia: Australian Institute for Social Research, http://www.health.gov.au/internet/main/publishing.nsf/Content/0C766829AD5CC848CA257BF0001C974C/$File/THN-Final-Report.pdf
- Enabling research in care homes: an evaluation of a national network of research ready care homes
Sue L Davies
- BioMed Central
Neu im Fachgebiet AINS
Meistgelesene Bücher aus dem Fachgebiet AINS
Mail Icon II