Background
Research aim
Research objectives
Methods
Study background
Recruitment
Questionnaire
Socio-demographic questions
End of life preferences
Analysis
Presentation of results
Results
Māori (147) | Non-Māori (291) | |||
---|---|---|---|---|
Frequency | Percent | Frequency | Percent | |
Gender | ||||
Male
| 57 | 38.8 | 147 | 50.5 |
Female
| 90 | 61.2 | 144 | 49.5 |
Age | ||||
82 to 86
| 102 | 69.4 | 0 | 0 |
87 to 92
| 45 | 30.6 | 291 | 100 |
Ethnicity (multiple response) | ||||
European
| 66 | 44.9 | 264 | 90.7 |
Samoan
| 1 | 0.7 | 0 | 0 |
Chinese
| 1 | 0.7 | 0 | 0 |
Indian
| 0 | 0 | 0 | 0 |
Other European
| 12 | 8.2 | 32 | 11 |
Other
| 1 | 0.7 | 5 | 1.7 |
Marital Status | ||||
Never Married/Partnered
| 3 | 2 | 9 | 3.1 |
Married/Partnered
| 51 | 34.7 | 108 | 37.1 |
Widow/widower
| 85 | 57.8 | 164 | 56.4 |
Separated
| 3 | 2 | 1 | 0.3 |
Divorced
| 5 | 3.4 | 8 | 2.7 |
Education | ||||
Primary School or No School
| 39 | 26.5 | 45 | 15.5 |
Secondary School no qualification
| 59 | 40.1 | 107 | 36.8 |
Secondary School
| 25 | 17 | 59 | 20.3 |
Trade/Occupational
| 7 | 4.8 | 32 | 11 |
Tertiary Qualification
| 14 | 9.5 | 47 | 16.2 |
Who do you live with most of the time? | ||||
Alone
| 54 | 36.7 | 150 | 51.5 |
Spouse/partner only
| 41 | 27.9 | 104 | 35.7 |
Spouse and child/other relative
| 10 | 6.8 | 8 | 2.7 |
Spouse and non-relatives
| 1 | 0.7 | 1 | 0.3 |
Child not spouse
| 26 | 17.7 | 12 | 4.1 |
Others (not spouse or child)
| 13 | 8.8 | 15 | 5.2 |
What best describes your home? | ||||
Private dwelling
| 113 | 76.9 | 159 | 54.6 |
Private unit or apartment
| 15 | 10.2 | 46 | 15.8 |
Unit or apartment –family
| 4 | 2.7 | 4 | 1.4 |
Retirement village –own villa
| 6 | 4.1 | 61 | 21 |
Rest Home
| 4 | 2.7 | 9 | 3.1 |
Private Hospital
| 1 | 0.7 | 4 | 1.4 |
Marae or Iwi based housing
| 1 | 0.7 | 0 | 0 |
Other
| 3 | 2 | 7 | 2.4 |
Support Services (e.g. meal service, cleaning shopping or personal care assistance) | ||||
Yes
| 55 | 38.7 | 146 | 53.7 |
No
| 87 | 61.3 | 126 | 46.3 |
Wave 3 sample representativeness
EOL respondents
Socio-demographic characteristics
Māori
Non-Māori
Relative importance of end of life care preference items
Māori
Non-Māori
End of life care and gender and culture
Plans
Māori
Male | Female | |||||
---|---|---|---|---|---|---|
Yes | No | Yes | No | X2
| p | |
Do you have a Living Will or Advanced Care Plan? | 26 | 28 | 40 | 50 | 0.19 | 0.667 |
Do you have an Enduring Power of Attorney? | 23 | 5 | 38 | 11 | 0.23 | 0.635 |
Do you wish for major surgery or medical intervention if you are seriously ill? | 10 | 11 | 13 | 27 | 1.32 | 0.251 |
Do you wish to be resuscitated? | 10 | 15 | 11 | 31 | 1.37 | 0.242 |
Have you talked to a friend or family member about your wishes? | 35 | 22 | 72 | 18 | 6.05 | 0.014* |
Will there be spiritual practices while you are dying? | 25 | 30 | 57 | 27 | 6.85 | 0.009* |
Non-Māori
Male | Female | |||||
---|---|---|---|---|---|---|
Yes | No | Yes | No | X2
| p | |
Do you have a Living Will or Advanced Care Plan? | 71 | 74 | 78 | 65 | 0.90 | 0.344 |
Do you have an Enduring Power of Attorney? | 66 | 4 | 74 | 7 | 0.47 | 0.491 |
Do you wish for major surgery or medical intervention if you are seriously ill? | 22 | 35 | 11 | 58 | 8.22 | 0.004* |
Do you wish to be resuscitated? | 13 | 44 | 7 | 66 | 4.26 | 0.039* |
Have you talked to a friend or family member about your wishes? | 107 | 39 | 110 | 34 | 0.37 | 0.544 |
Will there be spiritual practices while you are dying? | 30 | 109 | 47 | 87 | 6.11 | 0.013* |
Preferences
Māori
Male | Female | |||||||
---|---|---|---|---|---|---|---|---|
Not at all | Moderately | Very | Not at all | Moderately | Very | X2
|
p
| |
a. To have my pain/symptoms well controlled | 4 (7.4) | 27 (50.0) | 23 (42.6) | 8 (9.4) | 34 (40.0) | 43 (50.6) | 1.35 | 0.509 |
b. To not be a burden to my family | 3 (5.6) | 14 (25.9) | 37 (68.5) | 5 (5.6) | 19 (21.1) | 66 (73.3) | 0.45 | 0.798 |
c. To feel my life is complete | 1 (1.9) | 28 (52.8) | 24 (45.3) | 3 (3.4) | 41 (46.1) | 45 (50.6) | 0.76 | 0.683 |
d. To be at peace with my God | 11 (20.0) | 18 (32.7) | 26 (47.3) | 4 (4.5) | 27 (30.3) | 58 (65.2) | 9.77 | 0.008* |
e. To have sorted out my personal affairs | 5 (9.3) | 29 (53.7) | 20 (37.0) | 3 (3.4) | 38 (42.7) | 48 (53.9) | 4.97 | 0.083 |
f. To die at home | 10 (18.9) | 27 (50.9) | 16 (30.2) | 16 (17.8) | 43 (47.8) | 31 (34.4) | 0.27 | 0.872 |
g. To be mentally alert (until death) | 1 (1.9) | 28 (52.8) | 24 (45.3) | 11 (12.8) | 40 (46.5) | 35 (40.7) | 4.95 | 0.084 |
h. To be involved in decisions about my care | 4 (7.6) | 33 (62.3) | 16 (30.2) | 9 (10.1) | 50 (56.2) | 30 (33.7) | 0.58 | 0.750 |
i. To have sorted out my funeral arrangements | 9 (16.4) | 27 (49.1) | 19 (34.6) | 15 (16.9) | 45 (50.6) | 29 (32.6) | 0.06 | 0.971 |
j. To not be a burden to society | 7 (13.0) | 20 (37.0) | 27 (50.0) | 7 (8.1) | 42 (48.3) | 38 (43.7) | 2.06 | 0.358 |
k. To have specific cultural practices undertaken | 22 (41.5) | 15 (28.3) | 16 (30.2) | 36 (40.5) | 35 (39.3) | 18 (20.2) | 2.53 | 0.282 |
l. To have sorted out the continuing care of my pet(s) | 20 (52.6) | 10 (26.3) | 8 (21.1) | 34 (50.0) | 15 (22.1) | 19 (27.9) | 0.67 | 0.714 |
Non-Māori
Male | Female | |||||||
---|---|---|---|---|---|---|---|---|
Not at all | Moderately | Very | Not at all | Moderately | Very | X2
|
p
| |
a. To have my pain/symptoms well controlled | 11 (8.1) | 55 (40.4) | 70 (51.5) | 5 (3.6) | 33 (23.6) | 102 (72.9) | 13.65 | 0.001* |
b. To not be a burden to my family | 3 (2.1) | 27 (18.8) | 114 (79.2) | 4 (2.8) | 16 (11.1) | 124 (86.1) | 3.38 | 0.185 |
c. To feel my life is complete | 11 (7.9) | 69 (49.6) | 59 (42.5) | 5 (3.7) | 46 (33.6) | 86 (62.8) | 11.86 | 0.003 |
d. To be at peace with my God | 43 (30.7) | 49 (35) | 48 (34.3) | 16 (11.8) | 36 (26.5) | 84 (61.8) | 24.11 | <.0001** |
e. To have sorted out my personal affairs | 3 (2.1) | 64 (44.4) | 77 (53.5) | 3 (2.1) | 38 (26.4) | 103 (71.5) | 10.38 | 0.006* |
f. To die at home | 35 (25.2) | 66 (47.5) | 38 (27.3) | 34 (25.4) | 54 (40.3) | 46 (34.3) | 1.89 | 0.390 |
g. To be mentally alert (until death) | 5 (3.6) | 61 (43.6) | 74 (52.9) | 8 (5.6) | 34 (23.9) | 100 (70.4) | 12.24 | 0.002* |
h. To be involved in decisions about my care | 10 (7.1) | 76 (53.9) | 55 (39) | 10 (7.0) | 43 (30.1) | 90 (62.9) | 17.59 | 0.0002* |
i. To have sorted out my funeral arrangements | 31 (21.5) | 66 (45.8) | 47 (32.6) | 26 (18.1) | 54 (37.5) | 64 (44.4) | 4.24 | 0.120 |
j. To not be a burden to society | 3 (2.1) | 70 (48.6) | 71 (49.3) | 9 (6.3) | 36 (25.0) | 99 (68.8) | 18.52 | <.0001** |
k. To have specific cultural practices undertaken | 96 (69.1) | 34 (24.5) | 9 (6.5) | 100 (75.2) | 26 (19.6) | 7 (5.3) | 1.27 | 0.531 |
l. To have sorted out the continuing care of my pet(s) | 74 (74.0) | 13 (13.0) | 13 (13.0) | 60 (67.4) | 13 (14.6) | 16 (18.0) | 1.14 | 0.567 |