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01.12.2015 | Research article | Ausgabe 1/2015 Open Access

BMC Public Health 1/2015

Evaluation of the Families SHARE workbook: an educational tool outlining disease risk and healthy guidelines to reduce risk of heart disease, diabetes, breast cancer and colorectal cancer

Zeitschrift:
BMC Public Health > Ausgabe 1/2015
Autoren:
Laura M. Koehly, Bronwyn A. Morris, Kaley Skapinsky, Andrea Goergen, Amanda Ludden
Wichtige Hinweise

Electronic supplementary material

The online version of this article (doi:10.​1186/​s12889-015-2483-x) contains supplementary material, which is available to authorized users.

Competing interests

The authors have no competing interests to declare.

Authors’ contributions

LK, AG, and AL conducted the risk algorithm literature review. LK, BM, KS, and AG designed and revised the Families SHARE workbook and developed the protocol to evaluate the workbook. BM, KS, and AG administered the interviews, facilitated the focus groups, and managed the data. All authors were involved in the data analysis and writing of the manuscript. All authors read and approved the final manuscript.

Abstract

Background

Common diseases such as heart disease, diabetes, and cancer are etiologically complex with multiple risk factors (e.g., environment, genetic, lifestyle). These risk factors tend to cluster in families, making families an important social context for intervention and lifestyle-focused disease prevention. The Families Sharing Health Assessment and Risk Evaluation (SHARE) workbook was designed as an educational tool outlining family health history based risk of heart disease, type 2 diabetes, breast cancer, and colorectal cancer. The current paper describes the steps taken to develop and evaluate the workbook employing a user-centered design approach.

Methods

The workbook was developed in four steps, culminating in an evaluation focusing on understanding and usability of the tool. The evaluation was based on two Phases of data collected from a sample of mothers of young children in the Washington, D.C., area. A baseline assessment and follow-up approximately two weeks after receipt of the workbook were conducted, as well as focus groups with participants. The design of the workbook was refined in response to participant feedback from the first evaluation Phase and subsequently re-evaluated with a new sample.

Results

After incorporating user-based feedback and revising the workbook, Phase 2 evaluation results indicated that understanding of the workbook components improved for all sections (from 6.26 to 6.81 on a 7-point scale). In addition, 100 % of users were able to use the algorithm to assess their disease risk and over 60 % used the algorithm to assess family members’ disease risk. At follow-up, confidence to increase fruit, vegetable and fiber intake improved significantly, as well.

Conclusions

The Families SHARE workbook was developed and evaluated resulting in a family health history tool that is both understandable and usable by key stakeholders. This educational tool will be used in intervention studies assessing the effectiveness of family genomics health educators who use the Families SHARE workbook to disseminate family risk information and encourage risk reducing behaviors.

Trial registration

ClinicalTrials.gov, NCT01498276. Registered 21 December 2011
Zusatzmaterial
Additional file 1: Table S1. Summary of qualitative risk language and associated risk criteria for colon cancer. Table S2. Summary of qualitative risk language and associated risk criteria for breast cancer. Table S3.Summary of qualitative risk language and associated risk criteria for heart disease. Table S4.Summary of qualitative risk language and associated risk criteria for type 2 diabetes. (DOCX 61 kb)
12889_2015_2483_MOESM1_ESM.docx
Literatur
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