Future of Haemophilia Research in India

Excerpt

Haemophilia represents high cost low volume disease [1]. Hence in developing countries in the world where 90 % of haemophilia patients lives puts the government of the day in a conundrum ie the limited resources of that country earmarked for health needs to be distributed amongst management and prevention of various diseases which optimally helps the population of the country. Hence there is a need for developing research protocols suitable for that country in an evidence based manner. Haemophilia research in India is one of the examples of need based research, often driven by patients organizations ie Haemophilia federation of India [2]. In last 30 years large number of research papers in haemophilia has contributed materially to our diagnostics, management and training of manpower in the country [3]. …