Skip to main content
Erschienen in: Archives of Osteoporosis 1/2021

01.12.2021 | Original Article

Health information–seeking behavior and self-care in women with osteoporosis: a qualitative study

verfasst von: Ameneh Ansari, Noushin Fahimfar, Alireza Noruzi, Sepideh Fahimifar, Fatemeh Hajivalizadeh, Afshin Ostovar, Bagher Larijani, Mahnaz Sanjari

Erschienen in: Archives of Osteoporosis | Ausgabe 1/2021

Einloggen, um Zugang zu erhalten

Abstract

Summary

The main findings of this study on the self-care behaviors contain “identification of knowledge gaps,” “established networking for seeking information,” “information from trust-to-distrust,” “information-seeking inhibiting factors,” “information-seeking facilitating factors,” and “self-care behaviors based on required knowledge.”

Purpose

Health information–seeking behavior affects self-care and could promote quality of life and life expectancy. This study aimed at assessing health information–seeking and self-care behaviors of women with osteoporosis in Iran.

Methods

This study was conducted using a content analysis approach. Data were collected through semi-structured interviews with 15 women with osteoporosis aged above 50 years. The participants were selected by purposeful sampling. The data were analyzed by the conventional content analysis method using MAXQdata software version 10.

Results

From in-depth descriptions of the participants’ experiences, 246 primary codes were extracted. Subsequently, constant comparison analysis was done and 35 sub-categories and 6 main categories have appeared from the data.

Discussion

Based on the experiences of women with osteoporosis, they received limited information from the health care providers, so they were seeking reliable information sources to meet their information needs. They obtained most of their information from other patients, family members, and network of friends. In the process of seeking information, they face various barriers such as lack of time in the health care team that affect their ability to self-care.

Conclusion

The results can guide health policymakers, patient educators, health care providers, information specialists, and patients and their families.
Anhänge
Nur mit Berechtigung zugänglich
Literatur
2.
Zurück zum Zitat Kim JW, Lee JY, Park H-E, Kim S-H, Chung Y-S (2019) Safety of bazedoxifene in Korean women with post-menopausal osteoporosis: a post-marketing surveillance study (PMSS). Expert Opin Drug Saf 18(10):1001–1008CrossRefPubMed Kim JW, Lee JY, Park H-E, Kim S-H, Chung Y-S (2019) Safety of bazedoxifene in Korean women with post-menopausal osteoporosis: a post-marketing surveillance study (PMSS). Expert Opin Drug Saf 18(10):1001–1008CrossRefPubMed
3.
Zurück zum Zitat Irani AD, Poorolajal J, Khalilian A, Esmailnasab N, Cheraghi Z (2013) Prevalence of osteoporosis in Iran: a meta-analysis. Journal of Research in Medical Sciences: The Official Journal of Isfahan University of Medical Sciences 18(9):759–766 Irani AD, Poorolajal J, Khalilian A, Esmailnasab N, Cheraghi Z (2013) Prevalence of osteoporosis in Iran: a meta-analysis. Journal of Research in Medical Sciences: The Official Journal of Isfahan University of Medical Sciences 18(9):759–766
4.
Zurück zum Zitat Bagheri P, Haghdoost A, Dortaj RE, Halimi L, Vafaei Z, Farhangnia M, Shayan L (2011). Ultra analysis of prevalence of osteoporosis in Iranian women Bagheri P, Haghdoost A, Dortaj RE, Halimi L, Vafaei Z, Farhangnia M, Shayan L (2011). Ultra analysis of prevalence of osteoporosis in Iranian women
5.
Zurück zum Zitat Resch H, Bonjour J, Aghai MF, Mohajeri TMR (2007). Osteoporosis in Iran, overview and management Resch H, Bonjour J, Aghai MF, Mohajeri TMR (2007). Osteoporosis in Iran, overview and management
6.
Zurück zum Zitat Saei Gharenaz M, Ozgoli G, Aghdashi MA, Salmany F (2015) Relationship between depression and osteoporosis in women. Urmia Med J 26(1):10–16 Saei Gharenaz M, Ozgoli G, Aghdashi MA, Salmany F (2015) Relationship between depression and osteoporosis in women. Urmia Med J 26(1):10–16
7.
Zurück zum Zitat Hernlund E, Svedbom A, Ivergård M, Compston J, Cooper C, Stenmark J, McCloskey EV, Jönsson B, Kanis JA (2013) Osteoporosis in the European Union: medical management, epidemiology and economic burden. A report prepared in collaboration with the international Osteoporosis Foundation (IOF) and the European Federation of Pharmaceutical Industry Associations (EFPIA). Arch Osteoporos 8(1–2):136. https://doi.org/10.1007/s11657-013-0136-1CrossRefPubMedPubMedCentral Hernlund E, Svedbom A, Ivergård M, Compston J, Cooper C, Stenmark J, McCloskey EV, Jönsson B, Kanis JA (2013) Osteoporosis in the European Union: medical management, epidemiology and economic burden. A report prepared in collaboration with the international Osteoporosis Foundation (IOF) and the European Federation of Pharmaceutical Industry Associations (EFPIA). Arch Osteoporos 8(1–2):136. https://​doi.​org/​10.​1007/​s11657-013-0136-1CrossRefPubMedPubMedCentral
8.
Zurück zum Zitat Hemmati F, Sarokhani D, Sayehmiri K, Motadayen M (2018) Prevalence of osteoporosis in postmenopausal women in Iran: a systematic review and meta-analysis. The Iranian Journal of Obstetrics, Gynecology and Infertility 21(3):90–102 Hemmati F, Sarokhani D, Sayehmiri K, Motadayen M (2018) Prevalence of osteoporosis in postmenopausal women in Iran: a systematic review and meta-analysis. The Iranian Journal of Obstetrics, Gynecology and Infertility 21(3):90–102
9.
Zurück zum Zitat Watts NB (2018) Postmenopausal osteoporosis: a clinical review. J Women's Health 27(9):1093–1096CrossRef Watts NB (2018) Postmenopausal osteoporosis: a clinical review. J Women's Health 27(9):1093–1096CrossRef
11.
Zurück zum Zitat Ghazavi-Khorasgani Z, Ashrafi-Rizi H, Mokarian F, Afshar M (2018). Health information seeking behavior of female breast cancer patients. Journal of Education and Health Promotion, 7 Ghazavi-Khorasgani Z, Ashrafi-Rizi H, Mokarian F, Afshar M (2018). Health information seeking behavior of female breast cancer patients. Journal of Education and Health Promotion, 7
12.
Zurück zum Zitat Barahmand N, Nakhoda M, Fahimnia F, Nazari M (2019) Understanding everyday life information seeking behavior in the context of coping with daily hassles: a grounded theory study of female students. Libr Inf Sci Res 41(4):100980CrossRef Barahmand N, Nakhoda M, Fahimnia F, Nazari M (2019) Understanding everyday life information seeking behavior in the context of coping with daily hassles: a grounded theory study of female students. Libr Inf Sci Res 41(4):100980CrossRef
13.
Zurück zum Zitat Lalazaryan A, Zare-Farashbandi F, others (2014) A review of models and theories of health information seeking behavior. International Journal of Health System and Disaster Management 2(4):193CrossRef Lalazaryan A, Zare-Farashbandi F, others (2014) A review of models and theories of health information seeking behavior. International Journal of Health System and Disaster Management 2(4):193CrossRef
14.
Zurück zum Zitat Perera N, Agboola S (2019) Are formal self-care interventions for healthy people effective? A systematic review of the evidence. BMJ Glob Health 4(Suppl 10):e001415CrossRefPubMedPubMedCentral Perera N, Agboola S (2019) Are formal self-care interventions for healthy people effective? A systematic review of the evidence. BMJ Glob Health 4(Suppl 10):e001415CrossRefPubMedPubMedCentral
15.
Zurück zum Zitat Fallahi A, Derakhshan S, Pashaee T, Teymoori P (2015) Factors affecting self-care in women with osteoporosis: a qualitative study with the content analysis approach. Journal of School of Public Health and Institute of Public Health Research 13(2):17–32 Fallahi A, Derakhshan S, Pashaee T, Teymoori P (2015) Factors affecting self-care in women with osteoporosis: a qualitative study with the content analysis approach. Journal of School of Public Health and Institute of Public Health Research 13(2):17–32
16.
Zurück zum Zitat Bolbol HN, Ebrahimi H, Delvarian ZM, Keshavarz M (2012). The effect of an educational osteoporosis prevention program on awareness of employed women Bolbol HN, Ebrahimi H, Delvarian ZM, Keshavarz M (2012). The effect of an educational osteoporosis prevention program on awareness of employed women
17.
Zurück zum Zitat Asadi Shavaki M, others (2016) Knowledge, belief and practice among elderly about osteoporosis based on health belief model in Karaj city in 2014. Scientific Journal of Hamadan Nursing & Midwifery Faculty 24(2):86–97 Asadi Shavaki M, others (2016) Knowledge, belief and practice among elderly about osteoporosis based on health belief model in Karaj city in 2014. Scientific Journal of Hamadan Nursing & Midwifery Faculty 24(2):86–97
18.
Zurück zum Zitat Eslamian L, Jamshidi A, others (2008) Knowledge, attitude and behavior regarding osteoporosis among women in three age groups: Shariati hospital, Tehran. Tehran University Medical Journal TUMS Publications 65(14):16–21 Eslamian L, Jamshidi A, others (2008) Knowledge, attitude and behavior regarding osteoporosis among women in three age groups: Shariati hospital, Tehran. Tehran University Medical Journal TUMS Publications 65(14):16–21
19.
Zurück zum Zitat Soleymanha M, Salari A, Dashti K (2014) Osteoporosis knowledge, attitude and performance in over 45 years old women. Iran J Nurs 27(90):120–130CrossRef Soleymanha M, Salari A, Dashti K (2014) Osteoporosis knowledge, attitude and performance in over 45 years old women. Iran J Nurs 27(90):120–130CrossRef
20.
Zurück zum Zitat Krippendorff K (1980) Krippendorff, Klaus, content analysis: an introduction to its methodology. Sage, Beverly Hills, CA, p 1980 Krippendorff K (1980) Krippendorff, Klaus, content analysis: an introduction to its methodology. Sage, Beverly Hills, CA, p 1980
21.
Zurück zum Zitat Beauvais C, Poivret D, Lespessailles E, Thevenot C, Aubraye D, Euller Ziegler L, Beranger M, Filaire E, Gendarme S, Legrand K, Magar Y, Rousière M, Lévy-Weil F, Cortet B, Rat AC, Ziegler LE, Beranger M, Filaire E, Gendarme S et al (2019) Understanding patients’ perspectives and educational needs by type of osteoporosis in men and women and people with glucocorticosteroid-induced osteoporosis: a qualitative study to improve disease management. Calcif Tissue Int 105(6):589–608. https://doi.org/10.1007/s00223-019-00607-zCrossRefPubMed Beauvais C, Poivret D, Lespessailles E, Thevenot C, Aubraye D, Euller Ziegler L, Beranger M, Filaire E, Gendarme S, Legrand K, Magar Y, Rousière M, Lévy-Weil F, Cortet B, Rat AC, Ziegler LE, Beranger M, Filaire E, Gendarme S et al (2019) Understanding patients’ perspectives and educational needs by type of osteoporosis in men and women and people with glucocorticosteroid-induced osteoporosis: a qualitative study to improve disease management. Calcif Tissue Int 105(6):589–608. https://​doi.​org/​10.​1007/​s00223-019-00607-zCrossRefPubMed
22.
Zurück zum Zitat Raybould G, Babatunde O, Evans AL, Jordan JL, Paskins Z (2018) Expressed information needs of patients with osteoporosis and/or fragility fractures: a systematic review. Arch Osteoporos 13(1):55CrossRefPubMedPubMedCentral Raybould G, Babatunde O, Evans AL, Jordan JL, Paskins Z (2018) Expressed information needs of patients with osteoporosis and/or fragility fractures: a systematic review. Arch Osteoporos 13(1):55CrossRefPubMedPubMedCentral
23.
Zurück zum Zitat Goh M, Nguyen HH, Khan NN, Milat F, Boyle JA, Vincent AJ (2019) Identifying and addressing osteoporosis knowledge gaps in women with premature ovarian insufficiency and early menopause: a mixed methods study. Clin Endocrinol 91:498–507CrossRef Goh M, Nguyen HH, Khan NN, Milat F, Boyle JA, Vincent AJ (2019) Identifying and addressing osteoporosis knowledge gaps in women with premature ovarian insufficiency and early menopause: a mixed methods study. Clin Endocrinol 91:498–507CrossRef
24.
Zurück zum Zitat Hamzehei R, Kazerani M, Shekofteh M, Karami M (2018). Online health information seeking behavior among Iranian pregnant women: a case study. Libr Philos Pract, 2018 Hamzehei R, Kazerani M, Shekofteh M, Karami M (2018). Online health information seeking behavior among Iranian pregnant women: a case study. Libr Philos Pract, 2018
25.
Zurück zum Zitat Ramasamy D, Singh AK, Mohan SK, Meenakshi N (2016) Association of sociodemographics, technology use and health literacy among type 2 diabetic individuals living in an Indian setting: an exploratory cross-sectional study. International Journal of Diabetes in Developing Countries 36(3):303–312CrossRef Ramasamy D, Singh AK, Mohan SK, Meenakshi N (2016) Association of sociodemographics, technology use and health literacy among type 2 diabetic individuals living in an Indian setting: an exploratory cross-sectional study. International Journal of Diabetes in Developing Countries 36(3):303–312CrossRef
26.
Zurück zum Zitat Jamal A, Khan SA, AlHumud A, Al-Duhyyim A, Alrashed M, Bin SF et al (2015) Association of online health information--seeking behavior and self-care activities among type 2 diabetic patients in Saudi Arabia. J Med Internet Res 17(8):e196CrossRefPubMedPubMedCentral Jamal A, Khan SA, AlHumud A, Al-Duhyyim A, Alrashed M, Bin SF et al (2015) Association of online health information--seeking behavior and self-care activities among type 2 diabetic patients in Saudi Arabia. J Med Internet Res 17(8):e196CrossRefPubMedPubMedCentral
27.
Zurück zum Zitat Nasrollahzadeh S (2015) Health information-seeking behavior of pregnant women: a grounded theory study. Human Information Interaction 1(4):270–281 Nasrollahzadeh S (2015) Health information-seeking behavior of pregnant women: a grounded theory study. Human Information Interaction 1(4):270–281
28.
Zurück zum Zitat Tizhoosh H, Fahimnia F, Vedadhir A (2014). Study of health information seeking behaviors of patients with multiple sclerosis referred to the MS Society of Tehran (p. 125). University of Tehran Tizhoosh H, Fahimnia F, Vedadhir A (2014). Study of health information seeking behaviors of patients with multiple sclerosis referred to the MS Society of Tehran (p. 125). University of Tehran
29.
Zurück zum Zitat Stephens R, Ryan FS, Cunningham SJ (2013) Information-seeking behavior of adolescent orthodontic patients. Am J Orthod Dentofac Orthop 143(3):303–309CrossRef Stephens R, Ryan FS, Cunningham SJ (2013) Information-seeking behavior of adolescent orthodontic patients. Am J Orthod Dentofac Orthop 143(3):303–309CrossRef
30.
Zurück zum Zitat Longo DR, Schubert SL, Wright BA, LeMaster J, Williams CD, Clore JN (2010) Health information seeking, receipt, and use in diabetes self-management. Ann Fam Med 8(4):334–340CrossRefPubMedPubMedCentral Longo DR, Schubert SL, Wright BA, LeMaster J, Williams CD, Clore JN (2010) Health information seeking, receipt, and use in diabetes self-management. Ann Fam Med 8(4):334–340CrossRefPubMedPubMedCentral
31.
Zurück zum Zitat Kimiafar K, Sarbaz M, Sales SS, Esmaeili M, Ghazvini ZJ (2016) Breast cancer patients’ information needs and information-seeking behavior in a developing country. Breast 28:156–160CrossRefPubMed Kimiafar K, Sarbaz M, Sales SS, Esmaeili M, Ghazvini ZJ (2016) Breast cancer patients’ information needs and information-seeking behavior in a developing country. Breast 28:156–160CrossRefPubMed
32.
Zurück zum Zitat Pang PC, Temple-Smith M, Bellhouse C, Trieu V-H, Kiropoulos L, Williams H, Coomarasamy A, Brewin J, Bowles A, Bilardi J (2018) Online health seeking behaviours: what information is sought by women experiencing miscarriage. Stud Health Technol Inform 252:118–125PubMed Pang PC, Temple-Smith M, Bellhouse C, Trieu V-H, Kiropoulos L, Williams H, Coomarasamy A, Brewin J, Bowles A, Bilardi J (2018) Online health seeking behaviours: what information is sought by women experiencing miscarriage. Stud Health Technol Inform 252:118–125PubMed
33.
Zurück zum Zitat Perumal SS, Prasad S, Surapaneni KM, Joshi A (2015) Health information-seeking behavior among hypothyroid patients at Saveetha medical college and hospital. Ethiop J Health Sci 25(2):147–154CrossRefPubMedPubMedCentral Perumal SS, Prasad S, Surapaneni KM, Joshi A (2015) Health information-seeking behavior among hypothyroid patients at Saveetha medical college and hospital. Ethiop J Health Sci 25(2):147–154CrossRefPubMedPubMedCentral
34.
Zurück zum Zitat Aref-Adib G, O’Hanlon P, Fullarton K, Morant N, Sommerlad A, Johnson S, Osborn D (2016) A qualitative study of online mental health information seeking behaviour by those with psychosis. BMC Psychiatry 16(1):232CrossRefPubMedPubMedCentral Aref-Adib G, O’Hanlon P, Fullarton K, Morant N, Sommerlad A, Johnson S, Osborn D (2016) A qualitative study of online mental health information seeking behaviour by those with psychosis. BMC Psychiatry 16(1):232CrossRefPubMedPubMedCentral
35.
Zurück zum Zitat Latifi M, Salimi S, Barahmand N, Fahimnia F, Farsani LA (2018). Postmastectomy information needs and information-seeking motives for women with breast cancer. Advanced Biomedical Research, 7 Latifi M, Salimi S, Barahmand N, Fahimnia F, Farsani LA (2018). Postmastectomy information needs and information-seeking motives for women with breast cancer. Advanced Biomedical Research, 7
36.
Zurück zum Zitat Davis SK (2014) Health-seeking behaviors among HIV-negative, high-risk black women living in an urban southern city. Social Work in Public Health 29(7):641–655CrossRefPubMed Davis SK (2014) Health-seeking behaviors among HIV-negative, high-risk black women living in an urban southern city. Social Work in Public Health 29(7):641–655CrossRefPubMed
37.
Zurück zum Zitat Gholami M, Khoshknab MF, Maddah SSB, Ahmadi F, Khankeh H (2014) Barriers to health information seeking in Iranian patients with cardiovascular disease: a qualitative study. Heart & Lung: The Journal of Acute and Critical Care 43(3):183–191CrossRefPubMed Gholami M, Khoshknab MF, Maddah SSB, Ahmadi F, Khankeh H (2014) Barriers to health information seeking in Iranian patients with cardiovascular disease: a qualitative study. Heart & Lung: The Journal of Acute and Critical Care 43(3):183–191CrossRefPubMed
38.
Zurück zum Zitat Zhang X, Foo S, Majid S, Chang Y-K, Dumaual HTJ, Suri VR (2019) Self-care and health-information-seeking behaviours of diabetic patients in Singapore. Health Commun:1–10 Zhang X, Foo S, Majid S, Chang Y-K, Dumaual HTJ, Suri VR (2019) Self-care and health-information-seeking behaviours of diabetic patients in Singapore. Health Commun:1–10
Metadaten
Titel
Health information–seeking behavior and self-care in women with osteoporosis: a qualitative study
verfasst von
Ameneh Ansari
Noushin Fahimfar
Alireza Noruzi
Sepideh Fahimifar
Fatemeh Hajivalizadeh
Afshin Ostovar
Bagher Larijani
Mahnaz Sanjari
Publikationsdatum
01.12.2021
Verlag
Springer London
Erschienen in
Archives of Osteoporosis / Ausgabe 1/2021
Print ISSN: 1862-3522
Elektronische ISSN: 1862-3514
DOI
https://doi.org/10.1007/s11657-021-00923-8

Weitere Artikel der Ausgabe 1/2021

Archives of Osteoporosis 1/2021 Zur Ausgabe

Arthropedia

Grundlagenwissen der Arthroskopie und Gelenkchirurgie. Erweitert durch Fallbeispiele, Videos und Abbildungen. 
» Jetzt entdecken

Update Orthopädie und Unfallchirurgie

Bestellen Sie unseren Fach-Newsletter und bleiben Sie gut informiert.