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01.12.2012 | Research | Ausgabe 1/2012 Open Access

Health and Quality of Life Outcomes 1/2012

Health-related quality of life and needs of care and support of adult Tanzanians with cancer: a mixed-methods study

Zeitschrift:
Health and Quality of Life Outcomes > Ausgabe 1/2012
Autoren:
Golden M Masika, Lena Wettergren, Thecla W Kohi, Louise von Essen
Wichtige Hinweise

Competing interests

The authors declare that they have no competing interests. There are no financial and/or personal relationships between the authors and others that might bias the work.

Authors’ contributions

GMM – Participated in the procedure to translate the EORTC QLQ C-30 into Kiswahili, completed ethical clearance, collected qualitative and quantitative data, analyzed qualitative data, drafted the manuscript, and approved the final version of the manuscript for publication. LW – Planned and participated in the procedure to translate the EORTC QLQ-C30 into Kiswahili, developed the research plan and design, initiated and completed ethical clearance, analyzed quantitative data, drafted the manuscript, and approved the final version of the manuscript for publication. TWK – Participated in the procedure to translate the EORTC QLQ C-30 into Kiswahili, drafted the manuscript, and approved the final version of manuscript for publication. LvE - Planned and participated in the procedure to translate the EORTC QLQ-C30 into Kiswahili, developed the research plan and design, initiated and completed ethical clearance, analyzed quantitative and qualitative data, drafted the manuscript, and approved the final version of the manuscript for publication.

Abstract

Background

Cancer is among the three leading causes of death in low income countries and the highest increase with regard to incidence figures for cancer diseases are found in these countries. This is the first report of the health-related quality of life (HRQOL) and needs of care and support of adult Tanzanians with cancer.

Methods

A mixed-methods design was used. The study was conducted at Ocean Road Cancer Institute (ORCI) in Dar es Salaam, Tanzania. One hundred and one patients with a variety of cancer diagnoses treated and cared for at ORCI answered the Kiswahili version of the EORTC QLQ-C30 investigating HRQOL. Thirty-two of the patients participated in focus group interviews discussing needs of care and support. Data from focus group interviews were analyzed with content analysis.

Results

The findings show that the patients, both women and men, report a low quality of life, especially with regard to physical, role, and social function and a high level of symptoms and problems especially with financial difficulties and pain. Financial difficulties are reported to a remarkably high extent by both women and men. The patients, both women and men report least problems with emotional function. A content analysis of the interview data revealed needs of food and water, hygienic needs, emotional needs, spiritual needs, financial needs, and needs of closeness to cancer care and treatment services.

Conclusion

The high score for pain points out that ORCI is facing severe challenges regarding care and treatment. However, when considering this finding it should be noted that the pain subscale of the Kiswahili version of the EORTC QLQ-C30 did not reach acceptable internal consistency and showed less than satisfactory convergent validity. This also applies to the subscales cognitive function and global health/quality of life. Attention should be drawn to meet the identified needs of Tanzanian cancer patients while hospitalized but also when at home. Increased accessibility of mosquito nets, pads, and pain-killers would help to fulfil some needs.
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