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Erschienen in: Journal of General Internal Medicine 12/2019

26.08.2019 | Concise Research Reports

Improving Care for Patients with Sickle Cell Disease: a Qualitative Study of Hospitalized Sickle Cell Patients

verfasst von: Amira del Pino-Jones, MD, Kasey Bowden, NP, Gregory Misky, MD, Christine D. Jones, MD, MS

Erschienen in: Journal of General Internal Medicine | Ausgabe 12/2019

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Excerpt

Sickle cell disease (SCD) is a hereditary blood disorder that affects approximately 100,000 Americans.1 Acute pain episodes, or vaso-occlusive crises, account for approximately 70% of acute care visits for patients with SCD.1 Patients with SCD face unique obstacles to care, including difficulty communicating the severity of their pain and fear of being labeled as a “drug addict.”2 The combined annual cost of Emergency Department visits, Urgent Care visits, and hospitalizations for SCD has reached over $2.4 billion annually.3 In an effort to improve care for SCD patients who have required frequent readmission, we interviewed hospitalized SCD patients and asked for input on how our health system can better meet the needs of our SCD population. …
Metadaten
Titel
Improving Care for Patients with Sickle Cell Disease: a Qualitative Study of Hospitalized Sickle Cell Patients
verfasst von
Amira del Pino-Jones, MD
Kasey Bowden, NP
Gregory Misky, MD
Christine D. Jones, MD, MS
Publikationsdatum
26.08.2019
Verlag
Springer US
Erschienen in
Journal of General Internal Medicine / Ausgabe 12/2019
Print ISSN: 0884-8734
Elektronische ISSN: 1525-1497
DOI
https://doi.org/10.1007/s11606-019-05304-z

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