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The authors declare that they have no competing interests.
FF: drafted the main part and created the final version of the manuscript, and designed the clinical and scientific content of the database, MP: implemented the content of the database, MIC: contributed to the content of the database, AP: contributed to the content of the database, EE: contributed to the content of the database, PM: contributed to the content of the database, MBL: participated in the design of the database- architecture and the data security concept of the registry, MVU: contributed to the content design of the database, and reviewed and revised the manuscript. All authors read and approved the final manuscript.
We report here on the building-up of a database of information related to 386 cases of Incontinentia Pigmenti collected in a thirteen-year activity (2000–2013) at our centre of expertise. The database has been constructed on the basis of a continuous collection of patients (27.6/year), the majority diagnosed as sporadic cases (75.6%). This activity has generated a rich source of information for future research studies by integrating molecular/clinical data with scientific knowledge. We describe the content, architecture and future utility of this collection of data on IP to offer comprehensive anonymous information to the international scientific community.