Ausgabe 3/2018
Symposium Title: Collective Representation in Healthcare Policy
Inhalt (18 Artikel)
Embedded Journalists or Empirical Critics? The Nature of The “Gaze” in Bioethics
Michael A. Ashby, Bronwen Morrell
Forget Evil: Autonomy, the Physician–Patient Relationship, and the Duty to Refer
Jake Greenblum, T. J. Kasperbauer
Parental Moral Distress and Moral Schism in the Neonatal ICU
Gabriella Foe, Jonathan Hellmann, Rebecca A. Greenberg
Ethical Issues of Using CRISPR Technologies for Research on Military Enhancement
Marsha Greene, Zubin Master
One For All, All For One? Collective Representation in Healthcare Policy
Karin Jongsma, Nitzan Rimon-Zarfaty, Aviad Raz, Silke Schicktanz
Representing Whom? U.K. Health Consumer and Patients’ Organizations in the Policy Process
Rob Baggott, Kathryn L. Jones
Legislating Patient Representation: A Comparison Between Austrian and German Regulations on Self-Help Organizations as Patient Representatives
Daniela Rojatz, Julia Fischer, Hester Van de Bovenkamp
Representative Claims in Healthcare: Identifying the Variety in Patient Representation
Hester M. van de Bovenkamp, Hans Vollaard
Patient Representation and Advocacy for Alzheimer Disease in Germany and Israel
Silke Schicktanz, Nitzan Rimon-Zarfaty, Aviad Raz, Karin Jongsma
Mitochondrial Replacement Techniques
Jacquelyne Luce
Are ME/CFS Patient Organizations “Militant”?
Charlotte Blease, Keith J. Geraghty
Strategies to Guide the Return of Genomic Research Findings: An Australian Perspective
Lisa Eckstein, Margaret Otlowski
Medicolegal Complications of Apnoea Testing for Determination of Brain Death
Ariane Lewis, David Greer
Attitudes Towards the Donation of Human Embryos for Stem Cell Research Among Chinese IVF Patients and Students
Achim Rosemann, Huiyu Luo
Responsibility as an Obstacle to Good Policy: The Case of Lifestyle Related Disease
Neil Levy
Why Do Medical Professional Regulators Dismiss Most Complaints From Members of the Public? Regulatory Illiteracy, Epistemic Injustice, and Symbolic Power
Orla O’Donovan, Deirdre Madden