Background
Knowledge of respite services and efficacy to access
Research objectives
Method
Survey
Sample
Analysis
Results
Demographic characteristics
Demographic variable | Total n = 84 |
---|---|
Carer | |
Agea, Mean (range) | 70 (38–92) |
Gendera. Female n (%) | 62 (74%) |
Language spoken at homea, English n (%) | 72 (86%) |
Relationship, spousal n (%) | 59 (70%) |
Person with dementia | |
Agea, Mean (range) | 79 (61–94) |
Gendera. Female n (%) | 32 (39%) |
Language spoken at home, English n (%) | 68 (83%) |
Medical diagnosis, yes (n (%) | 74 (90%) |
Type of dementia, n (%) | |
Alzheimer’s | 42 (56%) |
Vascular | 12 (16%) |
Lewy Body | 3 (4%) |
Other | 9 (12%) |
Unknown | 9 (12%) |
Pearlin Cognitive Statusb, aMean, SD | 2.42 (0.64) |
Respite knowledge and behaviours | |
Tried to find respite information, yes n (%) | 71 (85%) |
Knowledge, Ability to name three respite servicesa, yes n (%) | 42 (51%) |
Receive some support (formal or informal), yes | 67 (82%) |
Mean (SD), number of respite services used in past 3–6 months | 1.32 (0.93) |
Would like more respitea, yes | 51 (68%) |
Respite information seeking behaviours of carers
Source (n = 68) | Type | Excellent/Good | Fair/Poor | Total |
---|---|---|---|---|
Your GP or local doctor | Person | 34 | 12 | 46 (65%) |
Carer support group | Person | 33 | 2 | 35 (49%) |
Family or friends | Person | 26 | 7 | 33 (46%) |
Commonwealth Respite and Carelink | Helpline | 23 | 2 | 25 (35%) |
My Aged Care | Website | 13 | 5 | 18 (25%) |
Other ‡ | Person | 16 | 3 | 19 (27%) |
My Aged Care | Helpline | 7 | 1 | 11 (16%) |
Dementia Advisory Service | Person | 7 | 1 | 11 (16%) |
Alzheimer’s Australia National Dementia Helpline | Helpline | 5 | 9 (13%) | |
Carers NSW | Helpline | 3 | 5 (7%) | |
Dementia Illawarra Shoalhaven | Website | 2 | 4 (6%) | |
Carers NSW | Website | 1 | 2 | 4 (6%) |
Commonwealth Respite and Carelink | Website | 1 | 1 | 3 (4%) |
HSNet | Website | 0 (0%) |
Relationship between types of support and respite knowledge
Carer Characteristics | Total, n = 81 | Named 3 services n = 42 | Named < 3 services n = 39 |
P*
|
---|---|---|---|---|
Formal support, yesa | 50 (64.9%) | 30 (75.0%) | 20 (54.1%) | .061 |
Informal support, yesa | 40 (52.6%) | 27 (65.9%) | 13 (37.1%) | .021 |
Caregiver training, yes | 43 (53.1%) | 21 (50.0%) | 22 (56.4%) | .658 |
Carer Support Group, yesa | 40 (50.0%) | 20 (52.6%) | 20 (47.6%) | .823 |
Assist to find services (navigate), yesa | 53 (77.9%) | 33 (91.7%) | 20 (62.5%) | .007 |
Relationship between ever seeking information and perceived or evaluated need
Need factors | Total n = 83 | Yes n = 71 | No n = 12 | P* |
---|---|---|---|---|
Would you like more respite than you are currently receivinga, yes | 50 (68%) | 46 (72%) | 4 (40%) | .068 |
CG Zarit Burden Scorea b 4 items, 5 pt. scale, 1(Never) to 5 (Nearly always) | 2.90 (85%) | 2.96 (87%) | 2.48 (56%) | .075 |
CG Role Captivitya 4 items, 4 point scale 1 (Not at All) to 4 (Very Much) | 2.02 (0.69) | 2.06 (.72) | 1.78 (.43) | .263 |
CG, Self-efficacya 10 items, 10 pt. Visual Analogue Scale | 6.67 (1.82) | 6.69 (1.79) | 7.02 (2.06) | .301 |
PWD, behavioural problems 13 items, 4 pt. scale, 1 (No days) to 4 (5 or more days) | 1.90 (0.55) | 1.97 (.56) | 1.48 (.29) | .003 |
Discussion
Implications for policy and practice
Limitations
Conclusions
Acknowledgments
Funding
-
Alzheimer’s Australia Dementia Research Foundation Grant
-
NHMRC-ARC Dementia Research Development Fellowship APP 1107401
-
Resthaven Incorporated Grant Fund