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Notes

  1. 1.

    In our longitudinal study only a small number of individuals with ID from unknown etiologies have received a diagnosis of DAD. These individuals showed the same pattern of memory decline as we have reported for individuals with DS and their scores on the Cued Recall Test were ≤23 at the time of their diagnosis. Because there were so few individuals in this group we can only suggest that the Cued Recall Test will be applicable to the identification of significant memory impairment in this group.

  2. 2.

    The number of items that are recalled on each trial is noted. Typically, the four items are learned by the third trial. If, however, by the third trial all the items are not recalled, the participant is shown the card one more time with the absent item(s) pointed out, but no further recall trials are given for that card.

  3. 3.

    With the progression of DAD, some individuals became untestable and some individuals with and without dementia died over the course of this testing period, therefore, this analysis involved fewer individuals than the previously reported cross-sectional data.

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Acknowledgments

The authors would like to thank Phyllis Kittler, Ph.D. and Catherine Marino, R.N. for their many contributions to this longitudinal study. We are grateful to the participants and their families for their cooperation and the agencies that have supported us and extended their hospitality during our test sessions: AHRC New York League Workshops in Manhattan and the Bronx; ARC of Westchester; ARC of New Jersey; Brooklyn Guild for Exceptional Children and the Conklin Residence; Builders of Family and Youth of the Diocese of Brooklyn; Pathfinder Village; and Wassaic Developmental Center. We also thank all diagnosticians who shared their findings with us. In particular we would like to acknowledge the contributions of Dr. J. Tsouris, Dr. Madrid, and P. Patti, M.A. from the George Jervis Clinic of the NYS Institute for Basic Research. Finally, we would like to thank Dr. Ausma Rabe and Dr. Ira Cohen for critical comments on the manuscript. This work has been supported by funds from the New York State Office of Mental Retardation and Developmental Disabilities and NIH grants PO1 AG 11531 to H.M. Wisniewski, PO1 HD35897 to W. Silverman and RO1 AG 14771 to D.A. Devenny.

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Devenny, D., Krinsky-McHale, S. (2009). The Cued Recall Test: Detection of Memory Impairment. In: Prasher, V. (eds) Neuropsychological Assessments of Dementia in Down Syndrome and Intellectual Disabilities. Springer, London. https://doi.org/10.1007/978-1-84800-249-4_9

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