Skip to main content
Erschienen in: Child's Nervous System 12/2006

01.12.2006 | Original Paper

Emotional and psychological impact of delayed craniosynostosis repair

verfasst von: Burak M. Ozgur, Henry E. Aryan, Dalia Ibrahim, Mounir A. Soliman, Hal S. Meltzer, Steven R. Cohen, Michael L. Levy

Erschienen in: Child's Nervous System | Ausgabe 12/2006

Einloggen, um Zugang zu erhalten

Abstract

Introduction

Among children with craniosynostosis, there exists an interesting dynamic involving parents’ preconceptions of craniosynostosis and its repair, influenced in large part by differing cultural perspectives. In a time in which we are understanding how critical a child’s early formative years are in influencing his/her emotional and psychological development, the authors describe one medical aspect involved in that dynamic process.

Materials and methods

The authors reviewed their cumulative experience at the Children’s Hospital San Diego between January 2000 and June 2004 and identified nine children with significant craniofacial deformities and, for one reason or another, had delayed surgical repair.

Discussion

The authors have found that by age 6, parents will often bring their children back to their physician and insist on surgical correction. The significant motivating factor in most of these cases stems from teasing by classmates with respect to head shape. In this manuscript, we report and discuss some of the emotional and psychological issues associated with delayed craniosynostosis repair. Often times, these issues are overlooked or underemphasized in the overall surgical care of such patients.
Literatur
1.
Zurück zum Zitat Albright AL (1985) Operative normalization of skull shape in sagittal synostosis. Neurosurgery 17(2):329–331PubMed Albright AL (1985) Operative normalization of skull shape in sagittal synostosis. Neurosurgery 17(2):329–331PubMed
2.
Zurück zum Zitat Anderson FM (1981) Treatment of coronal and metopic synostosis: 107 cases. Neurosurgery 8(2):143–149PubMed Anderson FM (1981) Treatment of coronal and metopic synostosis: 107 cases. Neurosurgery 8(2):143–149PubMed
3.
Zurück zum Zitat Barone CM, Jimenez DF (1999) Endoscopic craniectomy for early correction of craniosynostosis. Plast Reconstr Surg 104(7):1965–1973PubMed Barone CM, Jimenez DF (1999) Endoscopic craniectomy for early correction of craniosynostosis. Plast Reconstr Surg 104(7):1965–1973PubMed
4.
Zurück zum Zitat Cohen SR, Kawamoto HK, Burstein F, Peacock W (1991) Advancement-onlay: an improved technique of fronto-orbital remodeling in craniosynostosis. Childs Nerv Syst 7:264–271PubMedCrossRef Cohen SR, Kawamoto HK, Burstein F, Peacock W (1991) Advancement-onlay: an improved technique of fronto-orbital remodeling in craniosynostosis. Childs Nerv Syst 7:264–271PubMedCrossRef
5.
Zurück zum Zitat Cohen SR, Maher H, Wagner JD, Dauser RC, Newman MH, Muraszko KM (1994) Metopic synostosis: evaluation of aesthetic results. Plast Reconstr Surg 94(6):759–767PubMedCrossRef Cohen SR, Maher H, Wagner JD, Dauser RC, Newman MH, Muraszko KM (1994) Metopic synostosis: evaluation of aesthetic results. Plast Reconstr Surg 94(6):759–767PubMedCrossRef
6.
Zurück zum Zitat Cohen SR, Holmes RE, Meltzer HS, Nakaji P (2002) Immediate cranial vault reconstruction with bioresorbable plates following endoscopically assisted sagittal synostectomy. J Craniofac Surg 13(4):578–582PubMedCrossRef Cohen SR, Holmes RE, Meltzer HS, Nakaji P (2002) Immediate cranial vault reconstruction with bioresorbable plates following endoscopically assisted sagittal synostectomy. J Craniofac Surg 13(4):578–582PubMedCrossRef
7.
Zurück zum Zitat Collmann H, Sorensen N, Consensus Krauss J(1996) Trigonocephaly. Childs Nerv Syst 12:664–668PubMedCrossRef Collmann H, Sorensen N, Consensus Krauss J(1996) Trigonocephaly. Childs Nerv Syst 12:664–668PubMedCrossRef
8.
Zurück zum Zitat Dake JA, Price JH, Telljohann SK (2003) The nature and extent of bullying at school. J Sch Health 73(5):173–180PubMedCrossRef Dake JA, Price JH, Telljohann SK (2003) The nature and extent of bullying at school. J Sch Health 73(5):173–180PubMedCrossRef
9.
Zurück zum Zitat Delashaw JB, Persing JA, Park TS, Jane JA (1986) Surgical approaches for the correction of metopic synostosis. Neurosurgery 19(2):228–233PubMed Delashaw JB, Persing JA, Park TS, Jane JA (1986) Surgical approaches for the correction of metopic synostosis. Neurosurgery 19(2):228–233PubMed
10.
Zurück zum Zitat DiRocco Velardi F, Ferrario A, Marchese E (1996) Metopic synostosis: in favour of a “simplified” surgical treatment. Childs Nerv Syst 12:654–663CrossRef DiRocco Velardi F, Ferrario A, Marchese E (1996) Metopic synostosis: in favour of a “simplified” surgical treatment. Childs Nerv Syst 12:654–663CrossRef
11.
Zurück zum Zitat Greene CS Jr, Winston KR (1988) Treatment of scaphocephaly with sagittal craniectomy and biparietal morcellation. Neurosurgery 23(2):196–202PubMed Greene CS Jr, Winston KR (1988) Treatment of scaphocephaly with sagittal craniectomy and biparietal morcellation. Neurosurgery 23(2):196–202PubMed
12.
Zurück zum Zitat Jane JA, Edgerton MT, Futrell JW, Park TS (1978) Immediate correction of sagittal synostosis. J Neurosurg 49:705–710PubMedCrossRef Jane JA, Edgerton MT, Futrell JW, Park TS (1978) Immediate correction of sagittal synostosis. J Neurosurg 49:705–710PubMedCrossRef
13.
Zurück zum Zitat Jane JA, Park TS, Zide BM, Lambruschi P, Persing JA, Edgerton MT (1984) Alternative techniques in the treatment of unilateral coronal synostosis. J Neurosurg 61:550–556PubMedCrossRef Jane JA, Park TS, Zide BM, Lambruschi P, Persing JA, Edgerton MT (1984) Alternative techniques in the treatment of unilateral coronal synostosis. J Neurosurg 61:550–556PubMedCrossRef
14.
Zurück zum Zitat Jimenez DF, Barone CM (1995) The sunrise technique: the correction of occipital plagiocephaly using bandeau occipital plate and radial osteotomies. Pediatr Neurosurg 22:162–166PubMedCrossRef Jimenez DF, Barone CM (1995) The sunrise technique: the correction of occipital plagiocephaly using bandeau occipital plate and radial osteotomies. Pediatr Neurosurg 22:162–166PubMedCrossRef
15.
Zurück zum Zitat Jimenez DF, Barone CM, Cartwright CC, Baker L (2002) Early management of craniosynostosis using endoscopic-assisted strip craniectomies and cranial orthotic molding therapy. Pediatrics 110(1 Pt 1):97–104PubMedCrossRef Jimenez DF, Barone CM, Cartwright CC, Baker L (2002) Early management of craniosynostosis using endoscopic-assisted strip craniectomies and cranial orthotic molding therapy. Pediatrics 110(1 Pt 1):97–104PubMedCrossRef
16.
Zurück zum Zitat McCarthy JG, Glasberg SB, Cutting CB, Epstein FJ, Grayson BH, Ruff G, Thorne CH, Wisoff J, Zide BM (1995) Twenty-year experience with early surgery for craniosynostosis: I. isolated craniofacial synostosis—results and unresolved problems. Plast Reconstr Surg 96(2):272–283PubMedCrossRef McCarthy JG, Glasberg SB, Cutting CB, Epstein FJ, Grayson BH, Ruff G, Thorne CH, Wisoff J, Zide BM (1995) Twenty-year experience with early surgery for craniosynostosis: I. isolated craniofacial synostosis—results and unresolved problems. Plast Reconstr Surg 96(2):272–283PubMedCrossRef
17.
Zurück zum Zitat Mohr G, Hoffman HJ, Munro IR, Hendrick EB, Humphreys RP (1978) Surgical management of unilateral and bilateral coronal craniosynostosis: 21 years of experience. Neurosurgery 2(2):83–91PubMed Mohr G, Hoffman HJ, Munro IR, Hendrick EB, Humphreys RP (1978) Surgical management of unilateral and bilateral coronal craniosynostosis: 21 years of experience. Neurosurgery 2(2):83–91PubMed
18.
Zurück zum Zitat Persing JA, Jane JA, Delashaw JB (1990) Treatment of bilateral coronal synostosis in infancy: a holistic approach. J Neurosurg 72:171–175PubMed Persing JA, Jane JA, Delashaw JB (1990) Treatment of bilateral coronal synostosis in infancy: a holistic approach. J Neurosurg 72:171–175PubMed
19.
Zurück zum Zitat Shaffrey ME, Persing JA, Delashaw JB, Shaffrey CI, Jane JA (1991) Surgical treatment of metopic synostosis. Neurosurg Clin N Am 2(3):621–627PubMed Shaffrey ME, Persing JA, Delashaw JB, Shaffrey CI, Jane JA (1991) Surgical treatment of metopic synostosis. Neurosurg Clin N Am 2(3):621–627PubMed
20.
Zurück zum Zitat van der Wal MF, de Wit CA, Hirasing RA (2003) Psychosocial health among young victims and offenders of direct and indirect bullying. Pediatrics 111(6 Pt 1):1312–1317PubMed van der Wal MF, de Wit CA, Hirasing RA (2003) Psychosocial health among young victims and offenders of direct and indirect bullying. Pediatrics 111(6 Pt 1):1312–1317PubMed
21.
Zurück zum Zitat Vicari F (1994) Endoscopic correction of sagittal craniosynostosis. American Society of Plastic and Reconstructive Surgeons, Presymposium, San Diego, CA Vicari F (1994) Endoscopic correction of sagittal craniosynostosis. American Society of Plastic and Reconstructive Surgeons, Presymposium, San Diego, CA
22.
Zurück zum Zitat Virchow R (1851) Uber den cretinismus, namentlich in Franken, und uber pathologiside schadeelformen. Verh Phys Med Gesamle Wurzburg 2:230–256 Virchow R (1851) Uber den cretinismus, namentlich in Franken, und uber pathologiside schadeelformen. Verh Phys Med Gesamle Wurzburg 2:230–256
23.
Zurück zum Zitat Williams JK, Cohen SR, Burstein FD, Hudgins R, Boydston W, Simms C (1997) A longitudinal, statistical study of reoperation rates in craniosynostosis. Plast Reconstr Surg 100:305–310PubMed Williams JK, Cohen SR, Burstein FD, Hudgins R, Boydston W, Simms C (1997) A longitudinal, statistical study of reoperation rates in craniosynostosis. Plast Reconstr Surg 100:305–310PubMed
Metadaten
Titel
Emotional and psychological impact of delayed craniosynostosis repair
verfasst von
Burak M. Ozgur
Henry E. Aryan
Dalia Ibrahim
Mounir A. Soliman
Hal S. Meltzer
Steven R. Cohen
Michael L. Levy
Publikationsdatum
01.12.2006
Verlag
Springer-Verlag
Erschienen in
Child's Nervous System / Ausgabe 12/2006
Print ISSN: 0256-7040
Elektronische ISSN: 1433-0350
DOI
https://doi.org/10.1007/s00381-006-0148-x

Weitere Artikel der Ausgabe 12/2006

Child's Nervous System 12/2006 Zur Ausgabe

Update Chirurgie

Bestellen Sie unseren Fach-Newsletter und bleiben Sie gut informiert.

S3-Leitlinie „Diagnostik und Therapie des Karpaltunnelsyndroms“

CME: 2 Punkte

Prof. Dr. med. Gregor Antoniadis Das Karpaltunnelsyndrom ist die häufigste Kompressionsneuropathie peripherer Nerven. Obwohl die Anamnese mit dem nächtlichen Einschlafen der Hand (Brachialgia parästhetica nocturna) sehr typisch ist, ist eine klinisch-neurologische Untersuchung und Elektroneurografie in manchen Fällen auch eine Neurosonografie erforderlich. Im Anfangsstadium sind konservative Maßnahmen (Handgelenksschiene, Ergotherapie) empfehlenswert. Bei nicht Ansprechen der konservativen Therapie oder Auftreten von neurologischen Ausfällen ist eine Dekompression des N. medianus am Karpaltunnel indiziert.

Prof. Dr. med. Gregor Antoniadis
Berufsverband der Deutschen Chirurgie e.V.

S2e-Leitlinie „Distale Radiusfraktur“

CME: 2 Punkte

Dr. med. Benjamin Meyknecht, PD Dr. med. Oliver Pieske Das Webinar S2e-Leitlinie „Distale Radiusfraktur“ beschäftigt sich mit Fragen und Antworten zu Diagnostik und Klassifikation sowie Möglichkeiten des Ausschlusses von Zusatzverletzungen. Die Referenten erläutern, welche Frakturen konservativ behandelt werden können und wie. Das Webinar beantwortet die Frage nach aktuellen operativen Therapiekonzepten: Welcher Zugang, welches Osteosynthesematerial? Auf was muss bei der Nachbehandlung der distalen Radiusfraktur geachtet werden?

PD Dr. med. Oliver Pieske
Dr. med. Benjamin Meyknecht
Berufsverband der Deutschen Chirurgie e.V.

S1-Leitlinie „Empfehlungen zur Therapie der akuten Appendizitis bei Erwachsenen“

CME: 2 Punkte

Dr. med. Mihailo Andric
Inhalte des Webinars zur S1-Leitlinie „Empfehlungen zur Therapie der akuten Appendizitis bei Erwachsenen“ sind die Darstellung des Projektes und des Erstellungswegs zur S1-Leitlinie, die Erläuterung der klinischen Relevanz der Klassifikation EAES 2015, die wissenschaftliche Begründung der wichtigsten Empfehlungen und die Darstellung stadiengerechter Therapieoptionen.

Dr. med. Mihailo Andric
Berufsverband der Deutschen Chirurgie e.V.