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01.06.2011 | Original Article

Issues of “life” and “death” for patients receiving palliative care—comments when confronted with a research tool

verfasst von: Raymond Voltz, Maren Galushko, Johanna Walisko, Ute Karbach, Nicole Ernstmann, Holger Pfaff, Friedemann Nauck, Lukas Radbruch, Christoph Ostgathe

Erschienen in: Supportive Care in Cancer | Ausgabe 6/2011

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Abstract

Purpose

To be able to study the desire for hastened death (DhD) in patients receiving palliative care, research tools reflecting the thoughts of patients are needed. In order to better understand what issues of “life” and “death” mean to patients receiving palliative care in Germany, we analysed their spontaneous comments during a validation study of the German version of the Schedule of Attitudes Towards Hastened Death.

Method

Field notes and transcripts of 39 interviews were analysed by thematic analysis.

Results

Field notes from 32 patients were related to differentiating either an acute or a non-acute DhD. Furthermore, the patients’ comments were categorized and the distribution of codes analysed, leading to three types of comments: (a) longing for life excluding a hastened death, (b) wanting to live on, but perceiving death as an option, and (c) longing for death, but struggling for life.

Conclusion

The existing construct of an increased DhD may benefit from a further differentiation between “non-acute” and “acute.” In addition, it could be helpful to conceptualize “will to live” and “desire for death” not as polarities from one dimension (two sides of the same coin), but to think them as two independent dimensions.

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Titel: Issues of “life” and “death” for patients receiving palliative care—comments when confronted with a research tool
verfasst von: Raymond Voltz
Maren Galushko
Johanna Walisko
Ute Karbach
Nicole Ernstmann
Holger Pfaff
Friedemann Nauck
Lukas Radbruch
Christoph Ostgathe
Publikationsdatum: 01.06.2011
Verlag: Springer-Verlag
Erschienen in: Supportive Care in Cancer / Ausgabe 6/2011
Print ISSN: 0941-4355
Elektronische ISSN: 1433-7339
DOI: https://doi.org/10.1007/s00520-010-0876-z

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Issues of “life” and “death” for patients receiving palliative care—comments when confronted with a research tool

Abstract

Purpose

Method

Results

Conclusion

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Springer Medizin

Abstract

Purpose

Method

Results

Conclusion

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