Skip to main content
Erschienen in: AIDS and Behavior 4/2020

12.12.2019 | Original Paper

How Do Treatment Priorities Differ Between Patients in HIV Care and Their Providers? A Mixed-Methods Study

verfasst von: Rob J. Fredericksen, Emma Fitzsimmons, Laura E. Gibbons, Stephanie Loo, Sarah Dougherty, Sonia Avendano-Soto, Will A. Anderson, Cristina Gutierrez, Sally Shurbaji, Savannah Burleson, Katerina Christopoulos, Joanna Poceta, Kenneth H. Mayer, Michael J. Mugavero, William C. Mathews, Paul K. Crane, Heidi M. Crane

Erschienen in: AIDS and Behavior | Ausgabe 4/2020

Einloggen, um Zugang zu erhalten

Abstract

Evidence suggests priorities differ between patients in HIV care and their providers regarding topics most important to address in care. At five U.S. sites, we asked patients and providers to prioritize 25 potential topic areas to address during routine visits, and invited patients to discuss selection rationale. Patients (n = 206) and providers (n = 17) showed high discordance in rank order priorities (X2 (24, 223) = 71.12; p < 0.0001). Patients ranked social domains such as HIV stigma highly; a higher proportion of providers prioritized substance use domains. HIV stigma was a higher priority for patients in care fewer than 6 years (Fisher’s exact p = 0.0062), nonwhite patients (Fisher’s exact p = 0.0114), and younger patients (Fisher’s exact p = 0.0281). Patients’ priorities differed between men and women (X2 (24, 188) = 52.89; p < 0.0001), white race vs. other races (X2 (24, 206) = 48.32; p = 0.0023), and Latinos vs. non-Latinos (X2 (24, 206) = 48.65; p = 0.0021). Interviews (n = 79) revealed perceived impact of social context on health and health behaviors.
Anhänge
Nur mit Berechtigung zugänglich
Literatur
1.
Zurück zum Zitat Wagner EH. Chronic disease management: what will it take to improve care for chronic illness? Eff Clin Pract. 1998;1(1):2–4.PubMed Wagner EH. Chronic disease management: what will it take to improve care for chronic illness? Eff Clin Pract. 1998;1(1):2–4.PubMed
2.
Zurück zum Zitat Bodenheimer T, Wagner EH, Grumbach K. Improving primary care for patients with chronic illness. JAMA. 2002;288(14):1775–9.CrossRef Bodenheimer T, Wagner EH, Grumbach K. Improving primary care for patients with chronic illness. JAMA. 2002;288(14):1775–9.CrossRef
3.
Zurück zum Zitat Wagner EH, Austin BT, Davis C, Hindmarsh M, Schaefer J, Bonomi A. Improving chronic illness care: translating evidence into action. Health Aff (Millwood). 2001;20(6):64–78.CrossRef Wagner EH, Austin BT, Davis C, Hindmarsh M, Schaefer J, Bonomi A. Improving chronic illness care: translating evidence into action. Health Aff (Millwood). 2001;20(6):64–78.CrossRef
4.
Zurück zum Zitat Wagner EH, Austin BT, Von Korff M. Organizing care for patients with chronic illness. Milbank Q. 1996;74(4):511–44.CrossRef Wagner EH, Austin BT, Von Korff M. Organizing care for patients with chronic illness. Milbank Q. 1996;74(4):511–44.CrossRef
5.
Zurück zum Zitat Bertakis KD, Azari R. Patient-centered care is associated with decreased health care utilization. J Am Board Fam Med. 2011;24(3):229–39.CrossRef Bertakis KD, Azari R. Patient-centered care is associated with decreased health care utilization. J Am Board Fam Med. 2011;24(3):229–39.CrossRef
6.
Zurück zum Zitat Wittink MN, Walsh P, Yilmaz S, Mendoza M, Street RL Jr, Chapman BP, et al. Patient priorities and the doorknob phenomenon in primary care: Can technology improve disclosure of patient stressors? Patient Educ Couns. 2017;101(2):214–20.CrossRef Wittink MN, Walsh P, Yilmaz S, Mendoza M, Street RL Jr, Chapman BP, et al. Patient priorities and the doorknob phenomenon in primary care: Can technology improve disclosure of patient stressors? Patient Educ Couns. 2017;101(2):214–20.CrossRef
7.
Zurück zum Zitat Constand MK, MacDermid JC, Dal Bello-Haas V, Law M. Scoping review of patient-centered care approaches in healthcare. BMC Health Serv Res. 2014;14:271.CrossRef Constand MK, MacDermid JC, Dal Bello-Haas V, Law M. Scoping review of patient-centered care approaches in healthcare. BMC Health Serv Res. 2014;14:271.CrossRef
8.
Zurück zum Zitat Rathert C, Wyrwich MD, Boren SA. Patient-centered care and outcomes: a systematic review of the literature. Med Care Res Rev. 2013;70(4):351–79.CrossRef Rathert C, Wyrwich MD, Boren SA. Patient-centered care and outcomes: a systematic review of the literature. Med Care Res Rev. 2013;70(4):351–79.CrossRef
9.
Zurück zum Zitat Fredericksen RJ, Edwards TC, Merlin JS, Gibbons LE, Rao D, Batey DS, et al. Patient and provider priorities for self-reported domains of HIV clinical care. AIDS Care. 2015;27(10):1255–64.CrossRef Fredericksen RJ, Edwards TC, Merlin JS, Gibbons LE, Rao D, Batey DS, et al. Patient and provider priorities for self-reported domains of HIV clinical care. AIDS Care. 2015;27(10):1255–64.CrossRef
10.
Zurück zum Zitat Tai-Seale M, McGuire TG, Zhang W. Time allocation in primary care office visits. Health Serv Res. 2007;42(5):1871–94.CrossRef Tai-Seale M, McGuire TG, Zhang W. Time allocation in primary care office visits. Health Serv Res. 2007;42(5):1871–94.CrossRef
11.
Zurück zum Zitat U.S. Department of Health and Human Services FDA. Guidance for industry: patient-reported outcome measures: use in medical product development to support labeling claims: draft guidance. Health Qual Life Outcomes. 2006;4:79.CrossRef U.S. Department of Health and Human Services FDA. Guidance for industry: patient-reported outcome measures: use in medical product development to support labeling claims: draft guidance. Health Qual Life Outcomes. 2006;4:79.CrossRef
12.
Zurück zum Zitat Crane HM, Crane PK, Tufano JT, Ralston JD, Wilson IB, Brown TD, et al. HIV provider documentation and actions following patient reports of at-risk behaviors and conditions when identified by a web-based point-of-care assessment. AIDS Behav. 2017;21(11):3111–21.CrossRef Crane HM, Crane PK, Tufano JT, Ralston JD, Wilson IB, Brown TD, et al. HIV provider documentation and actions following patient reports of at-risk behaviors and conditions when identified by a web-based point-of-care assessment. AIDS Behav. 2017;21(11):3111–21.CrossRef
13.
Zurück zum Zitat Fredericksen RJ, Crane P, Tufano J, Ralston J, Schmidt S, Brown T, et al. Integrating a web-based patient assessment into primary care for HIV-infected adults. J AIDS HIV Res. 2012;4(1):47.PubMedPubMedCentral Fredericksen RJ, Crane P, Tufano J, Ralston J, Schmidt S, Brown T, et al. Integrating a web-based patient assessment into primary care for HIV-infected adults. J AIDS HIV Res. 2012;4(1):47.PubMedPubMedCentral
14.
Zurück zum Zitat Jensen RE, Rothrock NE, DeWitt EM, Spiegel B, Tucker CA, Crane HM, et al. The role of technical advances in the adoption and integration of patient-reported outcomes in clinical care. Med Care. 2015;53(2):153–9.CrossRef Jensen RE, Rothrock NE, DeWitt EM, Spiegel B, Tucker CA, Crane HM, et al. The role of technical advances in the adoption and integration of patient-reported outcomes in clinical care. Med Care. 2015;53(2):153–9.CrossRef
16.
Zurück zum Zitat Creswell JW, Plano Clark VL. Designing and conducting mixed methods research. 3rd ed. Los Angeles: SAGE; 2018. p. 492. Creswell JW, Plano Clark VL. Designing and conducting mixed methods research. 3rd ed. Los Angeles: SAGE; 2018. p. 492.
17.
Zurück zum Zitat PROMIS. Dynamic tools to measure health outcomes from the patient perspective: PROMIS (Patient Reported Outcomes Measurement Information System); 2011. http://www.nihpromis.org. Accessed 3 Dec 2019. PROMIS. Dynamic tools to measure health outcomes from the patient perspective: PROMIS (Patient Reported Outcomes Measurement Information System); 2011. http://​www.​nihpromis.​org. Accessed 3 Dec 2019.
18.
Zurück zum Zitat Hollander MSJ. Testing for agreement between two groups of judges. Biometrika. 1978;65(2):403–11.CrossRef Hollander MSJ. Testing for agreement between two groups of judges. Biometrika. 1978;65(2):403–11.CrossRef
20.
Zurück zum Zitat Campos CJ, Turato ER. Content analysis in studies using the clinical-qualitative method: application and perspectives. Rev Lat Am Enfermagem. 2009;17(2):259–64.CrossRef Campos CJ, Turato ER. Content analysis in studies using the clinical-qualitative method: application and perspectives. Rev Lat Am Enfermagem. 2009;17(2):259–64.CrossRef
21.
Zurück zum Zitat Hsieh HF, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005;15(9):1277–88.CrossRef Hsieh HF, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005;15(9):1277–88.CrossRef
22.
Zurück zum Zitat Florom-Smith AL, De Santis JP. Exploring the concept of HIV-related stigma. Nurs Forum. 2012;47(3):153–65.CrossRef Florom-Smith AL, De Santis JP. Exploring the concept of HIV-related stigma. Nurs Forum. 2012;47(3):153–65.CrossRef
23.
Zurück zum Zitat Horberg MA, Hurley LB, Silverberg MJ, Klein DB, Quesenberry CP, Mugavero MJ. Missed office visits and risk of mortality among HIV-infected subjects in a large healthcare system in the United States. AIDS patient care and STDs. 2013;27(8):442–9.CrossRef Horberg MA, Hurley LB, Silverberg MJ, Klein DB, Quesenberry CP, Mugavero MJ. Missed office visits and risk of mortality among HIV-infected subjects in a large healthcare system in the United States. AIDS patient care and STDs. 2013;27(8):442–9.CrossRef
24.
Zurück zum Zitat Singh S, Bradley H, Hu X, Skarbinski J, Hall HI, Lansky A, et al. Men living with diagnosed HIV who have sex with men: progress along the continuum of HIV care—United States, 2010. MMWR Morb Mortal Wkly Rep. 2014;63(38):829–33.PubMedPubMedCentral Singh S, Bradley H, Hu X, Skarbinski J, Hall HI, Lansky A, et al. Men living with diagnosed HIV who have sex with men: progress along the continuum of HIV care—United States, 2010. MMWR Morb Mortal Wkly Rep. 2014;63(38):829–33.PubMedPubMedCentral
25.
Zurück zum Zitat Voigt I, Wrede J, Diederichs-Egidi H, Dierks ML, Junius-Walker U. Priority setting in general practice: health priorities of older patients differ from treatment priorities of their physicians. Croat Med J. 2010;51(6):483–92.CrossRef Voigt I, Wrede J, Diederichs-Egidi H, Dierks ML, Junius-Walker U. Priority setting in general practice: health priorities of older patients differ from treatment priorities of their physicians. Croat Med J. 2010;51(6):483–92.CrossRef
26.
Zurück zum Zitat Thomson S, Doody G. Parallel paths? Patient and doctor priorities in psychiatric outpatient consultations. J Ment Health. 2010;19(5):461–9.CrossRef Thomson S, Doody G. Parallel paths? Patient and doctor priorities in psychiatric outpatient consultations. J Ment Health. 2010;19(5):461–9.CrossRef
27.
Zurück zum Zitat Abbo ED, Zhang Q, Zelder M, Huang ES. The increasing number of clinical items addressed during the time of adult primary care visits. J Gen Intern Med. 2008;23(12):2058–65.CrossRef Abbo ED, Zhang Q, Zelder M, Huang ES. The increasing number of clinical items addressed during the time of adult primary care visits. J Gen Intern Med. 2008;23(12):2058–65.CrossRef
28.
Zurück zum Zitat Wittink MN, Yilmaz S, Walsh P, Chapman B, Duberstein P. Customized Care: an intervention to improve communication and health outcomes in multimorbidity. Contemp Clin Trials Commun. 2016;4:214–21.CrossRef Wittink MN, Yilmaz S, Walsh P, Chapman B, Duberstein P. Customized Care: an intervention to improve communication and health outcomes in multimorbidity. Contemp Clin Trials Commun. 2016;4:214–21.CrossRef
29.
Zurück zum Zitat Fredericksen RJ, Tufano J, Ralston J, McReynolds J, Stewart M, Lober WB, et al. Provider perceptions of the value of same-day, electronic patient-reported measures for use in clinical HIV care. AIDS Care. 2016;28(11):1428–33.CrossRef Fredericksen RJ, Tufano J, Ralston J, McReynolds J, Stewart M, Lober WB, et al. Provider perceptions of the value of same-day, electronic patient-reported measures for use in clinical HIV care. AIDS Care. 2016;28(11):1428–33.CrossRef
Metadaten
Titel
How Do Treatment Priorities Differ Between Patients in HIV Care and Their Providers? A Mixed-Methods Study
verfasst von
Rob J. Fredericksen
Emma Fitzsimmons
Laura E. Gibbons
Stephanie Loo
Sarah Dougherty
Sonia Avendano-Soto
Will A. Anderson
Cristina Gutierrez
Sally Shurbaji
Savannah Burleson
Katerina Christopoulos
Joanna Poceta
Kenneth H. Mayer
Michael J. Mugavero
William C. Mathews
Paul K. Crane
Heidi M. Crane
Publikationsdatum
12.12.2019
Verlag
Springer US
Erschienen in
AIDS and Behavior / Ausgabe 4/2020
Print ISSN: 1090-7165
Elektronische ISSN: 1573-3254
DOI
https://doi.org/10.1007/s10461-019-02746-8

Weitere Artikel der Ausgabe 4/2020

AIDS and Behavior 4/2020 Zur Ausgabe

Leitlinien kompakt für die Innere Medizin

Mit medbee Pocketcards sicher entscheiden.

Seit 2022 gehört die medbee GmbH zum Springer Medizin Verlag

Update Innere Medizin

Bestellen Sie unseren Fach-Newsletter und bleiben Sie gut informiert.