Background
Methods
Approach
Scoping
Searching
# | Searches | Results |
---|---|---|
1 | Carcinoma, Intraductal, Noninfiltrating/ | 8623 |
2 | CARCINOMA, DUCTAL/ [used 1963-93, use CARCINOMA, INTRADUCTAL, NONINFILTRATING to search CARCINOMA, DUCTAL 1966-93] | 1187 |
3 | limit 2 to yr=“1902 - 1965” | 124 |
4 | dcis.mp. | 3612 |
5 | ductal carcinoma* in situ.mp. | 5237 |
6 | (carcinoma* adj4 intraductal).mp. | 9543 |
7 | Paget’s Disease, Mammary/ | 698 |
8 | 1 or 3 or 4 or 5 or 6 or 7 | 13041 |
9 | Patient Education as Topic/ | 77452 |
10 | patient education handout/ | 4531 |
11 | (patient* adj4 educat*).mp. | 100404 |
12 | Comprehension/ | 10834 |
13 | (readable or readability).mp. | 2895 |
14 | exp Learning/ | 328881 |
15 | (patient* adj4 learn*).mp. | 5677 |
16 | (patient* adj4 know*).mp. | 39386 |
17 | (patient* adj4 understand*).mp. | 14038 |
18 | (patient* adj4 (comprehend* or comprehension*)).mp. | 950 |
19 | exp Informed Consent/ | 38029 |
20 | informed.mp. | 87866 |
21 | (patient* adj4 communicat*).mp. | 16285 |
22 | exp Communications Media/ | 273700 |
23 | (information adj4 needs).mp. | 5233 |
24 | (information adj4 obtain*).mp. | 42149 |
25 | ((apply or applie? or applying or application?) adj4 information).mp. | 5881 |
26 | (patient* adj4 (explain??? or explanation?)).mp. | 7471 |
27 | (educat* adj4 (barrier* or facilitat*)).mp. | 2810 |
28 | (learn* adj4 (barrier* or facilitat* or challeng*)).mp. | 5599 |
29 | (know* adj4 (barrier* or facilitat* or challeng*)).mp. | 6047 |
30 | (understand* adj4 (barrier* or facilitat* or challeng*)).mp. | 10614 |
31 | ((comprehend* or comprehension*) adj4 (barrier* or facilitat* or challeng*)).mp. | 354 |
32 | (communicat* adj4 (barrier* or facilitat* or challeng*)).mp. | 10641 |
33 | (information adj4 (barrier* or facilitat* or challeng*)).mp. | 5390 |
34 | ((knowledge or information) adj4 access*).mp. | 15943 |
35 | ((knowledge or information) adj4 broker*).mp. | 199 |
36 | ((knowledge or information) adj4 spread*).mp. | 1128 |
37 | ((knowledge or information) adj4 flow???).mp. | 5329 |
38 | ((knowledge or information) adj4 collect*).mp. | 23574 |
39 | (translat* adj4 (information or knowledge)).mp. | 4584 |
40 | ((knowledge or information) adj4 exchang*).mp. | 6091 |
41 | ((information or knowledge) adj4 (acquisition or acquir*)).mp. | 10596 |
42 | ((information or knowledge) adj4 gain???).mp. | 13039 |
43 | exp Communication/ [includes communication barriers, health communication etc.] | 420493 |
44 | misunderstand*.mp. | 3836 |
45 | miscommunicat*.mp. | 489 |
46 | mistaught.mp. | 1 |
47 | misinform*.mp. | 1905 |
48 | (communicat* adj4 (fail* or error*)).mp. | 1408 |
49 | (understand* adj4 (fail* or error*)).mp. | 1986 |
50 | misunderstood.mp. | 1737 |
51 | (incomprehend* or incomprehension*).mp. | 48 |
52 | confus???.mp. | 43867 |
53 | uninform*.mp. | 2047 |
54 | (knowledge* adj4 (fail* or error*)).mp. | 1165 |
55 | (information* adj4 (fail* or error*)).mp. | 2531 |
56 | ((knowledge or information) adj4 lack???).mp. | 21650 |
57 | (communicat* adj4 lack???).mp. | 1521 |
58 | (understand* adj4 lack???).mp. | 4506 |
59 | ((explanation* or explain*) adj4 lack???).mp. | 4180 |
60 | ((teach* or taught) adj4 lack???).mp. | 403 |
61 | (educat* adj4 lack???).mp. | 2559 |
62 | (knowledge adj4 gap?).mp. | 9651 |
63 | (information adj4 gap?).mp. | 1323 |
64 | (communication adj4 gap?).mp. | 3720 |
65 | (understanding adj4 gap?).mp. | 2150 |
66 | (understanding adj4 gain???).mp. | 10192 |
67 | (knowledge adj4 (inaccura* or incomplete* or incorrect*)).mp. | 1046 |
68 | (information adj4 (inaccura* or incomplete* or incorrect*)).mp. | 2399 |
69 | ((explanation* or explain*) adj4 (inaccura* or incomplete* or incorrect*)).mp. | 586 |
70 | ((teach* or taught) adj4 (inaccura* or incomplete* or incorrect*)).mp. | 56 |
71 | (communicat* adj4 (inaccura* or incomplete* or incorrect*)).mp. | 112 |
72 | (understand* adj4 (inaccura* or incomplete* or incorrect*)).mp. | 1382 |
73 | ((teach* or taught) adj4 (barrier* or facilitat*)).mp. | 935 |
74 | (patient* adj4 (teach* or taught)).mp. | 6701 |
75 | (learn* adj4 (fail* or error* or lack??? or gap? or incomplete* or inaccura* or incorrect*)).mp. | 3492 |
76 | exp Patient Satisfaction/ | 73809 |
77 | (patient* adj4 satisf*).mp. | 97266 |
78 | (patient* adj4 experienc*).mp. | 106283 |
79 | (patient* adj4 prefer*).mp. | 23059 |
80 | “illness experience?”.mp. | 1134 |
81 | “diagnos* experience?”.mp. | 307 |
82 | “prognos* experience?”.mp. | 14 |
83 | “treatment* experience?”.mp. | 2765 |
84 | “follow-up experience?”.mp. | 182 |
85 | “survivorship experience?”.mp. | 57 |
86 | “experience of illness”.mp. | 491 |
87 | “experience of diagnos*”.mp. | 928 |
88 | “experience of prognos*”.mp. | 68 |
89 | “experience of treatment*”.mp. | 1967 |
90 | “experience of follow-up”.mp. | 177 |
91 | “experience of survivorship”.mp. | 12 |
92 | CONSUMER SATISFACTION/ [use to search PATIENT SATISFACTION 1982-91] | 19040 |
93 | exp Public Relations/ | 109728 |
94 | (positive adj4 experience*).mp. | 6949 |
95 | (negative adj4 experience*).mp. | 5360 |
96 | (good adj4 experience*).mp. | 2073 |
97 | (bad adj4 experience*).mp. | 338 |
98 | (respect* adj4 interact*).mp. | 4643 |
99 | (respect* adj4 treat*).mp. | 33437 |
100 | (respect* adj4 conversat*).mp. | 42 |
101 | disrespect*.mp. | 505 |
102 | (good adj4 communicat*).mp. | 1988 |
103 | (poor adj4 communicat*).mp. | 1576 |
104 | (respect* adj4 communicat*).mp. | 730 |
105 | (shar* adj4 decision).mp. | 4117 |
106 | (enough adj4 information*).mp. | 1736 |
107 | (enough adj4 communicat*).mp. | 63 |
108 | (sufficien* adj4 information*).mp. | 4632 |
109 | (sufficien* adj4 communicat*).mp. | 187 |
110 | (insufficien* adj4 information*).mp. | 2211 |
111 | (insufficien* adj4 communicat*).mp. | 238 |
112 | listening.mp. | 12362 |
113 | Decision Making/ | 79019 |
114 | exp Choice Behavior/ | 46792 |
115 | (decision* or decide* or deciding).mp. | 344149 |
116 | (choice* or choose* or chose*).mp. | 375015 |
117 | exp patient centered care/ | 14724 |
118 | (patient* adj2 (centered or centred)).mp. | 21245 |
119 | exp Professional-Patient Relations/ | 130244 |
120 | (relations* adj4 (physician* or doctor* or professional*) adj4 patient*).mp. | 102931 |
121 | health literacy/ | 3159 |
122 | health literac*.mp. | 4914 |
123 | health literate.mp. | 89 |
124 | exp Attitude to Health/ | 349676 |
125 | (health adj4 (knowledg* or attitude*)).mp. | 255723 |
126 | Practice Patterns, Physicians’/ | 48762 |
127 | practice pattern*.mp. | 55115 |
128 | pattern* of practice.mp. | 485 |
129 | Professional Practice/ | 16018 |
130 | exp Consumer Participation/ | 36274 |
131 | (participat* adj4 (patient* or consumer* or client*)).mp. | 42306 |
132 | decision support techniques/ | 15967 |
133 | Decision Support Systems, Clinical/ | 6197 |
134 | Patient Care Management/ | 2811 |
135 | exp Patient Care Planning/ | 58229 |
136 | disease management/ | 26772 |
137 | (care adj2 (manag* or plan*)).mp. | 89775 |
138 | “Quality of Health Care”/ | 64024 |
139 | Quality Improvement/ | 12994 |
140 | exp Quality Assurance, Health Care/ | 288987 |
141 | (quality adj4 care).mp. | 157694 |
142 | (quality adj4 improv*).mp. | 110356 |
143 | (quality adj4 (high or low)).mp. | 57255 |
144 | (quality adj4 increas*).mp. | 12900 |
145 | (quality adj4 (good or poor or bad)).mp. | 28967 |
146 | (quality adj4 (better or worse*)).mp. | 13421 |
147 | (quality adj4 (assur* or ensur*)).mp. | 70255 |
148 | or/9-147 | 2984559 |
149 | 8 and 148 | 1611 |
150 | remove duplicates from 149 | 1567 |
151 | exp animals/ not (exp animals/ and exp humans/) | 4319036 |
152 | 150 not 151 | 1562 |
153 | limit 152 to (“all adult (19 plus years)” or “young adult (19 to 24 years)” or “adult (19 to 44 years)” or “young adult and adult (19-24 and 19-44)” or “middle age (45 to 64 years)” or “middle aged (45 plus years)” or “all aged (65 and over)” or “aged (80 and over)”) | 1031 |
154 | limit 152 to (“all infant (birth to 23 months)” or “all child (0 to 18 years)” or “newborn infant (birth to 1 month)” or “infant (1 to 23 months)” or “preschool child (2 to 5 years)” or “child (6 to 12 years)” or “adolescent (13 to 18 years)”) | 54 |
155 | 152 not 154 | 1508 |
156 | 153 or 155 | 1559 |
157 | limit 156 to female | 1458 |
158 | (wom#n or female?).mp. | 7645637 |
159 | 156 and 158 | 1469 |
160 | 157 or 159 | 1469 |
161 | limit 160 to english language | 1343 |
162 | 160 not 161 | 126 |
Screening
Data extraction
Data analysis
Results
Search results
Domain (n studies) | Themes | Studies |
---|---|---|
Knowledge about DCIS and its prognosis [14] | Little awareness or knowledge about DCIS | |
Failure to distinguish DCIS from invasive breast cancer | ||
Inaccurate perception of risk for invasiveness/recurrence | ||
Influenced by socioeconomic status, race | ||
Communication and decision-making [28] | Sources of information (in no particular order): surgeons, breast cancer nurses, Internet, books, leaflets, medical journals, cancer charities | |
Not satisfied with information about DCIS provided to them | ||
High level of decisional conflict | ||
Decisions highly influenced by physician recommendation, patient age, race, patient concern about recurrence | ||
Informed or shared decision-making influenced by socioeconomic status | ||
Challenges faced by physicians were uncertainty about appropriate treatment and explaining DCIS to patients | ||
Physicians referred to DCIS as abnormal cells, early form of cancer, cancer, cancerous or malignant cells and non-invasive cancer | ||
Psychosocial impact of DCIS [19] | Range of emotions from calm acceptance and relief that disease caught early through to shock and distress | |
Following treatment women experienced worsened body image, lower quality of life, poor relationships with others, decreased sexual desire or activity, tension, anxiety, loneliness and depression | ||
Some women reported high degree of social support, little impact on sexual function or quality of life, or little strain on interpersonal relationships compared with women who had invasive breast cancer | ||
Influenced by socioeconomic status, no partner and age | [32] | |
Interventions to support DCIS communication or decision-making [2] | Women with DCIS and physician thought that communication or decisions aids would help patients understand DCIS, and its treatment and prognosis |