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Unmet Dental Needs and Barriers to Dental Care Among Children with Autism Spectrum Disorders

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Abstract

Mail-in pilot-tested questionnaires were sent to a stratified random sample of 1,500 families from the North Carolina Autism Registry. Multivariate logistic regression analysis was used to determine the significance of unmet dental needs and other predictors. Of 568 surveys returned (Response Rate = 38%), 555 were complete and usable. Sixty-five (12%) children had unmet dental needs. Of 516 children (93%) who had been to a dentist, 11% still reported unmet needs. The main barriers were child’s behavior, cost, and lack of insurance. The significant predictor variables of unmet needs were child’s behavior (p = 0.01), child’s dental health (p < 0.001), and caregiver’s last dental visit greater than 6 months (p = 0.002). Type of ASD did not have an effect on having unmet dental needs.

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References

  • Aday, L. A., & Andersen, R. (1974). A framework for the study of access to medical care. Health Services Research, 9(3), 208–220.

    PubMed  Google Scholar 

  • Al Agili, D. E., Bronstein, J. M., & Greene-McIntyre, M. (2005). Access and utilization of dental services by Alabama medicaid-enrolled children: A parent perspective. Pediatric Dentistry, 27(5), 414–421.

    PubMed  Google Scholar 

  • Altun, C., Guven, G., Akgun, O. M., Akkurt, M. D., Basak, F., & Akbulut, E. (2010). Oral health status of disabled individuals attending special schools. European Journal of Dentistry, 4(4), 361–366.

    PubMed  Google Scholar 

  • American psychiatric association. (2000). Diagnostic and statistical manual of mental disorders (4th ed.). Washington, DC: American psychiatric association.

    Google Scholar 

  • Autism and Developmental Disabilities Monitoring Network Surveillance Year 2006 Principal Investigators, and Centers for Disease Control and Prevention (CDC). (2009). Prevalence of autism spectrum disorders—autism and developmental disabilities monitoring network, United States, 2006. MMWR. Surveillance Summaries: Morbidity and Mortality Weekly Report. Surveillance Summaries/CDC, 58(10), 1–20.

  • Autism spectrum disorders (pervasive developmental disorders). (2010). http://www.nimh.nih.gov.libproxy.lib.unc.edu/health/publications/autism/complete-index.shtml. Accessed 11 Oct 2010.

  • Brickhouse, T. H., Farrington, F. H., Best, A. M., & Ellsworth, C. W. (2009). Barriers to dental care for children in virginia with autism spectrum disorders. Journal of Dentistry for Children (Chicago, IL), 76(3), 188–193.

    Google Scholar 

  • Burns, K. E., Duffett, M., Kho, M. E., Meade, M. O., Adhikari, N. K., Sinuff, T., et al. (2008). A guide for the design and conduct of self-administered surveys of clinicians. CMAJ: Canadian Medical Association Journal (Journal De l’Association Medicale Canadienne), 179(3), 245–252. doi:10.1503/cmaj.080372.

    Article  Google Scholar 

  • Byck, G. R., Walton, S. M., & Cooksey, J. A. (2002). Access to dental care services for medicaid children: Variations by urban/rural categories in Illinois. The Journal of Rural Health: Official Journal of the American Rural Health Association and the National Rural Health Care Association, 18(4), 512–520.

    Article  Google Scholar 

  • DeMattei, R., Cuvo, A., & Maurizio, S. (2007). Oral assessment of children with an autism spectrum disorder. Journal of Dental Hygiene: JDH/American Dental Hygienists’ Association, 81(3), 65.

    Google Scholar 

  • Edelstein, B. L. (2002). Disparities in oral health and access to care: Findings of national surveys. Ambulatory Pediatrics: The Official Journal of the Ambulatory Pediatric Association, 2(2 Suppl), 141–147.

    Article  Google Scholar 

  • Hernandez, P. J. (2007). Perspectives of a parent and a provider for children with special health care needs. Pediatric Dentistry, 29(2), 105–107.

    PubMed  Google Scholar 

  • Kopycka-Kedzierawski, D. T., & Auinger, P. (2008). Dental needs and status of autistic children: Results from the national survey of children’s health. Pediatric Dentistry, 30(1), 54–58.

    PubMed  Google Scholar 

  • Lee, J. Y., Rozier, R. G., Norton, E. C., Kotch, J. B., & Vann, W. F., Jr. (2004). Effects of WIC participation on children’s use of oral health services. American Journal of Public Health, 94(5), 772–777.

    Article  PubMed  Google Scholar 

  • Lewis, C. W. (2009). Dental care and children with special health care needs: A population-based perspective. Academic Pediatrics, 9(6), 420–426. doi:10.1016/j.acap.2009.09.005.

    Article  PubMed  Google Scholar 

  • Lewis, C., Robertson, A. S., & Phelps, S. (2005). Unmet dental care needs among children with special health care needs: Implications for the medical home. Pediatrics, 116(3), e426–e431. doi:10.1542/peds.2005-0390.

    Article  PubMed  Google Scholar 

  • Lowe, O., & Lindemann, R. (1985). Assessment of the autistic patient’s dental needs and ability to undergo dental examination. ASDC Journal of Dentistry for Children, 52(1), 29–35.

    PubMed  Google Scholar 

  • Marshall, J., Sheller, B., & Mancl, L. (2010). Caries-risk assessment and caries status of children with autism. Pediatric Dentistry, 32(1), 69–75.

    PubMed  Google Scholar 

  • Mofidi, M., Rozier, R. G., & King, R. S. (2002). Problems with access to dental care for medicaid-insured children: What caregivers think. American Journal of Public Health, 92, 53–58.

    Article  PubMed  Google Scholar 

  • Morinushi, T., Ueda, Y., & Tanaka, C. (2001). Autistic children: Experience and severity of dental caries between 1980 and 1995 in Kagoshima city, japan. The Journal of Clinical Pediatric Dentistry, 25(4), 323–328.

    PubMed  Google Scholar 

  • Nelson, L. P., Getzin, A., Graham, D., Zhou, J., Wagle, E. M., McQuiston, J., et al. (2011). Unmet dental needs and barriers to care for children with significant special health care needs. Pediatric Dentistry, 33(1), 29–36.

    PubMed  Google Scholar 

  • Newacheck, P. W., Hughes, D. C., Hung, Y. Y., Wong, S., & Stoddard, J. J. (2000a). The unmet health needs of America’s children. Pediatrics, 105(4 Pt 2), 989–997.

    PubMed  Google Scholar 

  • Newacheck, P. W., McManus, M., Fox, H. B., Hung, Y. Y., & Halfon, N. (2000b). Access to health care for children with special health care needs. Pediatrics, 105(4 Pt 1), 760–766.

    Article  PubMed  Google Scholar 

  • Rapin, I., & Tuchman, R. F. (2008). Autism: Definition, neurobiology, screening, diagnosis. Pediatric Clinics of North America, 55(5), 1129–1146, viii. doi:10.1016/j.pcl.2008.07.005.

  • Seale, N. S., & Casamassimo, P. S. (2003). Access to dental care for children in the United States: A survey of general practitioners. Journal of the American Dental Association (1939), 134(12), 1630–1640.

    Google Scholar 

  • Shapira, J., Mann, J., Tamari, I., Mester, R., Knobler, H., Yoeli, Y., et al. (1989). Oral health status and dental needs of an autistic population of children and young adults. Special Care in Dentistry: Official Publication of the American Association of Hospital Dentists, the Academy of Dentistry for the Handicapped and the American Society for Geriatric Dentistry, 9(2), 38–41.

    Article  Google Scholar 

  • Smith, R. G., & Lewis, C. W. (2005). Availability of dental appointments for young children in king county, Washington: Implications for access to care. Pediatric Dentistry, 27(3), 207–211.

    PubMed  Google Scholar 

  • Thomas, K. C., Ellis, A. R., McLaurin, C., Daniels, J., & Morrissey, J. P. (2007). Access to care for autism-related services. Journal of Autism and Developmental Disorders, 37(10), 1902–1912. doi:10.1007/s10803-006-0323-7.

    Article  PubMed  Google Scholar 

  • Vainio, L., Krause, M., & Inglehart, M. R. (2011). Patients with special needs: Dental students’ educational experiences, attitudes, and behavior. Journal of Dental Education, 75(1), 13–22.

    PubMed  Google Scholar 

  • Wang, H., Norton, E. C., & Rozier, R. G. (2007). Effects of the state children’s health insurance program on access to dental care and use of dental services. Health Services Research, 42(4), 1544–1563. doi:10.1111/j.1475-6773.2007.00699.x.

    Article  PubMed  Google Scholar 

  • Weil, T. N., & Inglehart, M. R. (2010). Dental education and dentists’ attitudes and behavior concerning patients with autism. Journal of Dental Education, 74(12), 1294–1307.

    PubMed  Google Scholar 

  • Wolff, A. J., Waldman, H. B., Milano, M., & Perlman, S. P. (2004). Dental students’ experiences with and attitudes toward people with mental retardation. Journal of the American Dental Association (1939), 135(3), 353–357.

    Google Scholar 

  • Yu, S. M., Bellamy, H. A., Schwalberg, R. H., & Drum, M. A. (2001). Factors associated with use of preventive dental and health services among U.S. adolescents. The Journal of Adolescent Health: Official Publication of the Society for Adolescent Medicine, 29(6), 395–405.

    Article  Google Scholar 

  • Yu, S. M., Bellamy, H. A., Kogan, M. D., Dunbar, J. L., Schwalberg, R. H., & Schuster, M. A. (2002). Factors that influence receipt of recommended preventive pediatric health and dental care. Pediatrics, 110(6), e73.

    Article  PubMed  Google Scholar 

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Acknowledgments

The research is supported by the National Center for Research Resources, North Carolina Translational and Clinical Sciences Institute (NCTRaCS #10KR51022), and by funding from National Institute for Child Health and Development for the UNC Neurodevelopmental Disorders Research Center (NICHD# P30 HD03110) which supports the Autism Registry. The authors would like to thank Dr. Renee Clark of the North Carolina Registry for Autism Research for her assistance in constructing and contacting the sample for the survey, and Dr Jessica Lee, Dr Kimon Divaris, and Dr Ceib Phillips for their statistical help.

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Correspondence to Bien Lai.

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Lai, B., Milano, M., Roberts, M.W. et al. Unmet Dental Needs and Barriers to Dental Care Among Children with Autism Spectrum Disorders. J Autism Dev Disord 42, 1294–1303 (2012). https://doi.org/10.1007/s10803-011-1362-2

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