nach oben

Journal of Genetic Counseling

Erschienen in:

01.12.2007 | Original Research

Coming Full Circle: A Reciprocal-Engagement Model of Genetic Counseling Practice

verfasst von: Patricia McCarthy Veach, Dianne M. Bartels, Bonnie S. LeRoy

Erschienen in: Journal of Genetic Counseling | Ausgabe 6/2007

Einloggen, um Zugang zu erhalten

Abstract

As genetic health care and genetic testing expand from primarily addressing conditions that are exclusively genetic in nature to common diseases with both genetic and environmental components, the scope of genetic counseling has grown. Identification and utilization of a normative model of practice defined by members of the profession is critical as genetic services become more commonplace in medical care. The purpose of this paper is to describe the results of a consensus conference convened to define a model of genetic counseling practice based on the guidance of educators and leaders in the profession. Twenty-three program directors or their representatives from 20 genetic counseling graduate programs in North America listened to presentations and participated in group discussions aimed at determining the elements of a model of practice, including tenets, goals, strategies, and behaviors for addressing patients’ genetic concerns. Their discussion is summarized, training implications and research recommendations are presented, and a model of practice that extends their ideas is proposed.

Nur mit Berechtigung zugänglich

American Board of Genetic Counseling. (1996). Journal of Genetic Counseling, 5, 113–121.CrossRef

American Society of Human Genetics. (1975). Genetic counseling. Journal of Human Genetics, 27, 240–242.

Bartels, D. M., LeRoy, B. S., McCarthy, P., & Caplan, A. L. (1997). Nondirectiveness in genetic counseling: A survey of practitioners. American Journal of Medical Genetics, 72, 172–179.PubMedCrossRef

Benkendorf, J., Prince, M., Rose, M. A., De Fina, A., & Hamilton, H. E. (2001). Does indirect speech promote non-directive genetic counseling? Results of a sociolinguistic investigation. American Journal of Medical Genetics, 106, 19–207.CrossRef

Bernhardt, B. A., Biesecker, B. B., & Mastromarino, C. L. (2000). Goals, benefits, and outcomes of genetic counseling: Client and genetic counselor assessment. American Journal of Medical Genetics, 94, 189–197.PubMedCrossRef

Biesecker, B., & Peters, K. (2001). Process studies in genetic counseling: Peering into the black box. American Journal of Medical Genetics, 106, 191–198.PubMedCrossRef

Bowles Biesecker, B. (2003). Back to the future of genetic counseling: Commentary on “Psychosocial counseling in a post-nondirective era: A point of view.” Journal of Genetic Counseling, 12, 213–218.CrossRef

Brazen, L. (1992). Project 2000: The difference between conceptual models, practice models. AORN Journal, 56, 840–844.PubMedCrossRef

Chapple, A., May, C., & Campion, P. (1995). Lay understanding of genetic diseases: A British study of families attending a genetic counseling service. Journal of Genetic Counseling, 4, 281–300.PubMedCrossRef

Davey, A., Rostant, K., Harrop, K., Goldblatt, J., & O’Leary, P. (2005). Evaluating genetic counseling: Client expectations, psychological adjustment and satisfaction with service. Journal of Genetic Counseling, 14, 197–206.PubMedCrossRef

Duric, V., Butow, P., Sharpe, L., Lobb, E., Meiser, B., Barratt, A. et al. (2003). Reducing psychological distress in a genetic counseling consultation for breast cancer. Journal of Genetic Counseling, 12, 243.CrossRef

Ellington, L., Roter, D., Dudley, W. N., Baty, B. J., Upchurch, R., Larson, S. et al. (2005). Communication analysis of BRCA1 genetic counseling. Journal of Genetic Counseling, 14, 377–386.PubMedCrossRef

Ellington, L., Baty, B. J., McDonald, J., Venne, V., Musters, A., Roter, D. et al. (2006). Exploring genetic counseling communication patterns: The role of teaching and counseling approaches. Journal of Genetic Counseling, 15, 179–189.PubMedCrossRef

Hallowell, N., Statham, H., Murton, F., Green, J., & Richards, M. (1997). “Talking about chance”: The presentation of risk information during genetic counseling for breast and ovarian cancer. Journal of Genetic Counseling, 6, 269–286.CrossRef

Itzhaky, H., Gerber, P., & Dekel, R. (2004). Empowerment, skills and values: A comparative study of nurses and social workers. International Journal of Nursing Studies, 41, 447–455.PubMedCrossRef

Janson, G. R. (1998, September). A journey to a theory. Counseling Today, 46.

Kessler, S. (1997). Psychological aspects of genetic counseling: IX. Teaching and counseling. Journal of Genetic Counseling, 6, 287–295.CrossRef

Kessler, S. (2000). Closing thoughts on supervision. Journal of Genetic Counseling, 9, 431–434.CrossRef

Lewis, L. J. (2002). Models of genetic counseling and their effects on multicultural genetic counseling. Journal of Genetic Counseling, 11, 193–212.PubMedCrossRef

Lobb, E., Butow, P., Meiser, B., Tucker, K., & Barratt, D.M. (2001). How do geneticists and genetic counselors counsel women from high-risk breast cancer families? Journal of Genetic Counseling, 10, 185–199.CrossRef

Lobb, E., Butow, P., Barratt, A., Meiser, B., & Tucker, K. (2005). Differences in individual approaches: Communication in the familial breast cancer consultation and the effect on patient outcomes. Journal of Genetic Counseling, 14, 43–53.PubMedCrossRef

MacLeod, R., Craufurd, D., & Booth, K. (2002). Patients’ perceptions of what makes genetic counseling effective: An interpretive phenomenological analysis. Journal of Health Psychology, 7, 145–156.CrossRef

Marks, J. H. (1993). The training of genetic counselors: Origins of a psychosocial model. In D. M. Bartels, B. S. LeRoy, & A. L. Caplan (eds.). Prescribing our future: Ethical challenges in genetic counseling, (pp. 15–24). New York: Aldine de Gruyter.

Marks, J. H. (2003). The importance of genetic counseling: 2003 ASHG award for excellence in human genetics education. American Journal of Human Genetics, 74, 395–396.CrossRef

Matloff, E. T. (1994). Practice variability in prenatal genetic counseling. Journal of Genetic Counseling, 3, 215–231.CrossRef

McCarthy Veach, P., Truesdell, S. E., LeRoy, B. S., & Bartels, D. M. (1999). Client perceptions of the impact of genetic counseling: An exploratory study. Journal of Genetic Counseling, 8, 191–216.CrossRef

McCarthy Veach, P., Bartels, D. M., & LeRoy, B. S. (2002). Commentary: Genetic counseling—A profession in search of itself? Journal of Genetic Counseling, 11, 187–191.CrossRef

McCarthy Veach, P., LeRoy, B. S., & Bartels, D. M. (2003). Facilitating the genetic counseling relationship: A manual for practice. New York: Springer-Verlag.

McConkie-Rosell, A., & Sullivan, J. A. (1999). Genetic counseling—Stress, coping, and the empowerment perspective. Journal of Genetic Counseling, 8, 345–357.CrossRef

Michie, S., Bron, F., Bobrow, M., & Marteau, T. (1997). Nondirectiveness in genetic counseling: An empirical study. American Journal of Human Genetics, 60, 40–47.PubMed

National Society of Genetic Counselors. (2006). The code of ethics of the National Society of Genetic Counselors. Journal of Genetic Counseling, 15, 309–311.CrossRef

Nix, J., & Dillon, K. (1986). Short-term nursing therapy: A conceptual model for inpatient psychiatric care. Hospital and Community Psychiatry, 37, 493–496.PubMed

Reed, S. C. (1975). A short history of genetic counseling. Social Biology, 21, 332–339.

Resta, R. G. (2006). Defining and redefining the scope and goals of genetic counseling. American Journal of Human Genetics Part C, 142C, 269–275.CrossRef

Resta, R. G., Biesecker, B. B., Bennett, R. L., Blum, S., Hahn, S. E., Strecker, M. N. et al. (2006). A new definition of genetic counseling: National Society of Genetic Counselors’ task force report. Journal of Genetic Counseling, 15, 77–83.PubMedCrossRef

Rieh, J. P., & Ray, C. (1974). Conceptual models for nursing practice. New York: Appleton-Century-Crofts.

Roter, D., Ellington, L., Hamby Erby, L., Larson, S., & Dudley, W. (2006). The Genetic Counseling Video Project (GCVP): Models of practice. American Journal of Human Genetics Part C: Sem in Med Genet, 142C, 209–220.CrossRef

Shiloh, S. (2006). Illness representations, self-regulation, and genetic counseling: A theoretical review. Journal of Genetic Counseling, 15, 325–338.PubMedCrossRef

Skirton, H. (2001). The client’s perspective of genetic counseling—A grounded theory study. Journal of Genetic Counseling, 10, 311–329.CrossRef

Spielberger, C. D., & Stenmark, D. E. (1985). Community psychology. In E. Altmeier, & M. E. Meyer (eds.). Applied Specialties in Psychology, (pp. 75–97). New York: Random House.

Walker, A. (1998). The Practice of Genetic Counseling. In D. J. Baker, J. Schuette, & W. Uhlmann (eds.) A Guide to Genetic Counseling, (pp. 1–26). New York: Wiley, 1998.

Wang, C., Gonzalez, R., & Merajver, S. D. (2004). Assessment of genetic testing and related counseling services: Current research and future directions. Social Science & Medicine, 58, 1427–1442.CrossRef

Weil, J. (2003). Psychosocial genetic counseling in a post-nondirectiveness era: A point of view. Journal of Genetic Counseling, 12, 199–212.PubMedCrossRef

Weil, J., Ormond, K., Peters, J., Peters, K., Biesecker, B. B., & LeRoy, B. (2006). The relationship of nondirectiveness to genetic counseling: Report of a workshop at the 2003 NSGC Annual Education Conference. Journal of Genetic Counseling, 15, 85–93.PubMedCrossRef

Titel: Coming Full Circle: A Reciprocal-Engagement Model of Genetic Counseling Practice
verfasst von: Patricia McCarthy Veach
Dianne M. Bartels
Bonnie S. LeRoy
Publikationsdatum: 01.12.2007
Verlag: Springer US
Erschienen in: Journal of Genetic Counseling / Ausgabe 6/2007
Print ISSN: 1059-7700
Elektronische ISSN: 1573-3599
DOI: https://doi.org/10.1007/s10897-007-9113-4

Neu im Fachgebiet Gynäkologie und Geburtshilfe

23.04.2024 | Medikamente in Schwangerschaft und Stillzeit | Nachrichten

Update Gynäkologie

Bestellen Sie unseren Fach-Newsletter und bleiben Sie gut informiert – ganz bequem per eMail.

Newsletter bestellen

Springer Medizin

Coming Full Circle: A Reciprocal-Engagement Model of Genetic Counseling Practice

Abstract

Neu im Fachgebiet Gynäkologie und Geburtshilfe

ICI-Therapie in der Schwangerschaft wird gut toleriert

Weniger postpartale Depressionen nach Esketamin-Einmalgabe

Bei RSV-Impfung vor 60. Lebensjahr über Off-Label-Gebrauch aufklären!

Harnwegsinfektprophylaxe: Es geht auch ohne Antibiotika

Update Gynäkologie

Springer Medizin

Abstract

Bitte loggen Sie sich ein, um Zugang zu diesem Inhalt zu erhalten

Weitere Artikel der Ausgabe 6/2007

A National Survey of Genetic Counselors’ Personal Values

Factors Influencing Perceptions of Breast Cancer Genetic Counseling among Women in an Urban Health Care System

Living with Hereditary Non-polyposis Colorectal Cancer; Experiences from and Impact of Genetic Testing

Parental Narratives About Genetic Testing for Hearing Loss: A One Year Follow Up Study

Recommendation Recall and Satisfaction After Attending Breast/Ovarian Cancer Risk Counseling

Assessment of Psychosocial Outcomes in Genetic Counseling Research: An Overview of Available Measurement Scales

Neu im Fachgebiet Gynäkologie und Geburtshilfe

ICI-Therapie in der Schwangerschaft wird gut toleriert

Weniger postpartale Depressionen nach Esketamin-Einmalgabe

Bei RSV-Impfung vor 60. Lebensjahr über Off-Label-Gebrauch aufklären!

Harnwegsinfektprophylaxe: Es geht auch ohne Antibiotika

Update Gynäkologie