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Erschienen in: Journal of Genetic Counseling 2/2010

01.04.2010 | Original Research

Women’s Perceptions of the Personal and Family Impact of Genetic Cancer Risk Assessment: Focus Group Findings

verfasst von: Deborah J. MacDonald, Linda Sarna, Jeffrey N. Weitzel, Betty Ferrell

Erschienen in: Journal of Genetic Counseling | Ausgabe 2/2010

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Abstract

Women with a personal or family history of breast or ovarian cancer are increasingly presenting for genetic cancer risk assessment (GCRA). To explore the personal and family impact of GCRA, four focus groups were conducted of women seen for risk assessment. Participants were 22 primarily non-Latina White women with a personal or family history of breast or ovarian cancer. Analysis of the data identified new themes related to balancing time to assimilate risk information with the need to make timely healthcare decisions, physicians’ lack of sufficient genetic knowledge, and concern for daughters regardless of the daughters’ age. Other themes related to protecting others, knowledge as empowerment, reassessing personal attribution of cancer risk, managing uncertainty, reappraising body image, and experiencing divergent family responses to communication of cancer risk and healthcare decisions. Understanding the personal and family impact of GCRA may enable genetics professionals to tailor their counseling efforts to better meet the needs of these women. Additional research is needed to extend these findings and identify interventions to support positive outcomes of GCRA.
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Metadaten
Titel
Women’s Perceptions of the Personal and Family Impact of Genetic Cancer Risk Assessment: Focus Group Findings
verfasst von
Deborah J. MacDonald
Linda Sarna
Jeffrey N. Weitzel
Betty Ferrell
Publikationsdatum
01.04.2010
Verlag
Springer US
Erschienen in
Journal of Genetic Counseling / Ausgabe 2/2010
Print ISSN: 1059-7700
Elektronische ISSN: 1573-3599
DOI
https://doi.org/10.1007/s10897-009-9267-3

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