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Erschienen in: Medicine, Health Care and Philosophy 4/2014

01.11.2014 | Scientific Contribution

Epistemic injustice in healthcare: a philosophial analysis

verfasst von: Havi Carel, Ian James Kidd

Erschienen in: Medicine, Health Care and Philosophy | Ausgabe 4/2014

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Abstract

In this paper we argue that ill persons are particularly vulnerable to epistemic injustice in the sense articulated by Fricker (Epistemic injustice. Power and the ethics of knowing. Oxford University Press, Oxford, 2007). Ill persons are vulnerable to testimonial injustice through the presumptive attribution of characteristics like cognitive unreliability and emotional instability that downgrade the credibility of their testimonies. Ill persons are also vulnerable to hermeneutical injustice because many aspects of the experience of illness are difficult to understand and communicate and this often owes to gaps in collective hermeneutical resources. We then argue that epistemic injustice arises in part owing to the epistemic privilege enjoyed by the practitioners and institutions of contemporary healthcare services—the former owing to their training, expertise, and third-person psychology, and the latter owing to their implicit privileging of certain styles of articulating and evidencing testimonies in ways that marginalise ill persons. We suggest that a phenomenological toolkit may be part of an effort to ameliorate epistemic injustice.
Fußnoten
1
This scene was observed by one of the authors (Carel), whilst shadowing a paediatrician consultant at a UK hospital (details redacted to ensure patient confidentiality).
 
2
These discourses may vary greatly; we are not suggesting that there is only one such discourse.
 
3
Perhaps it is also a sort of epistemic injustice to complain that a person’s style of testimony is no good (inarticulate, etc.) but do nothing to ameliorate this (e.g. by critically reflecting upon the reasons that one has for using these unhelpful formats rather than others). Epistemic injustice might arise because (a) one buys into epistemically unjust structures or because (b) one fails to challenge those structures.
 
4
For an engaging discussion of the relationship between epistemic injustice, standpoint, and solidarity, see Medina (2012).
 
5
See, for instance, Coady (2010) and Hookway (2010).
 
6
More generally, we are not denying the existence of epistemic asymmetries, but call for discussion on how these should be managed in those cases where they do exist and where clinicians are aware of them. We would agree that a teacher who dismisses students or talks down to them, on the basis of their epistemic inferiority, is not a very good teacher. Dialogical openness is compatible with epistemic asymmetry and can serve to address the imbalance. Distinguishing the stance adopted by a clinician from the perceived and actual epistemic status of claims made by clinician and patient might be useful. We thank an anonymous referee for emphasising this point.
 
7
The Baron Münchausen (1720–1797) was a German war hero who travelled around Germany describing his military adventures. There is no evidence that he feigned disease or duped people into caring for him. As Feldman (2004) notes, Rudolph Erich Raspe appropriated the Baron’s name for the title of a 1785 pamphlet of outrageous and patently false tales, Baron Munchausen’s Narrative of His Marvelous Travels and Campaigns in Russia.
 
9
Leslie Thomson, KGH Chief Executive, talk at King’s Fund on 8th November 2012.
 
10
These examples are taken from responses to a query we posted on a patient mailing list in 2012.
 
11
Self-censoring is another form of epistemic injustice, in which the negative stereotyping is internalised by the patient herself, leading her to downgrade her own testimony. .
 
12
See for example the work of organisations such as the King’s Fund and the Point of Care Foundation and, for the UK National Health Service, Coulter and Ellins (2006), Greener (2009), and McIver (2011).
 
13
A vivid and tragic example is the series of systematic failures which led to the death of hundreds of patients, uncovered by the Mid Staffordshire NHS Foundation Trust Public Inquiry, led by Sir Robert Francis in the UK. See: http://​www.​midstaffspublici​nquiry.​com/​report (accessed on 10 June 2013).
 
14
The fact that the medical community has these forms of social and epistemic power does not, of course, entail that they always exercise that power in a robustly procedural manner (see Kidd forthcoming a).
 
15
Indeed, the issue of culpability for epistemic injustice is complex, for instance because it varies according to whether the particular form of injustice is agential or structural. See, further, the exchange between Riggs (2012) and, in reply, Coady (2012).
 
16
Many religious persons who experience depression will often consult persons they recognise as having spiritual authority—priests, say—as well as to psychiatrists and other mental health professionals (cf. Scrutton forthcoming and Kidd forthcoming b).
 
17
The case of some mental disorders, e.g. psychosis, would be different. In these cases the patient may be considered altogether irrational and unable to make true assertions at all.
 
18
These comments were collected during three consultative sessions: one with a group of GPs took place on 14 June 2012 and two patient group sessions took place on 14 and 21 September 2012, all in Bristol, UK.
 
Literatur
Zurück zum Zitat Anderson, E. 2012. Epistemic justice as a virtue of social institutions. Social Epistemology 26(2): 163–173.CrossRef Anderson, E. 2012. Epistemic justice as a virtue of social institutions. Social Epistemology 26(2): 163–173.CrossRef
Zurück zum Zitat Beckman, H., and R. Frankel. 1984. The effect of physician behavior on the collection of data. Annals of Internal Medicine 101: 692–696.CrossRef Beckman, H., and R. Frankel. 1984. The effect of physician behavior on the collection of data. Annals of Internal Medicine 101: 692–696.CrossRef
Zurück zum Zitat Biggs J. and N. Boulton 2011. Voices from the shadows. DVD documentary. UK. Biggs J. and N. Boulton 2011. Voices from the shadows. DVD documentary. UK.
Zurück zum Zitat Dennett, D. 1981. Brainstorms. Cambridge MA: MIT Press. Dennett, D. 1981. Brainstorms. Cambridge MA: MIT Press.
Zurück zum Zitat Carel, H. 2008. Illness. Stocksfield: Acumen. Carel, H. 2008. Illness. Stocksfield: Acumen.
Zurück zum Zitat Carel, H. 2013. Bodily doubt. Journal of Consciousness Studies 20(7–8): 178–197. Carel, H. 2013. Bodily doubt. Journal of Consciousness Studies 20(7–8): 178–197.
Zurück zum Zitat Coady, D. 2010. Two concepts of epistemic injustice. Episteme 7(2): 101–113.CrossRef Coady, D. 2010. Two concepts of epistemic injustice. Episteme 7(2): 101–113.CrossRef
Zurück zum Zitat Coady, D. 2012. Critical reply to “Culpability for epistemic injustice: Deontic or aretaic?”. Social Epistemology Review and Reply Collective 1(5): 3–6. Coady, D. 2012. Critical reply to “Culpability for epistemic injustice: Deontic or aretaic?”. Social Epistemology Review and Reply Collective 1(5): 3–6.
Zurück zum Zitat Emanuel, E.J., and L.L. Emanuel. 1992. Four models of the physician-patient relationship. Journal of the American Medical Association 267(16): 2221–2226.CrossRef Emanuel, E.J., and L.L. Emanuel. 1992. Four models of the physician-patient relationship. Journal of the American Medical Association 267(16): 2221–2226.CrossRef
Zurück zum Zitat Feldman, M.D. 2004. Playing sick? Untangling the web of Munchausen syndrome, Munchausen by proxy, malingering, and factitious disorder. New York: Brunner-Routledge. Feldman, M.D. 2004. Playing sick? Untangling the web of Munchausen syndrome, Munchausen by proxy, malingering, and factitious disorder. New York: Brunner-Routledge.
Zurück zum Zitat Frank, A. 2010. The wounded storyteller: Body, illness, and ethics. Chicago: University of Chicago Press. Frank, A. 2010. The wounded storyteller: Body, illness, and ethics. Chicago: University of Chicago Press.
Zurück zum Zitat Fricker, M. 2007. Epistemic injustice. Power and the ethics of knowing. Oxford: Oxford University Press.CrossRef Fricker, M. 2007. Epistemic injustice. Power and the ethics of knowing. Oxford: Oxford University Press.CrossRef
Zurück zum Zitat Goldacre, B. 2012. Bad pharma. London: Fourth Estate. Goldacre, B. 2012. Bad pharma. London: Fourth Estate.
Zurück zum Zitat Greener, I. 2009. Healthcare in the UK: Understanding continuity and change. Bristol: The Policy Press. Greener, I. 2009. Healthcare in the UK: Understanding continuity and change. Bristol: The Policy Press.
Zurück zum Zitat Heidegger, M. 1962 [1927]. Being and time. Oxford: Basil Blackwell. Heidegger, M. 1962 [1927]. Being and time. Oxford: Basil Blackwell.
Zurück zum Zitat Hookway, C. 2010. Some varieties of epistemic injustice: Response to Fricker. Episteme 2010: 151–163.CrossRef Hookway, C. 2010. Some varieties of epistemic injustice: Response to Fricker. Episteme 2010: 151–163.CrossRef
Zurück zum Zitat Husserl, E. 1999 [1931]. Cartesian meditations. D. Cairns (trans.). Dordrecht, The Netherlands: Kluwer. Husserl, E. 1999 [1931]. Cartesian meditations. D. Cairns (trans.). Dordrecht, The Netherlands: Kluwer.
Zurück zum Zitat Kidd, I.J 2013. A pluralist challenge to ‘integrative medicine’: Feyerabend and Popper on the cognitive value of alternative medicine. Studies in History and Philosophy of Biological and Biomedical Science 44(3): pp.392–400. Kidd, I.J 2013. A pluralist challenge to ‘integrative medicine’: Feyerabend and Popper on the cognitive value of alternative medicine. Studies in History and Philosophy of Biological and Biomedical Science 44(3): pp.392–400.
Zurück zum Zitat Kleinman, A. 1980. Patients and healers in the context of culture: An exploration of the borderland between anthropology, medicine, and psychiatry. Berkeley, CA: University of California Press. Kleinman, A. 1980. Patients and healers in the context of culture: An exploration of the borderland between anthropology, medicine, and psychiatry. Berkeley, CA: University of California Press.
Zurück zum Zitat Kleinman, A. 1988. The illness narratives: Suffering, healing, and the human condition. New York: Basic Books. Kleinman, A. 1988. The illness narratives: Suffering, healing, and the human condition. New York: Basic Books.
Zurück zum Zitat Korsch, B.M., et al. 1968. Gaps in doctor-patient communication: Doctor-patient interaction and patient satisfaction. Pediatrics 42: 855–871. Korsch, B.M., et al. 1968. Gaps in doctor-patient communication: Doctor-patient interaction and patient satisfaction. Pediatrics 42: 855–871.
Zurück zum Zitat Korsch, B.M. 1969. Gaps in doctor patient communication ii: patients response to medical advice. The New England Journal of Medicine 280: 535–540.CrossRef Korsch, B.M. 1969. Gaps in doctor patient communication ii: patients response to medical advice. The New England Journal of Medicine 280: 535–540.CrossRef
Zurück zum Zitat Leontiou, J.F. 2010. What do the doctors say? New York: iUniverse. Leontiou, J.F. 2010. What do the doctors say? New York: iUniverse.
Zurück zum Zitat McIver, S. 2011. User perspectives and involvement. In: K. Walshe and J. Smith (Eds.), Healthcare management 2nd ed. (pp. 354–372) Maidenhead: Open University Press. McIver, S. 2011. User perspectives and involvement. In: K. Walshe and J. Smith (Eds.), Healthcare management 2nd ed. (pp. 354–372) Maidenhead: Open University Press.
Zurück zum Zitat Medina, J. 2012. The epistemology of resistance: Gender and racial oppression, epistemic injustice, and the social imagination. Oxford: Oxford University Press. Medina, J. 2012. The epistemology of resistance: Gender and racial oppression, epistemic injustice, and the social imagination. Oxford: Oxford University Press.
Zurück zum Zitat Merleau-Ponty, M. 1962 [1945]. Phenomenology of perception. New York: Routledge. Merleau-Ponty, M. 1962 [1945]. Phenomenology of perception. New York: Routledge.
Zurück zum Zitat Patient Charter (1991/1995/1997) see: Department of Health (1991) The Patient’s Charter (London: HMSO) (accessed July 15, 2013). Patient Charter (1991/1995/1997) see: Department of Health (1991) The Patient’s Charter (London: HMSO) (accessed July 15, 2013).
Zurück zum Zitat Ratcliffe, M. 2008. Feelings of being: Phenomenology, psychiatry and the sense of reality. Oxford: Oxford University Press.CrossRef Ratcliffe, M. 2008. Feelings of being: Phenomenology, psychiatry and the sense of reality. Oxford: Oxford University Press.CrossRef
Zurück zum Zitat Riggs, W. 2012. Culpability for epistemic injustice: Deontic or aretaic? Social Epistemology 26(2): 149–162.CrossRef Riggs, W. 2012. Culpability for epistemic injustice: Deontic or aretaic? Social Epistemology 26(2): 149–162.CrossRef
Zurück zum Zitat Saks, E. 2007. The center cannot hold. My journey through madness. New York: Hyperion. Saks, E. 2007. The center cannot hold. My journey through madness. New York: Hyperion.
Zurück zum Zitat Savino, A.C., and J.S. Fordtran. 2006. Factitious disease: Clinical lessons from case studies at Baylor University Medical Center. Proceedings of Baylor University Medical Center 19: 195–208. Savino, A.C., and J.S. Fordtran. 2006. Factitious disease: Clinical lessons from case studies at Baylor University Medical Center. Proceedings of Baylor University Medical Center 19: 195–208.
Zurück zum Zitat Scrutton, A. (forthcoming) ‘Two Christian theologies of depression: An evaluation and discussion of clinical implications’. Philosophy, Psychiatry, & Psychology. Scrutton, A. (forthcoming) ‘Two Christian theologies of depression: An evaluation and discussion of clinical implications’. Philosophy, Psychiatry, & Psychology.
Zurück zum Zitat Toombs, S.K. 1987. The meaning of illness: A phenomenological approach to the patient-physician relationship. The Journal of Medicine and Philosophy 12: 219–240.CrossRef Toombs, S.K. 1987. The meaning of illness: A phenomenological approach to the patient-physician relationship. The Journal of Medicine and Philosophy 12: 219–240.CrossRef
Zurück zum Zitat Toombs, S.K. 1999. The meaning of illness: a phenomenological account of the different perspectives of physician and patient. Amsterdam: Kluwer. Toombs, S.K. 1999. The meaning of illness: a phenomenological account of the different perspectives of physician and patient. Amsterdam: Kluwer.
Zurück zum Zitat Wainwright, M., and J. Macnaughton. 2013. Is a qualitative perspective missing from COPD guidelines? The Lancet Respiratory Medicine 1(6): 441–442.CrossRef Wainwright, M., and J. Macnaughton. 2013. Is a qualitative perspective missing from COPD guidelines? The Lancet Respiratory Medicine 1(6): 441–442.CrossRef
Zurück zum Zitat Wanderer, J. 2012. Addressing testimonial injustice: Being ignored and being rejected. The Philosophical Quarterly 62(246): 148–169. Wanderer, J. 2012. Addressing testimonial injustice: Being ignored and being rejected. The Philosophical Quarterly 62(246): 148–169.
Zurück zum Zitat Wootton, D. 2007. Bad medicine. Oxford: Oxford University Press. Wootton, D. 2007. Bad medicine. Oxford: Oxford University Press.
Metadaten
Titel
Epistemic injustice in healthcare: a philosophial analysis
verfasst von
Havi Carel
Ian James Kidd
Publikationsdatum
01.11.2014
Verlag
Springer Netherlands
Erschienen in
Medicine, Health Care and Philosophy / Ausgabe 4/2014
Print ISSN: 1386-7423
Elektronische ISSN: 1572-8633
DOI
https://doi.org/10.1007/s11019-014-9560-2

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