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Erschienen in: Quality of Life Research 10/2009

01.12.2009 | Commentary

Patient-reported outcomes instruments: bridging the gap between international copyright laws and common practice for developers and users—a case example

verfasst von: Caroline Anfray

Erschienen in: Quality of Life Research | Ausgabe 10/2009

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Abstract

Copyright laws are intended to protect the rights of authors in their literary, scientific, and artistic works. The recent controversy about the standardized version of the Asthma Quality of Life Questionnaire between Elizabeth Juniper and Eirini Grammatopoulou et al. is an example of the difficulties inherent to copyright faced by developers and users of patient-reported outcome (PRO) instruments. This brief communication presents the basics of international copyright laws (i.e., the Berne Convention), the facts behind the controversy, and our analysis of the case based on our experience as a distributing center of PRO instruments. We conclude that better communication between developers and users would prevent most unfortunate complications and misunderstandings.
Fußnoten
1
Bold and underlined font are added by the author of this letter.
 
Literatur
2.
Zurück zum Zitat Anfray, C., & Emery, M. P. (2006) Use of PRO instruments: Licensing and copyright issues. 2006 International Society for Quality of Life Research meeting abstracts [www.isoqol.org/2006mtgabstracts.pdf]. Quality of Life Research supplement, A-112, Abstract #1658. Anfray, C., & Emery, M. P. (2006) Use of PRO instruments: Licensing and copyright issues. 2006 International Society for Quality of Life Research meeting abstracts [www.​isoqol.​org/​2006mtgabstracts​.​pdf]. Quality of Life Research supplement, A-112, Abstract #1658.
3.
Zurück zum Zitat Anfray, C., Emery, M. P. (2007). Patient-reported outcome (PRO) instruments: Bridging the gap between international copyright laws and common practice for developers and users. 2007 International Society for Quality of Life Research meeting abstracts [www.isoqol.org/2007mtgabstracts.pdf]. Quality of Life Research supplement, A-21, Abstract #1222. Anfray, C., Emery, M. P. (2007). Patient-reported outcome (PRO) instruments: Bridging the gap between international copyright laws and common practice for developers and users. 2007 International Society for Quality of Life Research meeting abstracts [www.​isoqol.​org/​2007mtgabstracts​.​pdf]. Quality of Life Research supplement, A-21, Abstract #1222.
4.
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Metadaten
Titel
Patient-reported outcomes instruments: bridging the gap between international copyright laws and common practice for developers and users—a case example
verfasst von
Caroline Anfray
Publikationsdatum
01.12.2009
Verlag
Springer Netherlands
Erschienen in
Quality of Life Research / Ausgabe 10/2009
Print ISSN: 0962-9343
Elektronische ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-009-9552-5

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