Skip to main content
Erschienen in: Quality of Life Research 1/2013

01.02.2013

Measuring preference-based quality of life in children aged 6–7 years: a comparison of the performance of the CHU-9D and EQ-5D-Y—the WAVES Pilot Study

verfasst von: Alastair G. Canaway, Emma J. Frew

Erschienen in: Quality of Life Research | Ausgabe 1/2013

Einloggen, um Zugang zu erhalten

Abstract

Purpose

To examine the performance of the child health utility 9D (CHU-9D) and EuroQol 5D-youth (EQ-5D-Y) in children aged 6–7 years.

Method

The CHU-9D and EQ-5D-Y were interviewer-administered to 160 children aged 6–7 years at six schools across the West Midlands. Missing values, time taken to complete instruments and interviewer ratings were recorded to assess feasibility/acceptability. Construct validity was assessed by testing convergent validity hypotheses. Reliability was examined via a test–retest of a sub-sample. Psychometric properties were further examined by exploring distributions of utility scores, qualitative notes and design of the questionnaires.

Results

No missing responses were recorded with over 80% of children’s understanding being rated as good/excellent for both questionnaires. The average completion time for both instruments was less than 3 minutes, demonstrating excellent feasibility/acceptability. Evidence of construct validity was recorded with 12 of the 13 convergent hypotheses being supported. Test–retest reliability was relatively poor for both instruments with weighted kappa coefficients ranging from fair to moderate.

Conclusion

Children aged 6–7 years can feasibly complete utility instruments when interviewer-administered. The reliability of the instruments is of concern and requires further study. With respect to content validity and other psychometric properties, the CHU-9D is favoured to the EQ-5D-Y. Until the EuroQol group produces tariff values for the EQ-5D-Y, we recommend that the EQ-5D-Y is not used for utility elicitation in this age group.
Anhänge
Nur mit Berechtigung zugänglich
Literatur
3.
Zurück zum Zitat Räsänen, P., Roine, E., Sinotenen, H., Semberg-Konttinen, V., Ryynänen, P., & Roine, R. (2006). Use of quality-adjusted life years for the estimation of effectiveness of health care: A systematic literature review. International Journal of Technology Assessment in Health Care, 22, 235–241.PubMedCrossRef Räsänen, P., Roine, E., Sinotenen, H., Semberg-Konttinen, V., Ryynänen, P., & Roine, R. (2006). Use of quality-adjusted life years for the estimation of effectiveness of health care: A systematic literature review. International Journal of Technology Assessment in Health Care, 22, 235–241.PubMedCrossRef
4.
Zurück zum Zitat Varni, J., Burwinkle, T., & Seid, M. (2006). The PedsQL™ 4.0 as a school population health measure: Feasibility, reliability, and validity. Quality of Life Research, 15, 203–215.PubMedCrossRef Varni, J., Burwinkle, T., & Seid, M. (2006). The PedsQL™ 4.0 as a school population health measure: Feasibility, reliability, and validity. Quality of Life Research, 15, 203–215.PubMedCrossRef
5.
Zurück zum Zitat Ravens-Sieberer, U., Gosch, A., Kilroe, J., et al. (2005). KIDSCREEN-52 quality-of-life measure for children and adolescents. Pharmacoeconomics, 5(3), 353–364. Ravens-Sieberer, U., Gosch, A., Kilroe, J., et al. (2005). KIDSCREEN-52 quality-of-life measure for children and adolescents. Pharmacoeconomics, 5(3), 353–364.
6.
Zurück zum Zitat Landgraf, J., Maunsell, K., Ware, J., et al. (1998). Canadian-French, German and UK versions of the child health questionnaire: Methodology and preliminary item scaling results. Quality of Life Research, 7, 433–445.PubMedCrossRef Landgraf, J., Maunsell, K., Ware, J., et al. (1998). Canadian-French, German and UK versions of the child health questionnaire: Methodology and preliminary item scaling results. Quality of Life Research, 7, 433–445.PubMedCrossRef
7.
Zurück zum Zitat Riley, A. (2004). Evidence that school-age children can self-report on their health. Ambulatory Pediatrics, 4(4), 371–376.PubMedCrossRef Riley, A. (2004). Evidence that school-age children can self-report on their health. Ambulatory Pediatrics, 4(4), 371–376.PubMedCrossRef
8.
Zurück zum Zitat Petrou, S. (2003). Methodological issues raised by preference-based approaches to measuring the health status of children. Health Economics, 12, 697–702.PubMedCrossRef Petrou, S. (2003). Methodological issues raised by preference-based approaches to measuring the health status of children. Health Economics, 12, 697–702.PubMedCrossRef
9.
Zurück zum Zitat McAuley, K., Taylor, R., Farmer, V., Hansen, P., Williams, S., Booker, C., et al. (2010). Economic evaluation of a community-based obesity prevention program in children: The APPLE project. Obesity, 1, 131–136.CrossRef McAuley, K., Taylor, R., Farmer, V., Hansen, P., Williams, S., Booker, C., et al. (2010). Economic evaluation of a community-based obesity prevention program in children: The APPLE project. Obesity, 1, 131–136.CrossRef
10.
Zurück zum Zitat Pal, D. (1996). Quality of life assessment in children: A review of conceptual and methodological issues in multidimensional health status measures. Journal of Epidemiology and Community Health, 50, 391–396.PubMedCrossRef Pal, D. (1996). Quality of life assessment in children: A review of conceptual and methodological issues in multidimensional health status measures. Journal of Epidemiology and Community Health, 50, 391–396.PubMedCrossRef
11.
Zurück zum Zitat Binger, C., Ablin, A., Feverstein, R., Kushner, J., & Zoger, S. M. C. (1969). Childhood leukaemia: Emotional impact on patient and family. New England Journal of Medicine, 280, 414–418.PubMedCrossRef Binger, C., Ablin, A., Feverstein, R., Kushner, J., & Zoger, S. M. C. (1969). Childhood leukaemia: Emotional impact on patient and family. New England Journal of Medicine, 280, 414–418.PubMedCrossRef
12.
Zurück zum Zitat Ball, A., Russell, E., Seymour, D., et al. (2001). Problems in using health survey questionnaires in older patients with physical disabilities. Gerontology, 47, 334–340.PubMedCrossRef Ball, A., Russell, E., Seymour, D., et al. (2001). Problems in using health survey questionnaires in older patients with physical disabilities. Gerontology, 47, 334–340.PubMedCrossRef
13.
Zurück zum Zitat Achenbach, T., McConaughy, S., & Howell, C. (1987). Child/adolescent behavioural and emotional problems: Implications of cross-informant correlations for situational specificity. Psychological Bulletin, 101, 213–232.PubMedCrossRef Achenbach, T., McConaughy, S., & Howell, C. (1987). Child/adolescent behavioural and emotional problems: Implications of cross-informant correlations for situational specificity. Psychological Bulletin, 101, 213–232.PubMedCrossRef
14.
Zurück zum Zitat Eieser, C., & Morse, R. (2001). Quality-of-life measures in chronic diseases of childhood. Health Technology Assessment, 5(4), 1–156. Eieser, C., & Morse, R. (2001). Quality-of-life measures in chronic diseases of childhood. Health Technology Assessment, 5(4), 1–156.
15.
Zurück zum Zitat McGrath, P. (1990). Pain in children: Nature, assessment, and treatment. New York: Guilford. McGrath, P. (1990). Pain in children: Nature, assessment, and treatment. New York: Guilford.
16.
Zurück zum Zitat Varni, J., Thompson, K., & Hanson, V. (1987). The Varni/Thompson pediatric pain questionnaire: I. Chronic musculoskeletal pain in juvenile rheumatoid arthritis. Pain, 28, 27–38.PubMedCrossRef Varni, J., Thompson, K., & Hanson, V. (1987). The Varni/Thompson pediatric pain questionnaire: I. Chronic musculoskeletal pain in juvenile rheumatoid arthritis. Pain, 28, 27–38.PubMedCrossRef
17.
Zurück zum Zitat Varni, J., & Bernstein, B. (1991). Evaluation and management of pain in children with rheumatic diseases. Rheumatic Disease Clinics of North America, 17, 985–1000.PubMed Varni, J., & Bernstein, B. (1991). Evaluation and management of pain in children with rheumatic diseases. Rheumatic Disease Clinics of North America, 17, 985–1000.PubMed
18.
Zurück zum Zitat Varni, J., Limbers, C., & Burwinkle, T. (2007). How young can children reliably and validly self-report their health-related quality of life?: An analysis of 8591 children across age subgroups with the PedsQL™4.0 Generic Core Scales. Health and Quality of Life Outcomes, 5(1), 1–13.PubMedCrossRef Varni, J., Limbers, C., & Burwinkle, T. (2007). How young can children reliably and validly self-report their health-related quality of life?: An analysis of 8591 children across age subgroups with the PedsQL™4.0 Generic Core Scales. Health and Quality of Life Outcomes, 5(1), 1–13.PubMedCrossRef
19.
Zurück zum Zitat Wille, N., Badia, X., et al. (2010). Development of the EQ-5D-Y: A child-friendly version of the EQ-5D. Quality of Life Research, 19, 875–886.PubMedCrossRef Wille, N., Badia, X., et al. (2010). Development of the EQ-5D-Y: A child-friendly version of the EQ-5D. Quality of Life Research, 19, 875–886.PubMedCrossRef
20.
Zurück zum Zitat Stevens, K. (2010). Assessing the performance of a new generic measure of health related quality of life for children and refining it for use in health state valuation. Applied Health Economics and Health Policy, 8(3), 157–169. Stevens, K. (2010). Assessing the performance of a new generic measure of health related quality of life for children and refining it for use in health state valuation. Applied Health Economics and Health Policy, 8(3), 157–169.
21.
Zurück zum Zitat Ravnes-Sieberer, U., Willie, N., et al. (2011). Feasibility, reliability, and validity of the EQ-5D-Y: Results from a multinational study. Quality of Life Research, 19, 887–897.CrossRef Ravnes-Sieberer, U., Willie, N., et al. (2011). Feasibility, reliability, and validity of the EQ-5D-Y: Results from a multinational study. Quality of Life Research, 19, 887–897.CrossRef
23.
Zurück zum Zitat Boyle, S., Jones, G., & Walters, S. (2010). Physical activity, quality of life, weight status and diet in adolescents. Quality of Life Research, 19(7), 943–954.PubMedCrossRef Boyle, S., Jones, G., & Walters, S. (2010). Physical activity, quality of life, weight status and diet in adolescents. Quality of Life Research, 19(7), 943–954.PubMedCrossRef
24.
Zurück zum Zitat Thomas, K., Koller, K., Williams, H., et al. (2011). A multicentre randomised controlled trial and economic evaluation of ion-exchange water softeners for the treatment of eczema in children: The Softened Water Eczema Trial (SWET). Health Technology Assessment, 15(8), 1–176. Thomas, K., Koller, K., Williams, H., et al. (2011). A multicentre randomised controlled trial and economic evaluation of ion-exchange water softeners for the treatment of eczema in children: The Softened Water Eczema Trial (SWET). Health Technology Assessment, 15(8), 1–176.
25.
Zurück zum Zitat Szende, A., Oppe, M., & Devlin, N. (2007). EQ-5D valuation sets: An inventory, comparative review and users’ guide. Rotterdam: EuroQol Foundation, Springer. Szende, A., Oppe, M., & Devlin, N. (2007). EQ-5D valuation sets: An inventory, comparative review and users’ guide. Rotterdam: EuroQol Foundation, Springer.
26.
Zurück zum Zitat Stevens, K. (2010). Working with children to develop dimensions for a preference based generic paediatric health related quality of life measures. Qualitative Health Research, 20(3), 340–351.PubMedCrossRef Stevens, K. (2010). Working with children to develop dimensions for a preference based generic paediatric health related quality of life measures. Qualitative Health Research, 20(3), 340–351.PubMedCrossRef
27.
Zurück zum Zitat Stevens, K. (2010). Valuation of the child health utility index 9D (CHU-9D). Health Economics and Decision Science Discussion Paper 10/07. Stevens, K. (2010). Valuation of the child health utility index 9D (CHU-9D). Health Economics and Decision Science Discussion Paper 10/07.
28.
Zurück zum Zitat Perreault, W. (1975). Controlling order-effect bias. Public Opinion Quarterly pp. 544–551. Perreault, W. (1975). Controlling order-effect bias. Public Opinion Quarterly pp. 544–551.
29.
Zurück zum Zitat Essink-Bot, M., Krabbe, P., & Bonsel, G. A. N. (1997). An empirical comparison of four generic health status measures: The Nottingham health profile, the medical outcomes study 36-item short-form health survey, the COOP/WONCA charts, and the EuroQol Instrument. Medical Care, 35, 522–537.PubMedCrossRef Essink-Bot, M., Krabbe, P., & Bonsel, G. A. N. (1997). An empirical comparison of four generic health status measures: The Nottingham health profile, the medical outcomes study 36-item short-form health survey, the COOP/WONCA charts, and the EuroQol Instrument. Medical Care, 35, 522–537.PubMedCrossRef
30.
Zurück zum Zitat Brazier, J., & Deverill, M. (1999). A checklist for judging preference-based measures of health related quality of life: Learning from psychometric measures. Health Economics, 8, 41–51.PubMedCrossRef Brazier, J., & Deverill, M. (1999). A checklist for judging preference-based measures of health related quality of life: Learning from psychometric measures. Health Economics, 8, 41–51.PubMedCrossRef
31.
Zurück zum Zitat Badia, X., Monserrat, S., Roset, M., & Herdman, M. (1999). Feasibility, validity and test-retest reliability of scaling methods for health states: The visual analogue scale and the time trade-off. Quality of Life Research, 8(4), 303–310.PubMedCrossRef Badia, X., Monserrat, S., Roset, M., & Herdman, M. (1999). Feasibility, validity and test-retest reliability of scaling methods for health states: The visual analogue scale and the time trade-off. Quality of Life Research, 8(4), 303–310.PubMedCrossRef
32.
Zurück zum Zitat McHorney, C., Ware, J., Lu, J., & Sherbourne, C. (1994). The MOS 36-item short-form health survey (SF-36): III Tests of data quality, scaling assumptions, and reliability across diverse patient groups. Medical Care, 32, 40–66.PubMedCrossRef McHorney, C., Ware, J., Lu, J., & Sherbourne, C. (1994). The MOS 36-item short-form health survey (SF-36): III Tests of data quality, scaling assumptions, and reliability across diverse patient groups. Medical Care, 32, 40–66.PubMedCrossRef
33.
Zurück zum Zitat Cohen, J. (1968). Weighted kappa: Nominal scale agreement with provision for scaled disagreement or partial credit. Psychological Bulletin, 70, 213–220.PubMedCrossRef Cohen, J. (1968). Weighted kappa: Nominal scale agreement with provision for scaled disagreement or partial credit. Psychological Bulletin, 70, 213–220.PubMedCrossRef
34.
Zurück zum Zitat Landis, J., & Koch, G. (1977). The measurement of observer agreement for categorical data. Biometrics, 33, 159–174.PubMedCrossRef Landis, J., & Koch, G. (1977). The measurement of observer agreement for categorical data. Biometrics, 33, 159–174.PubMedCrossRef
35.
Zurück zum Zitat Cohen, J. (1988). Statistical power analysis for the behavioural sciences (2nd ed.). NJ: Lawrence Erlbaum Publishers. Cohen, J. (1988). Statistical power analysis for the behavioural sciences (2nd ed.). NJ: Lawrence Erlbaum Publishers.
36.
Zurück zum Zitat Brod, M., Tesler, L., & Christensen, T. (2009). Qualitative research and content validity: Developing best worst practices based on science and experience. Quality of Life Research, 18, 1263–1278.PubMedCrossRef Brod, M., Tesler, L., & Christensen, T. (2009). Qualitative research and content validity: Developing best worst practices based on science and experience. Quality of Life Research, 18, 1263–1278.PubMedCrossRef
37.
Zurück zum Zitat Brazier, J., Roberts, J., Tsuchiya, A., & Busschbach, J. (2011). A comparison of the EQ-5D and SF6D across seven patient groups. Health Economics, 13, 873–884.CrossRef Brazier, J., Roberts, J., Tsuchiya, A., & Busschbach, J. (2011). A comparison of the EQ-5D and SF6D across seven patient groups. Health Economics, 13, 873–884.CrossRef
38.
Zurück zum Zitat Ratcliffe, J., Flynn, T., Terlich, F., Brazier, J., Stevens, K., & Sawyer, M. Developing adolescent specific health state values for economic evaluation: an application of profile case best worst scaling to the Child Health Utility-9D. Pharmacoeconomics, Forthcoming. Ratcliffe, J., Flynn, T., Terlich, F., Brazier, J., Stevens, K., & Sawyer, M. Developing adolescent specific health state values for economic evaluation: an application of profile case best worst scaling to the Child Health Utility-9D. Pharmacoeconomics, Forthcoming.
39.
Zurück zum Zitat Al-Janabi, H., Flynn, T., & Coast, J. (in press), Development of a self-report measure of capability wellbeing for adults: The ICECAP-A. Quality of Life Research. Al-Janabi, H., Flynn, T., & Coast, J. (in press), Development of a self-report measure of capability wellbeing for adults: The ICECAP-A. Quality of Life Research.
Metadaten
Titel
Measuring preference-based quality of life in children aged 6–7 years: a comparison of the performance of the CHU-9D and EQ-5D-Y—the WAVES Pilot Study
verfasst von
Alastair G. Canaway
Emma J. Frew
Publikationsdatum
01.02.2013
Verlag
Springer Netherlands
Erschienen in
Quality of Life Research / Ausgabe 1/2013
Print ISSN: 0962-9343
Elektronische ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-012-0119-5

Weitere Artikel der Ausgabe 1/2013

Quality of Life Research 1/2013 Zur Ausgabe