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Cross-cultural adaptation, reliability, and validity of the Turkish version of PedsQL 3.0 Arthritis Module: a quality-of-life measure for patients with juvenile idiopathic arthritis in Turkey

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Abstract

Purpose

The aim of this study was to describe the cultural adaptation, validity, and reliability of a Turkish version of the pediatric quality-of-life inventory (PedsQL) 3.0 Arthritis Module in a population with juvenile idiopathic arthritis (JIA).

Methods

A total of 169 patients with JIA and their parents were enrolled in the study. The Turkish version of the childhood health assessment questionnaire (CHAQ) was used to evaluate the validity of related domains in the PedsQL 3.0 Arthritis Module. Both the PedsQL 3.0 Arthritis Module and CHAQ were filled out by children over 8 years of age and by the parents of children 2–7 years of age.

Results

Internal reliability was poor to excellent (Cronbach’s alpha coefficients 0.56–0.84 for self-reporting and 0.63–0.82 for parent reporting), and interobserver reliability varied from good to excellent (intraclass correlation coefficient (ICC) 0.79–0.91 for self-reporting and 0.80–0.88 for parent reporting) for the total scores of the PedsQL 3.0 Arthritis Module. Parent–child concordance for all scores was moderate to excellent (ICC 0.42–0.92). The PedsQL 3.0 Arthritis Module and CHAQ were highly positively correlated, with coefficients from 0.21 to 0.76, indicating concurrent validity.

Conclusions

We demonstrated the reliability and validity of quality-of-life measurement using the Turkish version of the PedsQL 3.0 Arthritis Module in our sociocultural context. The PedsQL 3.0 Arthritis Module can be utilized as a tool for the evaluation of quality of life in patients with JIA aged 2–18 years.

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Fig. 1

Abbreviations

HRQOL:

Health-related quality of life

CAC:

Cultural adaptation committee

CHAQ:

Childhood health assessment questionnaire

ICC:

Intraclass correlation coefficient

ILAR:

International League of Associations for Rheumatology

JIA:

Juvenile idiopathic arthritis

PedsQL:

Pediatric quality-of-life inventory

SPSS:

Statistical package for social sciences

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Acknowledgments

We would like to thank Dr. J. W. Varni for permission to use the PedsQL 3.0 Arthritis Module. We are also grateful to all the children and their parents who participated in this study.

Conflict of interest

There was no conflict of interest with regard to the work.

Author information

Authors and Affiliations

  1. Division of Physiotherapy and Rehabilitation, Faculty of Health Sciences, Istanbul University, Istanbul, Turkey

    E. Tarakci

  2. Institute of Medical Sciences, Istanbul University, Istanbul, Turkey

    S. N. Baydogan

  3. Department of Pediatric Rheumatology, Cerrahpasa Medical Faculty, Istanbul University, Istanbul, Turkey

    O. Kasapcopur

  4. Department of Biostatistics, Istanbul University, Istanbul, Turkey

    A. Dirican

  5. İstanbul Tıp Fakültesi Kampüsü Fizik Tedavi ve Rehabilitasyon Yüksek Okulu, İstanbul Üniversitesi, 34093, Fatih, Istanbul, Turkey

    E. Tarakci

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  1. E. Tarakci
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  2. S. N. Baydogan
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  4. A. Dirican
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Correspondence to E. Tarakci.

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Tarakci, E., Baydogan, S.N., Kasapcopur, O. et al. Cross-cultural adaptation, reliability, and validity of the Turkish version of PedsQL 3.0 Arthritis Module: a quality-of-life measure for patients with juvenile idiopathic arthritis in Turkey. Qual Life Res 22, 531–536 (2013). https://doi.org/10.1007/s11136-012-0180-0

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