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Quality of Life Research
Erschienen in: Quality of Life Research 8/2013

01.10.2013

Well-being in mothers of children with congenital heart defects: a 3-year follow-up

verfasst von: Maria T. Grønning Dale, Øivind Solberg, Henrik Holmstrøm, Markus A. Landolt, Leif T. Eskedal, Margarete E. Vollrath

Erschienen in: Quality of Life Research | Ausgabe 8/2013

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Abstract

Purpose

This prospective case–cohort study compared subjective well-being (SWB) among mothers whose children had various degrees of congenital heart defects (CHD) with mothers of children without CHD (controls).

Methods

Nationwide CHD registry data were linked to data collected from the Norwegian Mother and Child Cohort Study at gestational week 30, 6 months, and 36 months postpartum. A total of 175 mothers of children with mild, moderate, and severe CHD were identified in a cohort of 44,144 mothers. The SWB index was operationalized by means of three subscales: a cognitive aspect, positive affect, and negative affect.

Results

Mothers of children with severe CHD reported significantly lower SWB than the controls at 6 months postpartum (p = .003), with further decrease in SWB at 36 months postpartum (p = .001). SWB levels in the mild and moderate CHD group did not deviate significantly from controls.

Conclusions

The findings suggest a pattern in which all stressors concerning the severely ill child lead to significant deterioration of maternal well-being. Having a child with mild or moderate CHD, which is a less severe and shorter-term stressor, did not reduce mothers’ well-being.
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Metadaten
Titel
Well-being in mothers of children with congenital heart defects: a 3-year follow-up
verfasst von
Maria T. Grønning Dale
Øivind Solberg
Henrik Holmstrøm
Markus A. Landolt
Leif T. Eskedal
Margarete E. Vollrath
Publikationsdatum
01.10.2013
Verlag
Springer Netherlands
Erschienen in
Quality of Life Research / Ausgabe 8/2013
Print ISSN: 0962-9343
Elektronische ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-012-0326-0

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