Skip to main content
Hauptrubriken
CME Facharzt-Training Webinare Zeitschriften Bücher e.Medpedia Podcast
Service
Jobbörse Info & Hilfe
Fachgebiete
Anästhesiologie Allgemeinmedizin Arbeitsmedizin Augenheilkunde Chirurgie Dermatologie Gynäkologie und Geburtshilfe HNO Innere Medizin Kardiologie Neurologie Onkologie und Hämatologie Orthopädie und Unfallchirurgie Pädiatrie Pathologie Psychiatrie Radiologie Rechtsmedizin Urologie Zahnmedizin
Themen
Klimawandel und Gesundheit Neues aus dem Markt COVID-19 Praxis und Beruf Seltene Erkrankungen GOÄ & EBM Panorama
Sammlungen
Kasuistiken Algorithmen & Infografiken Blickdiagnosen Arthropedia FlapFinder (für Dermatochirurgen) Videos Kongressberichterstattung Medizin für Apothekerinnen und Apotheker Für Ärztinnen und Ärzte in Weiterbildung Für Medizinstudierende

Live-Webinar: Aktuelle Leitlinien bei Herz-Kreislauf-Erkrankungen

Konkret geht es um den Diabetes-Patienten mit kardiovaskulären Erkrankungen oder Risiken, die Herzinsuffizienz sowie die kardiovaskuläre Primär- und Sekundärprävention. Sind Sie hier schon auf dem neuesten Stand? Unsere Experten beleuchten, wo und warum das bisherige Procedere geändert werden soll und was in der Praxis sinnvoll ist. Holen Sie sich Ihr Update und 2 CME-Punkte beim MMW-Webinar am 24. April von 17.30 bis 19 Uhr. 
Erweiterte Suche
Anmelden
nach oben
Quality of Life Research
Erschienen in: Quality of Life Research 3/2015

01.03.2015

Content verification of the EORTC QLQ-C30/EORTC QLQ-BR23 with the International Classification of Functioning, Disability and Health

verfasst von: Marie-Eve Letellier, Diana Dawes, Nancy Mayo

Erschienen in: Quality of Life Research | Ausgabe 3/2015

Einloggen, um Zugang zu erhalten

Abstract

Purpose

The aims of this study were to estimate the extent to which the content of the EORTC QLQ-C30 and EORTC QLQ-BR23 goes beyond functioning and include global feeling of well-being.

Methods

Respectively, 21 and 13 healthcare professionals agreed to link the EORTC QLQ-C30 and EORTC QLQ-BR23 to the ICF. Mappers were asked to independently identify appropriate codes for the corresponding items of the EORTC QLQ-C30 and EORTC QLQ-BR23 following standardized linking rules and methodology. A Delphi technique was used in order to reach consensus. The threshold of agreement was 70 %. Rounds were stopped when the threshold was obtained or when it was clear that no consensus would be reached.

Results

A total of 25 items out of 30 were endorsed for the EORTC QLQ-C30: 8 items were endorsed at the 4-digit level, 15 items at the 3-digit level, and 2 items reach the consensus that the items were not cover within the ICF. Only 2 items out of 23 did not reach consensus in the EORTC QLQ-BR23. Of the 21 items endorsed, 3 items were endorsed at the 5-digit level, 10 items at the 4-digit level, and 8 at the 3-digit level.

Conclusion

This study demonstrates that the content of the EORTC QLQ-C30 goes beyond functioning and includes global feeling of well-being and that the content of the EORTC QLQ-BR23 is related to functioning. Furthermore, linking items to the ICF framework could be an additional method to validate the content of health-related questionnaires.
Literatur
1.
International Agency for Research on Cancer, World Health Organization. (2012). GLOBOCAN 2012: Estimated cancer incidence, mortality and prevalence worldwide in 2012.
2.
International Agency for Research on Cancer. (2014). World Cancer Report 2014. Chapter 1: Cancer Worldwide.
3.
World Health Organization. (2014). Fact sheet No 297.
4.
Canadian Cancer Society. (2014). Canadian Cancer Statistics. Special topic: Skin cancer. Canadian Cancer Society, Statistics Canada, Public Health Agency of Canada, Provincial/Territorial Cancer Registries.
5.
Krotneva, S., Reidel, K., Nassif, M., Trabulsi, N., Mayo, N., Tamblyn, R., et al. (2013). Rates and predictors of consideration for adjuvant radiotherapy among high-risk breast cancer patients: A cohort study. Breast Cancer Research and Treatment, 140, 397–405.CrossRefPubMedCentralPubMed
6.
Ness, K. K., Wall, M. M., Oakes, J. M., Robison, L. L., & Gurney, J. G. (2006). Physical performance limitations and participation restrictions among cancer survivors: A population-based study. Annals of Epidemiology, 16, 197–205.CrossRefPubMed
7.
Mejdahl, M. K., Andersen, K. G., Gärtner, R., Kroman, N., Kehlet, H. (2013). Persistent pain and sensory disturbances after treatment for breast cancer: Six year nationwide follow-up study. BMJ: British Medical Journal 346, f1865. doi:10.​1136/​bmj.​f1865.
8.
Cormier, J. N., Askew, R. L., Mungovan, K. S., Xing, Y., Ross, M. I., & Armer, J. M. (2010). Lymphedema beyond breast cancer. Cancer, 116, 5138–5149.CrossRefPubMed
9.
Levangie, P. K., & Drouin, J. (2009). Magnitude of late effects of breast cancer treatments on shoulder function: A systematic review. Breast Cancer Research and Treatment, 116, 1–15.CrossRefPubMed
10.
Canadian Cancer Society, Statistics Canada, Public Health Agency of Canada, Provincial/Territorial Cancer Registries. (2013). Canadian Cancer Statistics 2013. Special topic: Liver cancer.
11.
Dawes, D. J., Meterissian, S., Golberg, M., & Mayo, N. E. (2008). Impact of lymphoedema on arm function and health-related quality of life in women following breast cancer surgery. Journal of Rehabilitation Medicine, 40, 651–658.CrossRefPubMed
12.
Brach, M., Cieza, A., Stucki, G., Füssl, M., Cole, A., Ellerin, B. E., et al. (2004). ICF Core Sets for breast cancer. Journal of Rehabilitation Medicine, 44, 121–127.CrossRefPubMed
13.
Brockow, T., Duddeck, K., Geyh, S., Scharzkopf, S. R., Weigl, M., Franke, T., et al. (2004). Identifying the concepts contained in outcome measures of clinical trials on breast cancer using the International Classification of Functioning, Disability and Health as a reference. Journal of Rehabilitation Medicine, Suppl. 44, 43–48.CrossRef
14.
Alfano, C. M., Smith, A. W., Irwin, M. L., Bowen, D. J., Sorensen, B., Reeve, B. B., et al. (2007). Physical activity, long-term symptoms, and physical health-related quality of life among breast cancer survivors: A prospective analysis. Journal of Cancer Survivorship, 1, 116–128.CrossRefPubMedCentralPubMed
15.
Gilchrist, L. S., Galantino, M., Wampler, M., Marchese, V. G., Morris, G. S., & Ness, K. K. (2009). A framework for assessment in oncology rehabilitation. Physical Therapy, 89, 286–306.CrossRefPubMedCentralPubMed
16.
Schmitz, K. H., Speck, R. M., Rye, S. A., DiSipio, T., & Hayes, S. C. (2012). Prevalence of breast cancer treatment sequelae over 6 years of follow-up. Cancer, 118, 2217–2225.CrossRefPubMed
17.
Weissleder, H., Schuchhardt, C. (2007). Lymphedema—Diagnosis and therapy. Viavital Verlag GmbH, Belfortstr, Koeln.
18.
Flanagan, J. C. (1982). Measurement of quality of life: Current state of the art. Archives of Physical Medicine and Rehabilitation, 63, 56–59.PubMed
19.
World Health Organization. (1998). Whoqol user manual: Programme on mental health. World Health Organization.
20.
Petersen, L. R., Clark, M. M., Novotny, P., Kung, S., Sloan, J. A., Patten, C. A., et al. (2008). Relationship of optimism-pessimism and health-related quality of life in breast cancer survivors. Journal of Psychological Oncology, 26, 15–32.CrossRef
21.
Schwartz, A. N. (1975). An observation on self-esteem as the linchpin of quality of life for the aged. An Essay. Gerontologist, 15, 470–472.CrossRefPubMed
22.
Montazeri, A. (2008). Health-related quality of life in breast cancer patients: A bibliographic review of the literature from 1974 to 2007. Journal of Experimental and Clinical Cancer Research, 27, 1–31.CrossRef
23.
Aaronson, N. K., Ahmedzai, S., Bergman, B., Bullinger, M., Cull, A., Duez, N. J., et al. (1993). The european organization for research and treatment of cancer QLQ-C30: A quality-of-life instrument for use in International clinical trials in oncology. Journal of National Cancer Institute, 85, 365–376.CrossRef
24.
Sprangers, M. A. G., Groenvold, M., Arraras, J. I., Franklin, J., te Velde, A., Muller, M., et al. (1996). The European Organization for Research and Treatment of Cancer breast cancer—specific quality-of-life questionnaire module: First results from a three-country field study. Journal of Clinical Oncology, 14, 2756–2768.PubMed
25.
Mayo, N. E., Moriello, C., Asano, M., van der Spuy, S., & Finch, L. (2011). The extent to which common health-related quality of life indices captures constructs beyond symptoms and function. Quality of Life Research, 20, 621–627.CrossRefPubMed
26.
World Confederation for Physical Therapy. The International Classification of Functioning, Disability and Health. 26-2-2013. Ref Type: Online Source.
27.
American Physical Therapy Association. (2008). APTA Endorses World Health Organization ICF Moel.
28.
Stucki, G. (2005). International Classification of Functioning, Disability and Health (ICF): A promising framework and classification for rehabilitation medicine. American Journal pf Physical Medicine and Rehabilitation, 84, 733–740.CrossRef
29.
World Health Organization. (2008). International Classification of Functioning, Disability and Health: ICF. World Health Organization.
30.
Wilson, I. B., & Cleary, P. D. (1995). Linking clinical variables with health-related quality of life—A conceptual model of patients outcomes. Journal of the American Medical Association, 273, 59–65.CrossRefPubMed
31.
Valderas, J. M., & Alonso, J. (2008). Patient reported outcome measures: A model-based classification system or research and clinical practice. Quality of Life Research, 17, 1125–1135.CrossRefPubMed
32.
Ferrans, C. E. (2007). Differences in what quality-of-life instruments measure. Journal of the National Cancer Institute Monographs, 37, 22–26.CrossRefPubMed
33.
Moriello, C., Byrne, K., Cieza, A., Nash, C., Stolee, P., & Mayo, N. E. (2008). Mapping the stroke impact scale (SIS-16) to the International Classification of Functioning, Disability and Health. Journal of Rehabilitation Medicine, 40, 102–106.CrossRefPubMed
34.
Cieza, A., Brockow, T., Ewert, T., Amman, E., Kollerits, B., Chatterji, S., et al. (2002). Linking health-status measurements to the International Classification of Functioning, Disability and Health. Journal of Rehabilitation Medicine, 34, 205–210.CrossRefPubMed
35.
Cieza, A., Geyh, S., Chatterji, S., Kostanjsek, N., Üstün, B., & Stucki, G. (2005). ICF linking rules: An update based on lessons learned. Journal of Rehabilitation Medicine, 37, 212–218.CrossRefPubMed
36.
De Vet, H. C., Terwee, C. B., Mokkink, L. B., & Knol, D. L. (2011). Measurement in medicine: A practical guide. Cambridge: Cambridge University Press.CrossRef
37.
Geyh, S., Cieza, A., Kollerits, B., Grimby, G., & Stucki, G. (2007). Content comparison of health-related quality of life measures used in stroke based on the International Classification of Functioning, Disability and Health (ICF): A systematic review. Quality of Life Research, 16, 833–851.CrossRefPubMed
38.
Fekete, C., Boldt, C., Post, M., Eriks-Hoogland, I., Cieza, A., & Stucki, G. (2011). How to measure what matters: Development and application of guiding principles to select measurement instruments in an epidemiologic study on functioning. American Journal of Physical Medicine and Rehabilitation, 90, S29–S38.CrossRefPubMed
39.
Mols, F., Vingerhoets, A. J. J. M., Coebergh, J. W., & van de Poll-Franse, L. V. (2005). Quality of life among long-term breast cancer survivors: A systematic review. European Journal of Cancer, 41, 2613–2619.CrossRefPubMed
40.
Ryan, J. L., Carroll, J. K., Ryan, E. P., Mustian, K. M., Fiscella, K., & Morrow, G. R. (2007). Mechanisms of cancer-related fatigue. The Oncologist, 12, 22–34.CrossRefPubMed
41.
Lee, V., Robin Cohen, S., Edgar, L., Laizner, A. M., & Gagnon, A. J. (2006). Meaning-making intervention during breast or colorectal cancer treatment improves self-esteem, optimism, and self-efficacy. Social Science and Medicine, 62, 3133–3145.CrossRefPubMed
42.
Lee, V. (2008). The existential plight of cancer: meaning making as a concrete approach to the intangible search for meaning. Supportive Care in Cancer, 16, 779–785.CrossRefPubMed
43.
Paskett, E. D., Naughton, M. J., McCoy, T. P., Case, L. D., & Abbott, J. M. (2007). The epidemiology of arm and hand swelling in premenopausal breast cancer survivors. Cancer Epidemiology, Biomarkers and Prevention, 16, 775–782.CrossRefPubMed
44.
Tsai, R. J., Dennis, L. K., Lynch, C. F., Snetselaar, L. G., Zamba, G. K., & Scott-Conner, C. (2009). The risk of developing arm lymphedema among breast cancer survivors: A meta-analysis of treatment factors. Annals of Surgical Oncology, 16, 1959–1972.CrossRefPubMed
45.
Cheville, A. L., McGarvey, C. L., Petrek, J. A., Russo, S. A., Taylor, M. E., & Thiadens, S. R. J. (2003). Lymphedema management. Seminars in Radiation Oncology, 13, 290–301.CrossRefPubMed
46.
Glaessel, A., Kirchberger, I., Stucki, G., & Cieza, A. (2011). Does the Comprehensive International Classification of Functioning, Disability and Health (ICF) Core Set for Breast Cancer capture the problems in functioning treated by physiotherapists in women with breast cancer? Physiotherapy, 97, 33–46.CrossRefPubMed
Metadaten
Titel
Content verification of the EORTC QLQ-C30/EORTC QLQ-BR23 with the International Classification of Functioning, Disability and Health
verfasst von
Marie-Eve Letellier
Diana Dawes
Nancy Mayo
Publikationsdatum
01.03.2015
Verlag
Springer International Publishing
Erschienen in
Quality of Life Research / Ausgabe 3/2015
Print ISSN: 0962-9343
Elektronische ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-014-0791-8

Weitere Artikel der Ausgabe 3/2015

Quality of Life Research 3/2015 Zur Ausgabe

Brief Communication

Spanish translation and linguistic validation of the quality of life in neurological disorders (Neuro-QoL) measurement system

OriginalPaper

Creating meaningful cut-scores for Neuro-QOL measures of fatigue, physical functioning, and sleep disturbance using standard setting with patients and providers

OriginalPaper

Estimating the minimum important change in the 15D scores

OriginalPaper

Cross-cultural adaptation and validation of the Neck Bournemouth Questionnaire in the Italian population

Brief Communication

Cross-cultural adaptation and validation of the Italian Psychosocial Impact of Dental Aesthetics Questionnaire (PIDAQ)

OriginalPaper

Developing the Polish Educational Needs Assessment Tool (Pol-ENAT) in rheumatoid arthritis and systemic sclerosis: a cross-cultural validation study using Rasch analysis