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Erschienen in: Journal of Cancer Survivorship 2/2014

01.06.2014

Unintended consequences: the social context of cancer survivors and work

verfasst von: Angela Ka Ying Mak, Suwichit Chaidaroon, Gilbert Fan, Fahimah Thalib

Erschienen in: Journal of Cancer Survivorship | Ausgabe 2/2014

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Abstract

Purpose

This article describes the ways in which socioeconomic characteristics and workplace contexts shape the unintended consequences that cancer survivors can experience as they return to work. The study was conducted in an employment setting where there is a major focus on productivity and economic growth in the business sector.

Methods

Five focus groups (N = 33 participants) were conducted in 2012 in Singapore. Questions were directed at obtaining information related to the meaning of a job and reactions to return to work as a cancer survivor completes primary cancer treatment. A thematic analysis using a two-staged analytical process was conducted to identify (1) work-related challenges faced by survivors as a result of the interplay between their self-identity as someone with a critical illness and organizational structure, and (2) unintended social consequences (USCs) related to the interaction between the workplace and cancer survivor.

Results

Eight emerging themes of work-related challenges and unintended consequences were categorized. Fear of losing out by compromising one’s expectation, downplaying illness to avoid being a burden to others, working harder to meet expectations, and passive acceptance to perceived discrimination. Unintended consequences were also observed in relation to policies, procedures, and economic factors in the context of a heightened economically driven social climate.

Conclusions

This study contributes to the understanding of how cancer survivors perceive their work situation. These findings can inform health care providers, employers, and policy makers regarding the challenges faced by cancer survivors as they return to the workplace in a culture of a rapidly growing emphasis on economic concerns.

Implications for Cancer Survivorship

These findings offer a new perspective on the complexities that can occur when cancer survivors interact with their workplace. Awareness of the existence and types of unintended consequences in this context can help provide a more comprehensive understanding of the cancer survivor and work interface.
Literatur
1.
Zurück zum Zitat Spelten ER, Sprangers MA, Verbeek JH. Factors reported to influence the return to work of cancer survivors: a literature review. Psychooncology. 2002;11:124–31.CrossRefPubMed Spelten ER, Sprangers MA, Verbeek JH. Factors reported to influence the return to work of cancer survivors: a literature review. Psychooncology. 2002;11:124–31.CrossRefPubMed
2.
Zurück zum Zitat Kennedy F, Haslam C, Munir F, Pryce J. Returning to work following cancer: a qualitative exploratory study into the experience of returning to work following cancer. Eur J Cancer Care. 2007;16:17–25.CrossRef Kennedy F, Haslam C, Munir F, Pryce J. Returning to work following cancer: a qualitative exploratory study into the experience of returning to work following cancer. Eur J Cancer Care. 2007;16:17–25.CrossRef
3.
Zurück zum Zitat Carlsson M, Hamrin E, Lindqvist R. Psychometric assessment of the life satisfaction questionnaire (LSQ) and a comparison of randomized sample of Swedish women and those suffering from breast cancer. Qual Life Res. 1999;8(3):245–53.CrossRefPubMed Carlsson M, Hamrin E, Lindqvist R. Psychometric assessment of the life satisfaction questionnaire (LSQ) and a comparison of randomized sample of Swedish women and those suffering from breast cancer. Qual Life Res. 1999;8(3):245–53.CrossRefPubMed
4.
Zurück zum Zitat Pryce J, Munir F, Haslam C. Cancer survivorship and work: symptoms, supervisor response, co-worker disclosure, and work adjustment. J Occup Rehabil. 2007;17:83–92.CrossRefPubMed Pryce J, Munir F, Haslam C. Cancer survivorship and work: symptoms, supervisor response, co-worker disclosure, and work adjustment. J Occup Rehabil. 2007;17:83–92.CrossRefPubMed
5.
Zurück zum Zitat Feuerstein M, Tood B, Moskowitz M, et al. Work in cancer survivors: a model for practice and research. J Cancer Surviv. 2010;4:415–37.CrossRefPubMed Feuerstein M, Tood B, Moskowitz M, et al. Work in cancer survivors: a model for practice and research. J Cancer Surviv. 2010;4:415–37.CrossRefPubMed
6.
Zurück zum Zitat Mehnert A. Employment and work-related issues in cancer survivors. Crit Rev Oncol Hematol. 2011;77:109–30.CrossRefPubMed Mehnert A. Employment and work-related issues in cancer survivors. Crit Rev Oncol Hematol. 2011;77:109–30.CrossRefPubMed
7.
Zurück zum Zitat Mehnert A, de Boer A, Feuerstein, M. Employment challenges for cancer survivors. Cancer. (2013, in press). Mehnert A, de Boer A, Feuerstein, M. Employment challenges for cancer survivors. Cancer. (2013, in press).
8.
Zurück zum Zitat Giddens A. Central problems in social theory: action, structure, and contradiction in social analysis. Los Angeles: University of California Press; 1979.CrossRef Giddens A. Central problems in social theory: action, structure, and contradiction in social analysis. Los Angeles: University of California Press; 1979.CrossRef
9.
Zurück zum Zitat Giddens A. The constitution of society: outline of the theory of structuration. Los Angeles: University of California Press; 1984. Giddens A. The constitution of society: outline of the theory of structuration. Los Angeles: University of California Press; 1984.
10.
Zurück zum Zitat Koehn D. Living with the dragon: thinking and acting ethically in a world of unintended consequences. New York: Routledge; 2010. Koehn D. Living with the dragon: thinking and acting ethically in a world of unintended consequences. New York: Routledge; 2010.
11.
Zurück zum Zitat Wells M, Williams B, Firnigl D, Lang H, Coyle J, Kroll T, et al. Supporting ‘work-related goals’ rather than ‘return to work’ after cancer? A systematic review and meta-synthesis of 25 qualitative studies. Psychooncology. 2012. doi:10.1002/pon.3148.PubMedCentral Wells M, Williams B, Firnigl D, Lang H, Coyle J, Kroll T, et al. Supporting ‘work-related goals’ rather than ‘return to work’ after cancer? A systematic review and meta-synthesis of 25 qualitative studies. Psychooncology. 2012. doi:10.​1002/​pon.​3148.PubMedCentral
12.
Zurück zum Zitat Amir Z, Neary D, Luker K. Cancer survivors’ views of work 3 years post diagnosis: a UK perspective. Eur J Oncol Nurs. 2008;12:190–7.CrossRefPubMed Amir Z, Neary D, Luker K. Cancer survivors’ views of work 3 years post diagnosis: a UK perspective. Eur J Oncol Nurs. 2008;12:190–7.CrossRefPubMed
13.
Zurück zum Zitat Boykoff N, Moieni M, Subramanian SK. Confronting chemobrain: an in-depth look at survivors’ reports of impact on work, social networks, and health care response. J Cancer Surviv. 2009;3:223–32.PubMedCentralCrossRefPubMed Boykoff N, Moieni M, Subramanian SK. Confronting chemobrain: an in-depth look at survivors’ reports of impact on work, social networks, and health care response. J Cancer Surviv. 2009;3:223–32.PubMedCentralCrossRefPubMed
14.
Zurück zum Zitat Maunsell E, Brisson C, Dubois L, Lauzier S, Fraser A. Work problems after breast cancer: an exploratory qualitative study. Psychooncology. 1999;8(6):467–73.CrossRefPubMed Maunsell E, Brisson C, Dubois L, Lauzier S, Fraser A. Work problems after breast cancer: an exploratory qualitative study. Psychooncology. 1999;8(6):467–73.CrossRefPubMed
15.
Zurück zum Zitat Spector R. Culture and diversity in health and illness. Stamford: Appleton Lange; 1996. Spector R. Culture and diversity in health and illness. Stamford: Appleton Lange; 1996.
16.
Zurück zum Zitat Galanti G. Caring for patients from different cultures: case studies from American hospitals. Philadelphia: University of Pennsylvania Press; 1991. Galanti G. Caring for patients from different cultures: case studies from American hospitals. Philadelphia: University of Pennsylvania Press; 1991.
17.
Zurück zum Zitat Wright KB, Sparks L, O’Hair HD. Health communication in the 21st century. Malden: Blackwell Publishing; 2008. Wright KB, Sparks L, O’Hair HD. Health communication in the 21st century. Malden: Blackwell Publishing; 2008.
18.
Zurück zum Zitat Hofstede G. Cultures and organizations: software of the mind. New York: McGraw-Hill; 2004. Hofstede G. Cultures and organizations: software of the mind. New York: McGraw-Hill; 2004.
19.
Zurück zum Zitat Kluckhohn FR, Strodtbeck FL. Variations in value orientations. Evanston: Row, Peterson; 1961. Kluckhohn FR, Strodtbeck FL. Variations in value orientations. Evanston: Row, Peterson; 1961.
20.
Zurück zum Zitat Ho KL. Citizen participation and policy making in Singapore: conditions and predicaments. Asian Surv. 2000;40(3):436–55.CrossRef Ho KL. Citizen participation and policy making in Singapore: conditions and predicaments. Asian Surv. 2000;40(3):436–55.CrossRef
21.
Zurück zum Zitat Ting GS, Yen JL. Patient advocacy and its role in Singapore. Ethics Healthc SGH Proc. 2008;17(1):3–8. Ting GS, Yen JL. Patient advocacy and its role in Singapore. Ethics Healthc SGH Proc. 2008;17(1):3–8.
22.
Zurück zum Zitat Mak AKY. Toward an occupational rehabilitation policy community for cancer survivors in Singapore: a stakeholder perspective from the SME employers. J Occup Rehabil. 2011;21:77–85.CrossRef Mak AKY. Toward an occupational rehabilitation policy community for cancer survivors in Singapore: a stakeholder perspective from the SME employers. J Occup Rehabil. 2011;21:77–85.CrossRef
23.
Zurück zum Zitat Chen HMK, Tan WH, Tan WC, Yu CKE, Lim THJ, Tay MH, et al. Attitudes towards cancer survivors: a small survey. Singapore Med J. 2006;47(2):143–6.PubMed Chen HMK, Tan WH, Tan WC, Yu CKE, Lim THJ, Tay MH, et al. Attitudes towards cancer survivors: a small survey. Singapore Med J. 2006;47(2):143–6.PubMed
24.
Zurück zum Zitat Marshall C, Rossman GB. Designing qualitative research. 3rd ed. Thousand Oaks: Sage; 1999. Marshall C, Rossman GB. Designing qualitative research. 3rd ed. Thousand Oaks: Sage; 1999.
25.
Zurück zum Zitat Lindlof TR. Qualitative communication research methods. Thousand Oaks: Sage; 1995. Lindlof TR. Qualitative communication research methods. Thousand Oaks: Sage; 1995.
26.
Zurück zum Zitat Whaley BB. Explaining illness: research, theory, and strategies. Mahwah: Lawrence Erlbaum Associates, Inc; 2000. Whaley BB. Explaining illness: research, theory, and strategies. Mahwah: Lawrence Erlbaum Associates, Inc; 2000.
27.
Zurück zum Zitat Mystakidou K, Parpa E, Tsilika E, Katsouda E, Vlahos L. Cancer information disclosure in different cultural context. Support Care Cancer. 2004;12:147–54.CrossRefPubMed Mystakidou K, Parpa E, Tsilika E, Katsouda E, Vlahos L. Cancer information disclosure in different cultural context. Support Care Cancer. 2004;12:147–54.CrossRefPubMed
28.
Zurück zum Zitat Green J, Thorogood N. Qualitative methods for health research. London: Sage; 2004. Green J, Thorogood N. Qualitative methods for health research. London: Sage; 2004.
29.
Zurück zum Zitat McKay G, Knott V, Delfabbro P. Return to work and cancer: the Australian experience. J Occup Rehabil. 2013;23:93–105.CrossRefPubMed McKay G, Knott V, Delfabbro P. Return to work and cancer: the Australian experience. J Occup Rehabil. 2013;23:93–105.CrossRefPubMed
30.
Zurück zum Zitat Kim JY, Nam SH. The concept and dynamics of face: implications for organizational behavior in Asia. Organ Sci. 1998;9(4):522–34.CrossRef Kim JY, Nam SH. The concept and dynamics of face: implications for organizational behavior in Asia. Organ Sci. 1998;9(4):522–34.CrossRef
31.
Zurück zum Zitat Goldsmith DJ. Communicating social support. Cambridge: Cambridge University Press; 2004.CrossRef Goldsmith DJ. Communicating social support. Cambridge: Cambridge University Press; 2004.CrossRef
32.
Zurück zum Zitat National Coalition for Cancer Survivorship. Self-advocacy: a cancer survivor’s handbook. MD: Silver Spring; 2009. National Coalition for Cancer Survivorship. Self-advocacy: a cancer survivor’s handbook. MD: Silver Spring; 2009.
33.
Zurück zum Zitat Coreil J, Wilke J, Pintado I. Cultural models of illness and recovery in breast cancer support groups. Qual Health Res. 2004;14(7):905–23.CrossRefPubMed Coreil J, Wilke J, Pintado I. Cultural models of illness and recovery in breast cancer support groups. Qual Health Res. 2004;14(7):905–23.CrossRefPubMed
34.
Zurück zum Zitat Carlson LE, Halifax J. Mindfulness for cancer and terminal illness. In: McCracken LM, editor. Mindfulness and acceptance in behavioral medicine: current theory and practice. Oakland: New Harbinger; 2011. p. 159–86. Carlson LE, Halifax J. Mindfulness for cancer and terminal illness. In: McCracken LM, editor. Mindfulness and acceptance in behavioral medicine: current theory and practice. Oakland: New Harbinger; 2011. p. 159–86.
35.
Zurück zum Zitat Carver CS. Resilience and thriving: issues, models, and linkages. J Soc Issues. 1998;54(2):245–63.CrossRef Carver CS. Resilience and thriving: issues, models, and linkages. J Soc Issues. 1998;54(2):245–63.CrossRef
36.
Zurück zum Zitat Parent JD, Levitt K. Manager versus employee perceptions of adaptability and work performance. Bus Renaiss Q. 2009;4(4):23–48. Parent JD, Levitt K. Manager versus employee perceptions of adaptability and work performance. Bus Renaiss Q. 2009;4(4):23–48.
37.
Zurück zum Zitat Frazier LM, Miller VA, Horbelt DV, Delmore JE, Miller BE, Paschal AM. Comparison of focus groups on cancer and employment conducted face to face or by telephone. Qual Health Res. 2010;20(5):617–27.PubMedCentralCrossRefPubMed Frazier LM, Miller VA, Horbelt DV, Delmore JE, Miller BE, Paschal AM. Comparison of focus groups on cancer and employment conducted face to face or by telephone. Qual Health Res. 2010;20(5):617–27.PubMedCentralCrossRefPubMed
Metadaten
Titel
Unintended consequences: the social context of cancer survivors and work
verfasst von
Angela Ka Ying Mak
Suwichit Chaidaroon
Gilbert Fan
Fahimah Thalib
Publikationsdatum
01.06.2014
Verlag
Springer US
Erschienen in
Journal of Cancer Survivorship / Ausgabe 2/2014
Print ISSN: 1932-2259
Elektronische ISSN: 1932-2267
DOI
https://doi.org/10.1007/s11764-013-0330-6

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