The multiple meanings of long-term gastrostomy in children with severe disability
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Shared Decision-Making about assistive technology for the child with Severe Neurologic Impairment
2014, Pediatric Clinics of North AmericaCitation Excerpt :When attempting to meet nutritional goals with oral feeds in the context of oromotor dysfunction, families often used negative language, describing feeding as “torture” or “a battle.”39 However, other parents described the value of oral feedings as representing a “normal” life skill38,40 and as an important enjoyable sensory experience for their child.41 Gastrostomy tube placement represents a life-sustaining technology, and conversations about it invite consideration of big-picture goals, especially when the child’s medical condition is progressive rather than static.
The Impact of Child Tube Feeding on Maternal Emotional State and Identity: A Qualitative Meta-Analysis
2012, Journal of Pediatric NursingCitation Excerpt :This apparent contradiction can be partly explained by differences in methodology. Questionnaires requesting cursory data on social functioning and mental health status (Tawfik et al., 1997; Sullivan et al., 2004; Heyman et al., 2004) will necessarily produce results different from in-depth interviews (Thorne et al., 1997; Craig & Scambler, 2006). We may conclude from all the available data that tube feeding has positive and negative aspects for families.
Eating and feeding are not the same: Caregivers' perceptions of gastrostomy feeding for children with cerebral palsy
2006, Developmental Medicine and Child NeurologyMedical, surgical, and health outcomes of gastrostomy feeding
2006, Developmental Medicine and Child NeurologyPsychodynamic Treatment for Infants with Feeding Tube Dependency
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