State-of-the-Art Paper
The New York State Cardiac Registries: History, Contributions, Limitations, and Lessons for Future Efforts to Assess and Publicly Report Healthcare Outcomes

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In 1988, the New York State Health Commissioner was confronted with hospital-level data demonstrating very large, multiple-year, interhospital variations in short-term mortality and complications for cardiac surgery. The concern with the extent to which these differences were due to variations in patients' pre-surgical severity of illness versus hospitals' quality of care led to the development of clinical registries for cardiac surgery in 1989 and for percutaneous coronary interventions in 1992 in New York. In 1990, the Department of Health released hospitals' risk-adjusted cardiac surgery mortality rates for the first time, and shortly thereafter, similar data were released for hospitals and physicians for percutaneous coronary interventions, cardiac valve surgery, and pediatric cardiac surgery (only hospital data). This practice is still ongoing. The purpose of this communication is to relate the history of this initiative, including changes or purported changes that have occurred since the public release of cardiac data. These changes include decreases in risk-adjusted mortality, cessation of cardiac surgery in New York by low-volume and high-mortality surgeons, out-of-state referral or avoidance of cardiac surgery/angioplasty for high-risk patients, alteration of contracting choices by insurance companies, and modifications in market share of cardiac hospitals. Evidence related to these impacts is reviewed and critiqued. This communication also includes a summary of numerous studies that used New York's cardiac registries to examine a variety of policy issues regarding the choice and use of cardiac procedures, the comparative effectiveness of competing treatment options, and the examination of the relationship among processes, structures, and outcomes of cardiac care.

Key Words

assessment
outcomes
registry

Abbreviations and Acronyms

AMI
acute myocardial infarction
CABG
coronary artery bypass graft
CMS
Center for Medicare and Medicaid Services
CSRS
Cardiac Surgery Reporting System
DOH
Department of Health
HCFA
Health Care Financing Administration
PCI
percutaneous coronary intervention
PCIRS
Percutaneous Coronary Interventions Reporting System

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The authors have reported that they have no relationships relevant to the contents of this paper to disclose.