Organ donation
Culture Change Initiatives in the Procurement of Organs in the United Kingdom

https://doi.org/10.1016/j.transproceed.2008.12.032Get rights and content

Abstract

In 2004, the United Kingdom began for the first time a systematic, countrywide initiative to increase organ donations. The approach, based on international research and with consultation from the United States, entailed encouraging the early identification and referral of potential donors, training critical care physicians in breaking bad news and in collaborating with donor coordinators, training coordinators in donation conversation skills, and getting them in to speak with families. The strategy represented a large culture change in the procurement of organs in the United Kingdom and has met resistance. However, the change has started to take hold and, despite a dramatic and unexpected 21% reduction in potential brain stem death donors over a 4-year period, is showing positive results. Herein we have described the historical model for procuring organs in the United Kingdom, the development of the new strategy, its components, and the results of its implementation, in terms of earlier referrals, the identification of non–heart-beating donors, the collaboration between physicians and coordinators in speaking with families and in converted donors.

Section snippets

Historical UK Model

Prior to 2000, the United Kingdom, unlike other Western countries, had no organized, unified strategy to increase organ donation. There was no mandatory centralized education, no centralized data collection, and no centralized management and reporting structure for the donor transplant coordinators (DTCs) who have primary responsibility for acquiring legal consents. DTCs were employed and managed at the hospital level, and common practice was for them to be called in only after a patient had

Development of the Current Strategy

In 2000, UK Transplant (UKT) was given the responsibility for organ donation rates overall and for providing professional leadership to the DTCs who, nevertheless, remained employed locally. The PDA quoted above was the first major undertaking, as prior to it, no national database relevant to donation and transplantation was available, so no baseline had been established against which to measure progress and no basis for a targeted strategy existed.

As other countries, mostly notably Spain and

Current Strategy

The overall aim of the strategy was to align practice in the United Kingdom with best practice findings in international research which have demonstrated that 100% identification of potential organ donors, their early referral to the attention of people who are specially trained in talking to families about donation, and a collaborative approach to families, involving both the physician and a trained DTC, improved consent/authorization rates. It was recognized from the start that the

Evaluation of the Strategy

An evaluation of the effectiveness of this strategy was performed utilizing PDA data (Hamilton, personal communication) obtained over the 4-year period from April 2003 to March 2007, and it must be viewed in light of a surprising finding from those same data. In the 4 financial years from 2003 to 2007, there was a remarkable and unanticipated 21% reduction in the number of cases where BSD was reported as a likely diagnosis. The reasons for this reduction were unclear, but any meaningful

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