Health Education and Symptom Flare Management Using a Video-based m-Health System for Caring Women With IC/BPS

doi:10.1016/j.urology.2018.05.027

Urology

Volume 119, September 2018, Pages 62-69

https://doi.org/10.1016/j.urology.2018.05.027 Get rights and content

Abstract

Objective

To assess effectiveness of the video-based m-health system providing videos dictated by physicians for health education and symptom self-management for patients with Interstitial cystitis/bladder pain syndrome (IC/BPS).

Methods

An m-health system was designed to provide videos for weekly health education and symptom flare self-management. O'Leary-Sant index and visual analogue scale as well as SF-36 health survey were administrated to evaluate the disease severity and quality of life (QoL), respectively. A total of 60 IC/BPS patients were recruited and randomly assigned to either control group (30 patients) or study group (30 patients) in sequence depending on their orders to visit our urological clinic. Patients in both control and study groups received regular treatments, while those in the study group received additional video-based intervention. Statistical analyses were conducted to compare the outcomes between baseline and postintervention for both groups. The outcomes of video-based intervention were also compared with the text-based intervention conducted in our previous study.

Results

After video-based intervention, patients in the study group exhibited significant effect manifested in all disease severity and QoL assessments except the pain visual analogue scale, while no significance was found in the control group. Moreover, the study group exhibited more significant net improvements than the control group in 7 SF-36 constructs, except the mental health. The limitations include short intervention duration (8 weeks) and different study periods between text-based and video-based interventions.

Conclusion

Video-based intervention is effective in improving the QoL of IC/BPS patients and outperforms the text-based intervention even in a short period of intervention.

Section snippets

Participants and Protocols

Sixty IC/BPS patients were recruited from the urological clinic of Feng Yuan Hospital, Taichung, Taiwan for this study. If the patients met the inclusion and/or exclusion criteria of IC/BPS diagnosis¹ and were willing to participate in the study, they were assigned to either control or study group in sequence according to their orders of visiting our urological clinic. After they had signed an informed consent and were given a brief introduction about using the smartphone application (APP), the

EXPERIMENTAL RESULTS

As shown in Table 1, no significant difference (P > .05) in demographics (age, marriage, and education) and anesthetic bladder volume between study and control groups was found. However, compared with patients in the control group, significant higher scores in disease severity assessed with O'Leary-Sant indices and VAS scales for the study group (P < .05) could be observed in the baseline (Table 2); moreover, except the general health and vitality subscales, the QoL evaluated by SF-36 health

DISCUSSIONS AND CONCLUSIONS

Although the demographic information and bladder volume were not significantly different between 2 groups (Table 1), patients in the study groups with video-based intervention exhibited more severe symptoms and lower QoL compared with the control group (Table 2). It was argued that more severe patients (study groups) would have greater improvements (postintervention minus baseline score) than less severe patients (control group). To address this question, in addition to net improvements, we

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Summary of the 2023 report of the international consultation on incontinence interstitial cystitis/bladder pain syndrome (IC/BPS) committee
2023, Continence
Interstitial cystitis and bladder pain syndrome are essentially interchangeable as there is no accepted definition that clearly delineates the interstitial cystitis syndrome from bladder pain syndrome. IC/BPS is generally agreed to be defined as chronic pelvic pain, pressure, or discomfort perceived to be related to the urinary bladder when accompanied by at least one other urinary symptom such as persistent urge to void or urinary frequency when in the absence of confusable diseases. The Consultation believes that patients who meet the definition and have a Hunner lesion should be considered to have a distinct confusable disease (Hunner lesion disease — HLD) and be managed accordingly. It follows that early cystoscopy is essential in establishing whether the diagnosis is HLD or IC/BPS. As no single treatment works well over time for a majority of patients, the treatment approach should be tailored to the specific symptoms of each patient and a multidisciplinary approach may be required. A reasonable diagnostic and treatment algorithm is offered by the Consultation. For methodology and the complete report of the committee with complete references, please refer to the 7th edition of the International Consultation on Urological Diseases Incontinence.
The efficacy of microlearning in improving self-care capability: a systematic review of the literature
2020, Public Health
Citation Excerpt :
Seven out of 11 papers (64%) reported an improvement in behaviour change following microlearning intervention but the effect was not statistically significant.56,57,62,63,68,73,79 Only four out of 11 papers (36%) reported a statistically significant improvement in self-care behaviours65,67–69 post microlearning intervention. Ten out of 26 studies (38%) used at least two segments of microlearning as their intervention, seven (70%) of these showed a significant increase in individual's cognitive changes49,59,61,62,65,67,73–75,77 and two (20%) of which found statistically significant change in behaviour changes.65,67
To determine the effectiveness of microlearning in improving an individual's capability for self-care.
Systematic review of the literature.
The routine adoption of health seeking self-care behaviours can prevent or delay the appearance of various lifestyle diseases including type 2 diabetes and cardiovascular disease. Microlearning delivers complex knowledge in fragments or bite-size ‘nuggets’ of information and has been applied as a novel intervention to improve individual's self-care capabilities. The aim of this research was to systematically review the literature to determine the effectiveness of microlearning in improving individual self-care capability.
A search was conducted on 15 July 2019 across five electronic bibliographic databases: EMBASE, MEDLINE, PsycINFO, CINAHL and Scopus. Randomised and non-randomised controlled trials, controlled before-after studies and interrupted time series studies, published between 1 January 1990 and 15 July 2019 and looking at individuals of all ages were included in the search. The search strategy included a keyword search and a string of “(modality) AND (learning) AND (micro)”, which broadly described microlearning to cover all available articles that have used microformat learning interventions. The search was combined with keywords and Medical Subject Headings (MeSH) terms for self-care to identify studies of interests. Studies were screened by two reviewers independently and reported using a Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) flowchart. Data from included articles were extracted using Cochran Data Collection Form. Risk of bias was assessed using Version 2 of the Cochrane Risk-of-bias or Risk Of Bias In Non-Randomised Studies of Interventions (ROBINS-I).
1310 articles were identified in the initial search. A total of 26 manuscripts were included in the narrative synthesis after title and abstract and full text screening was performed by two reviewers. Outcomes of studies were categorised. A total of 23 studies measured cognitive level self-care capabilities-related changes, and 91% showed statistically significant improvements. Only 11 studies measured actual self-care behaviour changes, from which only 36% showed statistically significant results. From the 26 manuscripts included, 25 articles were evaluated as having moderate-to-high risk of bias.
Under certain conditions, or when combined with monitoring such as tracking daily medicine intake, microlearning can be effective in improving actual self-care behaviours. Microlearning can also positively influence individuals’ cognitive self-care capabilities but was largely ineffective in triggering actual self-care behaviour change. More studies are needed to investigate the effectiveness of microlearning in improving self-care capabilities amongst the general population at scale.
Urologic Chronic Pelvic Pain Syndrome Flares: A Comprehensive, Systematic Review and Meta-Analysis of the Peer-Reviewed Flare Literature
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2024, International Journal of Molecular Sciences
Multimodal therapies and strategies for the treatment of interstitial cystitis/bladder pain syndrome in Taiwan
2024, LUTS: Lower Urinary Tract Symptoms
Self-help interventions for persistent physical symptoms: a systematic review of behaviour change components and their potential effects
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^☆: Parts of the results were presented at the 2016 Annual Congress of the International Continence Society, Tokyo, Japan.

: Financial Disclosure: This study was supported in part by Feng Yuan Hospital, Ministry of Health and Welfare(Grant no. FYH1030709-2) and Ministry of Science and Technology(Grant no. MOST106-2410-H-166-004).

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Health Services ResearchHealth Education and Symptom Flare Management Using a Video-based m-Health System for Caring Women With IC/BPS☆,

Abstract

Objective

Methods

Results

Conclusion

Section snippets

Participants and Protocols

EXPERIMENTAL RESULTS

DISCUSSIONS AND CONCLUSIONS

J Urol

J Urol

J Urol

Eur Urol

J Urol

Urology

Urology

Complementary Ther Med

Patient Educ Couns

Urology

Urology

Prev Med

Nurs Women Health

J Urol

Contraception

Health Services Research
Health Education and Symptom Flare Management Using a Video-based m-Health System for Caring Women With IC/BPS☆,