EditorialBad information in epilepsy care
References (20)
- et al.
Tracking generalized tonic-clonic seizures with a wrist accelerometer linked to an online database
Seizure
(2016) - et al.
Seizure diaries for clinical research and practice: limitations and future prospects
Epilepsy Behav
(2012) - et al.
Non-EEG based ambulatory seizure detection designed for home use: what is available and how will it influence epilepsy care?
Epilepsy Behav
(2016) - et al.
Novel techniques for automated seizure registration: patients' wants and needs
Epilepsy Behav
(2015) - et al.
Magnetic transcranial stimulation in healthy humans: influence on the behavior of upper limb motor units
Brain Res
(1995) - et al.
Automated seizure detection systems and their effectiveness for each type of seizure
Seizure
(2016) - et al.
Seizure reporting technologies for epilepsy treatment: a review of clinical information needs and supporting technologies
Seizure
(2015) - et al.
Postictal serum levels of antiepileptic drugs for detection of noncompliance
Epilepsy Behav
(2003) - et al.
The role of high-quality EEG databases in the improvement and assessment of seizure prediction methods
Epilepsy Behav
(2011) - et al.
The personal impact of epilepsy scale (PIES)
Epilepsy Behav
(2015)
Cited by (11)
EEG parameters as endpoints in epilepsy clinical trials - An expert panel opinion paper
2022, Epilepsy ResearchCitation Excerpt :The current gold standard for the regulatory approval of new antiseizure medications (ASMs) and antiseizure devices (ASDs) by the FDA and EMA is the demonstration of reduction in the frequency of seizures assessed by using the seizure diary (Blachut et al., 2017; Hoppe et al., 2007). It is acknowledged in the epilepsy community that whether by self-reporting or by that of an observer, seizure diaries significantly underestimate the true frequency of countable seizures (e.g. tonic, clonic, tonic-clonic, atonic, focal motor, epileptic spasms) (Blachut et al., 2017; Hoppe et al., 2007; Fisher, 2017; Fisher et al., 2012) and provide little or no ability to count seizure types which are difficult to detect or quantitate (e.g. absences, myoclonic seizures and focal unaware seizures without or minimal motor components) or have no observable manifestation at all (e.g. focal aware seizures with sensory, cognitive, affective manifestations). The difficulties of self-reporting are particularly pronounced in the pediatric population, especially in younger children (Akman et al., 2009) and in patients with intellectual disabilities regardless of age.
Seizure documentation in people living with epilepsy
2021, Epilepsy and BehaviorCitation Excerpt :More research is needed to understand the true impact of these tools on persons living with epilepsy. Some have even suggested de-emphasizing seizure counts in favor of other “global measures of well-being [33].” However, in the meantime, the seizure diary subgroup attending the National Institute of Neurological Disorders and Stroke (NINDS) conference in 2012 made twelve recommendations pertaining to seizure documentation in clinical research [32].
Digital tools for epilepsy: Opportunities and barriers
2020, Epilepsy ResearchCitation Excerpt :Although often discussed separately from self-management topics, the use of trackable data metrics is an increasingly critical element of optimizing epilepsy care. It is well known that patients have difficulty with accurate seizure recall, either due to the nature of an individual’s seizure types or simple recall bias (Fisher et al., 2012; Fisher, 2017). Additionally, medication adherence remains a challenge for many patients, with even a single missed or improperly timed dose potentially leading to a seizure (Paschal et al., 2014).
Seizure detection devices for use in antiseizure medication clinical trials: A systematic review
2019, SeizureCitation Excerpt :The evaluation of anti-seizure medication (ASM) efficacy during clinical trials hinges on collecting accurate and consistent patient-reported outcome measures (PROMs) [1,2].
Epilepsy-related concerns among patients with epilepsy in West China
2018, Epilepsy and Behavior