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Validation of the Brazilian version of the Shame and Stigma Scale (SSS-Br) for patients with head and neck cancers

Published online by Cambridge University Press:  18 July 2019

William Eduardo Pirola ,
Bianca Sakamoto Ribeiro Paiva ,
Cleyton Zanardo de Oliveira ,
Giancarlo Lucchetti ,
Alessandra Lamas Granero Lucchetti ,
David Kissane  and
Carlos Eduardo Paiva
William Eduardo Pirola
Affiliation:
Post-graduate Program in Oncology, Barretos Cancer Hospital, Barretos, SP, Brazil
Bianca Sakamoto Ribeiro Paiva
Affiliation:
Health-Related Quality of Life Research Group (GPQual), Learning and Research Institute, Barretos Cancer Hospital, Barretos, São Paulo, Brazil
Cleyton Zanardo de Oliveira
Affiliation:
Health-Related Quality of Life Research Group (GPQual), Learning and Research Institute, Barretos Cancer Hospital, Barretos, São Paulo, Brazil Education and Research, BP - A Beneficência Portuguesa de São Paulo, São Paulo, SP, Brazil
Giancarlo Lucchetti
Affiliation:
School of Medicine, Federal University of Juiz de Fora, Brazil
Alessandra Lamas Granero Lucchetti
Affiliation:
School of Medicine, Federal University of Juiz de Fora, Brazil
David Kissane
Affiliation:
Departments of Psychiatry and Palliative Care, School of Clinical Sciences at Monash Health, Monash University, Victoria, Australia
Carlos Eduardo Paiva*
Affiliation:
Health-Related Quality of Life Research Group (GPQual), Learning and Research Institute, Barretos Cancer Hospital, Barretos, São Paulo, Brazil Department of Clinical Oncology, Barretos Cancer Hospital, Barretos, São Paulo, Brazil
*
Author for correspondence: Carlos Eduardo Paiva, Departamento de Oncologia Clínica, Divisão de Mama e Ginecologia, Rua Antenor Duarte Vilella, 1331, Bairro Dr Paulo Prata, Barretos, SP, Brasil. CEP: 14784-400. E-mail: caredupai@gmail.com or drcarlosnap@gmail.com.
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Abstract

Objective

To evaluate the psychometric properties of the Brazilian version of the Shame and Stigma Scale (SSS) in a sample of patients with head and neck cancers (HNC).

Methods

This is a validation study carried out in a Brazilian cancer hospital. Patients over 18 years old who knew about their HNC diagnosis were consecutively recruited, answering the SSS, the Functional Assessment of Cancer Therapy (General and Head and Neck supplement) questionnaire, and the University of Washington Quality of Life Questionnaire. Internal consistency, test-retest procedure, convergent validity, and responsiveness analysis were the psychometric properties evaluated.

Results

A total of 122 HNC patients were included. The SSS showed appropriate internal consistency (alphas ranging from 0.71 to 0.86), test-retest reliability (higher than 0.92 with exception of the “Regret domain”), and convergent validity. The responsiveness analysis with 38 patients was able to discriminate the scores before and after prosthetic procedures.

Significance of the Results

The Brazilian Portuguese version of the SSS may be considered a valid and reliable instrument for the evaluation of Brazilian patients with HNC. Future SSS validation studies are welcome in other developing countries in order to make cancer health providers aware of these negative feelings in their HNC patients.

Keywords

Shame and StigmaHead and Neck cancervalidationoncology
Type
Original Article
Information
Palliative & Supportive Care , Volume 18 , Issue 2 , April 2020 , pp. 186 - 192
Copyright
Copyright © Cambridge University Press 2019

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