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Challenges of recruitment and retention of older people from culturally diverse communities in research

Published online by Cambridge University Press:  03 November 2008

SUSAN FELDMAN ,
HARRIET RADERMACHER ,
COLETTE BROWNING ,
STEVE BIRD  and
SHANE THOMAS
SUSAN FELDMAN*
Affiliation:
Healthy Ageing Research Unit, Monash University, Melbourne, Australia.
HARRIET RADERMACHER
Affiliation:
Healthy Ageing Research Unit, Monash University, Melbourne, Australia.
COLETTE BROWNING
Affiliation:
Monash Institute of Health Services Research, Monash University, Melbourne, Australia.
STEVE BIRD
Affiliation:
School of Medical Sciences, RMIT University, Melbourne, Australia.
SHANE THOMAS
Affiliation:
School of Primary Health Care, Monash University, Melbourne, Australia.
*
Address for Correspondence: Susan Feldman, Faculty of Medicine, Nursing and Health Sciences, Monash University, Building 1, 270 Ferntree Gully Rd, Notting Hill, Victoria 3168, Australia. Email: Susan.Feldman@med.monash.edu.au
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Abstract

The substantial and increasing number of older Australian people from culturally diverse backgrounds justifies the investigation and inclusion of their experiences in ageing research. Few empirical studies have addressed culturally diverse issues in the older population, however, in part because of the particular challenges in recruiting and retaining people from different cultural backgrounds. This article reflects on a research team's experience of recruiting participants from seven cultural groups into a study that sought to explore the links between physical activity and the built environment. Three key issues for recruiting and retaining participants from culturally diverse backgrounds were identified: having access to key local informants; the central role of paid and trained bilingual interviewers; and supporting the research partners in recruitment activities. Furthermore, it appeared that a ‘one size fits all’ approach was not appropriate and that a flexible recruitment strategy may be required to ensure successful recruitment from all cultural groups. The differences observed in this study relating to recruitment and retention rates may be more dependent on the skills and characteristics of those responsible for the recruitment and interviewing, rather than the specific cultural group itself. Older people from some cultural backgrounds may be less likely to respond to traditional recruitment methods and researchers need to be more assiduous and strategic to improve participation rates in research.

Keywords

older adultsethnic minoritiescultural diversityrecruitmentretentionmethodology
Type
Research Article
Information
Ageing & Society , Volume 28 , Issue 4 , May 2008 , pp. 473 - 493
Copyright
Copyright © Cambridge University Press 2008

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References

Arean, P. A., Alvidrez, J., Nery, R., Estes, C. and Linkins, K. 2003. Recruitment and retention of older minority in mental health services research. The Gerontologist, 43, 36–44.CrossRefGoogle ScholarPubMed
Australian Bureau of Statistics (ABS) 2001. Health Risk Factors, Australia. Catalogue 4812.0, ABS, Canberra.Google Scholar
Australian Bureau of Statistics 2006 a. Census of Population and Housing: Media Releases and Fact Sheets. Catalogue 2914.0.55.002, ABS, Canberra.Google Scholar
Australian Bureau of Statistics 2006 b. Labour Force Statistics of Migrants. Catalogue 1301.0, ABS, Canberra.Google Scholar
Barata, P. C., Gucciardi, E., Ahmad, F. and Stewart, D. E. 2006. Cross-cultural perspectives on research participation and informed consent. Social Science and Medicine, 62, 2, 479–90.CrossRefGoogle ScholarPubMed
Bowes, A. M. and Dar, N. S. 2000. Researching social care for minority ethnic older people: implications of some Scottish research. British Journal of Social Work, 30, 3, 305–21.CrossRefGoogle Scholar
Brown, D. R. and Alexander, M. 2004. Recruiting and retaining people of color in health research studies: introduction. Journal of Aging and Health, 16, 1, S5–8.CrossRefGoogle Scholar
Brown, B. A., Long, H. L., Weitz, T. A. and Milliken, N. 2000. Challenges of recruitment: focus groups with research study recruiters. Women's Health, 31, 2–3, 153–66.CrossRefGoogle ScholarPubMed
Burnette, D. 1998. Conceptual and methodological considerations in research with non-white ethnic elders. Journal of Social Service Research, 23, 71–91.CrossRefGoogle Scholar
Butt, J. and O'Neil, A. 2004. ‘Let's Move On’: Black and Minority Ethnic Older People's Views on Research Findings. Joseph Rowntree Foundation, York.Google Scholar
Chadiha, L. A., Morrow-Howell, N., Proctor, E. K., Picot, S. J. F., Gillespie, D. C., Pandey, P. and Dey, A. 2004. Involving rural, older African Americans and their female informal caregivers in research. Journal of Aging and Health, 16, 1, S18–38.CrossRefGoogle ScholarPubMed
Curry, L. and Jackson, J. 2003. The science of including older ethnic and racial group participants in health related research. The Gerontologist, 43, 1, 15–17.CrossRefGoogle ScholarPubMed
Dennis, B. P. and Neese, J. B. 2000. Recruitment and retention of African American elders into community-based research: lessons learned. Archives of Psychiatric Nursing, 14, 3–11.CrossRefGoogle ScholarPubMed
Department of Human Services 2001. Victoria Burden of Disease Study: Mortality and Morbidity in 2001. Department of Human Services, Melbourne, Victoria.Google Scholar
Dilworth-Anderson, P. and Williams, S. W. 2004. Recruitment and retention strategies for longitudinal African American caregiving research: the family caregiving project. Journal of Aging and Health, 16, S137–56.CrossRefGoogle ScholarPubMed
Edwards, R. 1998. A critical examination of the use of interpreters in the qualitative research process. Journal of Ethnic and Migration Studies, 24, 1, 197–208.CrossRefGoogle Scholar
Gallagher-Thompson, D., Rabinowitz, Y., Tang, P. C., Tse, C., Kwo, E., Hsu, S., Wang, P. C., Leung, L., Tong, H. Q. and Thompson, L. W. 2006. Recruiting Chinese Americans for dementia caregiver intervention research: suggestions for success. American Journal of Geriatric Psychiatry, 14, 8, 676–83.CrossRefGoogle ScholarPubMed
Garber, M. and Arnold, R. M. 2006. Promoting the participation of minorities in research. American Journal of Bioethics, 6, 3, W14–20.CrossRefGoogle ScholarPubMed
Gibson, D., Braun, P., Behnam, C. and Mason, F. 2001. Projections of Older Immigrants: People from Culturally and Linguistically Diverse Backgrounds, 1996–2026, Australia. Age Care Series 6, Australian Institute of Health and Welfare, Canberra.Google Scholar
Hanley, B. 2005. Research as Empowerment? Report of a Series of Seminars Organised by the Toronto Group. Joseph Rowntree Foundation, York.Google Scholar
Hinton, L., Guo, Z., Hillygus, J. and Levkoff, S. 2000. Working with culture: a qualitative analysis of barriers to the recruitment of Chinese-American family caregivers for dementia research. Journal of Cross-Cultural Gerontology, 15, 119–37.CrossRefGoogle Scholar
Hughes, A. O., Fenton, S. and Hine, C. E. 1995. Strategies for sampling black and ethnic minority populations. Journal of Public Health, 17, 2, 187–92.CrossRefGoogle ScholarPubMed
Kauffman, K. S. 1994. The insider/outsider dilemma: field experience of a white researcher ‘getting in’ a poor black community. Nursing Research, 43, 3, 179–83.CrossRefGoogle Scholar
Keyzer, J. F., Melnikow, J., Kuppermann, M., Birch, S., Kuenneth, C., Nuovo, J., Azari, R., Oto-Kent, D. and Rooney, M. 2005. Recruitment strategies for minority participation: challenges and cost lessons from the POWER interview. Ethnicity and Disease, 15, 3, 395–406.Google ScholarPubMed
Levkoff, S. and Sanchez, H. 2003. Lessons learned about minority recruitment and retention from the centres on minority aging and health promotion. The Gerontologist, 43, 18–26.CrossRefGoogle ScholarPubMed
Levkoff, S. E., Levy, B. R. and Weitzmann, P. 2000. The matching model of recruitment. Journal of Mental Health and Ageing, 6, 29–38.Google Scholar
McLean, C. A. and Campbell, C. M. 2003. Locating research informants in a multi-ethnic community: ethnic identities, social networks and recruitment methods. Ethnicity and Health, 8, 1, 41–61.CrossRefGoogle Scholar
Melbourne Development Board 2005. SEIFA Index of Disadvantage. Available online at http://www.id.com.au/mdb/commprofile/default.asp?id=142&pg=240 [Accessed January 9, 2007].Google Scholar
Miranda, J. 1996. Introduction to the special section on recruiting and retaining minorities in psychotherapy research. Journal of Consulting and Clinical Psychology, 64, 5, 848–50.CrossRefGoogle Scholar
Moreno-John, G., Gachie, A., Fleming, C. M., Napoles-Springer, A., Mutran, E., Manson, S. M. and Perez-Stable, E. J. 2004. Ethnic minority older adults participating in clinical research: developing trust. Journal of Aging and Health, 16, special issue, S93–123.CrossRefGoogle ScholarPubMed
Napoles-Springer, A. M., Fongwa, M. N., Stewart, A. L., Gildengorin, G. and Perez-Stable, E. J. 2004. The effectiveness of an advance notice letter on the recruitment of African Americans and Whites for a mailed patient satisfaction survey. Journal of Aging and Health, 16, S124–36.CrossRefGoogle ScholarPubMed
National Statistics Online 2001. Census 2001. National Statistics, London. Available online at https://www.statistics.gov.uk/census2001/census2001.asp [Accessed 21 November, 2006].Google Scholar
Nichols, L., Martindale-Adams, J., Burns, R., Coon, D., Ory, M., Mahoney, D., Tarlow, B., Burgio, L., Gallagher-Thompson, D., Guy, D., Arguelles, T. and Winter, L. 2004. Social marketing as a framework for recruitment: illustrations from the REACH study. Journal of Aging and Health, 16, S157–176.CrossRefGoogle ScholarPubMed
O'Brien, R. L., Kosoko-Lasaki, O., Cook, C. T., Kissell, J., Peak, F. and Williams, E. H. 2006. Self-assessment of cultural attitudes and competence of clinical investigators to enhance recruitment and participation of minority populations in research. Journal of the National Medical Association, 98, 5, 674–82.Google ScholarPubMed
Shelton, A. J. and Rianon, N. J. 2004. Recruiting participants from a community of Bangladeshi immigrants for a study of spousal abuse: an appropriate cultural approach. Qualitative Health Research, 14, 3, 369–80.CrossRefGoogle ScholarPubMed
Sin, C. H. 2004. Sampling minority ethnic older people in Britain. Ageing & Society, 24, 2, 257–77.CrossRefGoogle Scholar
Sixsmith, J., Boneham, M. and Goldring, J. E. 2003. Accessing the community: gaining insider perspectives from the outside. Qualitative Health Research, 13, 4, 578–89.CrossRefGoogle ScholarPubMed
Smith, L. T. 1999. Decolonizing Methodologies: Research and Indigenous Peoples. University of Otago Press, Dunedin, New Zealand.Google Scholar
Stahl, S. M. and Vasquez, L. 2004. Approaches to improving recruitment and retention of minority elders participating in research: examples from selected research groups including the National Institute on Aging's Resource Centers for Minority Aging Research. Journal of Aging and Health, 16, special issue, S9–17.CrossRefGoogle Scholar
Temple, B. 2002. Crossed wires: interpreters, translators, and bilingual workers in cross-language research. Qualitative Health Research, 12, 6, 844–54.CrossRefGoogle ScholarPubMed
Twine, F. W. 2000. Racial ideologies and racial methodologies. In Twine, F. W. and Warren, J. W. (eds), Racing Research, Researching Race: Methodological Dilemmas in Critical Race Studies. New York University Press, New York, 1–34.Google Scholar
Yancey, A. K., Ortega, A. N. and Kumanyika, S. K. 2006. Effective recruitment and retention of minority research participants. Annual Review of Public Health, 27, 1, 1–28.CrossRefGoogle ScholarPubMed