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Determinants of quality of life in children and adolescents with CHD: a systematic review

Published online by Cambridge University Press:  16 February 2015

Maria Drakouli ,
Konstantinos Petsios ,
Margarita Giannakopoulou ,
Elisabeth Patiraki ,
Ioanna Voutoufianaki  and
Vasiliki Matziou
Maria Drakouli*
Affiliation:
Faculty of Nursing, National and Kapodistrian University of Athens, Athens, Greece Cardiac-Cardiosurgical PICU, “Onassis” Cardiac Surgery Center (O.C.S.C.), Athens, Greece
Konstantinos Petsios
Affiliation:
Cardiac-Cardiosurgical PICU, “Onassis” Cardiac Surgery Center (O.C.S.C.), Athens, Greece
Margarita Giannakopoulou
Affiliation:
Faculty of Nursing, National and Kapodistrian University of Athens, Athens, Greece
Elisabeth Patiraki
Affiliation:
Faculty of Nursing, National and Kapodistrian University of Athens, Athens, Greece
Ioanna Voutoufianaki
Affiliation:
Cardiac-Cardiosurgical PICU, “Onassis” Cardiac Surgery Center (O.C.S.C.), Athens, Greece
Vasiliki Matziou
Affiliation:
Faculty of Nursing, National and Kapodistrian University of Athens, Athens, Greece
*
Correspondence to: M. Drakouli, RN, Msc, PhD(c), Cardiac-Cardiosurgical PICU, “Onassis” Cardiac Surgery Center, 356 Sygrou Avenue, Athens, Greece. Tel: +302109493201; Fax: +302107461500; E-mail: mdrakoul@nurs.uoa.gr
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Abstract

Purpose

This review aims to outline a systematic approach for the assessment of quality of life in children and adolescents with CHD and to cite its main determinants.

Methods

A systematic critical literature search in PubMed, Scopus, and Cinahl databases resulted in 954 papers published after 2000. After the quality assessment, 32 original articles met the inclusion criteria.

Results

Methodological quality of the included studies varied greatly, showing a moderate quality. Impaired quality of life was associated with more severe cardiac lesions. Children with CHD, after cardiac surgery, reported diminished quality of life concerning physical, psycho-social, emotional, and school functioning. The majority of clinical studies showed significant differences among children and their parents’ responses regarding their quality of life, with a tendency of children to report greater quality of life scores than their parents. According to our analysis, concerning children with CHD, the most cited determinants of their quality of life were as follows: (a) parental support; (b) lower socio-economic status; (c) limitations due to physical impairment; (d) sense of coherence; as well as (e) the level of child’s everyday anxiety and depression. These findings suggest that differences in quality of life issues may exist across lesion severities.

Conclusion

Quality of life in children with CHD should be assessed according to age; severity; therapeutic approach; acceptance of the disease; and personality features. Effective management and early recognition of significant impairments in quality of life could impact clinical outcomes in children with CHD.

Keywords

Quality of lifecongenitalheart defectschildrenadolescents
Type
Review Articles
Information
Cardiology in the Young , Volume 25 , Supplement 6 , August 2015 , pp. 1027 - 1036
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Copyright
© Cambridge University Press 2015 

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