Abstract
Spina bifida is a congenital condition of the nervous system. It typically results in paralysis of the lower limbs, hydrocephalus, incontinence of bowel and bladder, lack of sensation below the lesion, and dislocated hips. Children with spina bifida have to cope with lifelong medical care. Despite the fact that spina bifida dates back to Stone Age, its etiology remains unknown. Families of children with spina bifida have received some research attention. Researchers have primarily examined the ways in which spina bifida impinges upon the family's finances, parents' physical/emotional health, marital relationships, social life, caretaking responsibilities, care of other children, attitude toward the disabled child, and career/social/recreational opportunities. However, because of several methodological limitations, the current research findings are inconclusive. There is need for longitudinal studies to really understand the impact of spina bifida on the family. Also, in view of the research that shows spina bifida adults are comparable to their nondisabled peers on significant psychological variables, there is need to understand strengths and positive coping strategies of families of children with spina bifida.
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Singh, D.K. Families of Children with Spina Bifida: A Review. Journal of Developmental and Physical Disabilities 15, 37–55 (2003). https://doi.org/10.1023/A:1021452220291
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DOI: https://doi.org/10.1023/A:1021452220291